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Claire Unique and Her Siblings Two

Claire Unique and Her Siblings Two. Tuesday, April 23, 2013. The Diagnosis(es) is Official. I haven't blogged in a long time. Partly because there really wasn't any new information to tell and partly because other aspects of my life were more urgent. However, we finally have diagnoses so I think it is time to blog. Here is a link to information on Primary Ciliary Dyskinesia http:/ www.nhlbi.nih.gov/health/health-topics/topics/pcd/. Which is a short overview. What does this mean for Claire and Ryan? The t...

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Claire Unique and Her Siblings Two | claireunique.blogspot.com Reviews

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Claire Unique and Her Siblings Two. Tuesday, April 23, 2013. The Diagnosis(es) is Official. I haven't blogged in a long time. Partly because there really wasn't any new information to tell and partly because other aspects of my life were more urgent. However, we finally have diagnoses so I think it is time to blog. Here is a link to information on Primary Ciliary Dyskinesia http:/ www.nhlbi.nih.gov/health/health-topics/topics/pcd/. Which is a short overview. What does this mean for Claire and Ryan? The t...

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Claire Unique and Her Siblings Two | claireunique.blogspot.com Reviews

https://claireunique.blogspot.com

Claire Unique and Her Siblings Two. Tuesday, April 23, 2013. The Diagnosis(es) is Official. I haven't blogged in a long time. Partly because there really wasn't any new information to tell and partly because other aspects of my life were more urgent. However, we finally have diagnoses so I think it is time to blog. Here is a link to information on Primary Ciliary Dyskinesia http:/ www.nhlbi.nih.gov/health/health-topics/topics/pcd/. Which is a short overview. What does this mean for Claire and Ryan? The t...

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claireunique.blogspot.com

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Claire Unique and Her Siblings Two: October 2010

http://claireunique.blogspot.com/2010_10_01_archive.html

Claire Unique and Her Siblings Two. Wednesday, October 27, 2010. I do agree he knows alot about swallowing disorders, etc. He writes articles for journals, does research and reaches out to other doctors across the nation to discuss swallowing and the kids they see with these disorders. Conditions like Claire's are rare so it is often necessary to talk with doctors at other institutions for similar cases, etc. Less than six weeks until we meet the new addition to our household! So after removing milk and ...

2

Claire Unique and Her Siblings Two: March 2012

http://claireunique.blogspot.com/2012_03_01_archive.html

Claire Unique and Her Siblings Two. Tuesday, March 20, 2012. The Surprise and The Wait. So, some of you have kept up via facebook. Some have asked what it meant or for more information. And some may be reading this for the first time. But a few weeks ago we got news that has changed a lot, yet changed very little for our family. What was it you ask? Thanks for keeping up with us! Claire continues in feeding and speech therapy. We are making progress; however, she still struggles with articulation and...

3

Claire Unique and Her Siblings Two: Thoughts Before the Update You Really Want

http://claireunique.blogspot.com/2012/05/thoughts-before-update-you-really-want.html

Claire Unique and Her Siblings Two. Wednesday, May 9, 2012. Thoughts Before the Update You Really Want. And I think it might be time to change the title of the blog. I shall wait until it is confirmed that Ryan and Claire have the same syndrome/disease or whatever it may be. But the doctors seem to think whatever it is they both have it, rare, unique or otherwise. So it may have to read Claire and Ryan both unique. ;). May 9, 2012 at 9:04 PM. Hugs and prayers for you Martha! The News.Not all of it.

4

Claire Unique and Her Siblings Two: Therapy Update

http://claireunique.blogspot.com/2012/03/therapy-update.html

Claire Unique and Her Siblings Two. Tuesday, March 20, 2012. Claire continues in feeding and speech therapy. We are making progress; however, she still struggles with articulation and weakness in her lower jaw. She is talking more and uses words above her age, etc the problem is understanding her. So we continue to work. I will try to keep everyone better updated about our progress in therapy in the future. Our therapists our becoming very much like family. I cannot imagine our lives without them!

5

Claire Unique and Her Siblings Two: The News...Not all of it....

http://claireunique.blogspot.com/2012/05/newsnot-all-of-it.html

Claire Unique and Her Siblings Two. Wednesday, May 9, 2012. The News.Not all of it. The title is somewhat misleading.I will give out all the information I have. I just don't have all the results yet. No one does.well I guess whoever is reading the muscle biopsy might but not anyone here in Little Rock connected to Ryan's case. So here goes.please bare with me.this is complex and somewhat difficult to explain, especially via writing. I will do my best. This should not be a progressive disease, meaning the...

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The Byrdnest: February 2012

http://blog.thebyrdnest.net/2012_02_01_archive.html

My various ramblings as I try to keep everyone upto date on the family. Sunday, February 12, 2012. The kids both received new cameras for Christmas. Eli has always enjoyed playing with the tripod, now he has a camera to use with it. Subscribe to: Posts (Atom). Where Weve Been (and are going). From the Mixed Up Files of Happy Fun Pants. Goodbye and thank you. The Diagnosis(es) is Official. Jenny, David, Braden, and Cameron B. Picture Window template. Powered by Blogger.

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The Byrdnest: May 2011

http://blog.thebyrdnest.net/2011_05_01_archive.html

My various ramblings as I try to keep everyone upto date on the family. Tuesday, May 17, 2011. My Baby Girl is 5? My baby girl turned 5 yesterday. Where has the time gone? Alicia made a doll cake. Eli made her a doll house out of cardboard boxes and egg boxes. Tuesday, May 03, 2011. Alicia really took this and posted it, but emailed posts show up as me. Sunday, May 01, 2011. We hosted Easter at our house again this year (10's a crowd but a good crowd). The annual family pictures. My Baby Girl is 5?

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The Byrdnest: July 2011

http://blog.thebyrdnest.net/2011_07_01_archive.html

My various ramblings as I try to keep everyone upto date on the family. Sunday, July 17, 2011. I know, I know (again). Yea yea yea, I know, I know, I'm slacking. Let's see, we went on vacation (I've got a draft post around here somewhere that I need to finish up). The kids competed on the neighborhood swim team. Errr, it's been hotter than blazes. We went GeoCaching today. Subscribe to: Posts (Atom). Where Weve Been (and are going). I know, I know (again). From the Mixed Up Files of Happy Fun Pants.

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The Byrdnest: September 2011

http://blog.thebyrdnest.net/2011_09_01_archive.html

My various ramblings as I try to keep everyone upto date on the family. Sunday, September 11, 2011. Nana and PawPaw's Pool. Nana and PawPaw finally have water in their pool, so we went to go check it out. Let's just say, it was brisk. The kids didn't care. Subscribe to: Posts (Atom). Where Weve Been (and are going). Nana and PawPaws Pool. From the Mixed Up Files of Happy Fun Pants. Goodbye and thank you. The Diagnosis(es) is Official. Jenny, David, Braden, and Cameron B.

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The Byrdnest: My Baby Girl is 5?

http://blog.thebyrdnest.net/2011/05/my-baby-girl-is-5.html

My various ramblings as I try to keep everyone upto date on the family. Tuesday, May 17, 2011. My Baby Girl is 5? My baby girl turned 5 yesterday. Where has the time gone? Alicia made a doll cake. Eli made her a doll house out of cardboard boxes and egg boxes. Subscribe to: Post Comments (Atom). Where Weve Been (and are going). My Baby Girl is 5? From the Mixed Up Files of Happy Fun Pants. Goodbye and thank you. The Diagnosis(es) is Official. Jenny, David, Braden, and Cameron B.

blog.thebyrdnest.net

The Byrdnest: June 2011

http://blog.thebyrdnest.net/2011_06_01_archive.html

My various ramblings as I try to keep everyone upto date on the family. Wednesday, June 01, 2011. 500 or $50 about an hour. So, an hour and a half later, both headlights are swapped out. And now that I know how to do it I bet I can swap them in 30 minutes. Subscribe to: Posts (Atom). Where Weve Been (and are going). 500 or $50 about an hour. From the Mixed Up Files of Happy Fun Pants. Goodbye and thank you. The Diagnosis(es) is Official. Jenny, David, Braden, and Cameron B.

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The Byrdnest: March 2011

http://blog.thebyrdnest.net/2011_03_01_archive.html

My various ramblings as I try to keep everyone upto date on the family. Monday, March 28, 2011. We took a couple of days off from work during spring break and towed Nana and PawPaw's palace-on-wheels (aka The Camper) to Crater of Diamonds State Park. It was a learning experience towing a 27' trailer behind the Excursion but our 40 ' of traveling steel made it down the road just fine. Saturday afternoon Paw-Paw towed the camper to his house we could load it, learn about it, etc. Saturday, March 26, 2011.

blog.thebyrdnest.net

The Byrdnest: I know, I know (again)

http://blog.thebyrdnest.net/2011/07/i-know-i-know-again.html

My various ramblings as I try to keep everyone upto date on the family. Sunday, July 17, 2011. I know, I know (again). Yea yea yea, I know, I know, I'm slacking. Let's see, we went on vacation (I've got a draft post around here somewhere that I need to finish up). The kids competed on the neighborhood swim team. Errr, it's been hotter than blazes. We went GeoCaching today. Subscribe to: Post Comments (Atom). Where Weve Been (and are going). I know, I know (again). Goodbye and thank you.

blog.thebyrdnest.net

The Byrdnest: December 2010

http://blog.thebyrdnest.net/2010_12_01_archive.html

My various ramblings as I try to keep everyone upto date on the family. Saturday, December 25, 2010. Welcome to the end of December. The kids posed nicely for a picture in front of the tree. And were very cooperative for a family photo in front of the fireplace. When we got to KC we helped Oma and Opa finish decorating their tree. Then Opa treated us to lunch at Fritz's. You order via a phone at your booth. Then your order arrives via train (a human brings your drinks). Ben read Emily her stories.

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Claire Unique and Her Siblings Two

Claire Unique and Her Siblings Two. Tuesday, April 23, 2013. The Diagnosis(es) is Official. I haven't blogged in a long time. Partly because there really wasn't any new information to tell and partly because other aspects of my life were more urgent. However, we finally have diagnoses so I think it is time to blog. Here is a link to information on Primary Ciliary Dyskinesia http:/ www.nhlbi.nih.gov/health/health-topics/topics/pcd/. Which is a short overview. What does this mean for Claire and Ryan? The t...

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