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These Are The Days

These Are The Days. Monday, November 25, 2013. Mending A Broken Heart. Its time to cut it out.". These were the words uttered with sadness by our beloved cardiologist. These were the words I had prayed we would never hear. Me: "Soon.like before Christmas? Soon Like next week.". If only Lenay's aorta had held up its end of the bargain! The problem is that even though she has obviously gotten a lot bigger since she was 6 months old, the pressure gradient has stayed the same. And that time has come. I had t...

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These Are The Days | cleanwhitefamily.blogspot.com Reviews

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These Are The Days. Monday, November 25, 2013. Mending A Broken Heart. Its time to cut it out.. These were the words uttered with sadness by our beloved cardiologist. These were the words I had prayed we would never hear. Me: Soon.like before Christmas? Soon Like next week.. If only Lenay's aorta had held up its end of the bargain! The problem is that even though she has obviously gotten a lot bigger since she was 6 months old, the pressure gradient has stayed the same. And that time has come. I had t...

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2 leg cramps

3 belly aches

4 she's amazing really

5 and now

6 posted by

7 andrea

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and soon,leg cramps,belly aches,she's amazing really,and now,posted by,andrea,no comments,email this,blogthis,share to twitter,share to facebook,share to pinterest,van nostalgia,1 comment,i was skeptical,he was right,go cam,his response,great i am,poop

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These Are The Days | cleanwhitefamily.blogspot.com Reviews

https://cleanwhitefamily.blogspot.com

These Are The Days. Monday, November 25, 2013. Mending A Broken Heart. Its time to cut it out.". These were the words uttered with sadness by our beloved cardiologist. These were the words I had prayed we would never hear. Me: "Soon.like before Christmas? Soon Like next week.". If only Lenay's aorta had held up its end of the bargain! The problem is that even though she has obviously gotten a lot bigger since she was 6 months old, the pressure gradient has stayed the same. And that time has come. I had t...

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cleanwhitefamily.blogspot.com

1

These Are The Days: Floaters

http://www.cleanwhitefamily.blogspot.com/2011/09/floaters.html

These Are The Days. Sunday, September 18, 2011. A few months ago, we were out to dinner with friends. You know, having some adult time. And yet, being the parents of small children as we all are, the conversation of course went south quickly. To the oh so appetizing topic of pooping in the tub. So everyone gets the idea that pooping in the tub is not cool. As they were telling this story, I was laughing hysterically. I mean, who ever heard of this? It was something we had never encountered before. What's...

2

These Are The Days: 1000 Grams of Hope

http://www.cleanwhitefamily.blogspot.com/2011/01/1000-grams-of-hope.html

These Are The Days. Friday, January 21, 2011. 1000 Grams of Hope. Okay So where do we go from here? The whole thing seemed surreal. Dr. R, the perinatologist, calmly explained that she would do two things for me. 1) I will arrange a NICU tour. Take a look around. Get acquainted. You can see what a 2 lb, 28 week gestation baby looks like. 2) I will arrange a neonatologist consult. The doctor will come to your room and will be able to address any questions or concerns you may have. But now it was different.

3

These Are The Days: Deep Breaths

http://www.cleanwhitefamily.blogspot.com/2011/01/deep-breaths.html

These Are The Days. Sunday, January 23, 2011. A short while later we were visited by one of the neonatologists. I liked her right away. She was very kind, and she started off by telling us that her own son was born premature and was a patient in this NICU. Wow, I thought. She's been here. She knows what this experience is like from the parent perspective. She explained where our babies were developmentally at 28 weeks. She went on to tell me what would happen if I were to deliver today. She explained tha...

4

These Are The Days: Great I Am

http://www.cleanwhitefamily.blogspot.com/2011/12/great-i-am.html

These Are The Days. Friday, December 2, 2011. There is a song that we sing in church that gets me every time we sing it. Its a beautiful song. Maybe you've heard it. Its called "Great I Am". And one lyric in particular just pierces my heart. Every single time. In a good way. Its a line that, had I not lost my dad, would probably not have much meaning. And honestly those who have not experienced a loss like that, might even find those words grotesque. But they bring me great comfort. Mending A Broken Heart.

5

These Are The Days: Mending A Broken Heart

http://www.cleanwhitefamily.blogspot.com/2013/11/mending-broken-heart.html

These Are The Days. Monday, November 25, 2013. Mending A Broken Heart. Its time to cut it out.". These were the words uttered with sadness by our beloved cardiologist. These were the words I had prayed we would never hear. Me: "Soon.like before Christmas? Soon Like next week.". If only Lenay's aorta had held up its end of the bargain! The problem is that even though she has obviously gotten a lot bigger since she was 6 months old, the pressure gradient has stayed the same. And that time has come. I had t...

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cleanwhitefamily.blogspot.com

These Are The Days

These Are The Days. Monday, November 25, 2013. Mending A Broken Heart. Its time to cut it out.". These were the words uttered with sadness by our beloved cardiologist. These were the words I had prayed we would never hear. Me: "Soon.like before Christmas? Soon Like next week.". If only Lenay's aorta had held up its end of the bargain! The problem is that even though she has obviously gotten a lot bigger since she was 6 months old, the pressure gradient has stayed the same. And that time has come. I had t...

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