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CLL DiaryLIVING WITH CHRONIC LYMPHOCYTIC LEUKEMIA, RICHTER'S TRANSFORMATION, DLBCL, AND EVERYTHING ELSE
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LIVING WITH CHRONIC LYMPHOCYTIC LEUKEMIA, RICHTER'S TRANSFORMATION, DLBCL, AND EVERYTHING ELSE
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LIVING WITH CHRONIC LYMPHOCYTIC LEUKEMIA, RICHTER'S TRANSFORMATION, DLBCL, AND EVERYTHING ELSE
clldiary.blogspot.com
CLL Diary: April nightmare; May resolve
http://clldiary.blogspot.com/2013/06/april-nightmare-may-resolve-part-1.html
LIVING WITH CHRONIC LYMPHOCYTIC LEUKEMIA, RICHTER'S TRANSFORMATION, DLBCL, AND EVERYTHING ELSE. Sunday, June 02, 2013. April nightmare; May resolve. When last I wrote. Things were looking pretty good. I had gotten a better-than-expected result from bendamustine and rituximab. I was planning on seeing expert Dr. Thomas Kipps at UC San Diego on April 25 to discuss maintenance ideas or what to do at relapse; perhaps one of the BTK inhibitor trials would be a possibility. Now, for those who don't know. A dro...
CLL Diary: The road ahead
http://clldiary.blogspot.com/2014/02/the-road-ahead.html
LIVING WITH CHRONIC LYMPHOCYTIC LEUKEMIA, RICHTER'S TRANSFORMATION, DLBCL, AND EVERYTHING ELSE. Thursday, February 13, 2014. I've met with my transplant/CLL doctor, Jose Leis, at the Mayo Clinic in Phoenix. He was pleased with my response to Ibrutinib - dramatic shrinkage of abdominal nodes - and laid out the course I will be following in the coming months. And get those nodes down. Meanwhile, a donor has been found. Somewhere out there is a man in his 40s. With most varieties of CLL, time is not of the ...
CLL Diary
http://clldiary.blogspot.com/2014/04/my-beloved-soulmate-david-died-on-march.html
LIVING WITH CHRONIC LYMPHOCYTIC LEUKEMIA, RICHTER'S TRANSFORMATION, DLBCL, AND EVERYTHING ELSE. Friday, April 04, 2014. My beloved soulmate, David, died on March 6. I'll post details when I'm emotionally able. Carolina Creations - Jan and Michael Francoeur. Oh Marilyn we are so sorry. April 4, 2014 at 6:50:00 PM MST. May he rest in peace. April 4, 2014 at 7:20:00 PM MST. April 5, 2014 at 5:28:00 AM MST. Skin Plus plastic surgery facility and consult with an experienced breast lift delhi. Dear Marilyn ,.
CLL Diary: August 2013
http://clldiary.blogspot.com/2013_08_01_archive.html
LIVING WITH CHRONIC LYMPHOCYTIC LEUKEMIA, RICHTER'S TRANSFORMATION, DLBCL, AND EVERYTHING ELSE. Sunday, August 25, 2013. The cancer survivors park. Marilyn and I ran across a sculpture garden devoted to cancer survivors in a park near downtown Santa Rosa, California. It's properly known as the Richard and Annette Bloch Cancer Survivors Plaza at Fremont Park. Was an unexpected pleasure and an inspirational place. Links to this post. Subscribe to: Posts (Atom). ME AND MY DIARY. And so, my life has changed&...
CLL Diary: Bendamustine and rituximab: the verdict
http://clldiary.blogspot.com/2013/03/bendamustine-and-rituximab-verdict.html
LIVING WITH CHRONIC LYMPHOCYTIC LEUKEMIA, RICHTER'S TRANSFORMATION, DLBCL, AND EVERYTHING ELSE. Sunday, March 17, 2013. Bendamustine and rituximab: the verdict. The results are in. After five cycles of bendamustine (Treanda) and rituximab, which ended in mid-November, I can report that the treatment worked better than I expected. I have to admit that I just about fell out of my chair upon hearing the news. I was hoping, at best, for maybe 20% CLL in the marrow, a significant reduction, to be sure....
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Our Journey...: Why Wait?
http://tamarafowler.blogspot.com/2015/05/why-wait.html
May 19, 2015. Yesterday was a frustrating day at MDA. Results from my bone marrow biopsy were inconclusive on the day that we had thought. That we would decide on the next steps in my treatment plan. Instead, we would have to wait until the cytogenetics (FISH) results came back and probably reschedule another BMB. :/. I have leaned toward my stem cell’s doctor’s view because I like NOT having leukemia! While I have determined every day to lay this at the Lord’s feet, it does require a daily decisio...
Our Journey...: Keep Believing!
http://tamarafowler.blogspot.com/2015/05/keep-believing.html
May 14, 2015. The other morning, I woke up and walked into the kitchen to get my coffee and found that my favorite wooden “Believe” plaque had fallen from the wall above my pantry door and shattered into several pieces. I was really sad. I have had that piece for quite some time and it was very special to me…for several reasons. 8220;May the God of hope fill you with all joy and peace in believing, so that by the power of the Holy Spirit you may abound in hope.”. 8220;So do not fear, for I am with you;.
The CLL Ranch: April 2013
http://thecllranch.blogspot.com/2013_04_01_archive.html
The landscape is vast, and much is obscured by mist. Some things are known, others knowable, perhaps still others, unknowable. Science and patients as part of clinical trials, done formally or on their own, can push away some of the mist, bringing heretofore hidden details about chronic lymphocytic leukemia into the open, at last. Sunday, April 14, 2013. More side effects from trial. So I took myself off the budesonide. It's taken a while, but the diarrhea has returned with a vengeance. So now I'...That'...
The CLL Ranch: August 2012
http://thecllranch.blogspot.com/2012_08_01_archive.html
The landscape is vast, and much is obscured by mist. Some things are known, others knowable, perhaps still others, unknowable. Science and patients as part of clinical trials, done formally or on their own, can push away some of the mist, bringing heretofore hidden details about chronic lymphocytic leukemia into the open, at last. Thursday, August 23, 2012. Not much to report. So, I supppose no news is good news. Subscribe to: Posts (Atom). Margaret's Corner (living with myeloma). 1,000,402 page views.
Our Journey...: May 2015
http://tamarafowler.blogspot.com/2015_05_01_archive.html
May 19, 2015. Yesterday was a frustrating day at MDA. Results from my bone marrow biopsy were inconclusive on the day that we had thought. That we would decide on the next steps in my treatment plan. Instead, we would have to wait until the cytogenetics (FISH) results came back and probably reschedule another BMB. :/. I have leaned toward my stem cell’s doctor’s view because I like NOT having leukemia! While I have determined every day to lay this at the Lord’s feet, it does require a daily decisio...
The CLL Ranch: May 2011
http://thecllranch.blogspot.com/2011_05_01_archive.html
The landscape is vast, and much is obscured by mist. Some things are known, others knowable, perhaps still others, unknowable. Science and patients as part of clinical trials, done formally or on their own, can push away some of the mist, bringing heretofore hidden details about chronic lymphocytic leukemia into the open, at last. Tuesday, May 10, 2011. Now, crashing neutrophils. In fact, I feel fine! Sunday, another good day. Church was nice. By Sunday afternoon, I thought maybe I had crossed th...I'm o...
The CLL Ranch: Latest on GS-1101 (CAL-101)
http://thecllranch.blogspot.com/2012/11/latest-on-gs-1101-cal-101.html
The landscape is vast, and much is obscured by mist. Some things are known, others knowable, perhaps still others, unknowable. Science and patients as part of clinical trials, done formally or on their own, can push away some of the mist, bringing heretofore hidden details about chronic lymphocytic leukemia into the open, at last. Wednesday, November 21, 2012. Latest on GS-1101 (CAL-101). Happy Thanksgiving, all! That only lasted about a month, but thats what happened. After my transplant, which was abou...
The CLL Ranch: April 2012
http://thecllranch.blogspot.com/2012_04_01_archive.html
The landscape is vast, and much is obscured by mist. Some things are known, others knowable, perhaps still others, unknowable. Science and patients as part of clinical trials, done formally or on their own, can push away some of the mist, bringing heretofore hidden details about chronic lymphocytic leukemia into the open, at last. Monday, April 30, 2012. So what do I do now? Do I gamble more on CAL-101? Don't know. Will see. Let the docs look me over. 13 and one half years of CLL is long enough! His grou...
Steve Maddens CLL Experiences: At Last Someone Cares
http://ozcll.blogspot.com/2005/12/at-last-someone-cares.html
Steve Maddens CLL Experiences. Friday, December 02, 2005. At Last Someone Cares. I was anxious as I drove down the Bruce Highway to Brisbane (For all you Monty Python fans it really is called "The Bruce") would I get the same treatment from Dr. Steve? Was I worrying about nothing? No my aches and pains were getting worse I was beginning to be unable to function, walking was painful and I was sleeping all night and half the day. We Don't Know" was still the answer. Posted by Steve Madden.
Steve Maddens CLL Experiences
http://ozcll.blogspot.com/2005/12/well-i-thought-i-better-show-my-ugly.html
Steve Maddens CLL Experiences. Friday, December 02, 2005. Posted by Steve Madden. Subscribe to: Post Comments (Atom). This disease is absurd. Totally absurd and ludicro. The Aches and Pains Saga. Well i thought I better show my ugly mug to you, . CAT Scans and BMBs. At Last Someone Cares. The Seaside Village of Coolum Beach. Looking North towards Noosa Heads 27 Kilometers o. Do you think thats me? Tell Me why or why not. The Hunt for Knowledge. View my complete profile.
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What would you do if you knew you couldn't fail?
What would you do if you knew you couldn't fail? Integral Eye Movement Therapy (IEMT). New Year, New You and all that bulls* t. Clean Sheets and Shaved Legs. Resilience – ‘the action or an act of rebounding or springing back; rebound, recoil’. Integral Eye Movement Therapy (IEMT). New Year, New You and all that bulls* t. Clean Sheets and Shaved Legs. Resilience – ‘the action or an act of rebounding or springing back; rebound, recoil’. How often do you dream about a different future? Have you ever started...
Welcome to Continual Lifelong Development - CLL Development
Goal Mapping For Business. Live your life without regrets . . . How often have you heard people say ‘I wish I’d done x’, or ‘if only I’d tried y I wonder how life would have turned out’. Dreaming about a different future is common and so is procrastination. We all strive to be better;. To learn something new. Move to a bigger house. Get a better job. Eat more healthily . . . the list goes on. How often do you dream about a different future? Can you change from talking to doing? Continual Lifelong (CLL) D...
The Comic Legends Legal Defense Fund
CLLDF at Edmonton Expo 2017. September 2nd, 2017. And had illustrated several card games for Steve Jackson Games, including Munchkin Fu, Ninja Burger, Chez Guevara, Burn In Hell, and Munchkin Zombies Artist Edition. Greg will be the special guest for the weekend helping to raise funds and awareness for the CLLDF at booth 911, doing full inked, custom drawings for $40 each. Posted in Convention Appearances. Comments Off on CLLDF at Edmonton Expo 2017. At the Edmonton Expo! September 9th, 2016. August 23rd...
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CLL Diary
LIVING WITH CHRONIC LYMPHOCYTIC LEUKEMIA, RICHTER'S TRANSFORMATION, DLBCL, AND EVERYTHING ELSE. Friday, April 04, 2014. My beloved soulmate, David, died on March 6. I'll post details when I'm emotionally able. Links to this post. Thursday, February 13, 2014. I've met with my transplant/CLL doctor, Jose Leis, at the Mayo Clinic in Phoenix. He was pleased with my response to Ibrutinib - dramatic shrinkage of abdominal nodes - and laid out the course I will be following in the coming months. With most varie...
CLL Dork Goes Raw
CLL Dork Goes Raw. Friday, September 11, 2009. Bummer - Weekend Washout. The backpacking trip on Fire Island has been cancelled. All my gear was ready - dusted off and aired out since my last backpacking trip a year ago in Oregon. The good news is that I've been exchanging emails with the organizer and she will be planning other backpacking adventures! I found a website that sells freeze dried vegetarian meals for backpacking - http:/ www.packlitefoods.com/. My order should arrive any day now! The people...
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