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Luke and Congenital Myasthenic Syndrome

Wednesday, May 1, 2013. For Congenital Myasthenic Syndrome. Hi everyone, I wanted to post about a facebook group that is really amazing for us CMS'ers. Here is the LINK: Congenital Myasthenic Facebook GROUP. Please ask to join the group. It's private.but let them know your history and diagnosis and Denise will ADD you. It's up to 453 MEMBERS. WHOOT! Have a great day. In the meantime.Here's a pic of LUKE and Hannah in the bluebonnets. He's being goofy and sitting in her lap! Andrea The H family. He's read...

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Luke and Congenital Myasthenic Syndrome | cmsluke.blogspot.com Reviews

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Wednesday, May 1, 2013. For Congenital Myasthenic Syndrome. Hi everyone, I wanted to post about a facebook group that is really amazing for us CMS'ers. Here is the LINK: Congenital Myasthenic Facebook GROUP. Please ask to join the group. It's private.but let them know your history and diagnosis and Denise will ADD you. It's up to 453 MEMBERS. WHOOT! Have a great day. In the meantime.Here's a pic of LUKE and Hannah in the bluebonnets. He's being goofy and sitting in her lap! Andrea The H family. He's read...

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1 community facebook group

2 posted by

3 no comments

4 merry christmas

5 luke is reading

6 5 comments

7 it was ready

8 7 comments

9 piano recital

10 luke did amazing

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community facebook group,posted by,no comments,merry christmas,luke is reading,5 comments,it was ready,7 comments,piano recital,luke did amazing,it was amazing,they were amazing,love you,4 comments,luke's preschool graduation,so precious,here you go,hugs

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Luke and Congenital Myasthenic Syndrome | cmsluke.blogspot.com Reviews

https://cmsluke.blogspot.com

Wednesday, May 1, 2013. For Congenital Myasthenic Syndrome. Hi everyone, I wanted to post about a facebook group that is really amazing for us CMS'ers. Here is the LINK: Congenital Myasthenic Facebook GROUP. Please ask to join the group. It's private.but let them know your history and diagnosis and Denise will ADD you. It's up to 453 MEMBERS. WHOOT! Have a great day. In the meantime.Here's a pic of LUKE and Hannah in the bluebonnets. He's being goofy and sitting in her lap! Andrea The H family. He's read...

INTERNAL PAGES

cmsluke.blogspot.com

1

Luke and Congenital Myasthenic Syndrome: Goal for 2011.

http://cmsluke.blogspot.com/2011/01/goal-for-2011.html

Monday, January 10, 2011. Time of day: 3pm. Shirt of choice: His jammy top from the night before. Shoes: His monkey house shoes. Temperature outside: Have no clue. Age of kid: 5. Where is his sister? The million dollar question: What do I look like? Judgement: go ahead.I'm numb and exhausted.hey, at least I'm the historian here. Goals for 2011: Be a better mom. LOL! Andrea "The H family". Thanks for your sharing! I am operateing Wedding Dress Shops. And Christian Louboutin Shoes. Sac Chane pas cher.

2

Luke and Congenital Myasthenic Syndrome: Snow staycation

http://cmsluke.blogspot.com/2011/02/snow-staycation.html

Friday, February 4, 2011. I call these pictures "SNOW GO". Please.GO. As you can see, the babes love the snow. I had to get a few shots of this for Luke and Hannah bow because if God keeps them in Texas for as long as me/jon.then they might possibly not see this again in another 25 years. At least that's how long it's been for us! Andrea "The H family". Sac Louis Vuitton Pas Cher. Sac Chane pas cher. Chaussures Nike Pas Cher. January 31, 2012 at 7:22 PM. Are in the pictures! Could you help me? 240ml of N...

3

Luke and Congenital Myasthenic Syndrome: Me and the babes! (Congenital Myasthenic Syndrome)

http://cmsluke.blogspot.com/2011/01/me-and-babes.html

Monday, January 10, 2011. Me and the babes! I was blessed with the Shuffields coming in town! We had the most amazing time ever! Here's a sneak peek of Tisha's pics! I love finally having pictures of me and the kids! This is one of many that I adore. I'm currently blowing up now and printing wraps for the walls next week. Can't wait to get them in. Thank you Shuffields.I'm in love with them! Andrea "The H family". Holistic Dental – Cosmetic Dentist Melbourne. Nice Post about dentistry. Sac Chane pas cher.

4

Luke and Congenital Myasthenic Syndrome: Merry Christmas!

http://cmsluke.blogspot.com/2012/12/merry-christmas.html

Monday, December 10, 2012. Well, it's that time again. The Holidays are here. Every year we take Santa pics with the entire family. It's a blast. Of course I'm a wreck and praying the kids do well. Sometimes Luke will get a bit of sensory overload. Hannah is full on and ready to go! LOL Here is our 2012 Christmas Santa pic. Enjoy! Andrea "The H family". Subscribe to: Post Comments (Atom). Luke and Congenital Myasthenic Syndrome. Our email: andrea@astudioproductions.com. Live video of changing a gtube out.

5

Luke and Congenital Myasthenic Syndrome: Estou pedindo orações para a minha família, por favor.

http://cmsluke.blogspot.com/2015/03/i-am-asking-prayers-for-my-family-please.html

Sunday, March 29, 2015. Estou pedindo orações para a minha família, por favor. Muitas orações para mim e Jonathan. O ano de 2014 foi de mudança de vida para os meus filhos e para mim. Por favor, orem por mim e Jonathan. Um terceiro partido retomou o meu casamento. Please click on this thumbnail below to view:. Por favor, clique nesta imagem abaixo:. Andrea "The H family". Subscribe to: Post Comments (Atom). Luke and Congenital Myasthenic Syndrome. Our email: andrea@astudioproductions.com. 5ml 4x a day5.

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landonwarren.blogspot.com

Landon Warren: May 2012

http://landonwarren.blogspot.com/2012_05_01_archive.html

Pending a diagnosis and a cure www.HelpLandon.com. Thursday, May 3, 2012. Landon in TiLite Wheelchair. Landon was working hard today at therapy in a manual light weight wheelchair! Subscribe to: Posts (Atom). Promote Your Page Too. There was an error in this gadget. WwwHelpLandon.com A baby boy looking for a diagnosis and a cure. Pending? View my complete profile. Landon in TiLite Wheelchair. There was an error in this gadget. Luke and Congenital Myasthenic Syndrome. There was an error in this gadget.

landonwarren.blogspot.com

Landon Warren: February 2011

http://landonwarren.blogspot.com/2011_02_01_archive.html

Pending a diagnosis and a cure www.HelpLandon.com. Tuesday, February 15, 2011. Well 3 weeks after we were at the hospital being diagnosed with RSV we were back in the same place have more cultures and x-rays taken only to find out not only does he still have RSV but now 4 other bacteria infections in his lungs. (Klebsiella-oxytoca, Pseudomonas-aeruginosa, Serratia-marcescens, and Acinetobacter-baumannii) That is crazy who gets all of this at one time? Thanks for all you prayers. Subscribe to: Posts (Atom).

landonwarren.blogspot.com

Landon Warren: Landon is now at Little Light House

http://landonwarren.blogspot.com/2012/08/landon-is-now-at-little-light-house.html

Pending a diagnosis and a cure www.HelpLandon.com. Saturday, August 11, 2012. Landon is now at Little Light House. Would love your help in sponsorship to help the school stay open and help all the special kids. Just click on the link and say you will sponsor Landon and they will send you a tax receipt. Thank you. Https:/ sna.etapestry.com/fundraiser/TheLittleLighthouse/MiniLaps2012/individual.do? Subscribe to: Post Comments (Atom). Promote Your Page Too. There was an error in this gadget.

landonwarren.blogspot.com

Landon Warren: February 2012

http://landonwarren.blogspot.com/2012_02_01_archive.html

Pending a diagnosis and a cure www.HelpLandon.com. Friday, February 17, 2012. Landon's new mini me. Wednesday, February 15, 2012. Bath time with a open trach hole and a non sitting child is not easy but we use our baby seat and do the best we can. NO splashing allowed :). Thursday, February 2, 2012. Subscribe to: Posts (Atom). Promote Your Page Too. There was an error in this gadget. WwwHelpLandon.com A baby boy looking for a diagnosis and a cure. Pending? View my complete profile. Landons new mini me.

landonwarren.blogspot.com

Landon Warren: Light Box Fun

http://landonwarren.blogspot.com/2012/02/light-box-fun.html

Pending a diagnosis and a cure www.HelpLandon.com. Thursday, February 2, 2012. Subscribe to: Post Comments (Atom). Promote Your Page Too. There was an error in this gadget. WwwHelpLandon.com A baby boy looking for a diagnosis and a cure. Pending? View my complete profile. Landons new mini me. There was an error in this gadget. Luke and Congenital Myasthenic Syndrome. Estou pedindo orações para a minha família, por favor. Carter Family and Congenital Myasthenic Syndrome. There was an error in this gadget.

landonwarren.blogspot.com

Landon Warren: November 2010

http://landonwarren.blogspot.com/2010_11_01_archive.html

Pending a diagnosis and a cure www.HelpLandon.com. Thursday, November 4, 2010. Landon tested a KidWalk during his physical therapy sessions for weeks. Now with the help from our therapist and insurance Landon now has one of his own to use at home! Subscribe to: Posts (Atom). Promote Your Page Too. There was an error in this gadget. WwwHelpLandon.com A baby boy looking for a diagnosis and a cure. Pending? View my complete profile. There was an error in this gadget. Luke and Congenital Myasthenic Syndrome.

landonwarren.blogspot.com

Landon Warren: September 2010

http://landonwarren.blogspot.com/2010_09_01_archive.html

Pending a diagnosis and a cure www.HelpLandon.com. Thursday, September 30, 2010. TSH (Thyroid Stimulating Hormone). Newborn Metabolic Screen (T4/PKU)-several times. Caffeine (at least Monthly since 4 weeks old). Spinal Muscular Atrophy (Types 1,2,3,&SMARD1). Congenital Myasthenic Syndrome (CMS)-only 60% ruled out. Blood Amino Acids-Quantitative-the list is huge. Blood Chromosomes-result 46, XY. Thymidine kinase 2 -. Blood Urea Nitrogen (BUN). Very Long Chain Fatty Acid(VLCFA)-pending.

laurenet0112358.blogspot.com

News From the Liminal State: Meh....

http://laurenet0112358.blogspot.com/2012/06/meh.html

News From the Liminal State. Words from betwixt and between. So here's the deal "readers" (i.e. Kristen). My bad. Sorry I haven't blogged in forever. I know.I am super unreliable when it comes to doing personal blogging stuff. Here's my list of excuses. Many are real. Many are fake. Guess the right ones and you win a cake. 1 my life is pretty boring, and nobody wants to hear about it. 2 my life is actually not at all boring, and I'm so busy living a cool life that I forget to tell people about it. 6 Othe...

cmsken.blogspot.com

Ken and Congenital Myasthenic Syndrome: Am I still sick?

http://cmsken.blogspot.com/2008/09/am-i-still-sick.html

Ken and Congenital Myasthenic Syndrome. Friday, September 26, 2008. Am I still sick? I don't even know that I have CMS anymore. I don't have any symtoms. I've only been taking 1 60mg Mestinon tablet, and 1 2mg Albuterol tablet 3 times a day (with meals).and I don't feel ANY symptoms.none. Of course, my attitude is infinitely better. I also have a new permanent full-time job doing web and graphic design, which is very satisfying. The only thing missing is my wife. October 6, 2008 at 6:32 AM. Dr Steven P&#...

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cmsluke.blogspot.com

Luke and Congenital Myasthenic Syndrome

Wednesday, May 1, 2013. For Congenital Myasthenic Syndrome. Hi everyone, I wanted to post about a facebook group that is really amazing for us CMS'ers. Here is the LINK: Congenital Myasthenic Facebook GROUP. Please ask to join the group. It's private.but let them know your history and diagnosis and Denise will ADD you. It's up to 453 MEMBERS. WHOOT! Have a great day. In the meantime.Here's a pic of LUKE and Hannah in the bluebonnets. He's being goofy and sitting in her lap! Andrea The H family. He's read...

cmsluke.tripod.com

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Community Montessori Lunch Project

Community Montessori Lunch Project. Organic Lunch on Wednesdays. Monday, August 13, 2012. New Blog and New lunch program. Hi families. Denyse, Aiden's mother, is taking over the school lunch program. Please contact her with any questions. Her email address is: denyseore@gmail.com. Thank you you so much for letting me feed your kids over the past few months. I have enjoyed doing it. Tuesday, July 10, 2012. Week of July 9, 2012. Monday: *Mushrooms and zucchini in miso broth over brown rice. 1 TBSP olive oil.

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