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Last Showing of Fierce Love | Lydia Unicorn
https://lydiaunicorn.wordpress.com/2015/04/06/last-show-of-fierce-love
Learning how to take care of our rare and magical daughter. Last Showing of Fierce Love. April 6, 2015. 8220;Fierce Love” had it’s last run on Saturday. It was sold out, as were the two shows before it. It was an enthralling performance and my favorite of the five shows, but just by a little because I enjoyed them all so much. What an experience it was to participate in writing a play! Seems like a dream. And the local radio station: https:/ kboo.fm/wellartsshenyun. Dear Well Arts,. Tags : fierce love.
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Medical Summary | Lydia Unicorn
https://lydiaunicorn.wordpress.com/medical-summary
Learning how to take care of our rare and magical daughter. 8211; Intractable epilepsy/Infantile Spasms/Hypsarrhythmia – seizures first diagnosed at 4-months-old. 8211; Brain malformations / MRI findings:. Delayed myelination, absent white matter in both cerebral hemispheres. Slight asymmetrical prominence of left lateral ventricle. Some prominence of sylvian cisterns. Some early myelination of white matter tracts on T1-weighted images. There is a markedly attenuated appearance of the corpus callosum.
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Lydia Unicorn | Learning how to take care of our rare and magical daughter | Page 4
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Learning how to take care of our rare and magical daughter. March 7, 2015. This is a piece that came out of the play-writing workshop. I am sharing it while thinking of Eva and her mom. Some of you know how we became friends, but that is… Continue reading →. March 1, 2015. March 1, 2015. How to remember Eva. I just wanted to pop in here quickly and say thank you. Since my last post, and Eva’s death, I have received a huge amount of support from old readers and new. I…. February 19, 2015. February 6, 2015.
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Lydia Unicorn | Learning how to take care of our rare and magical daughter | Page 2
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Learning how to take care of our rare and magical daughter. December 13, 2015. This just doesn’t seem like a girl on the wane. Here she is exercising her voice and will during a car trip as we were running errands. December 11, 2015. MRI, Bad News but Keep Smiling. Tuesday Mark and I went to Doernbecher Children’s Hospital for Lydia’s second MRI brain scan of her life. The first MRI had been the beginning for us, the first news of her brain… Continue reading →. October 10, 2015. When We Were So Strange.
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Video – Lydia Learning to use an Adapted Switch | Lydia Unicorn
https://lydiaunicorn.wordpress.com/2015/07/15/video-lydia-learning-to-use-an-adapted-switch
Learning how to take care of our rare and magical daughter. Video – Lydia Learning to use an Adapted Switch. July 15, 2015. As usual, excuse my goofy baby voice. As we are getting set up with Early Intervention in our new county, we are getting to try out some new stuff. Here is Lydia. Pushing a big button to make lights turn on and off. Tags : adapted switch. So, what’s happening with the Marijuana oil? 6 thoughts on “ Video – Lydia Learning to use an Adapted Switch. November 25, 2015 at 8:29 pm. You ar...
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Lydia Unicorn | Learning how to take care of our rare and magical daughter | Page 3
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Learning how to take care of our rare and magical daughter. July 13, 2015. We’d been needing a new vision for our family. Something different from our super-cute but wheelchair-impossible Portlandia bungalow. We meant to stay in Portland, we really did. But by the time we doubled the price… Continue reading →. May 23, 2015. April 9, 2015. April 6, 2015. Last Showing of Fierce Love. March 12, 2015. March 9, 2015. Lydia is two-years-old today. We shared some cake with a few close friends on Sunday to c...
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Lydia Unicorn | Learning how to take care of our rare and magical daughter | Page 5
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Learning how to take care of our rare and magical daughter. December 23, 2014. She’s improving every day and the doctors think I’m crazy. Lydia continues to be increasingly alert. She looks around and seems to notice things like never before. Yesterday she stared intently at our Giant Christmas Tree for at least 20 minutes. Granted, I… Continue reading →. December 22, 2014. December 16, 2014. A miracle is happening. The cannabis oil is working. We’re stunned. December 4, 2014. October 26, 2014. Lydia is ...
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So, what’s happening with the Marijuana oil? | Lydia Unicorn
https://lydiaunicorn.wordpress.com/2015/07/30/so-whats-happening-with-the-marijuana-oil
Learning how to take care of our rare and magical daughter. So, what’s happening with the Marijuana oil? July 30, 2015. I’ve been meaning to write an update on marijuana for Lydia’s seizures. Did she really have a near-seizure-free Christmas thanks to marijuana? Why do you think it stopped working? There are a few theories as to why it stopped working:. She developed a tolerance. In order to test if it was a tolerance issue, when we began to lose control of her seizures at day 14, we doubled down and gav...
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About | Lydia Unicorn
https://lydiaunicorn.wordpress.com/about
Learning how to take care of our rare and magical daughter. What’s with the unicorn thing? Or maybe that was a child of the 80s thing. Anyway, she is as unique, lovely and pure of heart as you can imagine any good unicorn should be. But more importantly Lydia smiles at least once a day as per her mother’s requirement of her, and she really likes to listen to classical music and snuggle. She has a big brother and super fun father who love her madly. Here is a link to the first post:. And yes, the soundtra...
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Lydia Unicorn | Learning how to take care of our rare and magical daughter | Page 18
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Learning how to take care of our rare and magical daughter. August 22, 2013. Lydia is zonked out after her blood draw this morning. Today they were testing for optimum levels of topomax and phenobarbituate in her system. Things went better than last time. I knew to… Continue reading →. August 22, 2013. August 22, 2013. Lydia’s eyes often seem to be watching what no one else can see. She’s in a mellow mood today. But I did catch her ‘dancing’ and got her to smile a little. August 21, 2013. August 21, 2013.