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Our HLH Journey

Sunday, November 4, 2012. Home Sweet Home - Our New Normal. Two weeks ago, we drove back to Cincinnati for a check up and got the green light not to return for 4 months. It's a blessing and a curse to be out of the hospital. A blessing that we're not confined to the physical location of the hospital, but a curse that we don't have the security of the doctors and medicine there. If something goes wrong, we're a 12 hour drive to comfort. The power outage from Hurricane Sandy created additional stress, but ...

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Our HLH Journey | colesfight.blogspot.com Reviews

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Sunday, November 4, 2012. Home Sweet Home - Our New Normal. Two weeks ago, we drove back to Cincinnati for a check up and got the green light not to return for 4 months. It's a blessing and a curse to be out of the hospital. A blessing that we're not confined to the physical location of the hospital, but a curse that we don't have the security of the doctors and medicine there. If something goes wrong, we're a 12 hour drive to comfort. The power outage from Hurricane Sandy created additional stress, but ...

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Our HLH Journey | colesfight.blogspot.com Reviews

https://colesfight.blogspot.com

Sunday, November 4, 2012. Home Sweet Home - Our New Normal. Two weeks ago, we drove back to Cincinnati for a check up and got the green light not to return for 4 months. It's a blessing and a curse to be out of the hospital. A blessing that we're not confined to the physical location of the hospital, but a curse that we don't have the security of the doctors and medicine there. If something goes wrong, we're a 12 hour drive to comfort. The power outage from Hurricane Sandy created additional stress, but ...

INTERNAL PAGES

colesfight.blogspot.com

1

Our HLH Journey: Day -1. Day 0 Tomorrow (Transplant)

http://colesfight.blogspot.com/2012/04/day-1-day-0-tomorrow-transplant.html

Wednesday, April 18, 2012. Day -1. Day 0 Tomorrow (Transplant). 65279;. 65279;The last couple days have been tough for Cole. The isolation combined with heavy doses of chemo have started to take their toll. It's a view into what lies ahead, but I'm confident Cole will remain strong. The notes, posts, cards, prayers, jokes, phone calls and Facetiming keep his spirits high, so please feel free to keep them coming. For now, we wait with anticipation for transplant tomorrow. Out like a light. YOU ARE A...

2

Our HLH Journey: April 2012

http://colesfight.blogspot.com/2012_04_01_archive.html

Wednesday, April 25, 2012. Day 6 One Day at a Time. 6 days after transplant, Ryan is home in Connecticut and Cole is feeling pretty well in the hospital. Ryan and Cole were both transplant champs and now are Bone Marrow Brothers for Life. Ryan had very little reaction to the procedure outside of sleeping for about 20 hours afterwards while the anesthesia wore off and his body regenerated marrow. Since transplant, Cole has been doing great. Then we test if the cells are Cole’s or Ryan’s. It’s hard t...

3

Our HLH Journey: Back to Reality

http://colesfight.blogspot.com/2012/03/back-to-reality.html

Thursday, March 29, 2012. Carter and Cole in the Park. It was also a reminder that Ryan is at such an impressionable age and made me sad that I can't be there more for him right now. When I told him that I was proud of him for donating his marrow to Cole, he said "Did I have a choice"? No buddy, you really don't. 65279;. March 29, 2012 at 9:09 PM. Checking in often and thinking about you all from the good part of the buckeye state. -DLS. April 2, 2012 at 9:58 PM. April 3, 2012 at 9:51 AM.

4

Our HLH Journey: Day +6. One Day at a Time.

http://colesfight.blogspot.com/2012/04/day-6-one-day-at-time.html

Wednesday, April 25, 2012. Day 6 One Day at a Time. 6 days after transplant, Ryan is home in Connecticut and Cole is feeling pretty well in the hospital. Ryan and Cole were both transplant champs and now are Bone Marrow Brothers for Life. Ryan had very little reaction to the procedure outside of sleeping for about 20 hours afterwards while the anesthesia wore off and his body regenerated marrow. Since transplant, Cole has been doing great. Then we test if the cells are Cole’s or Ryan’s. It’s hard t...

5

Our HLH Journey: Game On. Opening Day.

http://colesfight.blogspot.com/2012/04/game-on-opening-day.html

Wednesday, April 4, 2012. Game On. Opening Day. We took him out to McDonald's for dinner last night. He's only been to McDonald's a couple times in his life, but we bent on our principals and allowed him to be in control for a while. He's earned it, and will continue to do so over the next two years while he recovers. April 4, 2012 at 11:13 PM. I will pray for you! Http:/ www.immunovative.co.il/. My name is Marylène and a good friend of Judd. You can reach me at miraclebib@hotmail.com. Isnt it neat at 5 ...

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Our HLH Journey

Sunday, November 4, 2012. Home Sweet Home - Our New Normal. Two weeks ago, we drove back to Cincinnati for a check up and got the green light not to return for 4 months. It's a blessing and a curse to be out of the hospital. A blessing that we're not confined to the physical location of the hospital, but a curse that we don't have the security of the doctors and medicine there. If something goes wrong, we're a 12 hour drive to comfort. The power outage from Hurricane Sandy created additional stress, but ...

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