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NINDS Common Data Elements

NINDS CDEs, scientifically-vetted and standardized elements and report forms, streamline data collection structure and material development.

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NINDS Common Data Elements | commondataelements.ninds.nih.gov Reviews
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NINDS CDEs, scientifically-vetted and standardized elements and report forms, streamline data collection structure and material development.
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1 function navigation
2 project overview
3 cde search
4 crf search
5 form builder
6 main navigation
7 cdes
8 general
9 amyotrophic lateral sclerosis
10 cerebral palsy
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function navigation,project overview,cde search,crf search,form builder,main navigation,cdes,general,amyotrophic lateral sclerosis,cerebral palsy,chiari i malformation,epilepsy,friedreich's ataxia,headache,huntington's disease,mitochondrial disease,stroke
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NINDS Common Data Elements | commondataelements.ninds.nih.gov Reviews

https://commondataelements.ninds.nih.gov

NINDS CDEs, scientifically-vetted and standardized elements and report forms, streamline data collection structure and material development.

INTERNAL PAGES

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1

Huntington’s Disease Standards - NINDS Common Data Elements

https://commondataelements.ninds.nih.gov/HD.aspx

NINDS Common Data Elements Harmonizing information. Streamlining research. How Data Become CDEs. Sharing of Study Data. New CDE Recommendations for Chiari I Malformation. Public Review Period: July 1, 2016 August 15, 2016. Organized by domains and sub-domains,. Often used in clinical studies, data standards include:. Mdash; Classified as Core. Supplemental - Highly Recommended. Mdash; logically organize CDEs for data collection. Mdash; to provide further information about the CDEs. Epi/Environment Guidel...

2

Headache Standards - NINDS Common Data Elements

https://commondataelements.ninds.nih.gov/Headache.aspx

NINDS Common Data Elements Harmonizing information. Streamlining research. How Data Become CDEs. Sharing of Study Data. New CDE Recommendations for Chiari I Malformation. Public Review Period: July 1, 2016 August 15, 2016. Organized by domains and sub-domains,. Often used in clinical studies, data standards include:. Mdash; Classified as Core. Supplemental - Highly Recommended. Mdash; logically organize CDEs for data collection. Mdash; to provide further information about the CDEs. CRF Module/Guideline b...

3

General Standards - NINDS Common Data Elements

https://commondataelements.ninds.nih.gov/General.aspx

NINDS Common Data Elements Harmonizing information. Streamlining research. How Data Become CDEs. Sharing of Study Data. New CDE Recommendations for Chiari I Malformation. Public Review Period: July 1, 2016 August 15, 2016. General (For all diseases). General (For all diseases). Organized by domains and sub-domains,. Often used in clinical studies, data standards include:. Mdash; Classified as Core. Supplemental - Highly Recommended. Mdash; logically organize CDEs for data collection. PROMIS Bank v1.0...

4

NINDS Common Data Elements

https://commondataelements.ninds.nih.gov/default.aspx

NINDS Common Data Elements Harmonizing information. Streamlining research. How Data Become CDEs. Sharing of Study Data. New CDE Recommendations for Chiari I Malformation. Public Review Period: July 1, 2016 August 15, 2016. Streamline Your Neuroscience Clinical Research using content standards that enable clinical investigators to systematically collect, analyze, and share data across the research community. Launch Your Own Studies Faster. Case report form modules. Standardized data element definitions.

5

CDE Catalog | NINDS Common Data Elements

https://commondataelements.ninds.nih.gov/CDE.aspx

NINDS Common Data Elements Harmonizing information. Streamlining research. How Data Become CDEs. Sharing of Study Data. New CDE Recommendations for Chiari I Malformation. Public Review Period: July 1, 2016 August 15, 2016. The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs. Eg, all stroke-specific CDEs, etc.), and to view and download details about the CDEs. For best results, clear form between searches. General (For all diseases).

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For Industry | NeuroNEXT.org

https://www.neuronext.org/industry

Skip to main content. For Patients and Families. How do I access the form required to submit a proposal to NeuroNEXT? Process for Solicitation and Review of Clinical Studies for NeuroNEXT. Guidelines for Rigorous Study Design. Industry may apply for cooperative agreement grants using the NIH FOA for NeuroNEXT Clinical Trials (U01) ( PAR-13-343. AND by contacting Robin Conwit at NINDS (conwitr@ninds.nih.gov. To get more information about mechanisms available to partner with NIH and the NeuroNEXT network.

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Industry

http://www.nihstrokenet.org/industry

Skip To The Main Content. National and Regional Stroke Centers. Or contact the National Coordinating Centers toll free number 855-472-0072. NIH StrokeNet Concept Synopsis v2-2-Mar 2014 final. Process for Solicitation and Review of Clinical Trials for NIH StrokeNet. NINDS Stroke Trials Network. The NIH StrokeNet Users Guide 26-Jan-2016. Proposal Development Process Flowchart 4.12.16. PAR-14-220: NIH StrokeNet Clinical Trials and Biomarker Studies for Stroke Treatment, Recovery, and Prevention (U01).

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http://mds.movementdisorders.org/publications/rating_scales

MDS makes every effort to publish accurate information on the website. "Google Translate" is provided as a free tool for visitors to read content in one's native language. Translations are not guaranteed to be 100% accurate. Neither MDS nor its employees assume liability for erroneous translations of website content. To read all Committee reports, click here. Training Program and Exercise. Free for MDS members). Free for MDS members). Rating Scales in Parkinsons Disease: Clinical Practice and Research.

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Data Management and Sharing – Smart Neuro ICU

https://smartneuroicu.org/focus-areas/regulatory-issues

Data Management and Sharing. Data Management and Sharing. In this topic we will work with data repositories as well as helping to expand the NINDS Common Data Elements. We will review and work with various standards and data organizations to provide recommendations. Comments on this focus area are in the Forum Data Management and Sharing. International Neuroinformatics Coordinating Facility (INCF). NINDS Common Data Elements (NINDS-CDE). Neurological Emergencies Treatment Trials (NETT). Lazaridis C, Maas...

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About Brain-CODE | Brain-CODE Portal

https://www.braincode.ca/content/about-brain-code?qt-qtabs_about=2

Skip to main content. CAN-BIND - Canadian Biomarker Integration Network for Depression. CP-NET - The Cerebral Palsy Integrated Discovery Network. EpLink - New Approaches to Intractable Epilepsy. ONDRI - Ontario Neurodegenerative Disease Research Initiative. POND - Province of Ontario Neurodevelopmental Disorders Network. Brain-CODE is a large-scale informatics platform that manages the acquisition and storage of multidimensional data collected from participants with a variety of brain disorders. The crea...

braincode.ca braincode.ca

About Brain-CODE | Brain-CODE Portal

https://www.braincode.ca/content/about-brain-code?qt-qtabs_about=3

Skip to main content. CAN-BIND - Canadian Biomarker Integration Network for Depression. CP-NET - The Cerebral Palsy Integrated Discovery Network. EpLink - New Approaches to Intractable Epilepsy. ONDRI - Ontario Neurodegenerative Disease Research Initiative. POND - Province of Ontario Neurodevelopmental Disorders Network. Brain-CODE is a large-scale informatics platform that manages the acquisition and storage of multidimensional data collected from participants with a variety of brain disorders. The crea...

braincode.ca braincode.ca

About Brain-CODE | Brain-CODE Portal

https://www.braincode.ca/content/about-brain-code

Skip to main content. CAN-BIND - Canadian Biomarker Integration Network for Depression. CP-NET - The Cerebral Palsy Integrated Discovery Network. EpLink - New Approaches to Intractable Epilepsy. ONDRI - Ontario Neurodegenerative Disease Research Initiative. POND - Province of Ontario Neurodevelopmental Disorders Network. Brain-CODE is a large-scale informatics platform that manages the acquisition and storage of multidimensional data collected from participants with a variety of brain disorders. The crea...

braincode.ca braincode.ca

About Brain-CODE | Brain-CODE Portal

https://www.braincode.ca/content/about-brain-code?qt-qtabs_about=1

Skip to main content. CAN-BIND - Canadian Biomarker Integration Network for Depression. CP-NET - The Cerebral Palsy Integrated Discovery Network. EpLink - New Approaches to Intractable Epilepsy. ONDRI - Ontario Neurodegenerative Disease Research Initiative. POND - Province of Ontario Neurodevelopmental Disorders Network. Brain-CODE is a large-scale informatics platform that manages the acquisition and storage of multidimensional data collected from participants with a variety of brain disorders. The crea...

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NIH Disaster Research Response

http://dr2.nlm.nih.gov/search

US Department of Health and Human Services. NIH Disaster Research Response (DR2). US National Library of Medicine. US National Library of Medicine. From Disaster Lit , a database of the NLM Disaster Information Management Research Center. From Disaster Lit , a database of the NLM Disaster Information Management Research Center. Skip to main content. Lifestyle and Quality of Life (69). Mental Health and Cognitive Function (114). Social Support and Resiliency (30). Specific Body Systems (33). Harvard Unive...

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NINDS Common Data Elements

NINDS Common Data Elements Harmonizing information. Streamlining research. Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. Duchenne Muscular Dystrophy/Becker Muscular Dystrophy. Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage. How Data Become CDEs. Sharing of Study Data. NEW Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. Biomechanical Devices in TBI Recommendations. Are you using the NINDS CDEs? Let us know through our Feedback Form. Learn to Use the CDEs:. Case report form modules.

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The Common Data Project

We've published a new white paper! Our most comprehensive moral and practical argument to date for the creation of a public datatrust that provides public access to today's growing store of sensitive personal information. We set out to answer the major questions and open issues that challenge the viability of the datatrust idea. Try out our new Private Map Maker READ AND VISIT. We're working to create a Common Datatrust. Sensitive Data: They have it, we don't. To figure out what we'll buy, what we'll eat...

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To download the 2017-2018 Common Data Set in Word (RTF), Excel (XLS), Adobe Acrobat (PDF), and HTML formats, click here. Or scroll to the bottom of the page. Please post your questions or concerns about the Common Data Set to the CDS list serve. As well as by data providers representing secondary schools and two- and four-year colleges. Feedback from those who utilize the CDS also is considered throughout the annual review process. The CDS is a set of standards and definitions of data items rather than a...

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