charlottetwenty09.wordpress.com
On reading Keeping Katherine by Susan Zimmermann – charlottetwenty09
https://charlottetwenty09.wordpress.com/2014/07/15/on-reading-keeping-katherine-by-susan-zimmermann
Our lives with rett syndrome GRRR. On reading Keeping Katherine by Susan Zimmermann. It will be almost 2 years in a few weeks, since I received the call from my paediatrician , of a positive result for Rett Syndrome for our Charlotte. I didn’t think I would still be feeling so devastated about it all, 2years later. Isn’t 2 years long enough? She is a strong spirit like her sister, her Da and Mama. We are strong individually but together we are stronger. 8220;Sometimes we are deserted by those we’ve...
charlottetwenty09.wordpress.com
Big Sister’s Snow Candy World – charlottetwenty09
https://charlottetwenty09.wordpress.com/2015/02/22/big-sisters-snow-candy-world
Our lives with rett syndrome GRRR. Big Sister’s Snow Candy World. Where honey is water and you bring it to school. With your slushies as water too. And everyone would learn iceskating everyday at school. And there were no vegetables as your vegetables were mint leaves. And there were candy sticks for door knockers. Slushies would be the bath water. And milk would be your shower. White chocolate would be soap. Pillows and sheets would be marshmallows. A wish would come true when you wanted it too. Address...
charlottetwenty09.wordpress.com
you + me – charlottetwenty09
https://charlottetwenty09.wordpress.com/2015/03/09/you-me
Our lives with rett syndrome GRRR. Life, Love and Lyricality. We are more alike, my friends, than we are unalike. Maya Angelou. Yesterday was Rare Disease Day. I watched on social media as friends and family shared pictures and facts. I watched [and joined in] as the various organisations representing Rett syndrome [and many many other rare diseases] shared information. I was humbled by the similarities, by the kinship we share. You and me were always with each other. You and me we belong together. You k...
charlottetwenty09.wordpress.com
Busy Gaps – charlottetwenty09
https://charlottetwenty09.wordpress.com/2015/01/21/busy-gaps
Our lives with rett syndrome GRRR. We means a group of local CE families for school and Rett families we have befriended for research.That was 2014. Because sometimes there are no words , just some of my fave spots and moments for 2014-. I have to add I only really covered a few months of faves. There are too many! What I do like is they show what we are trying to do , which is to include Charlotte, despite Rett Syndrome into our lives and for Charlotte to include us in her life. January 21, 2015. Baby E...
charlottetwenty09.wordpress.com
You know, you’re a mom – charlottetwenty09
https://charlottetwenty09.wordpress.com/2015/03/09/you-know-youre-a-mom
Our lives with rett syndrome GRRR. You know, you’re a mom. Woman, Daughter, Sister, MAMA to 2 beautiful girls, our youngest being diagnosed with RS in August 2012. My life and our lives since. View all posts by cdfitz73. March 9, 2015. Day to Day RS. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). You are commenting using your WordPress.com account. ( Log Out. Notify me of new comments via email. When she is fed up o...
charlottetwenty09.wordpress.com
a voice – charlottetwenty09
https://charlottetwenty09.wordpress.com/2012/09/12/a-voice
Our lives with rett syndrome GRRR. Im starting this blog to process this journey I have started and we have started and Charlotte has started, since our youngest daughter’s Severe Global Developmental Delay (named in May 2011) became more specifically Rett Syndrome at 1230 on Monday 6th August. We are, Mama Caroline and Da Mark to Charlotte, 3 in November and oldest daughter Georgia, 6 in May this year. September 12, 2012. September 12, 2012. 3 thoughts on “a voice”. Pingback: a voice charlottetwenty09.
cohen-syndrome.org
Australia Resources | Cohen Syndrome
http://cohen-syndrome.org/australia-resources
We ARE. Cohen Syndrome. Http:/ www.centrelink.gov.au. Conductive Education Centre WA. Http:/ conductiveedwa.com.au. State Child Development Centre. Http:/ www.health.wa.gov.au/services. Http:/ www.pmh.health.wa.gov.au. Association of Genetic Support in Australasia. Http:/ www.agsa-geneticsupport.org.au. Cohen Syndrome Gene Reviews. DDC Clinic for Special Needs Children. New method used to detect Cohen Syndrome in 3 patients. Severe Chronic Neutropenia International Registry. Cohen Syndrome Awareness Video.
charlottetwenty09.wordpress.com
cdfitz73 – charlottetwenty09
https://charlottetwenty09.wordpress.com/author/cdfitz73
Our lives with rett syndrome GRRR. This slideshow requires JavaScript. Just some pictures from the last few 6 months showing Charlotte winning and earning a special achievement award at the end of her school year in 2015, beach times with big sis, wearing her horseriding helmet, Christmas beach breakfast with The Dempsters, helping me make a cake, dressups after school, catching up with Grandma Gloria and Communication Award winner a few weeks ago. March 5, 2016. March 5, 2016. Day to Day RS. One of Char...
specialaussies.com.au
Education | Special Aussies Foundation
http://specialaussies.com.au/what-next/education
Not-for-profit foundation for kids with complex special needs. What Is The Special Aussies Foundation? Support Research & Development. Our Board of Directors. Does My Child Have Special Needs? Family & Relationships. Help & Support. A-Z Directory of Services by Category. A-Z Directory of Agencies. A-Z Directory of Medical Conditions. Accessories, Tables & Trays. Access & Switch Controls. Adductors & Abductors. Harnesses, Belts & Straps. Trays & Grab Rails. Wheels, Brakes & Mounts. Dental & Feeding. We al...
specialaussies.com.au
Therapies | Special Aussies Foundation
http://specialaussies.com.au/what-next/therapies
Not-for-profit foundation for kids with complex special needs. What Is The Special Aussies Foundation? Support Research & Development. Our Board of Directors. Does My Child Have Special Needs? Family & Relationships. Help & Support. A-Z Directory of Services by Category. A-Z Directory of Agencies. A-Z Directory of Medical Conditions. Accessories, Tables & Trays. Access & Switch Controls. Adductors & Abductors. Harnesses, Belts & Straps. Trays & Grab Rails. Wheels, Brakes & Mounts. Dental & Feeding. Physi...
