CONFESSIONSOFASLEEPDEPRIVEDMOMMA.BLOGSPOT.COM

Confessions of a sleep deprived Momma

Mighty Z ©. Where we are Published. Friday, May 6, 2016. Don’t let go of me, momma! Don’t let go of me, momma! Those were the words that Mighty Z kept saying to me today during her CAT scan. How many times this little girl has told me not to let go of her? What if our hands get too slippery and I can’t grab back on? What if I mess up and somehow lose my grip? That can never happen, I have to stay steadfast and cement my hand to hers I can ever let go! Posted by shelley colquitt. Advocate for your child.

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Mighty Z ©. Where we are Published. Friday, May 6, 2016. Don’t let go of me, momma! Don’t let go of me, momma! Those were the words that Mighty Z kept saying to me today during her CAT scan. How many times this little girl has told me not to let go of her? What if our hands get too slippery and I can’t grab back on? What if I mess up and somehow lose my grip? That can never happen, I have to stay steadfast and cement my hand to hers I can ever let go! Posted by shelley colquitt. Advocate for your child.

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Confessions of a sleep deprived Momma | confessionsofasleepdeprivedmomma.blogspot.com Reviews

https://confessionsofasleepdeprivedmomma.blogspot.com

Mighty Z ©. Where we are Published. Friday, May 6, 2016. Don’t let go of me, momma! Don’t let go of me, momma! Those were the words that Mighty Z kept saying to me today during her CAT scan. How many times this little girl has told me not to let go of her? What if our hands get too slippery and I can’t grab back on? What if I mess up and somehow lose my grip? That can never happen, I have to stay steadfast and cement my hand to hers I can ever let go! Posted by shelley colquitt. Advocate for your child.

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confessionsofasleepdeprivedmomma.blogspot.com

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Confessions of a sleep deprived Momma: 2013-09-22

http://confessionsofasleepdeprivedmomma.blogspot.com/2013_09_22_archive.html

Mighty Z ©. Where we are Published. Tuesday, September 24, 2013. This new doctor can be good, okay, bad, or downright horrible, yet you are “supposed” to make do with this new doctor and trust everything he says, right? Every time Mighty Z gets a new doctor I begin to doctor stalk. I ask all my friends with miracle babies if they know the new doctor; I ask my other doctors about him, and yes, I even Google him. I want to know all I can about this new doctor before I see him in clinic. There is no trust a...

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Confessions of a sleep deprived Momma: Partners

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Mighty Z ©. Where we are Published. Subscribe to: Posts (Atom). Mighty Z's Mighty Journey. Promote Your Page Too. View my complete profile. There was an error in this gadget. Simple template. Powered by Blogger.

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Confessions of a sleep deprived Momma: 2013-08-04

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Mighty Z ©. Where we are Published. Tuesday, August 6, 2013. Not Quite the Ritz. Making your hospital stay comfortable for everyone can be quite a challenge, even for a scheduled stay, as emotions are high leading up to the departure. But the overnight stays that begin with a ride in the ambulance…that is a whole other problem. When Mighty Z was born and (finally) came home, every time we had an emergency, I was lucky to remember to bring my purse. For a scheduled stay has become second nature. The secon...

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Confessions of a sleep deprived Momma: 2014-08-31

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Mighty Z ©. Where we are Published. Sunday, August 31, 2014. Walking this road of special needs and adjusting to this “New Normal” world is difficult no matter the diagnosis, simply because even though you are living in this New Normal world everyone else (so it seems) is living in “the regular normal world.”. 8221; you will at some juncture have to explain to the world why your child is different. 999% of the time that is all people need to understand why Z needs what she needs. Yes, some issues are big...

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Confessions of a sleep deprived Momma: Where we are Published

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Mighty Z ©. Where we are Published. Where we are Published. Where Confessions of a sleep deprived momma has been published, please click on the title for the link. Raising a Medically Fragile Child. Mighty Z's Breathing Pacers. Hope is not a crime. Turning Down the DNR. A Life worth Living. Not Quite Rock Star Status. Subscribe to: Posts (Atom). Mighty Z's Mighty Journey. Promote Your Page Too. View my complete profile. There was an error in this gadget. Simple template. Powered by Blogger.

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compatiblewithjoy-trisomy18.blogspot.com

Compatible With Joy-Trisomy18: Time to Throw in the Towel

http://compatiblewithjoy-trisomy18.blogspot.com/2015/05/time-to-throw-in-towel.html

What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Saturday, May 2, 2015. Time to Throw in the Towel. Yep, that kinda says it all. I called his ped yesterday morning and they changed his med to a different one, a hopefully better one. But by afternoon, "stuff" was just pouring out of him. Almost literally pouring out. But that's not where he is right now. Four weeks ago, he weighed 20&#...

compatiblewithjoy-trisomy18.blogspot.com

Compatible With Joy-Trisomy18: We Just Don't Know...

http://compatiblewithjoy-trisomy18.blogspot.com/2015/05/we-just-dont-know.html

What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Monday, May 4, 2015. We Just Don't Know. This kid is a mystery. He's not playing by the rules, which is often a good thing, but kinda perplexing. Here's what we know:. His first test was positive, his second (and third 'cause they were so surprised at the results) were negative. But this kiddo has a real sense of humor. The nasty di...

compatiblewithjoy-trisomy18.blogspot.com

Compatible With Joy-Trisomy18: Trisomy 18 Awareness Day

http://compatiblewithjoy-trisomy18.blogspot.com/2015/03/trisomy-18-awareness-day.html

What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Wednesday, March 18, 2015. Trisomy 18 Awareness Day. I've tried for days to come up with something "important" or "profound" to say about today, and it just hasn't happened. Words can't convey the sorrow we feel when a child passes on, even if we haven't met them in person, the grief that rips at our soul, or the niggling of guilt that ...

compatiblewithjoy-trisomy18.blogspot.com

Compatible With Joy-Trisomy18: Supports for Families Facing a Trisomy Diagnosis

http://compatiblewithjoy-trisomy18.blogspot.com/p/supports-for-families-facing-trisomy.html

What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Supports for Families Facing a Trisomy Diagnosis. Trisomy 18 Medical Study published in Oraphant Rare Disease Journal Oct 23, 2012. Http:/ www.ncbi.nlm.nih.gov/pmc/articles/PMC3520824/. Https:/ www.facebook.com/groups/T18Mommies/. Living with Trisomy 13 Group Page. Https:/ www.facebook.com/groups/Trisomy13/. Trisomy 4 (and 9p deletion.

compatiblewithjoy-trisomy18.blogspot.com

Compatible With Joy-Trisomy18: For My Angel Mommy Friends

http://compatiblewithjoy-trisomy18.blogspot.com/2015/05/for-my-angel-mommy-friends.html

What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Sunday, May 3, 2015. For My Angel Mommy Friends. I have a lot of angel mommy friends. Some are obvious, some less so. You'd expect that I have a lot in the Trisomy/Heart/Trach/Vent world. It's almost like we're afraid it might be catching. So if we don't acknowledge that it happens, it can't happen to us. So today, may I offer you a gif...

compatiblewithjoy-trisomy18.blogspot.com

Compatible With Joy-Trisomy18: The "Go" Bag

http://compatiblewithjoy-trisomy18.blogspot.com/p/the-go-bag.html

What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Here's what we travel with for Aaron. It seems really complicated, but it's not, because we only had to organize it once. Then when we use something, we just make sure to replace it. Except there was the one time when I forgot to replace diapers and ended up without any. Arg! The one staple of EVERY baby's "go" bag. Suction catheters (B...

compatiblewithjoy-trisomy18.blogspot.com

Compatible With Joy-Trisomy18: Medical History Template

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What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Page 1 - this is the most important page. MEDICAL ACTION (full code, dnr, no cpr, whatever). In this text box put:. Insurance Co and policy #. EGA (gestational age @ birth). Birth weight and blood type. Current weight and date last weighed. Trach size, vent settings. G-tube size, etc that would. Be needed ASAP in an. Anytown, ST 00000.

compatiblewithjoy-trisomy18.blogspot.com

Compatible With Joy-Trisomy18: What Is Trisomy 18?

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What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. What Is Trisomy 18? Trisomy 18, also known as Edwards syndrome, is a condition which is caused by a chromosomal defect. It occurs in about 1 out of every 3000 live births. The numbers increase significantly when early pregnancy losses are factored in that occur in the 2nd and 3rd trimesters of pregnancy. Subscribe to: Posts (Atom).

compatiblewithjoy-trisomy18.blogspot.com

Compatible With Joy-Trisomy18: Happy 11 Months!

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What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Friday, May 13, 2011. BUT, come Thursday, his tummy had stretched and his meds had kicked in and lowered his lung pressures. Lo and behold, we're back down low on his oxygen usage and high on the smiles! He's still taking his antibiotics, but those will be done tomorrow. The weather is also gorgeous so I'm going to try to take him t...

compatiblewithjoy-trisomy18.blogspot.com

Compatible With Joy-Trisomy18: Pertinent Medical History

http://compatiblewithjoy-trisomy18.blogspot.com/p/pertinent-medical-history.html

What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. This is by no means exhaustive. It can be used to help others who want to know what can be done for our little ones. Aaron is a 25 month old male with full Trisomy 18 diagnosed prenatally. He was born via C-section at 37 weeks, 2 days due to persistent heart decelerations with delayed recovery. He was not breathing at birth. Intubation ...

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confessionsofasleepdeprivedmomma.blogspot.com

Confessions of a sleep deprived Momma

Mighty Z ©. Where we are Published. Friday, May 6, 2016. Don’t let go of me, momma! Don’t let go of me, momma! Those were the words that Mighty Z kept saying to me today during her CAT scan. How many times this little girl has told me not to let go of her? What if our hands get too slippery and I can’t grab back on? What if I mess up and somehow lose my grip? That can never happen, I have to stay steadfast and cement my hand to hers I can ever let go! Posted by shelley colquitt. Advocate for your child.

confessionsofasleuth.blogspot.com

Sleuth

Saturday, November 24, 2007. Thanks to Heather of Tango Pirates and Absinthe (http:/ tangopirates.blogspot.com/) and Sage, of MENTAL (http:/ mental-fashion.blogspot.com/). Sorry guys, I haven't quite mastered the art of links yet. Anyway, 7 interesting things about myself? 1 The first outfit I remember really loving was from the first grade. It was actually tres chic! 4 I have two goldfish, named Sergeant Pepper and Princess Grace. They are pretty darn awesome. 7 I'm a total cinephile. Right now I'm ...

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