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Brenna | Congenitalhikids's Blog
https://congenitalhikids.wordpress.com/2011/06/02/brenna
Just another WordPress.com weblog. Which begins our journey. We stayed with Brenna for 2 weeks at hospital in New Jersey but the doctors there couldn’t figure out what was wrong with her. I begged them to transfer her to CHOP which is where we should’ve gone from the beginning! Published in: Uncategorized on June 2, 2011 at 10:29 pm Leave a Comment. To TrackBack this entry is:. Https:/ congenitalhikids.wordpress.com/2011/06/02/brenna/trackback/. Feed for comments on this post. Leave a Reply Cancel reply.
What Topics Would You Like to Discuss With FDA On Patient Advocacy Day? | Congenitalhikids's Blog
https://congenitalhikids.wordpress.com/2011/08/28/what-topics-would-you-like-to-discuss-with-fda-on-patient-advocacy-day
Just another WordPress.com weblog. What Topics Would You Like to Discuss With FDA On Patient Advocacy Day? In honor of Rare Disease Day 2012, the Food and Drug Administration (FDA) is planning to host an “FDA Patient Advocacy Day” on March 1, 2012. Planning is in progress now, and NORD will be assisting FDA with this first-ever event. We want to make it as helpful as possible for you. If you would like to suggest topics for this meeting, or just want to share your thoughts about common misperceptions bet...
HI Kids Appreciation Day 2-26-11 | Congenitalhikids's Blog
https://congenitalhikids.wordpress.com/2011/01/18/hi-kids-appreciation-day-2-26-11
Just another WordPress.com weblog. HI Kids Appreciation Day 2-26-11. To learn more about Nord and this special day please visit their web site. Published in: Uncategorized on January 18, 2011 at 11:06 pm Leave a Comment. Tags: congenital hi kids.org. National rare disease day. To TrackBack this entry is:. Https:/ congenitalhikids.wordpress.com/2011/01/18/hi-kids-appreciation-day-2-26-11/trackback/. Feed for comments on this post. Leave a Reply Cancel reply. Enter your comment here.
Rare Disease Day 2011 will be here soon, and the groundswell of activity has been truly phenomenal! | Congenitalhikids's Blog
https://congenitalhikids.wordpress.com/2011/02/25/rare-disease-day-2011-will-be-here-soon-and-the-groundswell-of-activity-has-been-truly-phenomenal
Just another WordPress.com weblog. Rare Disease Day 2011 will be here soon, and the groundswell of activity has been truly phenomenal! Rare Disease Day 2011 will be here soon, and the groundswell of activity has been truly phenomenal! Here are a few highlights:. We have an unprecedented number of state proclamations this year. NORD extends a huge thank-you to all who helped with this, and a special shout-out to Kelli Foster and others in the Mastokids.org. Group for their amazing efforts! FDA is hosting ...
Hyperinsulinism Awareness Rally At the Texas State Capitol April22,2011 11am-2pm South Side Steps | Congenitalhikids's Blog
https://congenitalhikids.wordpress.com/2011/01/15/hyperinsulinism-awareness-rally-at-the-texas-state-capitol
Just another WordPress.com weblog. Hyperinsulinism Awareness Rally At the Texas State Capitol April22,2011 11am-2pm South Side Steps. We would like to thank Texas State Representative Eddie Rodriguez for his hard work and dedication on the issue of Congenital Hyperinsulinism. He has worked to draw attention to the issue, and is supportive of legislation that would require blood sugar testing on newborns. We thank him for his work on behalf of HI families and Congenital HI Kids. Please join our fan page.
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Minnesota Congential Heart Network - Announcements
Minnesota Congenital Heart Network. Mayo Clinic, Rochester, MN. University of Minnesota, Minneapolis, MN. The Minnesota Congenital Heart Network (MCHN) facilitates multidisciplinary clinical research by building on existing collaborations between the University of Minnesota and Mayo Clinic across three disciplines: Clinical Medicine, Bioinformatics, and Biostatistics.
congenitalheartsurgerycenter.wordpress.com
Congenital Heart Surgery Center | We make little hearts grow big and strong!
Congenital Heart Surgery Center. Welcome to WordPress.com. This is your very first post. Click the Edit link to modify or delete it, or start a new post. If you like, use this post to tell readers why you started this blog and what you plan to do with it. 3 years, 3 months ago. We make little hearts grow big and strong! Blog at WordPress.com. Follow “Congenital Heart Surgery Center”. Get every new post delivered to your Inbox. Build a website with WordPress.com.
Congenital Heart Walk Homepage
Welcome to the Congenital Heart Walk! The Congenital Heart Walk (CHW) is the only national event series dedicated to fighting congenital heart disease. In 2018, more than 18,000 supporters will gather in more than 25 cities across the U.S. with the goal of raising much needed funds to benefit cutting-edge research, patient programs, and advocacy initiatives. Unite to fight congenital heart disease! For a walk in your community today! One event benefiting two great organizations. The mission of the Adult ...
Congenital Hyperinsulinism International | Congenital Hyperinsulism International
Congenital Hyperinsulinism International – Congenital Hyperinsulism International. CHI Board of Directors and Staff. We Have HI Hopes Store. Introducing: The HI Global Registry. Congenital Hyperinsulinism International (CHI) has developed a patient-reported registry called the HI Global Registry. With its partners to improve the understanding of HI, and advance research for better treatments and patient care. Click on either of the images below to learn more. Be My Sugar Gallery. Watch our video to learn...
Congenital HI Kids .org
Congenital HI Kids .org. 2009 HI 5 Kids Hyperinsulinism Fund. View my complete profile. Friday, December 4, 2009. 2009 HI 5 Kids Hyperinsulinism Fund. The HI Five Kids Fund for. Cook Children’s Medical. Finding help forfamilies effected byhyperinsulinism. Victorious treatment for children with. Educating both the public and parents. Of children that have hyperinsulinism. Thank You For Your Christmas Donations . We donated 89 Christmas baskets and lots of toys for the Children of Cook Medical Hospital .
congenitalhikids.wordpress.com
Congenitalhikids's Blog | Just another WordPress.com weblog
Just another WordPress.com weblog. What Topics Would You Like to Discuss With FDA On Patient Advocacy Day? In honor of Rare Disease Day 2012, the Food and Drug Administration (FDA) is planning to host an “FDA Patient Advocacy Day” on March 1, 2012. Planning is in progress now, and NORD will be assisting FDA with this first-ever event. We want to make it as helpful as possible for you. If you would like to suggest topics for this meeting, or just want to share your thoughts about common misperceptions bet...
congenitalhydrocephalus.com
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CongenitalHypothyroidism.com
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Congenital Hypothyroidism
Resources for the Proactive Parent. As I type, my 10 month old baby Elle, naps peacefully in her swing with her hands outstretched and the hint of a smile at the left corner of her mouth. Blood draws sdfgsdfgjsdfgsdfg sdfgsdfgsdfgsdfg. I’m a bike messenger […]. 5 Tips for a Smooth Blood Draw. Welcome to ConagenitalHypothyroidism.net. 5 Tips for a Smooth Blood Draw. Top 10 Questions to Ask Your Child's Endocronologist. Download your free copy now by entering your email address below.
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