livingininvisiblecities.blogspot.com
Living in Invisible Cities: House and Home
http://livingininvisiblecities.blogspot.com/2011/09/house-and-home.html
Living in Invisible Cities. Every day with Willa we traveled to a new place. From thinking she would be a typical child, to learning she was not, to discovering, now that she is gone, who in fact she continues to be. We live in Invisible Cities, each one more strange and beautiful than the last. Thursday, September 22, 2011. It’s clean of her. I love this place. Anything but instead for. September 23, 2011 at 6:39 PM. September 24, 2011 at 11:20 AM. Your way of explaining it speaks so well. A friend ...
livingininvisiblecities.blogspot.com
Living in Invisible Cities: April 2010
http://livingininvisiblecities.blogspot.com/2010_04_01_archive.html
Living in Invisible Cities. Every day with Willa we traveled to a new place. From thinking she would be a typical child, to learning she was not, to discovering, now that she is gone, who in fact she continues to be. We live in Invisible Cities, each one more strange and beautiful than the last. Saturday, April 24, 2010. The Invisible City of Lost Pieces and Gathered Light. I find other things too. And that’s what Willa does. And that’s how it goes. Links to this post. Subscribe to: Posts (Atom).
livingininvisiblecities.blogspot.com
Living in Invisible Cities: July 2011
http://livingininvisiblecities.blogspot.com/2011_07_01_archive.html
Living in Invisible Cities. Every day with Willa we traveled to a new place. From thinking she would be a typical child, to learning she was not, to discovering, now that she is gone, who in fact she continues to be. We live in Invisible Cities, each one more strange and beautiful than the last. Tuesday, July 19, 2011. In the House Now. What will the brain do with this information? Will it even know how to process the memories, what we saw, what we feel? Will it sit in the middle of the house like a pip?
cfc-syndrom.de
Das CFC-Syndrom | Links
http://cfc-syndrom.de/links
CFC family network USA – www.cfcsyndrome.org. Costello-Syndrom – www.costellokids.com. Noonan-Syndrom – www.noonansyndrome.org. 8211; www.noonan-kinder.de. Kindernetzwerk – www.kindernetzwerk.de. April 24, 2013. April 23, 2013.
thingiverse.com
Geared Heart -Single Print with Moving Parts - Last Minute Gift by UrbanAtWork - Thingiverse
http://www.thingiverse.com/thing:662447
Sign in / Join. Geared Heart -Single Print with Moving Parts - Last Minute Gift. Feb 1, 2015. Geared Heart -Single Print with Moving Parts - Last Minute Gift. Feb 1, 2015. I Made One 190. If you print it, please consider posting your Make a small token of gratitude. I've been looking at a necklace version. but my real job has been busy busy. I added a new version that has a larger gap. So you've been busy tinkering in the lab all day and forgot to get something for that someone special. If you've got...
veradezwarte.nl
What is Costello syndrome? - (Nederlands) Vera de Zwarte website
http://www.veradezwarte.nl/en/wat-is-het-costello-syndroom
Nederlands) Vera de Zwarte website. Nederlands) over het leven met een Costello syndroom. What is Costello syndrome? Help us: be a sponsor! What is Costello syndrome? Costello syndrome is something you are born with and cannot be healed from. The syndrome is caused by a genetic anomaly. It is a very rare condition, only 400 people around the world have this diagnosis. In The Netherlands we only know of 4 other people who also have a child with Costello syndrome. Skeletal anomalies and orthopedic problems.
littlejoeyt.com
A Whole New Light | Me and My Son, Joey
https://littlejoeyt.com/2015/02/25/a-whole-new-light
Me and My Son, Joey. The life of a VERY special special needs boy! Happy 2015…from Joey! I hate to say it…but… →. Raquo; A Whole New Light. A Whole New Light. February 25, 2015. That certainly doesn’t mean that everything is rosy in this picture. It’s a relative measure of rosiness. Example? The pressure in his head and the formation of new bone to fill the gap are still unknowns. You know how it is when you can’t pop your ears on a plane or in an elevator? Now for the fun stuff. Enter your comment here.
littlejoeyt.com
February | 2015 | Me and My Son, Joey
https://littlejoeyt.com/2015/02
Me and My Son, Joey. The life of a VERY special special needs boy! Monthly Archives: February 2015. A Whole New Light. February 25, 2015. That certainly doesn’t mean that everything is rosy in this picture. It’s a relative measure of rosiness. Example? The pressure in his head and the formation of new bone to fill the gap are still unknowns. You know how it is when you can’t pop your ears on a plane or in an elevator? Tough to say for sure. Still, we know things are better than they were a year ago.
littlejoeyt.com
January | 2015 | Me and My Son, Joey
https://littlejoeyt.com/2015/01
Me and My Son, Joey. The life of a VERY special special needs boy! Monthly Archives: January 2015. Happy 2015…from Joey! January 13, 2015. It’s Joey and I wanted to wish you a Happy New Year! I know it’s a little late, but we have been SO busy with everything my birthday, outings, Christmas, New Years, and the flu (boo! I will try to give you a little information on each of them because, overall, it has been a GREAT month! All the grown ups got their own ice cream bar and I got to sample ALL of them!
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