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Raising rare and beautiful children

Raising rare and beautiful children. Tuesday, October 21, 2014. No one. But they have to have food in their system. They need the calories to get better, or to keep from getting worse. And you know they are sick when they start requesting Zofran. That has become the magic pill in this house. Once they have some, they can feel better and start to eat. I have to say I am forever thankful for whomever came up with that medication! He came and got the little goobers and took them. Tuesday, October 14, 2014.

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Raising rare and beautiful children | cpt2kids.blogspot.com Reviews

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Raising rare and beautiful children. Tuesday, October 21, 2014. No one. But they have to have food in their system. They need the calories to get better, or to keep from getting worse. And you know they are sick when they start requesting Zofran. That has become the magic pill in this house. Once they have some, they can feel better and start to eat. I have to say I am forever thankful for whomever came up with that medication! He came and got the little goobers and took them. Tuesday, October 14, 2014.

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Raising rare and beautiful children | cpt2kids.blogspot.com Reviews

https://cpt2kids.blogspot.com

Raising rare and beautiful children. Tuesday, October 21, 2014. No one. But they have to have food in their system. They need the calories to get better, or to keep from getting worse. And you know they are sick when they start requesting Zofran. That has become the magic pill in this house. Once they have some, they can feel better and start to eat. I have to say I am forever thankful for whomever came up with that medication! He came and got the little goobers and took them. Tuesday, October 14, 2014.

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cpt2kids.blogspot.com

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Raising rare and beautiful children: June 2013

http://cpt2kids.blogspot.com/2013_06_01_archive.html

Raising rare and beautiful children. Sunday, June 30, 2013. Summertime is finally here. I have found through all of this, with all of the children how important it is to be an advocate. A mother bear. A bull. A major pain in the ass. Doctors have many patients. I have three children. It is my job to guide and protect them and make sure they receive the medical care they need despite what the doctors say. This summer is full of doctor's appointments. July starts off with my own! Subscribe to: Posts (Atom).

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Raising rare and beautiful children: October 2013

http://cpt2kids.blogspot.com/2013_10_01_archive.html

Raising rare and beautiful children. Friday, October 11, 2013. Cold season once again. Michael has been sick this week. There's nothing like one of your children having a sore throat and a fever to put you into near hysterics. Your heart starts to pound, you get a little short of breath and your mind starts racing. "What now? How long before he goes to the hospital? All of these thoughts in your mind as you push fluids and treat the fever, wondering when to take him to the doctor. His heart is all good a...

3

Raising rare and beautiful children: August 2013

http://cpt2kids.blogspot.com/2013_08_01_archive.html

Raising rare and beautiful children. Saturday, August 17, 2013. A busy summer almost at an end. I can't believe the summer has passed by so quickly! I'd rather avoid that.these two are getting heavy. They're each around 65 pounds. I did make some homemade 'gatorade' for the kids a few weeks ago. It was pretty good! Of the bottle, it also builds pressure inside. Onward and upward, we keep moving forward a little at a time. Subscribe to: Posts (Atom). A busy summer almost at an end. View my complete profile.

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Raising rare and beautiful children: Cold season once again

http://cpt2kids.blogspot.com/2013/10/cold-season-once-again.html

Raising rare and beautiful children. Friday, October 11, 2013. Cold season once again. Michael has been sick this week. There's nothing like one of your children having a sore throat and a fever to put you into near hysterics. Your heart starts to pound, you get a little short of breath and your mind starts racing. "What now? How long before he goes to the hospital? All of these thoughts in your mind as you push fluids and treat the fever, wondering when to take him to the doctor. His heart is all good a...

5

Raising rare and beautiful children: May 2013

http://cpt2kids.blogspot.com/2013_05_01_archive.html

Raising rare and beautiful children. Thursday, May 30, 2013. Some days just suck. I am so tired today and all I want to do is go to sleep but it's after 9:30 and Michael is still awake. Being difficult and defiant as usual. Everything is my fault. He is tired, he is thirsty, he is hungry. He won't admit he is tired though so I pray that he wears himself out so I can go to bed too! Tuesday, May 21, 2013. They are great though, I appreciate everything they are doing for all three of my children! My oldest ...

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Living with CPT2: September 2014

http://www.cpt2.me/2014_09_01_archive.html

Tuesday, September 16, 2014. CPT2 Online Resources - an incomplete list. Http:/ cpt2kids.blogspot.com/. Http:/ www.newbornscreening.info/Parents/fattyaciddisorders/CPT2.html. National Institutes for Health: http:/ ghr.nlm.nih.gov/condition/carnitine-palmitoyltransferase-ii-deficiency. GeneReviews: http:/ www.ncbi.nlm.nih.gov/books/NBK1253/. Does genetic testing for CPT2: http:/ www.genedx.com/test-catalog/disorders/carnitine-palmitoyltransferase-ii-cpt2-deficiency/. 8220;Connecticut” (State of Conn...

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cpt2kids.blogspot.com

Raising rare and beautiful children

Raising rare and beautiful children. Tuesday, October 21, 2014. No one. But they have to have food in their system. They need the calories to get better, or to keep from getting worse. And you know they are sick when they start requesting Zofran. That has become the magic pill in this house. Once they have some, they can feel better and start to eat. I have to say I am forever thankful for whomever came up with that medication! He came and got the little goobers and took them. Tuesday, October 14, 2014.

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