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Craig and Marc's Quest - Duchenne Muscular Dystrophy

To date, there is no cure or treatment to stop the progression of Duchenne Muscular Dystrophy. Very few of our boys will ever see the inside of the Grand Canyon. I am hiking so that, with a cure, each of them will have the opportunity to conquer the canyon for themselves.

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Craig and Marc's Quest - Duchenne Muscular Dystrophy | craigandmarcsquest.org Reviews
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To date, there is no cure or treatment to stop the progression of Duchenne Muscular Dystrophy. Very few of our boys will ever see the inside of the Grand Canyon. I am hiking so that, with a cure, each of them will have the opportunity to conquer the canyon for themselves.
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Craig and Marc's Quest - Duchenne Muscular Dystrophy | craigandmarcsquest.org Reviews

https://craigandmarcsquest.org

To date, there is no cure or treatment to stop the progression of Duchenne Muscular Dystrophy. Very few of our boys will ever see the inside of the Grand Canyon. I am hiking so that, with a cure, each of them will have the opportunity to conquer the canyon for themselves.

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1

About Craigie - Craig and Marcs Quest

http://www.craigandmarcsquest.org/about-craigie

Craigie is a vibrant and adorable boy (born 10/18/02) who enjoys playing with his big brother Christopher, big sister Stephanie and younger brother Marc (who also has DMD), and other family and friends. Craig is a bright, smiling blond haired boy who charms every one he meets.

2

About Marc - Craig and Marcs Quest

http://www.craigandmarcsquest.org/about-marc

Craigandmarcsquest.org is named for our sons who, to the casual observer, are simply quirky little kids with irresistible smiles and mischievous sense of humors. People who meet them and their brother Christopher and sister Stephanie for the first time often comment, You’ve certainly got your hands full! They are no doubt referring to their strong liking for adventure:. We need your help to take full advantage of this momentum. Thanks to the generosity of many people from family members to corporatio...

3

About Disease - Craig and Marcs Quest

http://www.craigandmarcsquest.org/about-disease

Duchenne Muscular Dystrophy is the most common fatal genetic disorder to affect children around the world. Children with DMD cannot produce dystrophin, a protein necessary for muscle strength and function. As a result,every skeletal muscle in the body deteriorates. Although Duchenne is the most common fatal genetic disorder to affect children, there is no cure. DMD has a 100% fatality rate. Most DMD kids die in their late teens or early twenties. Approximately one in 3,500 boys are born with DMD. Steroid...

4

About us - Craig and Marcs Quest

http://www.craigandmarcsquest.org/about-us

Parents Craig and Gina Manning and their children Stephanie, Christopher, Craig and Marc have had a year of devastating news when two of the Manning children, when Craig was 6 and Marc was 3 were diagnosed in 2008 with Duchenne Muscular Dystrophy, a life-threatening genetic neuromuscular disease that affects 1 in 3,500 boys. A strong support group of family and friends have put into perspective the costs and financial devastation associated with this tragedy along with a plan of action to hold several fu...

5

Donate - Craig and Marcs Quest

http://www.craigandmarcsquest.org/donate

Our personal fundraising page is HERE. If you prefer, you may also mail a check, made payable to Parent Project Muscular Dystrophy, to:. Parent Project Muscular Dystrophy. 401 Hackensack Avenue, 9th Floor. Hackensack, NJ 07601. Please be sure to include my name on the check so that you will be included in the Craigie and Marc’s Quest. All funds raised will benefit Parent Project Muscular. Dystrophy www.parentprojectmd.org. And go directly toward researching a cure. Your contribution is 100% tax deductible.

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SUPPORT DUCHENNE MUSCULAR DYSTROPHY. Please see our Events and Donate pages on how you can help support Duchenne Muscular Dystrophy. Becoming aware of the disease and it’s outcome is very important to us. Please read about the disease to see how funding our projects will hopefully help bring a cure. Joining or donating to the events that we participate in is one of the many ways to getting involved. Please see the Get Involved info to see how you can make a difference. Gina and Family Read MOre.

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