crouzon.org crouzon.org

crouzon.org

Welcome to the Crouzon Support Network, a Program of AmeriFace!

Meet some of our friends! Photo taken in June 2003 at the Cher's Family Retreat in Washington, DC. From Left Side Rail to Top Left to Right: Rita M., Robyn J., Laurie M., Nancy K., Ann G., Debbie O., Gail M. CSN's Kids: From Center Left to Right:. Jon's sister, Rachel M., Jons' little sister behind her, Rachel K., Caden J., and Jon. Front Row.Gracie H., Brenna J., Lee M. Learn more about the Reconstructive Surgery Act. Encourage your elected officials to review this proposed legislation!

http://www.crouzon.org/

WEBSITE DETAILS
SEO
PAGES
SIMILAR SITES

TRAFFIC RANK FOR CROUZON.ORG

TODAY'S RATING

>1,000,000

TRAFFIC RANK - AVERAGE PER MONTH

BEST MONTH

August

AVERAGE PER DAY Of THE WEEK

HIGHEST TRAFFIC ON

Sunday

TRAFFIC BY CITY

CUSTOMER REVIEWS

Average Rating: 4.6 out of 5 with 10 reviews
5 star
6
4 star
4
3 star
0
2 star
0
1 star
0

Hey there! Start your review of crouzon.org

AVERAGE USER RATING

Write a Review

WEBSITE PREVIEW

Desktop Preview Tablet Preview Mobile Preview

LOAD TIME

0.3 seconds

FAVICON PREVIEW

  • crouzon.org

    16x16

  • crouzon.org

    32x32

  • crouzon.org

    64x64

  • crouzon.org

    128x128

  • crouzon.org

    160x160

  • crouzon.org

    192x192

CONTACTS AT CROUZON.ORG

Penny Halverson

Penny Halverson

23904●●●●●Ave W

Ed●●ds , WA, 98026

US

1.42●●●●1697
1.99●●●●9999
ph●●●●●●@U.WASHINGTON.EDU

View this contact

AboutFace USA

AboutFace USA

PO B●●●●1112

Las●●●gas , NV, 89136

US

1.88●●●●6120
1.70●●●●1535
in●●@aboutfaceusa.org

View this contact

AboutFace USA

AboutFace USA

PO B●●●●1112

Las●●●gas , NV, 89136

US

1.88●●●●6120
1.70●●●●1535
in●●@aboutfaceusa.org

View this contact

Login

TO VIEW CONTACTS

Remove Contacts

FOR PRIVACY ISSUES

DOMAIN REGISTRATION INFORMATION

REGISTERED
n/a
UPDATED
2014 January 14
EXPIRATION
EXPIRED REGISTER THIS DOMAIN

BUY YOUR DOMAIN

Network Solutions®

NAME SERVERS

1
ns1.mdnsservice.com
2
ns2.mdnsservice.com
3
ns3.mdnsservice.com

REGISTRAR

Tucows Inc. (R11-LROR)

Tucows Inc. (R11-LROR)

WHOIS : whois.publicinterestregistry.net

REFERRED :

CONTENT

SCORE

6.2

PAGE TITLE
Welcome to the Crouzon Support Network, a Program of AmeriFace! | crouzon.org Reviews
<META>
DESCRIPTION
Meet some of our friends! Photo taken in June 2003 at the Cher's Family Retreat in Washington, DC. From Left Side Rail to Top Left to Right: Rita M., Robyn J., Laurie M., Nancy K., Ann G., Debbie O., Gail M. CSN's Kids: From Center Left to Right:. Jon's sister, Rachel M., Jons' little sister behind her, Rachel K., Caden J., and Jon. Front Row.Gracie H., Brenna J., Lee M. Learn more about the Reconstructive Surgery Act. Encourage your elected officials to review this proposed legislation!
<META>
KEYWORDS
1 find other resources
2 in your area
3 info@ameriface org
4 disclaimer
5 interested in outreach
6 become a pathfinder
7 free newsletter
8 please read our
9 crouzon
10 support network
CONTENT
Page content here
KEYWORDS ON
PAGE
find other resources,in your area,info@ameriface org,disclaimer,interested in outreach,become a pathfinder,free newsletter,please read our,crouzon,support network,pardon our dust
CONTENT-TYPE
iso-8859-1
GOOGLE PREVIEW

Welcome to the Crouzon Support Network, a Program of AmeriFace! | crouzon.org Reviews

https://crouzon.org

Meet some of our friends! Photo taken in June 2003 at the Cher's Family Retreat in Washington, DC. From Left Side Rail to Top Left to Right: Rita M., Robyn J., Laurie M., Nancy K., Ann G., Debbie O., Gail M. CSN's Kids: From Center Left to Right:. Jon's sister, Rachel M., Jons' little sister behind her, Rachel K., Caden J., and Jon. Front Row.Gracie H., Brenna J., Lee M. Learn more about the Reconstructive Surgery Act. Encourage your elected officials to review this proposed legislation!

SUBDOMAINS

pathfinders.crouzon.org pathfinders.crouzon.org

The Pathfinder Outreach Network - Cleft, Craniofacial Support for Families!

The Pathfinder Outreach Network is designed to address these issues on a local basis and is overseen by the most important person on your child's cleft/craniofacial team.YOU! The Pathfinder Outreach Network. You can make a difference. Support groups are often associated with a monthly meeting at a particular time and location, and perhaps a special event once or twice a year.  But we like the NETWORK approach much better! The Pathfinder Program = Support NETWORK! A program overview is available.

INTERNAL PAGES

crouzon.org crouzon.org
1

Welcome to the Crouzon Support Network, a Program of AmeriFace!

http://www.crouzon.org/index.html

Meet some of our friends! Photo taken in June 2003 at the Cher's Family Retreat in Washington, DC. From Left Side Rail to Top Left to Right: Rita M., Robyn J., Laurie M., Nancy K., Ann G., Debbie O., Gail M. CSN's Kids: From Center Left to Right:. Jon's sister, Rachel M., Jons' little sister behind her, Rachel K., Caden J., and Jon. Front Row.Gracie H., Brenna J., Lee M. Learn more about the Reconstructive Surgery Act. Encourage your elected officials to review this proposed legislation!

UPGRADE TO PREMIUM TO VIEW 0 MORE

TOTAL PAGES IN THIS WEBSITE

1

LINKS TO THIS WEBSITE

cepcolorado.com cepcolorado.com

Partnerships « Children’s Eye Physicians: Kid's Vision. Our Mission.

http://cepcolorado.com/partnerships/strabismus-institute

Children’s Family Optical. The inclusion of any resource or link on the Children’s Eye Physicians website does not imply endorsement. They are provided for educational purposes only. As scientific findings and medicine are changing rapidly, we urge you to note the date of publication of the material that you review. Please consult with your health care provider regarding how any information found on the internet may apply to your own situation. Anchor Center for Blind Children. Autism Society of America.

heroeswiththousandfaces.blogspot.com heroeswiththousandfaces.blogspot.com

Eye of the Beholder: About the Book

http://heroeswiththousandfaces.blogspot.com/2006/12/about-book.html

Eye of the Beholder. Imagine if we had to wear our imperfections like labels on our faces every day - in photos, at formal events, job interviews, meeting someone for the first time. What if there were no hiding our imperfections? No doubt we would struggle with feeling self-conscious, and we would wonder how we were being judged by others. In my book,. Eye of the Beholder. Matthew was born with Moebius syndrome. Here's how his story begins:. When I first began my research for the book, I realized that l...

heroeswiththousandfaces.blogspot.com heroeswiththousandfaces.blogspot.com

Eye of the Beholder: Are face transplants ethical?

http://heroeswiththousandfaces.blogspot.com/2009/01/are-face-transplants-ethical.html

Eye of the Beholder. Are face transplants ethical? Not only was her face terribly disfigured from an accident, but her hands were too. She physically couldn't use them to take her own life. (She, by the way, contacted Cleveland Clinic in 2005 to inquire about face transplant.). To my mind, the real questions are these: Is quality of life just as important as life? Is any loss less than loss of life frivolous? Eye of the Beholder. A portion of the author's proceeds will benefit a number of organizations t...

heroeswiththousandfaces.blogspot.com heroeswiththousandfaces.blogspot.com

Eye of the Beholder: Cleveland Clinic performs nation's first near-total face transplant

http://heroeswiththousandfaces.blogspot.com/2008/12/cleveland-clinic-performs-nations-first.html

Eye of the Beholder. Cleveland Clinic performs nation's first near-total face transplant. A multidisciplinary team of doctors and surgeons at Cleveland Clinic recently performed the first near-total face transplant in the United States. Read more at http:/ www.clevelandclinic.org/face. Eye of the Beholder. True Stories of People with Facial Differences and Their Quest for Acceptance. A portion of the author's proceeds will benefit a number of organizations that help support people with facial differences.

face-of-change.blogspot.com face-of-change.blogspot.com

The Face of Change: The Face of Change...

http://face-of-change.blogspot.com/2009/01/face-of-change.html

The Face of Change. A program of AmeriFace. The premier support organization for the cleft/craniofacial community. Wednesday, November 12, 2014. The Face of Change. Welcome to the re-launch of The Face of Change blog, a program of AmeriFace! AmeriFace is the premier support organization for the cleft/craniofacial community - or as we like to call it - the community of persons with facial differences. Changing attitudes, both within and outside the community of those with facial differences. Acceptance, n...

apocalyptica44.blogspot.com apocalyptica44.blogspot.com

Camille: Chiari syndrome (2002)

http://apocalyptica44.blogspot.com/2007/12/chiari-syndrome-2002.html

After various exams, including MR imaging in March, it was discovered that Camille has another malformation: Chiari syndrome. (cerebellar tonsils going down the brainstem). This latter disease is progressive and causes paralysis in a relatively short (6 months) or sometimes longer (5 years) period of time, as well as other impairments. Inscription à : Publier les commentaires (Atom). Opérations de Camille - 2003. Le syndrome de Crouzon. Le Syndrome de Chiari. Appel à l'aide - 2002. Photos de Camille bébé.

apocalyptica44.blogspot.com apocalyptica44.blogspot.com

Camille: Le syndrome de Crouzon - 2002

http://apocalyptica44.blogspot.com/2007/12/le-syndrome-de-crouzon-2002.html

Le syndrome de Crouzon - 2002. Inscription à : Publier les commentaires (Atom). Opérations de Camille - 2003. Le syndrome de Crouzon. Le Syndrome de Chiari. Appel à l'aide - 2002. Lettre de Camille - 2002. Photos de Camille bébé. Letter from Camille (English). Call for Help - 2002 (English). Thème Solipsus dessiné par.

apocalyptica44.blogspot.com apocalyptica44.blogspot.com

Camille: Lettre de Camille en 2002 (archive)

http://apocalyptica44.blogspot.com/2007/12/lettre-de-camille-en-2002.html

Lettre de Camille en 2002 (archive). Je m'appelle Camille, j'ai 14 ans j'habite à la Bruffière en Vendée. Je suis née atteinte d'une maladie génétique rare : « La maladie de Crouzon . Cette maladie s'opère en trois stades . J'ai entamé la dernière phase d'interventions en juin 2003. Mais lors d'un examen préparant cette opération l'équipe médicale a découvert que j'avais une autre maladie génétique associée : la malformation de Chiari. Inscription à : Publier les commentaires (Atom). Le Syndrome de Chiari.

apocalyptica44.blogspot.com apocalyptica44.blogspot.com

Camille: Le Syndrome de Chiari - 2002

http://apocalyptica44.blogspot.com/2007/12/le-syndrome-de-chiari.html

Le Syndrome de Chiari - 2002. Inscription à : Publier les commentaires (Atom). Opérations de Camille - 2003. Le syndrome de Crouzon. Le Syndrome de Chiari. Appel à l'aide - 2002. Lettre de Camille - 2002. Photos de Camille bébé. Letter from Camille (English). Call for Help - 2002 (English). Thème Solipsus dessiné par.

UPGRADE TO PREMIUM TO VIEW 32 MORE

TOTAL LINKS TO THIS WEBSITE

41

OTHER SITES

crouzo.com crouzo.com

Sign in · GitLab

Didn't receive a confirmation email? Request a new one. Open source software to collaborate on code. Manage git repositories with fine grained access controls that keep your code secure. Perform code reviews and enhance collaboration with merge requests. Each project can also have an issue tracker and a wiki.

crouzol63.skyrock.com crouzol63.skyrock.com

Blog de crouzol63 - nounou monde de bricoleur..... - Skyrock.com

Mot de passe :. J'ai oublié mon mot de passe. Nounou monde de bricoleur. Mise à jour :. Abonne-toi à mon blog! Bonjour a tous je mappelle nadege et je assistante maternelle agrée dans le puy de dome. Tout au long de ces pages vous aurez un apercu de mon metier quand les parent me confient leurs bout de chou. Vous verez les lieux ou il evoluent. Ou poster avec :. Retape dans le champ ci-dessous la suite de chiffres et de lettres qui apparaissent dans le cadre ci-contre. Posté le jeudi 13 octobre 2011 12:15.

crouzon.blogcu.com crouzon.blogcu.com

crouzon sendromu - crouzon - Blogcu.com

Crouzon sendromu craniosynostosis (kafatası ek. CROUZON SENDROMU HAKKINDA BİLGİLER. Crouzon sendromunu kimler taşır? Crouzon sendromu 100,000 kişiden 1.6 sında meydana geldiği tahmin edilen. Üye blogların içeriğinden blog yazarları sorumludur. Şikayetler için tıklayınız.

crouzon.dk crouzon.dk

Crouzonforeningen i Danmark

At være far til en anderledes dreng. Det er hård at gå i skole. Min storebror er der ingen der skal genere. Mor til 3 døtre med Crouzon syndrom. Mor til dreng med et syndrom. Historier om at leve med Crouzon,.

crouzon.net crouzon.net

DerekSteinbacher.com

Cleft Lip and Palate. Cosmetic & Aesthetic Procedures. Cosmetic & Aesthetic Procedures. Derek Steinbacher MD, DMD. Dr Derek Steinbacher is board certified, specializing in Plastic and Craniomaxillofacial Surgery. Click here to learn more. Click to learn more. Correction of these common congenital facial conditions. Click to learn more. Correct facial balance, breathing, eating, speaking, and malocclusion. Click to learn more. Improve look & function of nose; Correct defects & deformities. P: 203 785 4559.

crouzon.org crouzon.org

Welcome to the Crouzon Support Network, a Program of AmeriFace!

Meet some of our friends! Photo taken in June 2003 at the Cher's Family Retreat in Washington, DC. From Left Side Rail to Top Left to Right: Rita M., Robyn J., Laurie M., Nancy K., Ann G., Debbie O., Gail M. CSN's Kids: From Center Left to Right:. Jon's sister, Rachel M., Jons' little sister behind her, Rachel K., Caden J., and Jon. Front Row.Gracie H., Brenna J., Lee M. Learn more about the Reconstructive Surgery Act. Encourage your elected officials to review this proposed legislation!

crouzonsdownsandme.blogspot.com crouzonsdownsandme.blogspot.com

Crouzons, Downs and Me....Love and Life

Crouzons, Downs and Me.Love and Life. This is my life, living with and having children with Crouzon syndrome and Down syndrome. Saturday, 7 February 2015. Blog 79 - My Thoughts on Wife Divorcing Dad over Baby Son Being Born With Down syndrome. Dad Divorced by Wife Over Son with Down syndrome. During the week in hospital Joe and I would see the obstetrician and paediatrician whispering to each other when they were examining Jessica but nothing was said to us. Upon leaving the ward, the paediatrician q...

crouzonsyndrome.com crouzonsyndrome.com

crouzonsyndrome.com - This website is for sale! - crouzonsyndrome Resources and Information.

The domain crouzonsyndrome.com. May be for sale by its owner! This webpage was generated by the domain owner using Sedo Domain Parking. Disclaimer: Sedo maintains no relationship with third party advertisers. Reference to any specific service or trade mark is not controlled by Sedo nor does it constitute or imply its association, endorsement or recommendation.

crouzton3.skyrock.com crouzton3.skyrock.com

Blog de Crouzton3 - Le big blog de crouzton3 - Skyrock.com

Mot de passe :. J'ai oublié mon mot de passe. Le big blog de crouzton3. Mise à jour :. Abonne-toi à mon blog! Le super match de rugby. Avec mes copain on est allé voir Bourgoin vs Paris c'était top cool. N'oublie pas que les propos injurieux, racistes, etc. sont interdits par les conditions générales d'utilisation de Skyrock et que tu peux être identifié par ton adresse internet (67.219.144.114) si quelqu'un porte plainte. Ou poster avec :. Posté le samedi 27 septembre 2008 04:43. Ou poster avec :. Posté...

crouzz.skyrock.com crouzz.skyrock.com

Blog de CrOuZz - <3 MoNiCa ET PeNeLoPe CrOuZz <3 - Skyrock.com

Mot de passe :. J'ai oublié mon mot de passe. 3 MoNiCa ET PeNeLoPe CrOuZz 3. CoCa dAnS Le CIEL. Fobi d den rouge. KesKel Fé La DinGue Elle. Vien on va a L'aZILe. T JaLoUz CoMmE Un PoUx. MoI , MoI Et MoI VoUdRAiS SaVoIr Ce Ki Se PaSsE ICI , SaNs PaRlEr De MeS LeCtEuRs AsSoIFés. Un jour je serais le MEILLEUR dresseur je me battrai sans répi , je ferai tout pour etre vainquer , et gagner les defiss.POKEMON. TEkiLA PUpy tEkIlA PupY! J'avoue yavait du sacré TRIP à l'époque. On est toujours aussi drole hein :).