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CSID Cares.org, a disease awareness site | CSID Cares

Congenital Sucrase-Isomaltase Deficiency is a disorder that affects a person's ability to digest certain sugars due to absent/low levels of digestive enzymes.

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CSID Cares.org, a disease awareness site | CSID Cares | csidcares.org Reviews

https://csidcares.org

Congenital Sucrase-Isomaltase Deficiency is a disorder that affects a person's ability to digest certain sugars due to absent/low levels of digestive enzymes.

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1

Treatment Options to be considered for CSID | CSID Cares

https://www.csidcares.org/treatment

What are my treatment options? Working with a Registered Dietitian. Sugars and sugar substitutes. Tips for avoiding power struggles over food for parents/caregivers. Community. Advocacy. Research. Education. Support. Designed by BroDus, LLC. Privacy Policy.

2

References - CSID Cares

https://www.csidcares.org/references

Ament ME, Perera DR, Esther LJ. Sucrase-isomaltase deficiency – a frequently misdiagnosed disease. J Pediatr. Http:/ www.ncbi.nlm.nih.gov/pubmed? Anderson CM, Kerry KR, Townley RR. An inborn defect of intestinal absorption of certain monosaccharides. Arch Dis Child. Http:/ www.ncbi.nlm.nih.gov/pubmed? Anderson CM, Messer M, Townley RR, et al. Intestinal sucrase and isomaltase deficiency in two siblings. Pediatrics. Http:/ www.ncbi.nlm.nih.gov/pubmed? Http:/ www.ncbi.nlm.nih.gov/pubmed? Davidson GP, Robb ...

3

Life with CSID and patients and caregivers | CSID Cares

https://www.csidcares.org/life-with-csid

You are the expert. Communicating with healthcare providers effectively. Caregivers/parents of children with CSID. Dealing with your own emotions about CSID as a parent/caregiver. Making the family a team. Helping your child with CSID cope. Growing up with CSID. Transitioning CSID management to a young adult. School issues: getting your child’s educational needs met. Taking CSID to work. Interpersonal issues for adults with CSID. Medical care for adults with CSID. Financial concerns for patients with CSID.

4

Choosing your foods - CSID Cares

https://www.csidcares.org/treatment/diet

Dietary treatment for CSID is based on sucrose. Isomaltose, and maltose. Restriction. The degree of restriction is patient-specific. Patients with CSID should plan their diet in conjunction with their physician and registered dietitian. Gas, diarrhea, or abdominal pain. This detailed food record will help the RD plan a diet more effectively. When introducing new food items, it is recommended that you wait at least 3 days before introducing an additional food item. In order to first determine sucrose.

5

Food Composition Database - CSID Cares

https://www.csidcares.org/treatment/food-composition-database

Food composition databases can be useful resources for patients with CSID. Many Registered Dietitians. Use food composition databases to assess a patient’s nutritional status and develop appropriate diets. Food composition databases (or food composition tables) are resources that provide detailed food composition data on the nutritionally important components of foods. Food composition databases provide values for energy and nutrients including carbohydrates. Is cooked, how the starch. The USDA National ...

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Going Paleo {Paleo + CSID Part 1} – Essential Carbohydrate Living

https://csidrecipes.com/2013/05/going-paleo-paleo-csid-part-1.html

CSID stories, recipes, supplements, and health topics. Journaling Parker’s Progress. Candida or Yeast Overgrowth. Going Paleo {Paleo CSID Part 1}. May 18, 2013. January 12, 2016. Sausage, Egg, and Sweet Potato Breakfast Skillet{ EveryDayPaleo.com. Within a few weeks of finalizing A Place to Start Without Sugar or Starch. First, though, I had to kick the migraines. I decided to see a chiropractor since the last thing I wanted was to add another medication to my nightstand. I had worked hard to rem...3 Wit...

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QOL Medical: Changing Lives

http://www.qolmed.com/index.html

Welcome to QOL Medical, LLC. QOL Medical is a specialty biopharmaceutical company dedicated to improving the quality of life for patients with rare diseases, for their families, and for the physicians and caregivers who support them. Ethanolamine Oleate) Injection, 5%. Please visit our newest website:. Our website for patients and caregivers. Is available. Click here. For Lot B1102 consent forms. For an important update on Lot B1210. Explore QOL’s Family of Products. Ethanolamine Oleate) Injection 5%.

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Support Group

http://www.csidinfo.com/support.htm

NORD Registered and Reviewed. Sucrose and Starch in Foods. The Congenital Sucrase-Isomaltase Deficiency Support Group. Is the only international support group supporting and tracking children with CSID. The support group provides information to doctors, dieticians, and parents or individuals who may need assistance with the disorder. The support group has mentors available to assist parents with newly diagnosed children with CSID and can provide referrals for families who need help. Parents may also cons...

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CSID Cares.org, a disease awareness site | CSID Cares

Helping Your Child with CSID Cope. The first thing to realize is that knowledge is power. Just as you, the parent or caregiver, will feel better equipped to handle the diagnosis as you learn more, so will your child. The more information you and your child can learn, the better you and your child will feel about your family’s abil. What Is Congenital Sucrase-Isomaltase Deficiency? What Are the Symptoms of CSID? IMPORTANT SAFETY INFORMATION FOR SUCRAID. Some patients may have worse abdominal pain, vomitin...

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