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CureDuchenne: Home | cureduchenne.org Reviews
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CureDuchenne: Take Action
http://www.cureduchenne.org/takeaction.html
Together, we can CureDuchenne. Message from the Founders. Be a CureDuchenne Advocate. Ignorance is the enemy of Duchenne. In order to cure this disease, we urgently need to get the word out to support research and clinical trials. When we advocate for CureDuchenne, we raise awareness to raise the funds needed for research, to save our children. Here are some ways you can help us CureDuchenne:. Hold a family and friends event:. Access your own fundraising page:. Organize an event through Crowdrise:. Many ...
CureDuchenne: Shopping
http://www.cureduchenne.org/shopping.html
Together, we can CureDuchenne. Message from the Founders. CureDuchenne has an online fundraising gift store provided by Phil's Shops LLC. Our store offers cookies and cakes, fruit baskets, bath and body products, candles, toys, BBQ items and an array of picnic baskets. Every purchase generates a donation directly to CureDuchenne. So please visit our store at http:/ cureduchenne.philsshops.com. 1400 Quail Street, Suite 110. Newport Beach, CA 92660. 1 949 872 2552.
CureDuchenne: eDystrophy
http://www.cureduchenne.org/edystrophy.html
Together, we can CureDuchenne. Message from the Founders. Exon skipping drugs will be used to transform Duchenne muscular dystrophy into a much milder disease as seen in Becker muscular dystrophy patients. eDystrophin is an online database that provides information about inframe mutations typically seen in patients with milder forms of the disease. The database has been constructed using patient records and is easy to use and searchable by mutation type or clinical phenotype. The eDystrophin database con...
CureDuchenne: Webinars
http://www.cureduchenne.org/webinars
Together, we can CureDuchenne. Message from the Founders. Catabasis Pharmaceuticals, Inc. webinar “MoveDMD: A Clinical Trial of Edasalonexent (CAT-1004) in Boys with Duchenne Muscular Dystrophy”. Bamboo Therapeutics - Developing a novel gene therapy for patients with Duchenne muscular dystrophy. HOPE-Duchenne: A Clinical Trial for Individuals with Heart Disease Related to DMD. Capricor Therapeutics Research Update for Duchenne. On April 6, 2015, CureDuchenne and Dr. Kevin Flanigan held a webinar to p...
CureDuchenne: About
http://www.cureduchenne.org/about-cureduchenne.html
Together, we can CureDuchenne. Message from the Founders. Our vision is our name:. Read message from the founders. 1400 Quail Street, Suite 110. Newport Beach, CA 92660. 1 949 872 2552. CureDuchenne is a 501c3 registered tax-exempt nonprofit organization. Our federal tax ID number is: #20-0299958.
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HEMOPHILIA | 3 for 99 Charity
http://www.3for99charity.org/index.php/hemophilia
On the day that Nathan was born, his parents knew something was wrong. The site of a heel stick for routine neonatal lab tests had trickled blood all day long despite the attention of several nurses and the replacement of many blood-soaked Band-aids. Three weeks later, Nathan was diagnosed with hemophilia. How You Can Help. If you wish to support our organization. Today and help save lives, click here. 1106 Second Street #305. Encinitas, CA 92024-5008. Like Us on Facebook.
Giving Back @ the Pink Daffodil
http://www.pinkdaffodil.com/giving-back
Giving back is one of our primary initiatives. The Pink Daffodil has been honored to decorate for the Chance for a Lifetime Gala , a large scale fundraising event for CureDuchenne for the past 4 years. We donate our designs and services for this large scale event which hosts more than 500 potential donors. We are also proud to work for Pacific Pointe Church located in Irvine, California. Tel: (949) 294.9519. Fax: (949) 726.9519. 2640 Walnut Avenue, Suite G. Tustin, CA 92780. Like Us On Facebook.
FirstGiving - Kimberly Procko's Fundraising Page
http://www.firstgiving.com/kimberlyprocko
Kimberly Prockos Fundraising Page. Your page has been updated. Your links have been updated. Your images have been updated. An error occurred while saving. Refresh this page if the error persists. Images must be at least 200 pixels wide by 200 pixels tall. Kimberly Prockos Fundraising Page. Kimberly Prockos Fundraising Page. We are screaming for help. On March 23, 2008, our son, Evan, was diagnosed with Duchenne Muscular Dystrophy, which is 100% fatal, usually by late teens or early 20's. Your donation c...
The Mench Times: THE YANKEES WIN!
http://themenchtimes.blogspot.com/2009/11/yankees-win.html
Thursday, November 5, 2009. THEY WIN IT ALL! THE NEW YORK YANKEES ARE THE WINNERS OF THE 2009 WORLD SERIES! THEY WIN, THEY WIN! AAWWWW, YANKEES WIN! Subscribe to: Post Comments (Atom). View my complete profile. American Jewish World Service. Big Brothers Big Sisters. Boys and Girls Clubs of America. Freedom Alliance Scholarship Fund. Safe At Home Foundation.
The Mench Times: Religious Freedom
http://themenchtimes.blogspot.com/2008/02/religious-freedom.html
Thursday, February 28, 2008. I forget the exact context, but it was sometime in college that I first heard the phrase that most perfectly encapsulates my interpretation of the Establishment Clause, with which I agree wholeheartedly: freedom of. Religion, not freedom from. Religion. In yesterday's edition of The New York Sun. Another worthy formulation comprised the headline of Section II: "Freedom for. Father Richard John Neuhaus, best known, perhaps, for being Editor-in-Chief of First Things. Congress s...
Referrals Duchenne Therapy Network
http://duchennetherapynetwork.com/referrals
Organization dedicated to ending Duchenne:. Http:/ www.CureDuchenne.org. Comprehensive Care for those with Muscular Dystrophy:. Cincinnati Children’s Hospital – Comprehensive Neuromuscular Center. Http:/ www.cincinnatichildrens.org/svc/alpha/n/neuromuscular/health/%20. UCLA – Center for Duchenne Muscular Dystrophy. Http:/ www.cdmd.ucla.edu/. Nutrition and Supplement Information:. Remember to always consult with your physician before beginning any supplements). Http:/ jn.nutrition.org/.
The Mench Times: November 2009
http://themenchtimes.blogspot.com/2009_11_01_archive.html
Thursday, November 5, 2009. THEY WIN IT ALL! THE NEW YORK YANKEES ARE THE WINNERS OF THE 2009 WORLD SERIES! THEY WIN, THEY WIN! AAWWWW, YANKEES WIN! Subscribe to: Posts (Atom). View my complete profile. American Jewish World Service. Big Brothers Big Sisters. Boys and Girls Clubs of America. Freedom Alliance Scholarship Fund. Safe At Home Foundation.
The Mench Times: A Wrinkle in Time
http://themenchtimes.blogspot.com/2007/09/wrinkle-in-time.html
Sunday, September 30, 2007. A Wrinkle in Time. When I heard a few weeks ago that author Madeleine L'Engle had passed away, I was surprised, and then saddened. Surprised, because I thought that she had already passed on; saddened, because I remembered enjoying her writing very much as a youth. The news story about her passing mentioned that her writing highlighted her Christian faith. This peaked my interest, because I had read perhaps her two most well-known books,. A Wrinkle in Time. A Wind in the Door.
The Mench Times: July 2008
http://themenchtimes.blogspot.com/2008_07_01_archive.html
Monday, July 7, 2008. In any event, it occurred to me that I have yet to discuss this conviction of mine on The Mench Times. So, here it is:. Marriage is probably the only major issue in which I am firmly in the libertarian camp to the exclusion of a position in the conservative camp. I say "marriage", and not "gay marriage", because to restrict the discussion to homosexual marriage is to miss the point. The problem is that we have made the government the arbiter of marriage in the first place. Marriage ...
mrsmillertime | uncrafty mommy
https://mrsmillertime.wordpress.com/author/mrsmillertime
Skip to primary content. Skip to secondary content. The blog is moving. again. December 20, 2011. When I relocated the blog to WordPress from Blogger earlier this year, I was fully expecting it to be an easy-peasy transition…just a quick url change and I would continue on with my regularly scheduled blogging. And then life got in the way and I just kind of quit blogging all together. So earlier this month I gave myself a purpose. December 14, 2011. Pinterest. Enter stage left. No more wire hangers. Wire ...
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curedsalts - Home
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Cure Duchenne
Wednesday, July 16, 2008. CureDuchenne Presents the Experts on Duchenne Muscular Dystrophy Research. Fortunately, the pace of research for Duchenne muscular dystrophy is increasing. We like the fact that it’s hard to keep up on new developments. Two novel therapies are now in human trials, PTC124 from PTC Therapeutics and exon skipping from Prosensa. CureDuchenne is proud to be a supporter of both projects. Thank you for your continued support,. DEBRA MILLER, Founder and Parent of a Duchenne Boy. Thanks ...
CureDuchenne: Home
Together, we can CureDuchenne. Message from the Founders. Treating the Whole Disease (Infographic). Help Tyler Armstrong Climb to CureDuchenne. Tyler is not just trying to set a world record; his goal is to raise awareness and funds to cure Duchenne muscular dystrophy, the most common and lethal muscle disease found in children. Duchenne afflicts approximately 300,000 boys worldwide. Together, we can CureDuchenne. Click here to donate. Duplication Mutation Therapy for Duchenne. Learn more about the colla...
Cure Duchenne Adventures
Viagra Most Effective Dose. Tuesday, July 1st, 2014. Sign Up For Climb to Cure Duchenne! SIGN UP For the 2010 Climb to Cure Duchenne: Pick Your Peak! To Sign Up, Just Scroll Down! WHAT: 2010 Climb to Cure Duchenne: Pick Your Peak! Teams from every state will be participating. As the title suggests, climbers will "pick their peak", train, and then climb it! Everyone and anyone who is interested in bringing a cure . 2010 Climb to Cure Duchenne: Pick Your Peak UPDATE. To Sign Up, Just Scroll Down! Now imagi...
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CureDuchenne Founder’s Blog
CureDuchenne Founder’s Blog. The Thoughts and Findings of CureDuchenne Founder Debra Miller. Europe Approves High-Price Gene Therapy. Ndash; November 2nd, 2012. LONDON (Reuters) – European officials have approved the Western world’s first gene therapy drug from a small Dutch biotech company, in a milestone for the novel medical technology that fixes faulty genes. Patients with LPLD, which affects no more than one or two people per million, are unable to handle fat particles in their blood and are at risk...
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