curetay-sachs.org curetay-sachs.org

CURETAY-SACHS.ORG

Cure Tay-Sachs Foundation

The Cure Tay-Sachs Foundation is dedicated to funding the on-going research needed to find treatments and a cure for Tay-Sachs Disease. Once the cure for Tay-Sachs has been found - and we will find it! - we will dedicate our efforts to promoting carrier-testing and Tay-Sachs awareness initiatives.

http://www.curetay-sachs.org/

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CONTACTS AT CURETAY-SACHS.ORG

Kenneth Bihn

7291 Ch●●●●●●● Court.

Olms●●●●alls , OH, 44138

US

1.44●●●●0165
ke●●●●●●@curetay-sachs.org

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Kenneth Bihn

7291 Ch●●●●●●● Court.

Olms●●●●alls , OH, 44138

US

1.44●●●●0165
ke●●●●●●@curetay-sachs.org

View this contact

Kenneth Bihn

7291 Ch●●●●●●● Court.

Olms●●●●alls , OH, 44138

US

1.44●●●●0165
ke●●●●●●@curetay-sachs.org

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Cure Tay-Sachs Foundation | curetay-sachs.org Reviews
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The Cure Tay-Sachs Foundation is dedicated to funding the on-going research needed to find treatments and a cure for Tay-Sachs Disease. Once the cure for Tay-Sachs has been found - and we will find it! - we will dedicate our efforts to promoting carrier-testing and Tay-Sachs awareness initiatives.
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1 Cure Tay-Sachs Foundation
2 Make a donation
3 Dakota's Dream
4 About Tay-Sachs Disease
5 Fundraising - Adopt A Mouse
6 Home
7 Tay-Sachs Disease
8 Carrier Statistics
9 Family's Story
10 Drawings Of Our Kids
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PAGE
make a donation,tay sachs disease,about tay sachs disease,carrier statistics,family's story,media coverage,research initiatives,about research initiatives,current research update,gene therapy,inhibitors,cord blood transplant,chaperone therapy,fundraising
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Cure Tay-Sachs Foundation | curetay-sachs.org Reviews

https://curetay-sachs.org

The Cure Tay-Sachs Foundation is dedicated to funding the on-going research needed to find treatments and a cure for Tay-Sachs Disease. Once the cure for Tay-Sachs has been found - and we will find it! - we will dedicate our efforts to promoting carrier-testing and Tay-Sachs awareness initiatives.

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curetay-sachs.org curetay-sachs.org
1

The Cure Tay-Sachs Foundation - Dakota's Dream Page

http://www.curetay-sachs.org/dream.shtml

12730 Triskett Rd. Cleveland, OH 44111. Drawings of Our Kids. Enzyme Replacement Therapy (ERT). 2015 Tay-Sachs Charity Auction. 6th Annual Dakota's Dream. 6th Annual Dakota's Dream Campaign! Saturday, September 22, 2012! Click play to view DAKOTA'S DREAM video. The first five years of the Dakota's Dream Campaign raised $117,754. That is passed on to a child when two carrier parents pass the gene to their baby. The carrier rates increase to 1 in 27 in the Ashkenazi Jewish, Louisiana Cajun, and French ...

2

The Cure Tay-Sachs Foundation - Research Initiatives - GM2 Ganglioside Inhibitors

http://www.curetay-sachs.org/procmap.shtml

12730 Triskett Rd. Cleveland, OH 44111. Drawings of Our Kids. Enzyme Replacement Therapy (ERT). 2015 Tay-Sachs Charity Auction. Tay-Sachs Awareness State Proclamations. Tay-Sachs Proclamation have been issued in States colored orange! Roll over state to see month of proclamation - click on state to see Proclamation. The Cure Tay-Sachs Foundation is a 501(c)(3) tax exempt foundation. Site-design by Ken Bihn. Developed by Michael Pusateri.

3

The Cure Tay-Sachs Foundation - One in a Million

http://www.curetay-sachs.org/oneinamillion.shtml

12730 Triskett Rd. Cleveland, OH 44111. Drawings of Our Kids. Enzyme Replacement Therapy (ERT). 2015 Tay-Sachs Charity Auction. One in a Million". June 1st, 2007. Have you ever heard the expression "One in a million? I am sure most everyone has. I'd like to try and explain what "one in a million" means to me. We all think the odds are so remote, we don't need to worry about the hundreds of rare disorders. When the odds catch up with you, everything. Let me try and put it into perspective for everyone.

4

The Cure Tay-Sachs Foundation - About Tay-Sachs Disease

http://www.curetay-sachs.org/about.shtml

12730 Triskett Rd. Cleveland, OH 44111. Drawings of Our Kids. Enzyme Replacement Therapy (ERT). 2015 Tay-Sachs Charity Auction. Hereditary disorder resulting from a deficiency of the enzyme hexosaminidase. Symptoms include blindness, delayed development, seizures and paralysis. Tay-Sachs disease often results in an early death. What is Tay-Sachs Disease. A slide show is available here. There are generally three types of Tay-Sachs disease: Classic. Or "Infantile"), Juvenile Onset. To date, there is no cur...

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thechroniclesofreebecauseisaidso.blogspot.com thechroniclesofreebecauseisaidso.blogspot.com

The Chronicles Of Ree: Because I Said So!: Christmas Crown **REPOST**

http://thechroniclesofreebecauseisaidso.blogspot.com/2008/12/christmas-crown.html

Daughter Of The Morning. I Gotta Do Something. Perils Of Potty Training. Follow me on Twitter. For More Info On Tay-Sachs Disease Please Visit. National Tay-Sachs and Allied Diseases Association. Tuesday, December 21, 2010. Christmas Crown * REPOST*. A circular wreath is an emblem of Christmas, perfection, and unity. The holy wreath first symbolized Christ's suffering and ultimate triumph over death. It's sharp pointed leaves resemble the crown of thorns worn by Jesus on the cross. This post is by Ree.

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Verein Hand in Hand gegen Tay-Sachs - Links

http://www.tay-sachs.net/en/association/links

Honor Members - Kids of the sun. Honor Members - Kids of the stars. Thank you very much! Hand in Hand gegen Tay-Sachs and Sandhoff Deutschland. The CATS Foundation (Cure and Action for Tay-Sachs). Pro Rare Austria - Allianz für seltene Erkrankungen. Gesellschaft für Mukopolysaccharidosen Österreich. NTSAD - National Tay-Sachs and allied Diseases. CTSF - Cure Tay Sachs Foundation. NTSAD-DV - National Tay-Sachs and allied Diseases Association of. Bionenergethik by Jürgen Lueger Salzburg.

gentlemanauctionhouse.blogspot.com gentlemanauctionhouse.blogspot.com

Gentleman Auction House's Virtual Tag-A-Long: December 2009

http://gentlemanauctionhouse.blogspot.com/2009_12_01_archive.html

Wednesday, December 16, 2009. Big bad crummy news. Some super-sickness is forcing us to drop off of our Chicago, Champaign, and St. Louis shows this weekend. The good news is that all three shows are still going to be super-sweet, and you should definitely still go! So sorry, wish us well, and we'll catch you next time. ♡GAH. Posted by Gentleman Auction House. Monday, December 14, 2009. Hey, check out Eleven Magazine. Posted by Gentleman Auction House. Friday, December 11, 2009. We've been brushing up so...

gentlemanauctionhouse.blogspot.com gentlemanauctionhouse.blogspot.com

Gentleman Auction House's Virtual Tag-A-Long: May 2009

http://gentlemanauctionhouse.blogspot.com/2009_05_01_archive.html

Thursday, May 28, 2009. The GAH Guide To The RFT Music Showcase on 6/7. Hopefully you all know already that the voting for the 2009 RFT Music Awards is underway ( vote here! And that the RFT Music Showcase is happening on June 7th, a week from this Sunday. Well if you didn't know, now you do. Anywho, you can check out the Showcase schedule here. So, without further ado, here's the GAH Guide to the RFT Music Showcase (including a confusing map at the bottom! 2:00 – 3:00. While the FBBB sounds like a good ...

gentlemanauctionhouse.blogspot.com gentlemanauctionhouse.blogspot.com

Gentleman Auction House's Virtual Tag-A-Long: September 2009

http://gentlemanauctionhouse.blogspot.com/2009_09_01_archive.html

Wednesday, September 30, 2009. GAH wins RFT's "Best Indie Band" for "Best Of 2009", New shows this Fall! We're super flattered to win the Riverfront Times Best Of 2009 award for "Best Indie Band", and we offer a hearty "Congrats" to our drummer, Ryan Adams, for winning "Best Live Sound Engineer"! Oct 16, 2009 - Columbia, MO (US) @ Blue Note - Bluebird Music and Arts Festival w/ Starlight Mints. Oct 17, 2009 - St. Louis, MO (US) @ Off Broadway w/ Blind Eyes and The Safes and Beth Bombara.

gentlemanauctionhouse.blogspot.com gentlemanauctionhouse.blogspot.com

Gentleman Auction House's Virtual Tag-A-Long: July 2009

http://gentlemanauctionhouse.blogspot.com/2009_07_01_archive.html

Friday, July 3, 2009. Nothing like spending 4th of July weekend knocking out some new tunes for a new record. Working on the checklist. Translation for everyone's signature "checkmarks":. Stephen [Robot]=Bleepy boopy boop. Eric (Guitar)=(. )( .). We're finna keep on truckin', so we get back atcha with more soon. Careful with those fireworks kids. God bless America(n Gladiators)! Posted by Gentleman Auction House. Subscribe to: Posts (Atom). View my complete profile. Subscribe to Tag-A-Long more better!

gentlemanauctionhouse.blogspot.com gentlemanauctionhouse.blogspot.com

Gentleman Auction House's Virtual Tag-A-Long: Oh How We Love Us Some Christmastime...

http://gentlemanauctionhouse.blogspot.com/2009/12/oh-how-we-love-us-some-christmastime.html

Friday, December 11, 2009. Oh How We Love Us Some Christmastime. Been awhile since Team GAH checked in, so he we are, wishing you and yours Seasons Greetings! We've been brushing up some of the tunes from our Christmas In Love. EP, getting them all primed, polished, and ready for the ears of any and all who make it out to one of our three bound-to-be-awesome Christmas shows. 12-17 Chicago, IL - Schubas Tavern - w/ Raise High The Roof Beam and Old Stable Hands. Posted by Gentleman Auction House.

gentlemanauctionhouse.blogspot.com gentlemanauctionhouse.blogspot.com

Gentleman Auction House's Virtual Tag-A-Long: November 2008

http://gentlemanauctionhouse.blogspot.com/2008_11_01_archive.html

Thursday, November 6, 2008. Stuff a stocking with "Christmas In Love"! Little Elves and Big Elves -. On November 18th of this year, our beloved record label, Emergency Umbrella. Will release our third record of 2008: Christmas In Love. Obviously we are crazy lucky to have a record label that will let us release an EP. A Christmas record, all in one year (collect them all! But more than anything, we're just happy that we got to check this project off of our Wish List. So, the GAH. Home For The Holidays.

gentlemanauctionhouse.blogspot.com gentlemanauctionhouse.blogspot.com

Gentleman Auction House's Virtual Tag-A-Long: December 2008

http://gentlemanauctionhouse.blogspot.com/2008_12_01_archive.html

Tuesday, December 16, 2008. THIS FRI. DEC 19 @ OFF BROADWAY - A BLUE RIBBON XMAS w/GAH, The Hibernauts, Target Market, and Cold Bear Scout. This Friday, you're invited to. A BLUE RIBBON CHRISTMAS. December 19 at Off Broadway. 3511 Lemp Ave, St Louis, MO 63118. Doors at 8:00 Show starts at 9:00 $8. Tom @ bagofsongs.com. Linda Laban, Rock 'n' Roll Examiner. RIYL: The Starlight Mints, Beck, The Polyphonic Spree, Modest Mouse, The Rentals, The New Pornographers. Kent Manthie, Amplifier Magazine. The Hibernau...

gentlemanauctionhouse.blogspot.com gentlemanauctionhouse.blogspot.com

Gentleman Auction House's Virtual Tag-A-Long: January 2009

http://gentlemanauctionhouse.blogspot.com/2009_01_01_archive.html

Wednesday, January 28, 2009. To whoever did this. Posted by Gentleman Auction House. Friday, January 23, 2009. GAH on Fearless Music TV tomorrow night. My Fellow Obamamericans,. Last October, while swinging through New York for the CMJ Music Festival, we stopped in to the Fearless Music TV studio for a taping. To be honest, we had damn near forgotten all about it until just a few days ago, when we found out it would be airing this Saturday night. New York, NY WNYW FOX Saturday Night 12:30am. Fort Wayne, ...

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US Tax Deductible EIN:. 2409 E. Luke Avenue Phoenix AZ 85016. There is HOPE in your HELP! Drawings Of Our Kids. Tay-Sachs Research For DUMMIES. Enzyme Replacement Therapy (ERT). Make Check Payable To CTSF. US Tax Deductible EIN:. 2409 E. Luke Avenue Phoenix AZ 85016. There is HOPE in your HELP! Drawings Of Our Kids. Tay-Sachs Research For DUMMIES. Enzyme Replacement Therapy (ERT). Make Check Payable To CTSF. Since our creation in June 2007, the CTSF has raised $4,375,814. There is HOPE in your HELP!

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