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CURING EZRA

Monday, June 22, 2015. Days of Wonder and Awe. It has been a while since we shared a full update. The past two months since our last update have been full of miraculous new experiences and milestones. For those of you who do not follow Ezra's Facebook page, Ezra started kindergarten three weeks ago! Sunday, April 26, 2015. On the medical front, Ezra's counts are great and he is now off steroids for the first time in over a year and a half! This includes the prophylactic antibiotics to prevent the type of...

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CURING EZRA | curingezra.blogspot.com Reviews

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Monday, June 22, 2015. Days of Wonder and Awe. It has been a while since we shared a full update. The past two months since our last update have been full of miraculous new experiences and milestones. For those of you who do not follow Ezra's Facebook page, Ezra started kindergarten three weeks ago! Sunday, April 26, 2015. On the medical front, Ezra's counts are great and he is now off steroids for the first time in over a year and a half! This includes the prophylactic antibiotics to prevent the type of...

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CURING EZRA | curingezra.blogspot.com Reviews

https://curingezra.blogspot.com

Monday, June 22, 2015. Days of Wonder and Awe. It has been a while since we shared a full update. The past two months since our last update have been full of miraculous new experiences and milestones. For those of you who do not follow Ezra's Facebook page, Ezra started kindergarten three weeks ago! Sunday, April 26, 2015. On the medical front, Ezra's counts are great and he is now off steroids for the first time in over a year and a half! This includes the prophylactic antibiotics to prevent the type of...

INTERNAL PAGES

curingezra.blogspot.com

1

CURING EZRA: 04/26/15

http://www.curingezra.blogspot.com/2015_04_26_archive.html

Sunday, April 26, 2015. It's been about 6 weeks since we found out that Ezra responded to vaccination and with that news, everything changed. It has been a whirlwind of a month with a lot of big changes both medically and socially. We have been slowly testing the waters of "normal" life one little toe at a time, which has been wonderful and scary at the same time. On the medical front, Ezra's counts are great and he is now off steroids for the first time in over a year and a half! Ezra Jordan Fineman (Ez...

2

CURING EZRA: 12/21/14

http://www.curingezra.blogspot.com/2014_12_21_archive.html

Sunday, December 21, 2014. Good news on the T cell front - Ezra's T cells have reached the normal range! We have also continued the slow wean of the immune suppressant. Getting off the immune suppressant and steroids is another challenge that Ezra needs to surmount in order to have a properly functioning immune system. His doctors are keeping a close eye on his counts to make sure there is no autoantibody flare up while we wean. So far, so good. Subscribe to: Posts (Atom). View my complete profile.

3

CURING EZRA: THE CURE

http://www.curingezra.blogspot.com/2015/03/the-cure.html

Friday, March 13, 2015. Ezra's immune system is in a good place. What is left to be seen is the terrifying part - how he will do in reality, rather than in the Petri dish, when faced with an infection? The other remaining issue is that he is still on a low dose of steroids that need to be weaned and we need to make sure he has no auto-antibody flare up as he is weaned. So for now, we continue with regular clinic visits. Now starts what we are considering to be Phase Two of Ezra's recovery: socialization ...

4

CURING EZRA: 06/22/15

http://www.curingezra.blogspot.com/2015_06_22_archive.html

Monday, June 22, 2015. Days of Wonder and Awe. It has been a while since we shared a full update. The past two months since our last update have been full of miraculous new experiences and milestones. For those of you who do not follow Ezra's Facebook page, Ezra started kindergarten three weeks ago! Subscribe to: Posts (Atom). Days of Wonder and Awe. View my complete profile. 2012 Simple template. Powered by Blogger.

5

CURING EZRA: Days of Wonder and Awe

http://www.curingezra.blogspot.com/2015/06/days-of-wonder-and-awe.html

Monday, June 22, 2015. Days of Wonder and Awe. It has been a while since we shared a full update. The past two months since our last update have been full of miraculous new experiences and milestones. For those of you who do not follow Ezra's Facebook page, Ezra started kindergarten three weeks ago! June 22, 2015 at 10:01 PM. That is all :). June 24, 2015 at 7:15 AM. This comment has been removed by the author. Jay - Gift of Life. June 24, 2015 at 7:18 AM. You are our hero! June 24, 2015 at 9:34 AM.

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aaronwolsey.blogspot.com

Aaron's Hyper IgM Journey: October 2014

http://aaronwolsey.blogspot.com/2014_10_01_archive.html

Aaron's Hyper IgM Journey. Aaron's Hyper IgM Journey. Tuesday, October 28, 2014. Aaron woke up at four o'clock this morning. He sleeps most of the day, but at 4am he decided he was done sleeping and ready to watch movies. Tired, but elated, I dragged myself out of my chair bed and sat next to him. We watched his new cooking movies he received for his birthday. Aaron has proven to be one tough kid! I really cannot believe it. Posted using BlogPress from my iPhone. Saturday, October 25, 2014. Out of the ICU.

aaronwolsey.blogspot.com

Aaron's Hyper IgM Journey: April 2014

http://aaronwolsey.blogspot.com/2014_04_01_archive.html

Aaron's Hyper IgM Journey. Aaron's Hyper IgM Journey. Tuesday, April 22, 2014. With all the "gloomy rainy" days we have had in April, May is sure to be full of the most beautiful "flowers.". Aaron's tummy is bigger than ever. He has thrown up several times lately after drinking. We believe this is because the pressure on his stomach from his enlarged intestines. Michael and I have decided to admit Aaron to the hospital and try gut rest. He will not be allowed to eat or drink for 48 hours. He will...It do...

aaronwolsey.blogspot.com

Aaron's Hyper IgM Journey: Out of the ICU.

http://aaronwolsey.blogspot.com/2014/10/out-of-icu.html

Aaron's Hyper IgM Journey. Aaron's Hyper IgM Journey. Saturday, October 25, 2014. Out of the ICU. Aaron has made huge progress in the past few days and has been moved from the ICU to the BMT unit. He is completely off the bipap mask. He still requires a nasal cannula to deliver a low amount of oxygen. His lungs will take awhile to completely heal. Michael and I take turns caring for Aaron. Serena is missed dearly. Posted using BlogPress from my iPhone. Subscribe to: Post Comments (Atom). Out of the ICU.

aaronwolsey.blogspot.com

Aaron's Hyper IgM Journey: He peed!!!!!

http://aaronwolsey.blogspot.com/2014/10/he-peed.html

Aaron's Hyper IgM Journey. Aaron's Hyper IgM Journey. Thursday, October 16, 2014. Aaron has made another comeback! He is one tough kid! Thanking God for giving me more time with my chef. The doctors took him off dialysis at 9am. They were prepared to pull out the ventilator, but Aaron was sleeping. Patients who are sedated during extubation can forget to start breathing by themselves. We definitely don't need that to happen. So, we had to wait for Aaron to wake up. Posted using BlogPress from my iPhone.

aaronwolsey.blogspot.com

Aaron's Hyper IgM Journey: September 2014

http://aaronwolsey.blogspot.com/2014_09_01_archive.html

Aaron's Hyper IgM Journey. Aaron's Hyper IgM Journey. Friday, September 26, 2014. I can't wait for the day the doctors look at his labs and x-rays and say "unremarkable"! Posted using BlogPress from my iPhone. Location: International Dr,Orlando,United States. Friday, September 12, 2014. This is huge news. A sign that Aaron can and will recover. Aaron also got plenty of time to spend with his absolute favorite friend, Ms. Carole. Posted using BlogPress from my iPhone. Thursday, September 4, 2014. I bribed...

aaronwolsey.blogspot.com

Aaron's Hyper IgM Journey: Life changes

http://aaronwolsey.blogspot.com/2014/11/life-changes.html

Aaron's Hyper IgM Journey. Aaron's Hyper IgM Journey. Saturday, November 22, 2014. The past six weeks have been by far the toughest time in my entire life. Thankfully, Aaron has pulled through and continues to do well. His kidneys are at 50% and nephrology no longer follows him. He is on oxygen only at night. He is on tpn for nutrition since he doesn't eat enough. He is also making great strides with walking. Posted using BlogPress from my iPhone. Subscribe to: Post Comments (Atom). Idan, my hero.

aaronwolsey.blogspot.com

Aaron's Hyper IgM Journey: February 2014

http://aaronwolsey.blogspot.com/2014_02_01_archive.html

Aaron's Hyper IgM Journey. Aaron's Hyper IgM Journey. Wednesday, February 26, 2014. Spoiled by Grandpa Gary. For the first time in his life, we left Aaron with someone else to care for him. My father graciously took on the responsibility of caring for Aaron. They had a great time together. Aaron showed him all his favorite YouTube cooking videos. They made pizza together everyday. They played trains and cooked with his play kitchen. Location: Burnet Ave,Cincinnati,United States. Sunday, February 16, 2014.

aaronwolsey.blogspot.com

Aaron's Hyper IgM Journey: Thanksgiving Week

http://aaronwolsey.blogspot.com/2014/12/being-single-mom-was-definitely-not-on.html

Aaron's Hyper IgM Journey. Aaron's Hyper IgM Journey. Tuesday, December 2, 2014. In my wildest dreams, I would have never believed the impossible to happen. My Aaron, the funny, happy, energetic son has returned! We also had Serena for a week. I absolutely love that girl! Posted using BlogPress from my iPhone. December 2, 2014 at 9:20 AM. If you need anything, please let me know. I know you have your physical family, but we would be happy to help too. May God bless your day - we can only take one...Aaron...

aaronwolsey.blogspot.com

Aaron's Hyper IgM Journey: December 2014

http://aaronwolsey.blogspot.com/2014_12_01_archive.html

Aaron's Hyper IgM Journey. Aaron's Hyper IgM Journey. Sunday, December 28, 2014. He slowly opened up several more gifts over the next few days. He really enjoyed Christmas and all of his presents. He decided Christmas is now his favorite holiday. He is upset that Santa only brought one of the three Lego train sets. We are learning what the words grateful and ungrateful mean. :). Aaron's energy is driving me bananas! Tuesday, December 2, 2014. Aaron is happier than I have seen him in years. He makes j...

aaronwolsey.blogspot.com

Aaron's Hyper IgM Journey: My miracle child

http://aaronwolsey.blogspot.com/2014/10/my-miracle-child.html

Aaron's Hyper IgM Journey. Aaron's Hyper IgM Journey. Tuesday, October 28, 2014. Aaron woke up at four o'clock this morning. He sleeps most of the day, but at 4am he decided he was done sleeping and ready to watch movies. Tired, but elated, I dragged myself out of my chair bed and sat next to him. We watched his new cooking movies he received for his birthday. Aaron has proven to be one tough kid! I really cannot believe it. Posted using BlogPress from my iPhone. October 30, 2014 at 9:51 AM. How the Ely ...

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CURING EZRA

Monday, June 22, 2015. Days of Wonder and Awe. It has been a while since we shared a full update. The past two months since our last update have been full of miraculous new experiences and milestones. For those of you who do not follow Ezra's Facebook page, Ezra started kindergarten three weeks ago! Sunday, April 26, 2015. On the medical front, Ezra's counts are great and he is now off steroids for the first time in over a year and a half! This includes the prophylactic antibiotics to prevent the type of...

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