customscars.org

Custom Scars - Home

Contact and Speaking Info. I am so glad that you're visiting. This sight has been created to be a place where you can learn more about my. Marfan Syndrome, but more importantly for you to know that you don't have to let your scars control your life. My desire is that. Facebook page are places where you can come and ask questions about Marfan Syndrome, faith, hope, and raising a family. I trust that many questions will be answered and that you can be encouraged amid living with. Proudly powered by Weebly.

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Stephen Henry

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Se●●ca , PA, 16346

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Stephen Henry

156 S●●●●● Blvd

Se●●ca , PA, 16346

US

1.81●●●●2286

pa●●●●@victoryheightschurch.org

View this contact

Stephen Henry

156 S●●●●● Blvd

Se●●ca , PA, 16346

US

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pa●●●●@victoryheightschurch.org

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Contact and Speaking Info. I am so glad that you're visiting. This sight has been created to be a place where you can learn more about my. Marfan Syndrome, but more importantly for you to know that you don't have to let your scars control your life. My desire is that. Facebook page are places where you can come and ask questions about Marfan Syndrome, faith, hope, and raising a family. I trust that many questions will be answered and that you can be encouraged amid living with. Proudly powered by Weebly.

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1 custom scars

2 the family

3 my story

4 the henry five

5 michaela's story

6 marfan syndrome

7 blog

8 the progress news

9 newspaper articles

10 resources

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Custom Scars - Home | customscars.org Reviews

https://customscars.org

Contact and Speaking Info. I am so glad that you're visiting. This sight has been created to be a place where you can learn more about my. Marfan Syndrome, but more importantly for you to know that you don't have to let your scars control your life. My desire is that. Facebook page are places where you can come and ask questions about Marfan Syndrome, faith, hope, and raising a family. I trust that many questions will be answered and that you can be encouraged amid living with. Proudly powered by Weebly.

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customscars.org

1

The Henry Five - Custom Scars

http://www.customscars.org/the-henry-five.html

Contact and Speaking Info. Often times people have questions about raising children that have Marfan syndrome. Our two youngest boys, Dylan and Andrew, are both positively diagnosed with it. Neither of the girls have Marfan's, nor does our oldest son Corban. I hope that reading some of their stories will bring you hope and encouragement. Even though things can be tough sometimes, we can make it through with the right support. She wrote a short book. As you can see, he is very flexible and has very long f...

2

Custom Scars - Blog

http://www.customscars.org/blog.html

Contact and Speaking Info. April 05th, 2016. Last week I thoroughly enjoyed a week’s vacation. I was burnt out and in need of some time off. After church on Easter, we traveled to my mother-in-laws for two days and then went to the Pittsburgh Zoo on Tuesday. What excitement on the face of his sister. This teenage boy didn’t really know how to react to my complements. For him it was nothing! They were blessed at the gate and they blessed me at the kids’ zone. After our brief conversation the four of them ...

3

Resources - Custom Scars

http://www.customscars.org/resources.html

Contact and Speaking Info. Is run by Tina M. who is a stay at home mom of 3 teens (2 girls and a boy). Her daughters and herself struggle daily with EDS (Ehlers-Danlos Syndrome Type 3). She has many wonderful links and stories about dealing with EDS and other conditions. (Including Marfan syndrome). Musings of a Marfan Mom. Proudly powered by Weebly.

4

Marfan Syndrome - Custom Scars

http://www.customscars.org/marfan-syndrome.html

Contact and Speaking Info. What is Marfan Syndrome? Here's a layman's version of someone who has lived with this condition for over 20 years. Marfan syndrome is a genetic condition that affects roughly 1 out of every 5,000 individuals. It is typically passed on from a parent to a child, but between 15-25% come from a spontaneous mutation. . Http:/ www.encyclopedia.com/topic/Marfan Syndrome.aspx) . That exhortation as a child scared me! Marfan patient's usually need to take some type of prescription med...

5

Custom Scars - Blog

http://www.customscars.org/blog

Contact and Speaking Info. April 05th, 2016. Last week I thoroughly enjoyed a week’s vacation. I was burnt out and in need of some time off. After church on Easter, we traveled to my mother-in-laws for two days and then went to the Pittsburgh Zoo on Tuesday. What excitement on the face of his sister. This teenage boy didn’t really know how to react to my complements. For him it was nothing! They were blessed at the gate and they blessed me at the kids’ zone. After our brief conversation the four of them ...

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Contact and Speaking Info. I am so glad that you're visiting. This sight has been created to be a place where you can learn more about my. Marfan Syndrome, but more importantly for you to know that you don't have to let your scars control your life. My desire is that. Facebook page are places where you can come and ask questions about Marfan Syndrome, faith, hope, and raising a family. I trust that many questions will be answered and that you can be encouraged amid living with. Proudly powered by Weebly.

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