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Cure Cystic Fibrosis

A Blog by a CF Fighter. Wednesday, August 29, 2012. Week 1 on Kalydeco. Day 4, 5, 6 and 7. This week has gone quite like the previous days but I am starting to feel like I have a little more energy. The mornings are normally the most difficult time of the day for me but they have felt easier than they did 2 weeks ago. I have a feeling that the Codeine I am taking for pain relief could be suppressing the cough to some extent, it Kalydeco helps me with the pains I do get I am hoping I could lower the dose.

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Cure Cystic Fibrosis | cysticfibrosisfighter.com Reviews
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A Blog by a CF Fighter. Wednesday, August 29, 2012. Week 1 on Kalydeco. Day 4, 5, 6 and 7. This week has gone quite like the previous days but I am starting to feel like I have a little more energy. The mornings are normally the most difficult time of the day for me but they have felt easier than they did 2 weeks ago. I have a feeling that the Codeine I am taking for pain relief could be suppressing the cough to some extent, it Kalydeco helps me with the pains I do get I am hoping I could lower the dose.
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Cure Cystic Fibrosis | cysticfibrosisfighter.com Reviews

https://cysticfibrosisfighter.com

A Blog by a CF Fighter. Wednesday, August 29, 2012. Week 1 on Kalydeco. Day 4, 5, 6 and 7. This week has gone quite like the previous days but I am starting to feel like I have a little more energy. The mornings are normally the most difficult time of the day for me but they have felt easier than they did 2 weeks ago. I have a feeling that the Codeine I am taking for pain relief could be suppressing the cough to some extent, it Kalydeco helps me with the pains I do get I am hoping I could lower the dose.

LINKS TO THIS WEBSITE

kerryalexxx.blogspot.com kerryalexxx.blogspot.com

Come Walk In My Shoes...: May 2012

http://kerryalexxx.blogspot.com/2012_05_01_archive.html

Come Walk In My Shoes. KerryAlex, 21 years old. Desperately waiting for a double-lung transplant due to 'End-Stage' Cystic Fibrosis. Engaged to my amazing partner Josh, living with our two Pomeranian puppies Tinkerbell and Milly-Mia :)x. Wednesday, 30 May 2012. I'm On The List! It's finally official. Today, 30th May 2012 I have been listed for a double-lung transplant at Harefield hospital! It's hard to put into words just how I feel because I'm not sure I even know what I'm feeling, lol! It's extremely ...

kerryalexxx.blogspot.com kerryalexxx.blogspot.com

Come Walk In My Shoes...: February 2012

http://kerryalexxx.blogspot.com/2012_02_01_archive.html

Come Walk In My Shoes. KerryAlex, 21 years old. Desperately waiting for a double-lung transplant due to 'End-Stage' Cystic Fibrosis. Engaged to my amazing partner Josh, living with our two Pomeranian puppies Tinkerbell and Milly-Mia :)x. Wednesday, 22 February 2012. Weight Gain and New Tablets. My BMI is now 17.2, it's still not 18.5 (healthy) but if you compare that to what it was in January 2010 which was 13.3, it's a huge increase! In total I have now gained 1.9 Stone. It was the best thing I've ever ...

kerryalexxx.blogspot.com kerryalexxx.blogspot.com

Come Walk In My Shoes...: November 2012

http://kerryalexxx.blogspot.com/2012_11_01_archive.html

Come Walk In My Shoes. KerryAlex, 21 years old. Desperately waiting for a double-lung transplant due to 'End-Stage' Cystic Fibrosis. Engaged to my amazing partner Josh, living with our two Pomeranian puppies Tinkerbell and Milly-Mia :)x. Tuesday, 20 November 2012. Clinic Update (taken from Facebook post). Had a very long, very exhausting day at Papworth yesterday for clinic as I had many tests done. (including a pregnancy test! But on a serious note, I'm not stupid and I know if I really need to, I will ...

kerryalexxx.blogspot.com kerryalexxx.blogspot.com

Come Walk In My Shoes...: April 2012

http://kerryalexxx.blogspot.com/2012_04_01_archive.html

Come Walk In My Shoes. KerryAlex, 21 years old. Desperately waiting for a double-lung transplant due to 'End-Stage' Cystic Fibrosis. Engaged to my amazing partner Josh, living with our two Pomeranian puppies Tinkerbell and Milly-Mia :)x. Wednesday, 25 April 2012. Sorry It's Been Soooo Long! So onto my party we go. I had a fantastic night, there were about 70 people there, it was at my Mum's house as I didn't have enough money to pay for a hall and my house is big, but not big enough to hold 70 people!

kerryalexxx.blogspot.com kerryalexxx.blogspot.com

Come Walk In My Shoes...: October 2012

http://kerryalexxx.blogspot.com/2012_10_01_archive.html

Come Walk In My Shoes. KerryAlex, 21 years old. Desperately waiting for a double-lung transplant due to 'End-Stage' Cystic Fibrosis. Engaged to my amazing partner Josh, living with our two Pomeranian puppies Tinkerbell and Milly-Mia :)x. Monday, 29 October 2012. Just checking in to let you all know I'm still here, no calls for transplant yet but still keeping the faith that it will happen sooner rather than later preferably lol. Today I was extremely poorly, I woke up coughing so much I had to do extra t...

kerryalexxx.blogspot.com kerryalexxx.blogspot.com

Come Walk In My Shoes...: CF Daily Routine

http://kerryalexxx.blogspot.com/p/cf-daily-routine.html

Come Walk In My Shoes. KerryAlex, 21 years old. Desperately waiting for a double-lung transplant due to 'End-Stage' Cystic Fibrosis. Engaged to my amazing partner Josh, living with our two Pomeranian puppies Tinkerbell and Milly-Mia :)x. Here is a list of all the tablets I take in a day, how many I have to take and what they are all for. Creon 40,000. I take this every time I eat, 3 with meals, 1-2 with snacks, helps to break down fat in foods so I can absorb them better. Vitamin K, 1 tablet. Co-codamol ...

gemma-memyselfandi.blogspot.com gemma-memyselfandi.blogspot.com

Me, myself and I (and CF): CF and Me

http://gemma-memyselfandi.blogspot.com/p/cf-and-me.html

Me, myself and I (and CF). Woe to that child which when kissed on the forehead tastes salty. He is bewitched and soon must die'. My To Do List. Twice daily for about 30-40 minutes with pep mask and percussion (patting). Alzi three times a day, Salbutamol twice a day, Hypertonic Saline (7%) three times a day and Pulmozyme once a day, all through the I-Neb or EFlow. To see me doing my physio and I-Neb. Tablets and Inhalers etc:. Nutrizym 22 - taken with food. Symbicort Turbohaler - twice a day. 07th Oct 10...

gemma-memyselfandi.blogspot.com gemma-memyselfandi.blogspot.com

Me, myself and I (and CF): April 2013

http://gemma-memyselfandi.blogspot.com/2013_04_01_archive.html

Me, myself and I (and CF). Woe to that child which when kissed on the forehead tastes salty. He is bewitched and soon must die'. My To Do List. Friday, 12 April 2013. I'm really happy to say that yesterday my lung function was 49%, my weight 55.8kg and my oxygen saturation (sats) levels were 99%! So what I have been doing differently? Sometimes I feel guilty if I go out for a meal out as the papers make me feel like I shouldn't be able to afford my electricity and gas, never mind a meal out, because I am...

gemma-memyselfandi.blogspot.com gemma-memyselfandi.blogspot.com

Me, myself and I (and CF): Introducing CF

http://gemma-memyselfandi.blogspot.com/p/introduction-to-cf.html

Me, myself and I (and CF). Woe to that child which when kissed on the forehead tastes salty. He is bewitched and soon must die'. My To Do List. A short video for children and for beginners! For my Youtube channel which has some CF videos - click. You can not catch CF or develop it, you are unfortunately born with it (so relax you can come near me! CF affects most parts of the body (great! This affects the body in many ways:. Other problems CF can cause:. 8226; All the treatments I am on and my digestive ...

kerryalexxx.blogspot.com kerryalexxx.blogspot.com

Come Walk In My Shoes...: Update - Still Very Poorly.

http://kerryalexxx.blogspot.com/2012/12/update-still-very-poorly.html

Come Walk In My Shoes. KerryAlex, 21 years old. Desperately waiting for a double-lung transplant due to 'End-Stage' Cystic Fibrosis. Engaged to my amazing partner Josh, living with our two Pomeranian puppies Tinkerbell and Milly-Mia :)x. Tuesday, 4 December 2012. Update - Still Very Poorly. This is mainly an update taken from facebook on Sunday, but it has a few adaptations:. But currently it feels like my body doesn't have the energy to carry it's weight, if only I hadn't gained the 3 stone lol. At ...

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Cure Cystic Fibrosis

A Blog by a CF Fighter. Wednesday, August 29, 2012. Week 1 on Kalydeco. Day 4, 5, 6 and 7. This week has gone quite like the previous days but I am starting to feel like I have a little more energy. The mornings are normally the most difficult time of the day for me but they have felt easier than they did 2 weeks ago. I have a feeling that the Codeine I am taking for pain relief could be suppressing the cough to some extent, it Kalydeco helps me with the pains I do get I am hoping I could lower the dose.

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Cystic Fibrosis Charity Golf Tournament

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41st Annual Charity Golf Tournament

Friday, August 26, 2011. Registration at 10:00 am. Brunch at 11:00 am. Shot Gun Start at 12:00 pm. 960/four (4) person team (only $240/person). Round of Golf at Highland Country Club. Use of Practice Range. Silent and Live Auction. Dinner at Highland Country Club.