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Welcome to our site! Danielle’s Hope is a non-profit organization founded in 2010 in honor of Danielle Jones. We are dedicated to providing necessary resources and support to North Carolina children suffering from rare disorders and their families. We provide financial assistance, connect families with available resources, and provide emotional support that will improve the lives of affected children and their families.

http://www.danielleshope.org/

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CONTACTS AT DANIELLESHOPE.ORG

Private

Kamilah Jones

1428 R●●●●●● Drive

We●●ll , NC, 27591

US

1.91●●●●1664
kj●●●●@yahoo.com

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Private

Kamilah Jones

1428 R●●●●●● Drive

We●●ll , NC, 27591

US

1.91●●●●1664
kj●●●●@yahoo.com

View this contact

Private

Kamilah Jones

1428 R●●●●●● Drive

We●●ll , NC, 27591

US

1.91●●●●1664
kj●●●●@yahoo.com

View this contact

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Welcome to our site! Danielle’s Hope is a non-profit organization founded in 2010 in honor of Danielle Jones. We are dedicated to providing necessary resources and support to North Carolina children suffering from rare disorders and their families. We provide financial assistance, connect families with available resources, and provide emotional support that will improve the lives of affected children and their families.
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4 love
5 there's hope
6 our story
7 things we do
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9 support us
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Home | danielleshope.org Reviews

https://danielleshope.org

Welcome to our site! Danielle’s Hope is a non-profit organization founded in 2010 in honor of Danielle Jones. We are dedicated to providing necessary resources and support to North Carolina children suffering from rare disorders and their families. We provide financial assistance, connect families with available resources, and provide emotional support that will improve the lives of affected children and their families.

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danielleshope.org danielleshope.org
1

Facts & FAQ

http://www.danielleshope.org/facts---faq.html

A disease is considered rare in the US if it affects fewer than 200,000 people. There are between 6,000-7,000 rare diseases that affect 25-30 million people in the US. Approximately 50-65% of the people affected by rare diseases are children. Approximately 22.5 million families have children affected by rare diseases. 1 in 10 Americans suffer from rare diseases. It is estimated that rare diseases affect nearly 250 million people worldwide. What is a "Rare Disease"? How many rare diseases are there?

2

Support Us

http://www.danielleshope.org/support-us.html

More opportunities to support us in 2016 will be posted soon! In the meantime, support us by shopping Amazon Smiles, using Goodsearch as your search engine while browsing the internet, or simply donate using the Paypal button below! We would like to thank Zaxby's of Knightdale for their generosity in allowing us to hold our 1st fundraiser during the month of November 2015! Because of their generosity, and the generosity of customers, family, and friends; we raised nearly $500.00!

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Home

http://www.danielleshope.org/home.html

Welcome to our site! Danielle’s Hope is a non-profit organization founded in 2010 in honor of Danielle Jones. We are dedicated to providing necessary resources and support to North Carolina children suffering from rare disorders and their families. We provide financial assistance, connect families with available resources, and provide emotional support that will improve the lives of affected children and their families.

4

Our Story

http://www.danielleshope.org/our-story.html

My name is Kamilah Jones and my daughter, Danielle Jones, was diagnosed with Alstrom Syndrome (a rare. Autosomal recessive disorder) on February 7, 2006 (at the age of four). The discovery of this disorder was a. Process that began in the summer of 2005. Our lives since that point has consisted of many medical appointments to her Primary Care doctor, Opthalmologist, Endrocrinologist, Nephrologist, Hematologist, Cardiologist, ENT (Ear, Nose and Throat), and Nutritionist. Danielle is continually progre...

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Welcome to our site! Danielle’s Hope is a non-profit organization founded in 2010 in honor of Danielle Jones. We are dedicated to providing necessary resources and support to North Carolina children suffering from rare disorders and their families. We provide financial assistance, connect families with available resources, and provide emotional support that will improve the lives of affected children and their families.

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