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here we go again

rambling thoughts of a mum with two children, one with CF, one without.

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here we go again | danni-herewegoagain.blogspot.com Reviews
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rambling thoughts of a mum with two children, one with CF, one without.
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here we go again | danni-herewegoagain.blogspot.com Reviews

https://danni-herewegoagain.blogspot.com

rambling thoughts of a mum with two children, one with CF, one without.

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danni-herewegoagain.blogspot.com danni-herewegoagain.blogspot.com
1

here we go again: Father's Day

http://danni-herewegoagain.blogspot.com/2013/09/father-day.html

Sunday, September 1, 2013. It's Father's Day today! What does fathers day signify for you? Personally, I think of how lucky my two girls are to have a loving, supportive, present dad in their life. To me, it's all about making memories that last a lifetime. Not necessarily particular events or holidays, but remembering feelings and emotions. Memories of day-to-day activities fade as you get older, but how you feel about someone.that always stays with you. One of my earliest memories of my dad was watchin...

2

here we go again: September 2013

http://danni-herewegoagain.blogspot.com/2013_09_01_archive.html

Sunday, September 1, 2013. It's Father's Day today! What does fathers day signify for you? Personally, I think of how lucky my two girls are to have a loving, supportive, present dad in their life. To me, it's all about making memories that last a lifetime. Not necessarily particular events or holidays, but remembering feelings and emotions. Memories of day-to-day activities fade as you get older, but how you feel about someone.that always stays with you. One of my earliest memories of my dad was watchin...

3

here we go again: Clinic Visit May 2012

http://danni-herewegoagain.blogspot.com/2012/05/clinic-visit-may-2012.html

Wednesday, May 30, 2012. Clinic Visit May 2012. All 4 of us made the trip to Westmead today. I swear the hospital shrinks every time we go there. It used to be a huge imposing city within a building, now it doesn't seem so big, and only slightly less daunting. Her lungs sound good, her fingers show no signs of clubbing. Although they were embarrassingly dirty! Eliza took the opportunity to ask the dr if people with Cystic Fibrosis were allowed rabbits, and was very pleased when the answer was yes! A whil...

4

here we go again: Past Thoughts

http://danni-herewegoagain.blogspot.com/2012/06/memory-came-to-me-other-day.html

Friday, June 22, 2012. A memory came to me the other day. Just popped into my brain with such clarity that it was hard to believe that I had forgotten about it in the first place. I must have finally fallen asleep. In the morning I was thankful that I wouldn't have to worry about anything like that. My family will enjoy life. You are but a nuisance. Ruby may have Cystic Fibrosis but Cystic Fibrosis does not have my Ruby. Well said Danni, well said. xx. August 28, 2012 at 8:38 AM. View my complete profile.

5

here we go again: November 2013

http://danni-herewegoagain.blogspot.com/2013_11_01_archive.html

Sunday, November 17, 2013. The expenses can add up very quickly when there is a chronic illness involved in your life. We are very grateful that Ruby's medications are covered on the PBS, and her hospital care and clinic visits are covered under our healthcare system. Of course, we can't do everything. It's a matter of prioritising. Some families simply can't afford it. If it was a choice between a nebuliser and a salt pod, then of course the nebuliser will win. I bought it after hearing great reviews fr...

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mycysticfibrosismutation.blogspot.com mycysticfibrosismutation.blogspot.com

My Cystic Fibrosis Mutation: CFF.org: Targeting Mutations that Cause Cystic Fibrosis

http://mycysticfibrosismutation.blogspot.com/2010/03/cfforg-targeting-mutations-that-cause.html

My Cystic Fibrosis Mutation. This blog is for those who have the CF mutations Delta508 and 621 1G- T. We hope this blog will keep track of research and other medical information regarding this mutation. Thursday, March 11, 2010. CFForg: Targeting Mutations that Cause Cystic Fibrosis. This article was found in the Cystic Fibrosis Foundation's Connections E-newsletter online for March 2010. Targeting Mutations that Cause Cystic Fibrosis. What Do the Mutation Classes Mean? In healthy people, CFTR is located...

mycysticfibrosismutation.blogspot.com mycysticfibrosismutation.blogspot.com

My Cystic Fibrosis Mutation: August 2010

http://mycysticfibrosismutation.blogspot.com/2010_08_01_archive.html

My Cystic Fibrosis Mutation. This blog is for those who have the CF mutations Delta508 and 621 1G- T. We hope this blog will keep track of research and other medical information regarding this mutation. Saturday, August 14, 2010. Delta508 is considered a Class II Mutation. Is considered a Class I Mutation. Both mutations are associated with the "Classic" or "Typical" CF, also considered "severe" in the way of how much the gene does not work properly. Subscribe to: Posts (Atom). First Day of School 2016.

mycysticfibrosismutation.blogspot.com mycysticfibrosismutation.blogspot.com

My Cystic Fibrosis Mutation: January 2010

http://mycysticfibrosismutation.blogspot.com/2010_01_01_archive.html

My Cystic Fibrosis Mutation. This blog is for those who have the CF mutations Delta508 and 621 1G- T. We hope this blog will keep track of research and other medical information regarding this mutation. Friday, January 22, 2010. Severity of chest disease in cystic fibrosis patients in relation to their genotypes. Severity of chest disease in cystic fibrosis patients in relation to their genotypes. Journal of Medical Genetics. 883-887; doi:10.1136/jmg.29.12.883. Friday, January 1, 2010. Here we go again.

mycysticfibrosismutation.blogspot.com mycysticfibrosismutation.blogspot.com

My Cystic Fibrosis Mutation: Severity of chest disease in cystic fibrosis patients in relation to their genotypes

http://mycysticfibrosismutation.blogspot.com/2010/01/severity-of-chest-disease-in-cystic.html

My Cystic Fibrosis Mutation. This blog is for those who have the CF mutations Delta508 and 621 1G- T. We hope this blog will keep track of research and other medical information regarding this mutation. Friday, January 22, 2010. Severity of chest disease in cystic fibrosis patients in relation to their genotypes. Severity of chest disease in cystic fibrosis patients in relation to their genotypes. Journal of Medical Genetics. 883-887; doi:10.1136/jmg.29.12.883. December 12, 2010 at 2:14 AM. Severity of c...

mycysticfibrosismutation.blogspot.com mycysticfibrosismutation.blogspot.com

My Cystic Fibrosis Mutation: Could Kalydeco Benefit 621+1G>T?

http://mycysticfibrosismutation.blogspot.com/2014/06/6211gt-is-splicing-mutation.html

My Cystic Fibrosis Mutation. This blog is for those who have the CF mutations Delta508 and 621 1G- T. We hope this blog will keep track of research and other medical information regarding this mutation. Wednesday, June 25, 2014. Could Kalydeco Benefit 621 1G T? Could Kalydeco benefit 621 1G T? Some splicing mutations (621 1G- T, 1717-1G- A,1078delT, 711 1G- T, 1525-1G- A, 2751 2T- A, 296 1G- C, 1717-9T- C from. C Castellani et al. / Journal of Cystic Fibrosis 7 (2008) 179–196). First Day of School 2016.

mycysticfibrosismutation.blogspot.com mycysticfibrosismutation.blogspot.com

My Cystic Fibrosis Mutation: Links regarding DF508 and 621+1G->T

http://mycysticfibrosismutation.blogspot.com/2010/01/links-regarding-df508-and-6211g-t.html

My Cystic Fibrosis Mutation. This blog is for those who have the CF mutations Delta508 and 621 1G- T. We hope this blog will keep track of research and other medical information regarding this mutation. Friday, January 1, 2010. Links regarding DF508 and 621 1G- T. Http:/ ehealthforum.com/health/mutations-g-t-and-di-t175986.html. Correlation between mutations and age in cystic fibrosis in a French Canadian population. Http:/ jmg.bmj.com/content/37/3/225.extract. Subscribe to: Post Comments (Atom).

lifeofkeagan.blogspot.com lifeofkeagan.blogspot.com

Keagan Scott Covington: CF and its Drugs

http://lifeofkeagan.blogspot.com/2011/02/cf-and-its-drugs.html

Wednesday, February 23, 2011. CF and its Drugs. So news juat broke that a new medicine is going for FDA approval! Thank you to everyone who already supports the CFF! If you would like to help Keagan's Great Strides team then you may do one of the following:. 1) go to www.cff.org/great strides/krystalcovington. 2) order a team shirt $15 for adults and $10 for youth/toddler e-mail me kscott0305@gmail.com. 3) my mom is selling CF bracelets and keychains e-mail he kitty19705@gmail.com. My name is Krystal!

lifeofkeagan.blogspot.com lifeofkeagan.blogspot.com

Keagan Scott Covington: November 2010

http://lifeofkeagan.blogspot.com/2010_11_01_archive.html

Monday, November 22, 2010. The past 7 months in the world of CF. Since we got the news of Keagan having CF, we had to adjust a lot but now it is all second nature to us! Thankfully we have not had any complications/hospitalizations with CF! He will not outgrow CF as some may think! But check for updates in the future as this is where I will be posting his CF updates rather than on Facebook! My name is Krystal! How we discovered CF. My name is Krystal! Subscribe to: Posts (Atom). My name is Krystal! Mutat...

lifeofkeagan.blogspot.com lifeofkeagan.blogspot.com

Keagan Scott Covington: A little Peek into Keagan's daily LIFE....

http://lifeofkeagan.blogspot.com/2011/01/little-peek-into-keagans-daily-life.html

Monday, January 10, 2011. A little Peek into Keagan's daily LIFE. Just wanted to post Keagan's current feeding and treatment schedule. You may look at Keagan's treatment and think.WOW! That's a lot. But really his treatments are not a lot compared to other CF babies and as he gets older the list will more than likely only grow! 9 am: wake up and eats. 1 1/2 enzymes in applesauce before meal. 2 teaspoons of Omeprazole (reflux med compounded into liquid). 1 mL of Aquadeks (multivitamin: A, D, K, and E).

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Flab to Fab

Proving that anything is possible if you J.F.D.I. Monday, 4 June 2012. All Good Things Come to an End. Or, do they? It’s about time I posted about the amazing weekend I spent in Melbourne with my equally amazing friend, Rachel. We were there to celebrate the end of a fantastic 12WBT round. Her first glass in 12 weeks! Waiting for the tram. After what felt like 5 minutes, Saturday morning arrived, alarms went off and we were up and at ‘em! The awesome traffic controllers. Well, Sarah, Kristy and Melinda w...

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Danni-Gabby (Danni Gabby) - DeviantArt

Window.devicePixelRatio*screen.width 'x' window.devicePixelRatio*screen.height) :(screen.width 'x' screen.height) ; this.removeAttribute('onclick')" class="mi". Window.devicePixelRatio*screen.width 'x' window.devicePixelRatio*screen.height) :(screen.width 'x' screen.height) ; this.removeAttribute('onclick')". Join DeviantArt for FREE. Forgot Password or Username? Digital Art / Hobbyist. Deviant for 5 Months. This deviant's full pageview. Last Visit: 1 day ago. By moving, adding and personalizing widgets.

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Danni-Geistel (Danyella) - DeviantArt

Window.devicePixelRatio*screen.width 'x' window.devicePixelRatio*screen.height) :(screen.width 'x' screen.height) ; this.removeAttribute('onclick')" class="mi". Window.devicePixelRatio*screen.width 'x' window.devicePixelRatio*screen.height) :(screen.width 'x' screen.height) ; this.removeAttribute('onclick')". Join DeviantArt for FREE. Forgot Password or Username? I hear I'm a Funny Gal. Traditional Art / Student. Deviant for 5 Years. This deviant's full pageview. April 18, 1993. Last Visit: 172 weeks ago.

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Danni-H4 (Daniel.C.H) | DeviantArt

Window.devicePixelRatio*screen.width 'x' window.devicePixelRatio*screen.height) :(screen.width 'x' screen.height) ; this.removeAttribute('onclick')". Artisan Crafts / Student. Deviant for 7 Years. This deviant's full pageview. July 19, 1991. Last Visit: 3 days ago. This is the place where you can personalize your profile! By moving, adding and personalizing widgets. You can drag and drop to rearrange. You can edit widgets to customize them. The bottom has widgets you can add! Why," you ask? KoFXIV Alice ...

danni-herewegoagain.blogspot.com danni-herewegoagain.blogspot.com

here we go again

Sunday, November 17, 2013. The expenses can add up very quickly when there is a chronic illness involved in your life. We are very grateful that Ruby's medications are covered on the PBS, and her hospital care and clinic visits are covered under our healthcare system. Of course, we can't do everything. It's a matter of prioritising. Some families simply can't afford it. If it was a choice between a nebuliser and a salt pod, then of course the nebuliser will win. I bought it after hearing great reviews fr...

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House for rent

Wednesday, 5 June 2013. Lovely large three-bedroom through terrace to rent, Stanningley. For more details or to arrange a viewing please contact Danielle at danni.lamb@gmail.com. House details and pictures:. The house has a large kitchen/dining room:. With a separate utility room and fridge/larder:. There is a large and comfortable living room:. A small but modern bathroom with an instant hot water electric shower:. A large master bedroom:. A spare room on the first floor:. And a small but lovely garden:.

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Their Profile - Danni-Hrdstyle - Skyrock.com

The position of the blocks have been saved. Did you like this profile? Sat, November 26, 2016. Here for: To make friends. My star sign : Virgo. Post to my blog. Here you are free.

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