talanaf.blogspot.com
Princess Talana's Kingdom: Bad Times are gone!
http://talanaf.blogspot.com/2010/11/bad-times.html
Sunday, November 14, 2010. Bad Times are gone! An update on the major changes in our lives to come soon! Bad times here at the Fairfax household. As of Thursday, Matt unexpectedly lost his job when his company shuttered their doors. They were the whole reason behind our move to Vegas last December, and now we have nothing coming in beyond my disability. Subscribe to: Post Comments (Atom). View my complete profile. Extra Doses of Randomness. aka Twitter. Follow me on Twitter. Jessi - My Cyster all the Way!
wunderkin72.livejournal.com
Sometimes the stress from being sick isn't even the being sick part.… - Still a Romantic.... But Now Minus The Heartbreak...
http://wunderkin72.livejournal.com/676860.html
Still a Romantic. But Now Minus The Heartbreak. Thinking is good for you. Sep 18th, 2012. Everyone around me needs information NOW. What did the doctor say, what is the plan? When, why and how? I seriously miss the days were it was okay to go ten minutes without the latest information. 3 comments Leave a comment. Sep 22nd, 2012 01:08 am (UTC). Would you be open to doing a FB group or something like that? Sep 23rd, 2012 02:07 am (UTC). Sep 23rd, 2012 02:39 am (UTC). Understandable. I kept somethings f...
talanaf.blogspot.com
Princess Talana's Kingdom: Conner
http://talanaf.blogspot.com/2010/06/conner.html
Friday, June 25, 2010. When I can't breathe. When the bills are too much to pay. But nothing is greater than the rage, sadness, and desperation for refuge that I feel when a young child dies of this beast. You fought so hard. Peace and love to your family, as you finally run and play without gasping for breath. Subscribe to: Post Comments (Atom). Hello, I'm Talana, I'm 29, married, I have CF, and this is my life. Use the History Tag (in the list below to find out about me). View my complete profile.
talanaf.blogspot.com
Princess Talana's Kingdom: The Elephant in the Room
http://talanaf.blogspot.com/2010/02/elephant-in-room.html
Wednesday, February 24, 2010. The Elephant in the Room. In reply to the blog:. Vertex is the greatest hope in a long time, but it is still not a cure, and it's unknown what the long term battle with CF will look like with it. Yes, CF sucks. Yes, we need to fight. But hiding the truth, as it now stands, about CF, doesn't make you, or G, or any cystic, any less of a fighter. And in reply to the comment that said I was making the fight harder:. Subscribe to: Post Comments (Atom). View my complete profile.
talanaf.blogspot.com
Princess Talana's Kingdom: You may think less of me, but this is what I think...
http://talanaf.blogspot.com/2010/01/you-may-think-less-of-me-but-this-is.html
Saturday, January 9, 2010. You may think less of me, but this is what I think. My friend Sarah, posted a link to this blog. Because I would give up my hair, my breasts, even a leg to have a chance at being cured. But it's not that simple with CF. You can live without boobs. You can live without hair, get by without legs. You can't live without lungs. Oh well, you are alive to wear those clothes! So maybe I should make my own meme. what color of mucus are you coughing up today. post the color in y...Hello...
talanaf.blogspot.com
Princess Talana's Kingdom: It's been awhile...
http://talanaf.blogspot.com/2009/12/its-been-awhile.html
Wednesday, December 9, 2009. Several friends have died of CF. Close friends. ones that I'm not sure I am even ready to process their passing, and am frightened about my own well being. one was even healthier than me. before she came down with H1N1. Each deserve their own words, when I am ready. and tonight I am ready to give words to Paul Mooney, lovingly known as Q. Thank you Q, for making me feel like I had some worth. I may even be able to finish that book, in your hono. View my complete profile.
talanaf.blogspot.com
Princess Talana's Kingdom: Silly Canada
http://talanaf.blogspot.com/2010/03/silly-canada.html
Monday, March 22, 2010. When I was a very little girl, I thought that since both Heaven and Washington were up, that clearly, when I looked at the sky, I was looking at the bottom of Washington, and the people in Washington were looking at the bottom of Heaven. Imagine my surprise when I learned that Canada was above Washington, and up meant nothing on a sphere. Subscribe to: Post Comments (Atom). View my complete profile. Extra Doses of Randomness. aka Twitter. Follow me on Twitter. Amy - Amazing Cyster.
talanaf.blogspot.com
Princess Talana's Kingdom: Ginger
http://talanaf.blogspot.com/2010/01/ginger.html
Wednesday, January 27, 2010. Today Ginger was supposed to turn 29. Instead, her young son and devoted husband spend their first January 27th without her. By all measures, Ginger was healthier than I was. Higher lung function, better weight, and less harmful bacteria. We chatted often at http:/ www.cf2chat.com and I loved her humor and light. On my list of things to do while visiting the inlaws in South Carolina was to meet Ginger. Then she got the swine flu. Subscribe to: Post Comments (Atom).
talanaf.blogspot.com
Princess Talana's Kingdom: One Year
http://talanaf.blogspot.com/2011/03/one-year.html
Sunday, March 27, 2011. I know where I was a year ago. Standing on the Hoover Dam, when I got the phone call. Eva was gone. I knew it was coming, despite my greatest hopes that the miracle would come. It had been clear for a few weeks that it probably wouldn't. Still, to know that it would never come, my heart broke into a million pieces. The unflinching truth about me? Subscribe to: Post Comments (Atom). View my complete profile. Extra Doses of Randomness. aka Twitter. Follow me on Twitter.
talanaf.blogspot.com
Princess Talana's Kingdom: Testing is Done and the Verdict is in!
http://talanaf.blogspot.com/2012/02/testing-is-done-and-verdict-is-in.html
Thursday, February 2, 2012. Testing is Done and the Verdict is in! So, testing is all done! Well, except for a pesky 24 hour pee collection, but I'll do that next week. A few things that were learned:. My lung function is back to where it was before my massive infection at the end of the last year. While it took a very long time to get back and when I had the infection, I was at the lowest lung function of my life, this helps prove that I still have some elasticity to rebound. My kidneys have stones in t...
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