dealingwithevans.blogspot.com

Dealing with Evans

Dealing with a teenager diagnosed with Evans Syndrome, a rare autoimmune disorder with no cure. Friday, May 8, 2015. To the rare mothers. This one goes to the rare mothers! Rare mothers are in a club they didn't ask to be in . Rare mothers hug a little tighter because they know things can change quick. Rare mothers hold it together when everything around them is falling apart. Rare mothers are given an exclusive membership to this club because THEY CAN HANDLE IT! Are you out of hand sanitizer? Every moth...

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Dealing with Evans | dealingwithevans.blogspot.com Reviews

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Dealing with a teenager diagnosed with Evans Syndrome, a rare autoimmune disorder with no cure. Friday, May 8, 2015. To the rare mothers. This one goes to the rare mothers! Rare mothers are in a club they didn't ask to be in . Rare mothers hug a little tighter because they know things can change quick. Rare mothers hold it together when everything around them is falling apart. Rare mothers are given an exclusive membership to this club because THEY CAN HANDLE IT! Are you out of hand sanitizer? Every moth...

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Dealing with Evans | dealingwithevans.blogspot.com Reviews

https://dealingwithevans.blogspot.com

Dealing with a teenager diagnosed with Evans Syndrome, a rare autoimmune disorder with no cure. Friday, May 8, 2015. To the rare mothers. This one goes to the rare mothers! Rare mothers are in a club they didn't ask to be in . Rare mothers hug a little tighter because they know things can change quick. Rare mothers hold it together when everything around them is falling apart. Rare mothers are given an exclusive membership to this club because THEY CAN HANDLE IT! Are you out of hand sanitizer? Every moth...

INTERNAL PAGES

dealingwithevans.blogspot.com

1

Dealing with Evans: May 2015

http://www.dealingwithevans.blogspot.com/2015_05_01_archive.html

Dealing with a teenager diagnosed with Evans Syndrome, a rare autoimmune disorder with no cure. Friday, May 8, 2015. To the rare mothers. This one goes to the rare mothers! Rare mothers are in a club they didn't ask to be in . Rare mothers hug a little tighter because they know things can change quick. Rare mothers hold it together when everything around them is falling apart. Rare mothers are given an exclusive membership to this club because THEY CAN HANDLE IT! Are you out of hand sanitizer? Every moth...

2

Dealing with Evans: July 2014

http://www.dealingwithevans.blogspot.com/2014_07_01_archive.html

Dealing with a teenager diagnosed with Evans Syndrome, a rare autoimmune disorder with no cure. Saturday, July 5, 2014. Count your blessings, celebrate your victories. Ric has been gone for 5 weeks. He is having the best time with his dad in Puerto Rico. He has been in basketball camp, so he is in heaven! He has been feeling well and has been able to participate fully in basketball camp. This past week he had a CBC done. Platelets are looking great at over 200,000, which is fantastic! I have dealt with h...

3

Dealing with Evans: April 2014

http://www.dealingwithevans.blogspot.com/2014_04_01_archive.html

Dealing with a teenager diagnosed with Evans Syndrome, a rare autoimmune disorder with no cure. Sunday, April 27, 2014. Not so subtle reminders. Someone died because of Evans and ALPS (which is a bit more complicated than Evans) this past week. As we get good news with Ric's numbers being pretty stable, there is still that reminder that he can die from it. Links to this post. Wednesday, April 16, 2014. Numbers came back good! They are usually the stubborn little bitches. Of course, I asked if Ric was in ...

4

Dealing with Evans: June 2014

http://www.dealingwithevans.blogspot.com/2014_06_01_archive.html

Dealing with a teenager diagnosed with Evans Syndrome, a rare autoimmune disorder with no cure. Thursday, June 5, 2014. A year after chemo. White blood cells at 3.6, platelets at 152,000, hemoglobin at 14 and anc at 1270! Awesome numbers for Ric! We are still waiting on Coombs and B cell tests. We should have those tomorrow. It was very stressful walking into tests this morning. Ric leaves Sunday to spend the Summer in Puerto Rico. I needed good numbers to make peace with this whole situation. I love Dr&...

5

Dealing with Evans: To the rare mothers

http://www.dealingwithevans.blogspot.com/2015/05/to-rare-mothers.html

Dealing with a teenager diagnosed with Evans Syndrome, a rare autoimmune disorder with no cure. Friday, May 8, 2015. To the rare mothers. This one goes to the rare mothers! Rare mothers are in a club they didn't ask to be in . Rare mothers hug a little tighter because they know things can change quick. Rare mothers hold it together when everything around them is falling apart. Rare mothers are given an exclusive membership to this club because THEY CAN HANDLE IT! Are you out of hand sanitizer? Every moth...

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hannahgraceadventures.blogspot.com

The Daurer Family Adventures: Your Great Name

http://hannahgraceadventures.blogspot.com/2013/09/your-great-name.html

The Daurer Family Adventures. Sugar and Spice and Everything Nice. That's what Hannah, Aspen, Brooke, and Taylor are made of! Thursday, September 26, 2013. John, Christina, Hannah, Aspen, Brooke, and Taylor. Subscribe to: Post Comments (Atom). Sign up for notifications when available here! A place for those near and away to see Hannah grow and exceed our expectations every day! She's smart and she's bright, she's beautiful it's true! She'll make you smile and want to spend a day in her shoes! Aka "Tater"...

hannahgraceadventures.blogspot.com

The Daurer Family Adventures: October 2012

http://hannahgraceadventures.blogspot.com/2012_10_01_archive.html

The Daurer Family Adventures. Sugar and Spice and Everything Nice. That's what Hannah, Aspen, Brooke, and Taylor are made of! Wednesday, October 31, 2012. So we don't do much on Halloween, but the girls dress up and we like to hand out as much candy as possible! This year only 5 kids came to the house. the same 5 kids that stand at the bus stop everyday lol :) So instead we took advantage of this mild day and spent it outside having fun. The girls love to climb all of the trees in our new backyard. So to...

hannahgraceadventures.blogspot.com

The Daurer Family Adventures: September 2013

http://hannahgraceadventures.blogspot.com/2013_09_01_archive.html

The Daurer Family Adventures. Sugar and Spice and Everything Nice. That's what Hannah, Aspen, Brooke, and Taylor are made of! Thursday, September 26, 2013. John, Christina, Hannah, Aspen, Brooke, and Taylor. Wednesday, September 04, 2013. Today Hannah had the incredible opportunity to share her story with a local news station KTVB! The story is scheduled to air this Sunday at 10am! It was a pretty exciting morning as Hannah was fitted with a mic and all eyes were on her! Hannah was a rock star today!

hannahgraceadventures.blogspot.com

The Daurer Family Adventures: November 2012

http://hannahgraceadventures.blogspot.com/2012_11_01_archive.html

The Daurer Family Adventures. Sugar and Spice and Everything Nice. That's what Hannah, Aspen, Brooke, and Taylor are made of! Thursday, November 29, 2012. About a month or so ago, we were able to score some really cheap tickets for Disney on Ice! Our new house is less than a mile from the major event centers on campus and so now it is really easy to head to the shows that come through and be home before most cars make it out of the parking lot! The girls barely made a peep the ENTIRE show! But we found a...

hannahgraceadventures.blogspot.com

The Daurer Family Adventures: November 2013

http://hannahgraceadventures.blogspot.com/2013_11_01_archive.html

The Daurer Family Adventures. Sugar and Spice and Everything Nice. That's what Hannah, Aspen, Brooke, and Taylor are made of! Monday, November 18, 2013. It has been a while but here we are again! Fingers crossed and prayers sent! Let's see what's going on! Back for routine labs and check up today! After a few months filled with nose bleeds, tongue bleeds, chest/stomach pains, and even more healthy days than that, it will be good to confirm that Hannah's counts are still on track! Your gifts are priceless!

hannahgraceadventures.blogspot.com

The Daurer Family Adventures: January 2013

http://hannahgraceadventures.blogspot.com/2013_01_01_archive.html

The Daurer Family Adventures. Sugar and Spice and Everything Nice. That's what Hannah, Aspen, Brooke, and Taylor are made of! Thursday, January 17, 2013. A Little Bit about Hannah. Hannah is amazing. All of our girls are! I have a poster that I made in the 4th grade that had similar questions to the paper Hannah answered below. I too wanted to be a nurse when I grew up, and I wanted to drive a limousine! Wow do I remember how much I wanted to do those two things when I "grew up! Tuesday, January 15, 2013.

hannahgraceadventures.blogspot.com

The Daurer Family Adventures: Back at it!

http://hannahgraceadventures.blogspot.com/2013/11/back-at-it.html

The Daurer Family Adventures. Sugar and Spice and Everything Nice. That's what Hannah, Aspen, Brooke, and Taylor are made of! Monday, November 18, 2013. It has been a while but here we are again! Fingers crossed and prayers sent! Let's see what's going on! Back for routine labs and check up today! After a few months filled with nose bleeds, tongue bleeds, chest/stomach pains, and even more healthy days than that, it will be good to confirm that Hannah's counts are still on track! Your gifts are priceless!

hannahgraceadventures.blogspot.com

The Daurer Family Adventures: March 2013

http://hannahgraceadventures.blogspot.com/2013_03_01_archive.html

The Daurer Family Adventures. Sugar and Spice and Everything Nice. That's what Hannah, Aspen, Brooke, and Taylor are made of! Sunday, March 31, 2013. While Big Sisters away. Little sisters will play! Although we dearly miss Hannah while she is at school, we find plenty to keep ourselves busy until she gets home! Never a dull moment around here! John, Christina, Hannah, Aspen, Brooke, and Taylor. Friday, March 22, 2013. John, Christina, Hannah, Aspen, Brooke, and Taylor. Sunday, March 17, 2013. AKA Mom an...

hannahgraceadventures.blogspot.com

The Daurer Family Adventures: July 2013

http://hannahgraceadventures.blogspot.com/2013_07_01_archive.html

The Daurer Family Adventures. Sugar and Spice and Everything Nice. That's what Hannah, Aspen, Brooke, and Taylor are made of! Wednesday, July 24, 2013. Hes Got the Whole World in His Hands. Just wanted to apologize for the lack of updates! We keep waiting for significant change to report or a new solid plan of action to let you know about. So far nothing! Do we believe in miracles? No one could convince us otherwise! With all of that being said, today Hannah's platelets were at 67,000! A place for those ...

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Dealing with Evans

Dealing with a teenager diagnosed with Evans Syndrome, a rare autoimmune disorder with no cure. Friday, May 8, 2015. To the rare mothers. This one goes to the rare mothers! Rare mothers are in a club they didn't ask to be in . Rare mothers hug a little tighter because they know things can change quick. Rare mothers hold it together when everything around them is falling apart. Rare mothers are given an exclusive membership to this club because THEY CAN HANDLE IT! Are you out of hand sanitizer? Every moth...

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