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Dear EmmersynOur journey with Neurofibromatosis
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Our journey with Neurofibromatosis
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Our journey with Neurofibromatosis
dearemmersyn.blogspot.com
Dear Emmersyn: Decisions
http://www.dearemmersyn.blogspot.com/2014/10/decisions.html
Letters to my daughter during her journey with Neurofibromatosis type I. Sunday, October 26, 2014. I cannot take sitting here and watching this tumor grow bigger and bigger; watching your pain escalate and your abilities decline. Am I being selfish in wanting the tumor gone? Subscribe to: Post Comments (Atom). View my complete profile. Ethereal template. Powered by Blogger.
Dear Emmersyn: January 2015
http://www.dearemmersyn.blogspot.com/2015_01_01_archive.html
Letters to my daughter during her journey with Neurofibromatosis type I. Saturday, January 17, 2015. Subscribe to: Posts (Atom). View my complete profile. Ethereal template. Powered by Blogger.
Dear Emmersyn: The Beginning
http://www.dearemmersyn.blogspot.com/2014/10/the-beginning.html
Letters to my daughter during her journey with Neurofibromatosis type I. Friday, October 24, 2014. I told myself I would start from the beginning. Back to the discussions between your father and I as we tried to decide if we wanted to add to our family. Back to the many happy, naive, and oblivious moments when your brothers were little. Subscribe to: Post Comments (Atom). View my complete profile. Ethereal template. Powered by Blogger.
Dear Emmersyn: October 2014
http://www.dearemmersyn.blogspot.com/2014_10_01_archive.html
Letters to my daughter during her journey with Neurofibromatosis type I. Sunday, October 26, 2014. I cannot take sitting here and watching this tumor grow bigger and bigger; watching your pain escalate and your abilities decline. Am I being selfish in wanting the tumor gone? Friday, October 24, 2014. Subscribe to: Posts (Atom). View my complete profile. Ethereal template. Powered by Blogger.
Dear Emmersyn: Life Goes On
http://www.dearemmersyn.blogspot.com/2015/01/life-goes-on.html
Letters to my daughter during her journey with Neurofibromatosis type I. Saturday, January 17, 2015. January 27, 2015 at 1:14 PM. Such a beautiful letter to your sweet girl. The tears were streaming down my face. February 5, 2015 at 7:10 PM. Subscribe to: Post Comments (Atom). View my complete profile. Ethereal template. Powered by Blogger.
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THE LADYBUG GANG: October 2014
http://ladybuggang.blogspot.com/2014_10_01_archive.html
For everyone else in the family lockdown is full of rearranging schedules, keeping Rylie safe from viruses, endless amounts of laundry and cleaning. It's overall just a stress filled week! But for Rylie, lockdown week is her favorite time of every month. It's a week away from school spending the days with her favorite people. Her grandparents! Craft projects, movies, baking, snuggles, and just being spoiled rotten from sun up to sun down! We have in our hearts for these amazing people! We love this place!
THE LADYBUG GANG: 3 Months.
http://ladybuggang.blogspot.com/2015/08/3-months.html
TIME SURE FLIES WHEN YOU'RE HAVING FUN! IT'S BEEN 3 MONTHS SINCE RYLIE COMPLETED HER CHEMOTHERAPY TREATMENTS AND ITS BEEN A WHIRLWIND OF FUN! WE'VE PLAYED AND PLAYED AND PLAYED WITH FAMILY AND FRIENDS! AND THE BEST NEWS OF ALL.WE FINALLY FINISHED OFF THE LAST OF HER PRESCRIPTIONS! WE ARE OFFICIALLY CHEMO FREE! TOMORROW IS A BIG DAY. WE'VE GOT AN AFTERNOON FULL OF EYE EXAMS, AND WHILE WE WILL HAVE TO WAIT FOR THE MRI RESULTS ON THE 17TH FOR COMPLETE ANSWERS-TOMORROW SHOULD GIVE US A PRETTY GOOD IDEA O...
THE LADYBUG GANG: August 2014
http://ladybuggang.blogspot.com/2014_08_01_archive.html
Local Support for the NF Walk! The 4th Annual NF Walk is quickly approaching-. Just 4 more days remain to get yourself pre-registered to walk with the ladybug gang as we fight to End NF! The LadyBug Gang is crushing our goals this year! Originally we set out to register 20 supporters to walk with us this year. Within a few days we had already blown through that goal! So, what do you do when you reach a goal. You set a new one! Yep, we want to double our original goal! We are so close. This was the first ...
THE LADYBUG GANG: Throw Back Thursday
http://ladybuggang.blogspot.com/2015/05/throw-back-thursday.html
LATER THAT AFTERNOON WHEN THEY FINALLY ROLLED HER OUT OF SURGERY COMPLETE PANIC SET IN. I'M NOT SURE IF IT WAS SEEING OUR DAUGHTER LAYING IN A HOSPITAL BED WITH NO COLOR, COMPLETELY UNRESPONSIVE OR THE HARSH REALIZATION THAT WE WE'RE ON OUR WAY UP TO THE ONCOLOGY. TODAY IS NOT ABOUT TEARS AND SADNESS. YES, THIS YEAR HAS SUCKED! IT HAS BEEN THE HARDEST THING I HAVE EVER BEEN THROUGH IN MY LIFE. IT HAS TESTED ME IN WAYS I DIDN'T THINK COULD EVER BE POSSIBLE. BUT. IT;S BEEN ON HECK OF A YEAR! Well, so. ...
THE LADYBUG GANG: 15 Truths...
http://ladybuggang.blogspot.com/2015/04/15-truths.html
LAST NIGHT SOME DEAR FRIENDS SENT ME A LINK TO AN ARTICLE- 15 TRUTHS TO HAVING YOUR CHILD DIAGNOSED WITH CANCER. THIS ARTICLE HIT ALL TO CLOSE TO HOME. NO, LADYBUG DOES NOT HAVE CANCER, SHE HAS NEUROFIBROMATOSIS. IT'S A COMMON MISCONCEPTION WE'VE BATTLED AGAINST FOR MONTHS. THEY ARE TWO ENTIRELY DIFFERENT THINGS, YET THEY ARE SO SIMILAR. AT SOME POINT I STOPPED FIGHTING THE COMPARISON. WHY. BECAUSE. HELL, TUMORS IN GENERAL SUCK! LOVE AND PRAYERS TO ALL OF OUR CHEMO BUDDIES! Our {Wild and Crazy} Days.
THE LADYBUG GANG: February 2015
http://ladybuggang.blogspot.com/2015_02_01_archive.html
I’M GOING TO TRY AND GET THROUGH THIS WALK DOWN MEMORY LAND WITHOUT TOO MANY TEARS…. ONE YEAR. IT’S BEEN EXACTLY ONE YEAR SINCE OUR LIVES WERE FOREVER TURNED UPSIDE DOWN. SOME DAYS IT FEEL LIKE THAT WAS FOREVER AGO, OTHER DAYS IT FEELS LIKE IT WAS JUST A FEW HOURS AGO. 365 DAYS AND I CAN STILL REMEMBER EVERY SINGLE MOMENT OF THAT INITIAL CONVERSATION WITH THE DOCTORS, EVERY DETAIL OF THE REST OF THAT WEEK… IT WAS THE WEEK THAT FOREVER CHANGED OUR FAMILY. HOW DO YOU KEEP GLASSES ON A ONE YEAR OLD? WE WERE...
THE LADYBUG GANG: August 2015
http://ladybuggang.blogspot.com/2015_08_01_archive.html
FRIDAY MARKED LADYBUG’S FIRST OPHTHALMOLOGY VISIT POST CHEMO. TO SAY WE WERE ALL NERVOUS FOR THIS APPOINTMENT WOULD BE A BIG UNDER STATEMENT! OVER THE LAST 18 MONTHS ANY OUNCE OF BAD NEWS WE HAVE RECEIVED HAS COME FROM OPHTHALMOLOGY SO WE ARE ALWAYS HOLDING OUR BREATHE WHEN IT COMES TIME TO MEET WITH THEM! I AM PRETTY SURE I HAD AT LEAST 5 MELTDOWNS PRIOR TO THAT. APPOINTMENT…. THE EAR INFECTION AND NEW SET OF ANTIBIOTICS SURELY DID NOT HELP MATTERS! TIME SURE FLIES WHEN YOU'RE HAVING FUN! WE ARE OFFICIA...
THE LADYBUG GANG: December 2014
http://ladybuggang.blogspot.com/2014_12_01_archive.html
Wow what a year it has been. full of doctors appointments, testing, and stress.just pure craziness! 1 Overnight Stay at Primary Children's Hospital. 1 Power PORT Placement Surgery. 1 Tear Duct Surgery. 2 High Fever Emergency Room Visits. 10 Rounds of Vincristine (chemotherapy #1). 8 Rounds of Carboplatine (chemotherapy #2). 1 Sedated Auditory Brain Response Test. 10 Visual Evoked Response Tests. 56 Days of LockDown. 245 days closer to a healthy baby! All too often we all forget how much love surrounds us...
THE LADYBUG GANG: July 2014
http://ladybuggang.blogspot.com/2014_07_01_archive.html
Charmed by Charity Event with Alex and Ani! A few weeks ago the Children's Tumor Foundation Ladies and I were approached to co-host a Charmed by Charity Event with Alex and Ani. I, for one am SO EXCITED! If you have not already checked out. You must. right now! They have some of the cutest bangles in the planet! My collection and I have become a little. So when they offered us the chance to help out a cause close to our hearts and do some shopping I, of course jumped at the chance to say YES! This sessio...
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Backing Board Color Chart. Envelope Liner and Pocket Folder Color Chart. Welcome to Dear Emma Stationery! If you would like to place an order for invitations, please fill out my Invitation Order form. Some helpful information such as our color charts, and our guest address list example are available under the Information menu at the top of the page. If you have any questions, please email us at dearemmastationery@gmail.com.
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05/09/2011 at 2:33 AM. 06/09/2011 at 4:04 AM. Subscribe to my blog! Atson , née le 15 avril 1990. À Paris ( France ) ,. Est une actrice britannique , célèbre. Pour avoir joué le rôle d'Hermione Granger dans la. Série de films Harry Potter. Emma Watson est née en France de parents anglais. Qui y travaillaient à l'époque , Chris et Jacqueline. Watson, tous deux avocats ; elle a un frère, Alex, de. Trois ans son cadet. Jusqu'à cinq ans elle a vécu à. Paris ensuite elle est partie pour Oxford, en Angleterre.
Dear Emmeline
Monday, June 8, 2015. A Big Dream Within Reach. When we moved last fall I mentioned that along with our house we also became owners of a commercial outbuilding. The outbuilding was a big reason we decided to put our townhouse on the market and make a go of buying a new place. As soon as we bought the property I started dreaming about and planning what that space could and hopefully would become. I have big dreams for this space! So, I'm reaching for my dream! We also need your help. Friday, May 15, 2015.
Dear Emmeline | Just another WordPress site
Just another WordPress site. Welcome to WordPress. This is your first post. Edit or delete it, then start blogging! This entry was posted in Uncategorized. May 15, 2013. By Jessica @ Dear Emmeline. Proudly powered by WordPress.
Dear Emmersyn
Letters to my daughter during her journey with Neurofibromatosis type I. Saturday, January 17, 2015. Tuesday, November 25, 2014. Thursday, November 13, 2014. The good, the bad, and the ugly. Monday, November 10, 2014. Fake It 'til You Make It. Monday, November 3, 2014. In the midst of the storm. Sunday, October 26, 2014. I cannot take sitting here and watching this tumor grow bigger and bigger; watching your pain escalate and your abilities decline. Am I being selfish in wanting the tumor gone? I told my...
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A travel, culture, and French, pet centered blog. Asymp; Leave a comment. My camera is dead so no new pictures this week (I knew that I would forget someting). So instead of things relevant to whatever I’m talking about, I’m just going to post various pictures of you because I think that everyone should love looking at your face just as much as I do. Yeah sorry about this one. Everything is just different; I mean what kind of people don’t refrigerate milk? Asymp; 2 Comments. For some reason, ever since a...
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Lower Cost to Build - 15 Constructions Tips and other Ways to Save Big When Building a House. First published in eplans.com. No one wants to pay more than necessary when building a home. But only the experts know how to save money on construction, right? Not necessarily. Here are 15 tips that may help keep your building budget within reason, without compromising on the home you want. 5 Collect salvaged materials from demolition sites. Old barnwood, used bricks, and distinctive wood doors add inexpens...
Welcome to www.dearen.com
Welcome to www.dearen.com. See all our new stuff on Facebook. Meet our Bengal, Missy. Here is all the old stuff . Dreams Tulum, Mexico for Alex and Becky's Wedding. July 3-7, 2008. Day 1, Day 2 (4th of July Party) and day time on Day 3. Alex and Becky's Beautiful Wedding. Wedding Reception on the Beach and Dinner. Day 4 (Tulum, Spa, Campfire) and Day 5. Dallas Desperados Game for Dave's Birthday. Las Vegas for Linda's Birthday. June 6-9, 2008. Spring Break with Sandy and James. Aka: Nana and Granddaddy).
