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DefinitelyDeaf — Life as a hearing mum raising a deaf child with CHARGE syndromeLife as a hearing mum raising a deaf child with CHARGE syndrome
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Life as a hearing mum raising a deaf child with CHARGE syndrome
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DefinitelyDeaf — Life as a hearing mum raising a deaf child with CHARGE syndrome | definitelydeaf.com Reviews
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Life as a hearing mum raising a deaf child with CHARGE syndrome
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Esther Freeman
http://definitelydeaf.com/author/esther_freeman
PS to thoughts on friendship…. Life as I know it. The summer holidays are with us and we are very much ‘out and about’. This is, at times, challenging and I wanted to share a typical moment with you, following on from the last blog. Smiling Flower was no doubt disappointed and confused as I led her away from them for a second time. Thankfully, the sausage was thoroughly delicious and the excitement of it’s arrival changed the mood in our camp as we got sticky and happy with onion relish and red...Still, ...
DefinitelyDeaf — Life as a hearing mum raising a deaf child with CHARGE syndrome
http://definitelydeaf.com/page/2
Do you ‘stim’? Life as I know it. Are you one of those people who taps their pen whilst deep in thought, or do you twirl your hair whilst daydreaming? Do you doodle, bite your nails, or ever jump up and down to focus yourself before a big moment? If you do you stim. … Read More. The Sibling thing…. Life as I know it. The Endless Surprise of Smiling Flower. Life as I know it. Life as I know it. So we have moved, entirely relocated actually, just west of Derby. It has been a mad few months. There h...DLA (...
Edges of existence…
http://definitelydeaf.com/edges-of-existence
Edges of existence…. Life as I know it. Last Tuesday started innocuously enough. We decorated cupcakes before breakfast, which inevitably lead to the cupcakes becoming breakfast as sneaky bites were taken and chocolate evidence was smeared around lips. We were going to meet Aunty Catherine and cousin Zach. There was much excitement afoot. My husband actively seeks out cliff edges and enjoys hanging by his finger tips to rock faces, trusting a length of rope and a small metal pin in the crevice to keep hi...
We are sailing…
http://definitelydeaf.com/we-are-sailing
We are sailing…. Life as I know it. Sometimes, something surprises you and knocks you sideways in a ‘that’s so beautiful I missed a breath’ kind of way. I use facebook. It’s not usually beautiful. Its normally filled with me moaning about early starts, chest infections and how I dote on my kids But the other day I signed in and this quote and picture popped up:. 8216;She stood in the storm and when the wind did not blow her away she adjusted her sails’. July 18, 2013 at 9:34 am. 50 for me next February.
Life as I know it
http://definitelydeaf.com/category/life-as-i-know-it
PS to thoughts on friendship…. Life as I know it. The summer holidays are with us and we are very much ‘out and about’. This is, at times, challenging and I wanted to share a typical moment with you, following on from the last blog. Smiling Flower was no doubt disappointed and confused as I led her away from them for a second time. Thankfully, the sausage was thoroughly delicious and the excitement of it’s arrival changed the mood in our camp as we got sticky and happy with onion relish and red...Still, ...
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13
The Adventures of Kennedy: December 2012
http://chargesyndrome.blogspot.com/2012_12_01_archive.html
Chronicling the adventures of one amazing, funny, sweet, outrageous young lady, who happens to have CHARGE syndrome! Friday, December 7, 2012. Kennedy with her "Scenes" group from HVHS, performing in Footloose! First stage performance of high school.we were super proud. Best part? She had a BALL! Posted by Lisa and Kennedy. Subscribe to: Posts (Atom). A welcome message from a young Kennedy circa 2006! Click to support Team Kennedy! What is CHARGE Syndrome? 12th International CHARGE Syndrome Conference.
The Adventures of Kennedy: May 2014
http://chargesyndrome.blogspot.com/2014_05_01_archive.html
Chronicling the adventures of one amazing, funny, sweet, outrageous young lady, who happens to have CHARGE syndrome! Thursday, May 29, 2014. HVHS Chorale Ensemble Spring Concert. Tonight was the spring concert - Kennedy is on the far right of the front row in each of the three videos. Changamano (Join Together) by Sally K. Albrecht. Dona Nobis Pacem (Traditional). Some Nights by Fun. Posted by Lisa and Kennedy. Wednesday, May 28, 2014. My beauty surrounded by the Grand Canyon. She once again worked extre...
The Adventures of Kennedy: CHARGE Through The Year 2015 Calendar
http://chargesyndrome.blogspot.com/2014/08/charge-through-year-2015-calendar.html
Chronicling the adventures of one amazing, funny, sweet, outrageous young lady, who happens to have CHARGE syndrome! Monday, August 18, 2014. CHARGE Through The Year 2015 Calendar. One of the phenomenal moms I have met through the online CHARGE syndrome world, Anna Miller, has put together the 2nd CHARGE Through The Year calendar. For 2015. This was a sell-out fundraiser and awareness raiser for CHARGE syndrome and the CHARGE Syndrome Foundation. Last year and promises to be another huge success this year.
The Adventures of Kennedy: Guys and Dolls - Fall Production at HVHS
http://chargesyndrome.blogspot.com/2014/10/guys-and-dolls-fall-production-at-hvhs.html
Chronicling the adventures of one amazing, funny, sweet, outrageous young lady, who happens to have CHARGE syndrome! Wednesday, October 8, 2014. Guys and Dolls - Fall Production at HVHS. Most nights she (and we) will be at school until about 11pm. It's so wonderful seeing her participate and enjoy this experience though! Here are some shots of the scenes my New York "doll"is in from the tech dress rehearsal (she's in a grey dress with black hat). You can click on the picture to enlarge it. Guys and Dolls...
The Adventures of Kennedy: Pies & Ice - the IceBucket Challenge with a CHARGE Twist
http://chargesyndrome.blogspot.com/2014/08/pies-ice-icebucket-challenge-with.html
Chronicling the adventures of one amazing, funny, sweet, outrageous young lady, who happens to have CHARGE syndrome! Saturday, August 23, 2014. Pies and Ice - the IceBucket Challenge with a CHARGE Twist. Check out this video where I take a pie in the face for every surgery Kennedy has ever had for CHARGE awareness and then an ice bucket for ALS! Click on this Post. Visit chargesyndrome.org to learn more and/or donate to support the CHARGE Syndrome Foundation! Posted by Lisa and Kennedy. Mom on a Mission.
The Adventures of Kennedy: December 2011
http://chargesyndrome.blogspot.com/2011_12_01_archive.html
Chronicling the adventures of one amazing, funny, sweet, outrageous young lady, who happens to have CHARGE syndrome! Thursday, December 22, 2011. EMNS Middle School Sign Language Club Holiday Concert Performance. Kennedy with her Sign Language Club, performing "Mary's Boy Child".you'll notice she's the one to give a big bow, wave to the crowd and make a 'heart hand' to them. No shyness here. ). For those of you not on facebook, here is the link to the youtube video:. Posted by Lisa and Kennedy.
The Adventures of Kennedy: November 2011
http://chargesyndrome.blogspot.com/2011_11_01_archive.html
Chronicling the adventures of one amazing, funny, sweet, outrageous young lady, who happens to have CHARGE syndrome! Monday, November 28, 2011. Empty Stocking Fund 2011. PS - it does zoom in after a bit so you can actually see her better! Posted by Lisa and Kennedy. Thursday, November 17, 2011. Kennedy Channeling Sally Brown. Not that we haven't been doing too much, I have just been doing too much, that's the problem. Kennedy's monologue is a classic piece from The Great Pumpkin. You blockhead. What ...
The Adventures of Kennedy: October 2014
http://chargesyndrome.blogspot.com/2014_10_01_archive.html
Chronicling the adventures of one amazing, funny, sweet, outrageous young lady, who happens to have CHARGE syndrome! Wednesday, October 8, 2014. Guys and Dolls - Fall Production at HVHS. Most nights she (and we) will be at school until about 11pm. It's so wonderful seeing her participate and enjoy this experience though! Here are some shots of the scenes my New York "doll"is in from the tech dress rehearsal (she's in a grey dress with black hat). You can click on the picture to enlarge it. Guys and Dolls...
The Adventures of Kennedy: Segregation and Discrimination - Alive and Well in St. Augustine, Florida
http://chargesyndrome.blogspot.com/2015/02/segregation-and-discrimination-alive.html
Chronicling the adventures of one amazing, funny, sweet, outrageous young lady, who happens to have CHARGE syndrome! Wednesday, February 11, 2015. Segregation and Discrimination - Alive and Well in St. Augustine, Florida. Please take a minute to watch this newscast:. Http:/ www.wsbtv.com/news/news/national/mother-says-girl-scouts-discriminated-against-her-/nj8hg/. Um er newsflash: that's not. Inclusion. Merriam Webster. Defines inclusion as: the act of including. The state of being included. Maybe there ...
The Adventures of Kennedy: June 2014
http://chargesyndrome.blogspot.com/2014_06_01_archive.html
Chronicling the adventures of one amazing, funny, sweet, outrageous young lady, who happens to have CHARGE syndrome! Monday, June 16, 2014. Cineplex, You Can Do Better. Tonight my daughter wanted to go and see “The Fault in our Stars”. Being proactive, we called ahead to make sure CaptiView was available for the movie (she has a severe-profound hearing loss) and purchased our tickets ahead of time in the optimal spot for the CaptiView to work, according to the manager with whom I spoke. Again, not a huge...
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definitelydaniela.wordpress.com
definitely daniela | for each of us comes a time when we must be more than what we are.
For each of us comes a time when we must be more than what we are. 11214 (Deep Thoughts About Death (again? 111112 (thoughts on God). 171112 (Thoughts on Death). 21213 (Thoughts on a Few Different Things). The Alberti Family Reliquary. New Music Wednesday: ‘Let It Go’ from Disney’s Frozen. New Music Wednesday: Danny Elfman. New Music Wednesday: Drive Soundtrack. New Music Wednesday: Elliott Smith. New Music Wednesday: J. Martin. New Music Wednesday: Joni Mitchell. New Music Wednesday: Sam Roberts.
The Dreamer In Me
The Dreamer In Me. Saturday, December 15, 2012. I was so stressed-out for weeks due to a lot of work requirements. So after the presentation, which my senior and I worked hard for, I was relieved that our manager liked the report last December 3. He said we did great. Nevertheless, I felt so down not only physically but also emotionally. Here is what I wrote from my heart just after the presentation:. My heart is lonely. It is empty. It is longing for you. It is fitted for you. What have you done to it?
Dave Janis - Boulder Real Estate
Sign in to your account. Need to reset your phone number? Your browser does not support iframes. Don't have an account with us? Click here to sign up. Definitely Dave - There is a Difference. Todays New and Recently Updated Listings. 1466 Easy Rider Ln, Boulder. Green built Modern Holiday Neighborhood Home with Solar Electric 3.4 KW system. Features: wood floors, granite counters, SS appliances, large upstairs deck, custom closet. Courtesy of RE/MAX Alliance on Walnut. 630 Terrace Ave Unit G, Boulder.
Definitely Davis
We are an unaverage American family living on 2.5 acres in Texas with our 5 homeschooled children and a handful of farm animals. We are taking one day at a time and living under the Lord's grace. May you be blessed as you read and learn more about "our road.". Saturday, February 11, 2012. A Joyful Heart For Home. Just wanted to let everyone know that most of my new posts these days are over at my other blog www.ajoyfulheartforhome.com. Labels: A Joyful Heart for Home-my other blog. To me that is! Nathan ...
My Journey in Faith
My Journey in Faith. Come follow my journey as I serve God wherever He sends me. Wednesday, July 27, 2011. 2011 Paraguay Volleyball Team. Nicole, Dawn, Kendra, Courtney, Anysia. I just want to say this trip wouldn't have been possible without all your prayer and financial support! I really feel privileged that you are a part of my support team. Thank you so much. At each presentation the drama team led in singing, performed a skit, shared a devotional and then 2 or 3 girls from the team shared their test...
DefinitelyDeaf — Life as a hearing mum raising a deaf child with CHARGE syndrome
Life as a hearing mum raising a deaf child with CHARGE Syndrome. It’s a small world. Life as I know it. Three years ago I met a Nigerian lady called Efe. She had sold almost everything she owned, scooped up her 4 daughters and travelled over 3,500 miles (as the crow flies) to Derby to study business. Of course crows don’t actually fly from Nigeria to Britain so it was a considerable journey, and took a huge amount of guts and courage. We gave her lifts to school, she came to play, we supported them in ev...
i'm walking on sunshine... | definitelydeb.com
I'm walking on sunshine…. Where I’m from. April 21, 2015 · 2:30 pm. Missin’ the kitten…. On Sunday Cookie let me know, it was time for her to go. Tears were shed, as I held her close during her transition to kitty heaven. I encouraged her to chase birds, and butterflies. I told her how much I loved her. She’s gone. And I am missing her more than I thought possible. Goodbye is not my favorite word. January 22, 2015 · 4:40 pm. Going going. going. Doing doing. doing. I need. a. nap. Calgon take me away.
Definitely Debbie
Wednesday, May 18, 2011. Last weekend I saw Thor. The hugely budgeted, widely attended muscle-bulging film about the Norse god of thunder. I thought the movie was well done. Especially for a superhero flick. Don't get me wrong, I'm a fan. But some of them don't translate to the screen as well as others. So, to keep this post short and sweet, here are my highs and lows of the movie. The acting was fairly exceptional. Anthony Hopkins, in something that could have been a throw away part, really stood ou...
Definitely Decaf
You cant make this Sh*&! Sweet, Sweet trouble. Married, 30 something mom of 1 adorable little 'moose'. Full time working mama, juggling it all on decaf. That's right. View my complete profile. Monday, November 12, 2012. Sweet, Sweet trouble. A couple of days ago I received this text from a friend:. Apparently, (and I haven't confirmed this yet), they are now making Christmas Cadbury Mini Eggs'. Monday, November 12, 2012. Links to this post. Sunday, November 11, 2012. Back by popular demand! MFC's brother...
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Friday, November 10, 2017. An Officer and A Gentleman.and A Realtor. The charming, distinguished veteran asks if I'm sure I have time and don't mind helping. I assure him I have time to help. He hooks up the cables and a few minutes later we hear the welcome sound of his engine turning over. He shakes my hand and thanks me profusely. Really.he thanks me? Wednesday, February 8, 2017. In the Spirit of Spring Cleaning, Or Not. Saturday, July 16, 2016. Photo Cred to Di who also suggested I try to put impossi...
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