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A monkey on his backThe Diary of an MND wife.
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The Diary of an MND wife.
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A monkey on his back: October 2014
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A monkey on his back. The Diary of an MND wife. Monday, 6 October 2014. Plums, Persuasion and ‘Puga does Everything…’. September brings a holiday and a family visit. Time for a Catch up - Part I - We Holiday in Dorset. Puga does everything’. Sings - er - Puga. Much hilarity generally ensued as we observed Puga attempting to stir a cake mixture or make a horror movie (my personal favourite). Kate and me on The Cobb. Hairymoment2. Well and truly stuck. Off I went, toiling up the hill in the heat, t...Out o...
A monkey on his back: March 2015
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A monkey on his back. The Diary of an MND wife. Wednesday, 25 March 2015. Read together side by side and looked through our Wedding album with Kate (of course we do that every day, as you know…) Then we went outside to the garden together, which we often do. I did ask if they wanted me to bring in the washing, but was told it looked ‘more natural’ to have it there. So we left it, tee shirts blowing in the breeze. In fact I began the list a long time ago, when he told me he didn’t like daffodils....
A monkey on his back: December 2014
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A monkey on his back. The Diary of an MND wife. Tuesday, 30 December 2014. The Times They are a-Changin'.". The line it is drawn. The curse it is cast. The slow one now. Will later be fast. As the present now. Will later be past. Your old road is. And the first one now. Will later be last. For the times they are a changin'.". The times they are a-changin". That's what the song says and it's a line I find repeating in my head. 3 It's tiring for him. If its not too much trouble for you, plan a little&#...
A monkey on his back: April 2015
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A monkey on his back. The Diary of an MND wife. Monday, 27 April 2015. Then let Everybody Sing. Six years in June. It feels like a long time and lately I’ve been feeling tired. Maybe it’s taking its toll now and yet I can’t afford to be tired at this point, there’s a way to go yet. I’ve been feeling anxious. Every day I wake up and ask myself the question “Will I be able to manage today? Roch and Rollie in better days. Then let everybody sing! 8221; This was the signal for us to stop complaining and give...
A monkey on his back: November 2014
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A monkey on his back. The Diary of an MND wife. Wednesday, 12 November 2014. I said October was a good month for me. This is not just because of Boston, but also because I enjoyed some literary success! Http:/ www.carersuk.org/how-you-can-help/writing-competition. In which I travel alone to Boston, MA. Good Wives at 'Orchard House'. Sunday October 12 2014. 8220;So, the day is here and I am waiting for my Gate number to come up. I am on my way to Boston. I have to write that down to believe itR...We ta...
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Steve Evans Blog: Regaining a little independence
http://steveevans35.blogspot.com/2015/06/regaining-little-independence.html
Tuesday, 2 June 2015. Regaining a little independence. The system comprises a mechanical hand which is moved by tiny servos. This was manufactured by Patrick using his 3D printer. Then there's a processing unit, again constructed and programmed by Patrick. The system connects to the eyegaze computer by USB. Finally a screen grid was made to allow eye selection. The system is still in its early stages of development but early tests are promising. The next video was made in the seafront carpark at my flat.
Steve Evans Blog: We Are Not Alone
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Monday, 6 April 2015. We Are Not Alone. Filming My Father In Life And Death. Click to watch on demand until March 2016. I know from other MND sufferers, the Isaac's and our experience isn't universal but I suspect it's representative of many families dealing with this disease. I am so grateful for your honesty - thank you does not begin to cover it but I dont know what else to say. Thank you. 12 April 2015 at 00:18. Subscribe to: Post Comments (Atom). For those of you who really want to, you can check ou...
Steve Evans Blog: November 2014
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Sunday, 16 November 2014. Perseverance, patience and acceptance” – PatientsLikeMe member Steve shares what it’s like to live with MND. Posted November 14th, 2014. Looking back over the last 7 years since your diagnosis with ALS/MND, is there anything you’d like to have known sooner that has helped you along your journey? You’ve documented your experiences in your film “My Motor Neuron Disease Made Easier” – can you share a little about your inspiration for the project? Eyegaze is undeniably an incredible...
Steve Evans Blog: August 2014
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Tuesday, 26 August 2014. Enduring Motor Neurone Disease. Monday, 25 August 2014. Daniel's and Tracy's ice bucket challenge. Thursday, 21 August 2014. Finally I was determined to make a 60 second version, with the view to getting it on TV as an ad campaign to raise awareness and funds. BUT the minimum cost of airtime for a realistic ad campaign is £25k. So if anyone knows of any organisations who could contribute a few grand, let me know. Wednesday, 6 August 2014. Jake Nailing Muse Again.
Steve Evans Blog: April 2014
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Thursday, 3 April 2014. Just like old times. Almost. So yesterday I decided to return. We drove to Hampton Court station where there are very conveniently placed disabled parking spaces, hopped on a train with the help of the train's guard and was at Waterloo 35 minutes later. We only spent about an hour looking around, not wanting to push our luck. It was nice having made it there again albeit not under my own steam anymore. As always I can't help feeling many of the exhibits fall into "The Empo...After...
Steve Evans Blog: Enduring Motor Neurone Disease
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Tuesday, 26 August 2014. Enduring Motor Neurone Disease. Wow, thats stunned us. Good luck with the campaign. Anna P. 4 September 2014 at 23:55. A very moving video indeed. very moving. I hope youre doing OK at the moment. All the best, Adrian. Ember Gdns. 6 September 2014 at 08:09. Subscribe to: Post Comments (Atom). For those of you who really want to, you can check out my "status" on my web link. Finally, PLEASE leave comments, even if brief as its the only way I know its being read!
Steve Evans Blog: Quick update
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Sunday, 29 March 2015. Subscribe to: Post Comments (Atom). For those of you who really want to, you can check out my "status" on my web link. Finally, PLEASE leave comments, even if brief as its the only way I know its being read! View my complete profile. Pauline's life with MND.
Steve Evans Blog: December 2014
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Wednesday, 10 December 2014. Subscribe to: Posts (Atom). For those of you who really want to, you can check out my "status" on my web link. Finally, PLEASE leave comments, even if brief as its the only way I know its being read! View my complete profile. Pauline's life with MND.
Steve Evans Blog: June 2015
http://steveevans35.blogspot.com/2015_06_01_archive.html
Tuesday, 2 June 2015. Regaining a little independence. The system comprises a mechanical hand which is moved by tiny servos. This was manufactured by Patrick using his 3D printer. Then there's a processing unit, again constructed and programmed by Patrick. The system connects to the eyegaze computer by USB. Finally a screen grid was made to allow eye selection. The system is still in its early stages of development but early tests are promising. The next video was made in the seafront carpark at my flat.
Steve Evans Blog: September 2014
http://steveevans35.blogspot.com/2014_09_01_archive.html
Thursday, 11 September 2014. The last event of the summer was Wheels and Wings at Dunsfold Aerodrome. Tracy had advised them of my situation and they offered complementary VIP parking and access to the covered veterans enclosure if it was raining. Totally opposite experience to Farnborough. The highlight of the show was the two remaining airworthy Lancaster bombers flying together. Although when the Vulcan is flying it always steals the show. Subscribe to: Posts (Atom). View my complete profile.
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Everyone Smiles
With that invisible gun to their head. Everyone smiles with that invisible gun to their head. What a boy wants verse-. Character] albus severus potter. Character] james sirius potter. Drabble: Leap of Faith. Neville and Harry (gen at the moment). I do not own or claim to own any characters, settings, locations, etc. from Harry Potter. Unbeta'd. Written for Day 9. Of Advent Drabbles. Part 6 of Making Christmas. Series, read Part 5 here. Or start at Part 1 here. So, you wanted to talk about something?
Мои не всегда логичные мысли...
Мои не всегда логичные мысли. На 15% не замужем. May 16th, 2013 at 6:03 PM. Оказывается, яндекс теперь - от скуки, вероятно, - взялся анализировать поисковые запросы и пытаться понять, что же представляет из себя человек, который роется почти каждый день в поисковике. Всегда же интересно узнать, что о тебе думают другие, правильно? Ну и что бы вы думали? Mar 7th, 2013 at 11:16 PM. Once upon a time. Feb 25th, 2013 at 5:51 PM. Но не важно, правда остается правдой: когда я начала смотреть одним, а потом уже...
deirdre-amonkeyonhisback.blogspot.com
A monkey on his back
A monkey on his back. The Diary of an MND wife. Friday, 12 May 2017. A Post for Mental Health Awareness Week. It's Time to Talk. Well, hello there. It’s been a long time, hasn’t it? Or are you going to judge me, pity me or offer me platitudes? Because if so, maybe we shouldn’t do this. I’ll give you time to decide and if you stick around, I’ll go on. Ok, so, where was I? Ah yes, my feelings. Have I mentioned the Black Blog? My problem with sharing my darker thoughts and feelings with you here, as a Carer...
At Være Forvirret Anno Det 21. Århundred.
At Være Forvirret Anno Det 21. Århundred. I juli blev jeg 36 - og nu ved jeg (bedre) hvem jeg er. Deirdre-Ann Roberts - hvem er dét? Tirsdag den 7. juli 2015. Over and Out = Farvel Blogger.com. Det var sjovt så længe det varede, men dit elendige interface gør at jeg simpelthen ikke kan samarbejde med dig mere. Kort sagt, you suck! Living on the edge Deirdre-Ann Style! Det har også resulteret i at jeg nu er Mayor på hele 3 forskellige lokationer via Foursquare (I'll oust your ass! Min Wordpress blog er la...
deirdre-baudoux-3's blog - Dumbakura - Skyrock.com
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Deirdre Breen is a designer and printmaker based in Dublin, Ireland. Deirdre Breen is a designer and printmaker based in Dublin, Ireland. Deirdre Breen is a designer and printmaker based in Dublin, Ireland.
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