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The Duchenne Family Support Group - DFSG

The Duchenne Family Support Group (DFSG) exists to provide support for families with children diagnosed as having Duchenne Muscular Dystrophy (DMD). The DFSG is a national charity run by families for families affected by DMD. It provides a positive national support network of parents, their families and professionals. The DFSG helps bring families together for mutual support, sharing of information and experience, and social activities and has been doing so since 1987.

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The Duchenne Family Support Group - DFSG | dfsg.org.uk Reviews
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The Duchenne Family Support Group (DFSG) exists to provide support for families with children diagnosed as having Duchenne Muscular Dystrophy (DMD). The DFSG is a national charity run by families for families affected by DMD. It provides a positive national support network of parents, their families and professionals. The DFSG helps bring families together for mutual support, sharing of information and experience, and social activities and has been doing so since 1987.
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6 about dfsg
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The Duchenne Family Support Group - DFSG | dfsg.org.uk Reviews

https://dfsg.org.uk

The Duchenne Family Support Group (DFSG) exists to provide support for families with children diagnosed as having Duchenne Muscular Dystrophy (DMD). The DFSG is a national charity run by families for families affected by DMD. It provides a positive national support network of parents, their families and professionals. The DFSG helps bring families together for mutual support, sharing of information and experience, and social activities and has been doing so since 1987.

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Duchenne Family Support Group

https://www.dfsg.org.uk/events

DFSG UK Holiday to Norfolk Broads. Le Fosso Trip 2016. Sailing day at Bewl Water Kent - 9 July 2016. DFSG UK Holiday to Norfolk Broads. Le Fosso Trip 2016. Currently this year's holiday is Fully Booked but you can approach us to go on the waiting list for cancellations.The dates are 28 May to 4 June 2016. Enquiries to info@dfsg.org.uk Visit the Le Fosso 2016 Page. Sailing day at Bewl Water Kent - 9 July 2016. Previous events are archived here - Previous Events. Or whatever you wish).

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Resources and Links :: Duchenne Family Support Group

https://www.dfsg.org.uk/about-dfsg/links-related-websites

How we spend your money. I would like to Donate. Links to Related Websites. Thoughts from the Development Officer. Below are a few links to related websites that you may find useful. Note: All websites will open in a new browser window. Organisations for other conditions associated with DMD. The National Autistic Society. National Parent Partnership Network (for special educational needs). Dogs for the Disabled. The Eileen McCallum Trust (Scotland). Respite, hospices and help for carers.

3

News Archive :: Duchenne Family Support Group

https://www.dfsg.org.uk/news/news-archive

I would like to Donate. Links to Related Websites. Thoughts from the Development Officer. Inaugural Flying Muscle Dream Programme. Jayne Doe's sponsored run for DFSG. TV show wants to take families to a Villa. Interested in a free holiday for all the family? TV production company TwoFour, makers of Educating Yorkshire and The Hotel Inspector are looking to take families to a beautiful Villa for a new and exciting show in the sun! APPLY NOW - tvfamilyholiday@twofour.co.uk. World Duchenne Awareness Day.

4

I would like to Donate :: Duchenne Family Support Group

https://www.dfsg.org.uk/about-dfsg/i-would-like-to-donate

I would like to Donate. Links to Related Websites. How we spend your money. Please support our work helping families affected by Duchenne muscular dystrophy. Or whatever you wish).

5

Demos seeking evidence about young people with complex disabilities, life-limiting and life-threatening illnesses :: Duchenne Family Support Group

https://www.dfsg.org.uk/news/demos-seeking-evidence-about-young-people-complex-disabilities-life-limiting-and-life-threatening-illnesses

Demos seeking evidence about young people with complex disabilities, life-limiting and life-threatening illnesses. SKIP-NMD a new Duchenne clinical trial starting. NICE has recommended funding on the NHS in England for Translarna. Demos seeking evidence about young people with complex disabilities, life-limiting and life-threatening illnesses. SKIP-NMD reports progress on skipping exon 53. TEN POSTS IN PLACE TO SUPPORT UK CLINICAL TRIAL CAPACITY. Please see below a suggested text to be emailed out to you...

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greatoutdoors-jerry.blogspot.com greatoutdoors-jerry.blogspot.com

The Great Outdoors: June 2013

http://greatoutdoors-jerry.blogspot.com/2013_06_01_archive.html

Sunday, 23 June 2013. Birch Sap Wine Bottled! Last month, Anna helped me to 'rack-off' the Birch Sap wine. This is simply syphoning the wine into another sterile demijohn to. Leave the sediment behind. The sediment is a build-up of dead yeast cells;. If the wine is left too long on the sediment it can affect the final taste. We took a final hydrometer reading which was virtually off the scale! This means that almost all the sugar has been converted and the wine will be. Friday, 14 June 2013. Birch Sap Wi...

greatoutdoors-jerry.blogspot.com greatoutdoors-jerry.blogspot.com

The Great Outdoors: March 2013

http://greatoutdoors-jerry.blogspot.com/2013_03_01_archive.html

Sunday, 31 March 2013. For this Easter greeting, I couldn't find a suitable photograph from pictures I'd taken this year; I wanted a cheerful blue sky background! So I reverted to one I'd taken a few years ago on a photography day-course up at the London Wetlands Centre. Thursday, 28 March 2013. If I have any interested friends left in 'blogland' it will be a miracle! Someone once said that the art of good wine making is to spend 70% of your time sterilising everything. Sunday, 24 March 2013. Welcome to ...

greatoutdoors-jerry.blogspot.com greatoutdoors-jerry.blogspot.com

The Great Outdoors: Christmas Remembered

http://greatoutdoors-jerry.blogspot.com/2014/01/christmas-remembered.html

Friday, 24 January 2014. No apologies for a little look back to Christmas -. It was so very enjoyable for us and I am feeling rather reluctant to forget it all! Much of the fun was in the preparations - including making up our own hampers for presents from. Some of the preserves and brews we had been compiling. Karen made several Christmas Cakes (including one for us of course! I filtered off my Sloe Gin infusion. Homemade fudge - yummy! And of course can be kept and used afterwards! Love the idea of tho...

greatoutdoors-jerry.blogspot.com greatoutdoors-jerry.blogspot.com

The Great Outdoors: Dragon Harp

http://greatoutdoors-jerry.blogspot.com/2013/11/dragon-harp.html

Friday, 15 November 2013. Firstly here 's the design traced on. Right, deep breath, and initial colours blocked in. Detail of the head. And as you can see, the dragon's tail and wings wrap around the whole soundbox - great fun! Finally, the name of the harps' eventual recipient is incorporated in the tail. 16 November 2013 at 06:10. Stunning work of art. 17 November 2013 at 14:11. Thanks very much Ingemar. 16 November 2013 at 07:16. Nice to follow in real time your stunning Art work, so original! 10 Janu...

greatoutdoors-jerry.blogspot.com greatoutdoors-jerry.blogspot.com

The Great Outdoors: November 2013

http://greatoutdoors-jerry.blogspot.com/2013_11_01_archive.html

Friday, 15 November 2013. Firstly here 's the design traced on. Right, deep breath, and initial colours blocked in. Detail of the head. And as you can see, the dragon's tail and wings wrap around the whole soundbox - great fun! Finally, the name of the harps' eventual recipient is incorporated in the tail. Subscribe to: Posts (Atom). Ben's Adventures in Wine Making. Blackberry Wine - Thirteenth Bottle (C3), 20th-21st August 2016. FIVE YEARS/ 600 000 page views. North Downs and beyond . yet again. Fungi a...

greatoutdoors-jerry.blogspot.com greatoutdoors-jerry.blogspot.com

The Great Outdoors: December 2014

http://greatoutdoors-jerry.blogspot.com/2014_12_01_archive.html

Monday, 22 December 2014. Preparing for Christmas. 2015! Here is just one view down 'our' Loke. A loke is a Norfolk word for a short, narrow lane which becomes a farm track that eventually leads to a dead-end. Ours fits that description with the bonus that it ends up as a fabulous footpath which includes some very fruitful hedgerows - great for foraging! During the initial fermentation, the yeast loves plenty of oxygen, but as fermentation slows the liquid is then strained into a demijohn and air is excl...

greatoutdoors-jerry.blogspot.com greatoutdoors-jerry.blogspot.com

The Great Outdoors: November 2014

http://greatoutdoors-jerry.blogspot.com/2014_11_01_archive.html

Wednesday, 26 November 2014. Back from a 'Blogging Sabbatical'. Firstly, I'm so sorry I haven't posted anything for most of this year - oops! Yes early this year we were graced by a very special visitor, none other than His Royal Highness The Duke of Kent! He seemed to thoroughly enjoy his visit and we loved the fact that he was very relaxed and 'hands-on'. If that wasn't enough, few weeks later we then found ourselves playing host to all the mayors of Surrey. And as this post seems to be largely an exer...

greatoutdoors-jerry.blogspot.com greatoutdoors-jerry.blogspot.com

The Great Outdoors: July 2013

http://greatoutdoors-jerry.blogspot.com/2013_07_01_archive.html

Thursday, 11 July 2013. Daisy-chain Skylark in the making. A customer ordered a harp and sent us a photograph of a daisy-chain taped onto the soundboard of a Skylark harp she's borrowing. She then requested that we paint this onto the soundboard of her new harp - so we did. It was a lot of fun to paint! Subscribe to: Posts (Atom). Daisy-chain Skylark in the making. Ben's Adventures in Wine Making. Blackberry Wine - Thirteenth Bottle (C3), 20th-21st August 2016. FIVE YEARS/ 600 000 page views. The Flora a...

greatoutdoors-jerry.blogspot.com greatoutdoors-jerry.blogspot.com

The Great Outdoors: Harvest Home!

http://greatoutdoors-jerry.blogspot.com/2013/10/harvest-home.html

Thursday, 10 October 2013. This time of year we are usually very busy making the most of the produce. That the garden and countryside has to offer - and this year is certainly no exception. Karen kicked off by making this amazing Spiced Blackberry and Brandy Liqueur. The finished bottles of delicious liqueur. I pinched the left-over pulp from Karen's liqueur and added it to my Blackberry and Elderberry wine. It filled two demijohns (9 litres or 16 pints). The aromatic smell from the bowl was fantastic!

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Previous Meetings and Abstracts. Executive and Scientific Committee. Practical info and catering. Previous Meetings and Abstracts. Executive and Scientific Committee. Join us at DFSG 2018 in Berlin, Germany, 28-30 September 2018. We are happy to invite you to participate in the 15th meeting of the Diabetic Foot Study Group (DFSG) of the European Association for the Study of Diabetes (EASD). DFSG 2018 will take place in Berlin, Germany, 28-30 September 2018. We hope you will join us at DFSG 2018 in Berlin.

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The Duchenne Family Support Group - DFSG

Discover how you can do something amazing today:. I want to help. Do something great today Make a donation. Virgin London Marathon Run the marathon for us! Your donations matter How we spend your money. I would like to Donate. Thoughts from the Development Officer. Read current news here. Look up past news items. DFSG Workshops and Conferences. The Duchenne Family Support Group - DFSG. The Duchenne Family Support Group (DFSG). SKIP-NMD (Skipping exon 53 of the dystrophin gene) Positive Data Announcement.

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