DGPOETRYDOTCOM.WORDPRESS.COM

futurepatientblog.com

Patients and Pastries Included: Why we need partnership in policy making | Future Patient – musings on patient-led healthcare

https://futurepatientblog.com/2015/07/31/patients-and-pastries-includedwhy-we-need-partnership-in-policy-making

Future Patient – musings on patient-led healthcare. About the Future Patient Blog. Patients and Pastries Included: Why we need partnership in policy making. July 31, 2015. It’s time for patients to be true partners in healthcare policy. Partly because I want pastries. But more seriously. My research on the benefits of patient and public involvement in service improvement (See ‘The Seven Benefits of Engagement’. Showed that it can:. Yield richer insights into problems. Offer a wider set of solutions.

futurepatientblog.com

Good Death, Bad Death: Notes for my mum and dad | Future Patient – musings on patient-led healthcare

https://futurepatientblog.com/2015/07/14/good-death-bad-death-notes-on-my-mum-and-dad

Future Patient – musings on patient-led healthcare. About the Future Patient Blog. Good Death, Bad Death: Notes for my mum and dad. July 14, 2015. Five years ago, dad came out of hospital to die. Suffering from cancer, he went to stay at a hospice. The carpets were plush, the fixtures clean and tasteful paintings hung on the wall. Real flowers. And, when we retired to the lounge (with small kitchenette for those ‘patients’ who were still able to microwave ready meals brought in by loved ones), there was ...

futurepatientblog.com

Just In Case: Patient-Led Solutions to the A&E problem | Future Patient – musings on patient-led healthcare

https://futurepatientblog.com/2015/01/07/just-in-case-patient-led-solutions-to-the-ae-problem

Future Patient – musings on patient-led healthcare. About the Future Patient Blog. Just In Case: Patient-Led Solutions to the A&E problem. January 7, 2015. Like many people who spout rhetoric about the NHS, I am guilty of indulging in the blame game. Some professionals and policy makers ‘blame’ patients for ‘inappropriate attendance’ at A&E and we have millions spent on campaigns to urge us to ‘choose wisely’ when thinking about heading that way (assuming that we do not make rational choices). I think it...

futurepatientblog.com

The Patient’s Dozen – What Matters to Patients and Carers | Future Patient – musings on patient-led healthcare

https://futurepatientblog.com/2015/05/14/the-patients-dozen-what-matters-to-patients-and-carers

Future Patient – musings on patient-led healthcare. About the Future Patient Blog. The Patient’s Dozen – What Matters to Patients and Carers. May 14, 2015. This is an article I wrote some time ago. I hope it will be useful to Patient Leaders and others seeking to influence change. It stems from being fed up of repeatedly being asked in tedious committees as a representative, ‘so, what do patients think? 8217; Well, this perhaps…. Ask any user of services what matters to them. The things that matter to pa...

futurepatientblog.com

Being Weird: The Plight of Patient Leaders | Future Patient – musings on patient-led healthcare

https://futurepatientblog.com/2015/07/04/being-weird-the-plight-of-patient-leaders

Future Patient – musings on patient-led healthcare. About the Future Patient Blog. Being Weird: The Plight of Patient Leaders. July 4, 2015. A few seasoned patient and public involvement practitioners were discussing the challenges to getting patients engaged in healthcare yet again. We all laughed knowingly. The implication was that few people truly wanted to do this sort of work. There was something odd about us round the table. Yes, we are. Experiences that only echo the marginalisation of our patient...

futurepatientblog.com

The Engagement Industry | Future Patient – musings on patient-led healthcare

https://futurepatientblog.com/2015/01/22/the-engagement-industry

Future Patient – musings on patient-led healthcare. About the Future Patient Blog. January 22, 2015. I wrote this piece a year ago, but thought it was worth fishing out again…. Involvement of ‘lay’ people in the NHS remains on the terms dictated by those within the system… Health related organisations have become compromised instruments of co-management of the NHS, accepting a place at the table in order to secure funding and recognition”. So said the late Bob Sang, a passionate citizen-advocate, in 2002.

futurepatientblog.com

Patient as Hero | Future Patient – musings on patient-led healthcare

https://futurepatientblog.com/2015/05/03/patient-as-hero

Future Patient – musings on patient-led healthcare. About the Future Patient Blog. May 3, 2015. Halfway through an inspirational talk at a conference, I began to feel uncomfortable. As the eloquent speaker told a gut wrenching story of injury, despair, recovery and nationally recognised achievement, I became guilty about my unease. People were in tears. Emotional tweets were retweeted and favourited. And I left, puzzled about my reaction. And then I got it. Mostly my tweets were ignored. But a few pe...

futurepatientblog.com

Integration: what a Patient Director could do to help | Future Patient – musings on patient-led healthcare

https://futurepatientblog.com/2015/06/24/integration-what-a-patient-director-could-do-to-help

Future Patient – musings on patient-led healthcare. About the Future Patient Blog. Integration: what a Patient Director could do to help. June 24, 2015. One of the possible boons of my new role of Patient Director at Sussex MSK Partnership (Central) is to bring together another meaning of the word integrate – the usually disparate streams of work going to enable patients to be more in control of their care. In that article, I described how patient experience teams report upwards through hierarchical laye...

futurepatientblog.com

Future Patient – musings on patient-led healthcare | Healthcare | Page 2

https://futurepatientblog.com/page/2

Future Patient – musings on patient-led healthcare. About the Future Patient Blog. Patients as Partners for Change. June 18, 2016. I have long argued for a different way to ‘involve’ patients in healthcare decision-making. I am fed up with the traditional approaches that buffer change patients as feedback fodder or slotted into institutionally narrowed ‘representative’ roles. I have written about this here. Now, if we really want solutions to our current healthcare challenges, we need to:. In its first y...

futurepatientblog.com

Uncategorized | Future Patient – musings on patient-led healthcare

https://futurepatientblog.com/category/uncategorized

Future Patient – musings on patient-led healthcare. About the Future Patient Blog. Let’s Talk About Power – Here Come The Patientistas. October 19, 2016. Let’s Talk About Power. Is the fact that we don’t know what to call ourselves patients, users, clients, etc or whether we are patient leaders, partners or advisers, etc symbolic of a deeper problem? Maybe it’s not just the name. Maybe we are too coy about talking about power. Wait to be ‘let in’? Then the NHS will continue to fail. But then again, t...