diamondblackfananemia.com
Diamond Blackfan Anemia: DBAFA comprehensive website dedicated to supporting Diamond Blackfan Anemia patients, families, and research.
http://www.diamondblackfananemia.com/
A comprehensive website dedicated to supporting Diamond Blackfan Anemia patients, families, and research.
http://www.diamondblackfananemia.com/
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Diamond Blackfan Anemia: DBAF | diamondblackfananemia.com Reviews
https://diamondblackfananemia.com
A comprehensive website dedicated to supporting Diamond Blackfan Anemia patients, families, and research.
thebhivefamilyblog.blogspot.com
The B Hive: 2012 Timeline
http://thebhivefamilyblog.blogspot.com/2013/04/2012-timeline.html
Welcome to our familys blog! Stay awhile. Love, Ben Betty Bailey and Becca. Monday, April 8, 2013. A little recap from 2012. I returned to work in January from maternity leave and got back into the swing of part-time work as an SLP. Ben took a new job at Medifast and continues to enjoy his job. Bailey took swim lessons to get ready for pool days and the beach. Bailey and I rode the lightrail and went to our first St. Patrick's Day parade downtown together. Becca went to her first HonFest! Ben decided aft...
thebhivefamilyblog.blogspot.com
The B Hive: June 2013
http://thebhivefamilyblog.blogspot.com/2013_06_01_archive.html
Welcome to our familys blog! Stay awhile. Love, Ben Betty Bailey and Becca. Saturday, June 29, 2013. Ok, so I hate cloudy days, rainy days, and being cooped up! BUT, I also love outings with my girls and teaching them to LOVE and SERVE others! Sooo, anyone have an extra umbrellas they can donate? I know we'll be having many more rainy days this summer. Saturday, June 29, 2013. Subscribe to: Posts (Atom). View my complete profile. Information, links, and causes near and dear to our hearts.
thebhivefamilyblog.blogspot.com
The B Hive: End of another football season...
http://thebhivefamilyblog.blogspot.com/2012/02/end-of-another-football-season.html
Welcome to our familys blog! Stay awhile. Love, Ben Betty Bailey and Becca. Thursday, February 2, 2012. End of another football season. Well, the Superbowl is this Sunday, and unfortunately I couldn't care less after the Ravens loss. Becca was so full of enthusiasm at the start of the game. And Bailey was not happy with the missed field-goal which ended the game. See you next year Ravens. Thursday, February 02, 2012. Subscribe to: Post Comments (Atom). View my complete profile. View my complete profile.
thebhivefamilyblog.blogspot.com
The B Hive: September 2012
http://thebhivefamilyblog.blogspot.com/2012_09_01_archive.html
Welcome to our familys blog! Stay awhile. Love, Ben Betty Bailey and Becca. Thursday, September 13, 2012. Well, it's been awhile hasn't it! I have no excuses except that summer flew by, we had lots of fun, and now fall is here! And I WILL get back to this blog again, but will have to figure out a way to avoid posting 20 posts at one time! Perhaps a top 10 of the year, haha! Thanks for your support and love! Bailey at Johns Hopkins after 4 blood transfusions, age 6 months,. Our “DBA Family” is...Dest=http...
thebhivefamilyblog.blogspot.com
The B Hive: Hello Spring
http://thebhivefamilyblog.blogspot.com/2013/04/hello-spring.html
Welcome to our familys blog! Stay awhile. Love, Ben Betty Bailey and Becca. Saturday, April 6, 2013. Well, it HAS been awhile, hasn't it.six months or so, and over a year if you don't count my frantic plea for votes back in September for the Chase giveaway. Hello long lost friends. I missed you so. Thanks to people like you who voted.thank you! We are so grateful. DBA Thank You. For now, I will close.trying to resist the urge to type a four page entry on life the past 6 months. I will save that f...AA Mi...
thebhivefamilyblog.blogspot.com
The B Hive: September 2011
http://thebhivefamilyblog.blogspot.com/2011_09_01_archive.html
Welcome to our familys blog! Stay awhile. Love, Ben Betty Bailey and Becca. Tuesday, September 13, 2011. Dropped Bailey off this morning for her first day of preschool! An object in motion (that would be Bailey) stays in motion. Last week, we had Back to School Night and then Visit the Classroom Day! Bailey headed right in there and checked things out! The play kitchen and hats were a hit! Tuesday, September 13, 2011. 6 weeks to go. Feeling good, feeling big! Tuesday, September 13, 2011. Vaughn came alon...
thebhivefamilyblog.blogspot.com
The B Hive: June 2011
http://thebhivefamilyblog.blogspot.com/2011_06_01_archive.html
Welcome to our familys blog! Stay awhile. Love, Ben Betty Bailey and Becca. Tuesday, June 7, 2011. Hope's Heroes 5K 2011. Tuesday, June 07, 2011. I gave it a shot.but not my finest baking moment! From Rachel Ray's magazine.Rustic Triberry Pie.overbaked, not enough crust. Very sweet though! The goal looked something like this:. Http:/ www.rachaelraymag.com/recipes/rachael-ray-magazine-recipe-search/dessert-recipes/rustic-tri-berry-pie. Tuesday, June 07, 2011. The newest baby to be in the bunch. Diamond Bl...
thebhivefamilyblog.blogspot.com
The B Hive: August 2011
http://thebhivefamilyblog.blogspot.com/2011_08_01_archive.html
Welcome to our familys blog! Stay awhile. Love, Ben Betty Bailey and Becca. Tuesday, August 16, 2011. Bowling with the girls. Headed to the bowling alley for some free bowling for the girls. In case you didn't know.kids can bowl for free all summer at AMF Bowling Alleys. The Frey girls joined us and gave it a go. The bowling alley ran out of duckpins, so our little girls got to use the big tenpin balls! Bowling is hard work.time for a snack. Our attempt at a group shot with three little ladies. Earlier t...
thebhivefamilyblog.blogspot.com
The B Hive: November 2011
http://thebhivefamilyblog.blogspot.com/2011_11_01_archive.html
Welcome to our familys blog! Stay awhile. Love, Ben Betty Bailey and Becca. Saturday, November 26, 2011. 6 lbs 4.8 oz, 20 inches long. Saturday, November 26, 2011. Last time as a family of three. One of our favorite places to go as a family is Loch Raven Resevoir, so a few days before my due date, we headed over there to take a few pictures while still a family of 3. Saturday, November 26, 2011. Daddy-daughter time on the farm. Saturday, November 26, 2011. Cheerleaders Bailey and Cadynce. Hematology-She ...
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Living with Diamond Blackfan Anemia
Living with Diamond Blackfan Anemia. I'm Pam and was diagnosed with DBA when I was 6 months old. This is just to document for myself and for those interested my experiences, questions and personal issues related with having this rare anemia. Friday, August 01, 2008. Time for my once a year update. I was posting to another blog and realized that I hadn´t updated here in a year. Sadly not much has changed. I´ll try and post more.promise! Tuesday, August 07, 2007. Again with the every six months posting!
diamondblackfan.org.uk | DBA UK Website
The Diamond Blackfan Anaemia Charity. Diamond Blackfan Anaemia (DBA) is a rare bone marrow failure disorder, usually diagnosed before 12 months of age. DBA patients fail to produce red blood cells properly and may need treatment ranging from monthly blood transfusions to regular steroid treatment, and in some cases bone marrow transplant. At DBA UK we aim to deliver. Support, research and hope. DBA UK Adult Patient Meeting October 2014! DBA UK Family Weekend May 2015! DBA UK has joined The Giving Machine!
Diamond Blackfan Anemia: DBAF
daniella maria arturi foundation
DBA ICC Medical Meeting. DMAF and Research News. DBA National Resource Centers. Managing Your DBA Care Notebook. Diamond Blackfan Anemia Registry. City, State, Zip. Your Custom Text Here. DBA ICC Medical Meeting. DMAF and Research News. DBA National Resource Centers. Managing Your DBA Care Notebook. Diamond Blackfan Anemia Registry. The Daniella Maria Arturi Foundation. Dr Jeffrey Lipton Honored at National Cancer Center’s 60th Anniversary Gala and Nobility in Science Award Presentation. Exciting DBA Fin...
Gruppo di Sostegno DBA Italia ONLUS – Rari ma non soli
Il Gruppo di Sostegno. Che cosa è la DBA. Servizi per i Pazienti. UNO PER TUTTI,. Con il 5 x 1000. Sostenere la ricerca è semplice. E non ti costa nulla. Qualsiasi vetta è raggiungibile. Se continui la tua scalata. Rari, ma non soli. Il Gruppo di Sostegno DBA Italia ONLUS. Nasce per raggiungere tutte le persone in Italia affette dall' Anemia di Diamond-Blackfan. Per portare avanti la ricerca, per offrire un supporto, per condividere esperienze. Perché certe sfide è meglio affrontarle insieme. I cookie ci...
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