An account of my thoughts and feelings about having a genetic disease. Von Hippel Lindau disease, VHL. Not necessarily factual but real all the same.
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Diary of a Genetic Defect, VHL, Von Hippel Lindau | diaryofageneticdefect.blogspot.com Reviews
https://diaryofageneticdefect.blogspot.com
An account of my thoughts and feelings about having a genetic disease. Von Hippel Lindau disease, VHL. Not necessarily factual but real all the same.
diaryofageneticdefect.blogspot.com
Diary of a Genetic Defect, VHL, Von Hippel Lindau: The end of the world
http://diaryofageneticdefect.blogspot.com/2016/11/the-end-of-world.html
Wednesday, November 09, 2016. The end of the world. Today Trump got in, it's frightening. So much of what is what I hold dear. In danger. Posted by diary of a genetic defect. Subscribe to: Post Comments (Atom). Diary of a Genetic Defect, VHL, Von Hippel Lindau. An account of my thoughts and feelings about having a genetic disease. Von Hippel Lindau disease, VHL. Not necessarily factual but real all the same. What is your link to VHL? Followers of Diary of a Genetic Defect. Pride in my latest list.
Diary of a Genetic Defect, VHL, Von Hippel Lindau: Angry with me...
http://diaryofageneticdefect.blogspot.com/2016/10/angry-with-me.html
Thursday, October 27, 2016. It isn't easy to explain the importance of the anniversary of surgery, but in simple way it is like any anniversary, birth, death all. It reminds you that time passes, that you've overcome something to be where you are, that the next year might be better. Anniversaries give you time to reflect. I'm a bit depressed at the moment, I'm finding it hard to get out of my own head. That seems to be exacerbated by what I went through this time last year. The contrast is extraordinary.
Diary of a Genetic Defect, VHL, Von Hippel Lindau: Easier to be terminal
http://diaryofageneticdefect.blogspot.com/2016/12/easier-to-be-terminal.html
Saturday, December 24, 2016. Easier to be terminal. As I sit listening to the songs of Christmas. Eve I find myself envious of those who know their fate. I have forever sat on the cusp of death and life. An uncomfortable place to spend your days. But sit here I do. I'm loved. I rejoice in that. I'm admired, I'm proud of that. I'm independent, I rely on that. I'm so close to an end. I assume that. Posted by diary of a genetic defect. Subscribe to: Post Comments (Atom). What is your link to VHL?
Diary of a Genetic Defect, VHL, Von Hippel Lindau: Christmas
http://diaryofageneticdefect.blogspot.com/2016/12/christmas.html
Friday, December 23, 2016. I was so very happy. Memories of kicking the bunkbed above, playing and smiling, singing and celebrating. Occasions like Christmas were all about anticipation and joy. The routine of it all was so much of joy. Wanting something for so long and then getting it (or the closest version my parents could afford). The tradition of stocking, church, sherry, gifts, food, playing, gifts and TV. Always that order, always great. I don't have that any more. What is your link to VHL?
Diary of a Genetic Defect, VHL, Von Hippel Lindau: A pretend friend
http://diaryofageneticdefect.blogspot.com/2016/12/a-pretend-friend.html
Wednesday, December 21, 2016. Recently I've been having a hard time at work. I've had to adjust my trust radar a few times. I trust easily and 'over share' and that often means people think they know me very well. In turn they tell me things, I know a lot about people very quickly. I'm thinking of all of this because there has been a new face at work, she posed as a friend but I get the feeling it was far from real. She used me. I trusted, but now I am dumped. I'm a mess inside. Work used to be my es...
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Genetic Testing Discussion | VT bizz
https://bnels11.wordpress.com/2007/03/24/genetic-testing-discussion
Just another WordPress.com weblog. Laquo; Week of March 22. Week of March 29. In the second part of class we had a broad discussion of the ethics of genetic testing. We also examined the scenarios holistically. Here are a couple of points I wanted to speak about…. 2 How far is too far? What is an acceptable human? Does “genetic defect” mean “waste of life”? I’m out of thoughts now. feel free to reply. This entry was posted on March 24, 2007 at 7:35 pm and is filed under Discussion. From your own site.
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Pinups, geeky things, crafty and arty things, baking and making, watching and partaking, often vintage in style but always curious at heart. A brief blurb or ‘about’ …. Contact me …. Fabulous photo of the day! July 8, 2011. Images above from latest VOH photoshoot:. Hairdresser: http:/ www.thevanitybox.co.uk/. Http:/ www.tonyrusecki.co.uk. I know when I pop on one her dresses all the bits that should be emphasised are most definitely so! She started the business herself and when I came to find her she was...
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Diary of a Genetic Defect, VHL, Von Hippel Lindau
Sunday, January 08, 2017. I saw an old friend this weekend. We hardly ever e each other, barely contact one another but we slipped into the chat. The comfort of someone who knows you so well, for do long. She's never judged me, well not openly and she could see. I think she could, that maybe, maybe I'm just not quite coping. The not loving my job was the clincher, I suspect followed by the eyes prickling with tears at times. I cope, but am I always coping? Posted by diary of a genetic defect. Most of all...
diaryofagenteelrogue.blogspot.com
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