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CFS Central: HAVE YOU NO SENSE OF DECENCY?
http://www.cfscentral.com/2011/05/next-manhattan-project.html
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. Wednesday, May 11, 2011. HAVE YOU NO SENSE OF DECENCY? Here is my testimony at the Chronic Fatigue Syndrome Advisory Committee meeting on Wednesday at Health and Human Services in Washington, D.C. Below the written testimony is the video clip. My name is Mindy Kitei. I’m a science reporter who’s covered ME/CFS for twenty years. Last June, I began my blog, CFS Central, in honor of my friend Nancy Kaiser. Even when the CDC conducted its XMRV study, it stu...
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CFS Central: July 2014
http://www.cfscentral.com/2014_07_01_archive.html
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. Monday, July 7, 2014. Is CDC Out to Bury PEM? CDC's head of CFS research Dr. Beth Unger said at last month's Chronic Fatigue Syndrome Advisory Committee meeting. That she couldn't figure out how to measure post-exertional malaise (PEM)- the hallmark of ME- and thus believes problems would ensue if PEM is a mandatory symptom. Studies with patients on the antiviral Valcyte to determine if their exercise tolerance improved on the antiviral. Of measuring PE...
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CFS Central: January 2014
http://www.cfscentral.com/2014_01_01_archive.html
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. Tuesday, January 28, 2014. Below is my testimony from yesterday's conference at the Institute of Medicine. To watch it, click here. My name is Mindy Kitei, and I’m a journalist. I’ve been reporting on myalgic encephalomyelitis for more than twenty years and started my blog, CFS Central, in honor of my friend Nancy Kaiser, who died of the disease in 2008. Tell that to Nancy Kaiser, who experienced multiple seizures a day. Patients believe that the IOM co...
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CFS Central: December 2012
http://www.cfscentral.com/2012_12_01_archive.html
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. Wednesday, December 26, 2012. For me, the most appalling thing about the FDA Ampligen committee meeting wasn't Ampligen's nonapproval. It was a very sick ME patient leaning on a cane who showed me the prescription a sadistic, condescending neurologist had given her —. After admonishing her for using a cane. Gazing at the script for several seconds, I first felt confusion and then the patient's humiliation. The prescription read:. Links to this post.
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CFS Central: July 2013
http://www.cfscentral.com/2013_07_01_archive.html
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. Sunday, July 7, 2013. Interview with Ryan Prior. Of The Blue Ribbon. Journalist Ryan Prior and filmmaker Nicole Castillo didn’t have an aha moment that prompted them to make the documentary, The Blue Ribbon. Their interest, which marinated over a period of months, began when Prior, who’s had ME since October 2006, wrote his first piece on the subject for the USA Today. College story generates 30 Facebook likes; this one got 500. Even though he’s l...
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CFS Central: October 2012
http://www.cfscentral.com/2012_10_01_archive.html
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. Saturday, October 27, 2012. Despite Its Inaccuracies, CDC Won't Remove It. Last spring, members of the Chronic Fatigue Syndrome Advisory Committee (CFSAC) ruled that they wanted the CDC Toolkit. At the CFSAC meeting this month, head of CFS research Dr. Beth Unger was asked by CFSAC member Steven Krafchick if the Toolkit was going to be taken down. And Dr. Unger replied, “No.”. Who at CDC is responsible for making the decision to keep the Toolkit? Subscr...
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CFS Central: February 2015
http://www.cfscentral.com/2015_02_01_archive.html
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. Tuesday, February 10, 2015. IOM Report: Remarkably Positive for ME patients. Is in, and it’s remarkably positive for ME patients. The IOM committee has proposed a new name for ME: Systemic Exertion Intolerance Disease or SEID. OK, it’s a mouthful, and how do you pronounce the acronym? It’s possible that disbelievers will morph the name into:. At sufferers had nothing really wrong with them, except perhaps indolence. At least one of the two following man...
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CFS Central: June 2013
http://www.cfscentral.com/2013_06_01_archive.html
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. Thursday, June 6, 2013. Ampligen Up for Approval-. Hemispherx's stock price, which had plummeted from $1.10 to 18 cents a share following FDA's refusal to approve the drug for ME at the close of 2012, recently has been edging up, hitting a high of 29 cents today. Thursday, June 06, 2013. Links to this post. Subscribe to: Posts (Atom). Search only CFS Central. View my complete profile. Tip jar: Your donations enable in-depth CFS reporting to continue.
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CFS Central: November 2014
http://www.cfscentral.com/2014_11_01_archive.html
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. Monday, November 17, 2014. Is a terrific new documentary about the health dangers of vaccines, prescription drugs and genetically modified foods. The film is hosted by outspoken Evanston, Illinois, physician Toni Bark. Who’s treated in her own medical practice children who’ve been injured by vaccines. Some. ME patients have had their own disease brought on by vaccination, particularly hepatitis B. And since CDC essentially works for pharma, and physicia...
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CFS Central: January 2013
http://www.cfscentral.com/2013_01_01_archive.html
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. Thursday, January 10, 2013. A mad-as-hell Sid Wolfe of the watchdog group Public Citizen sued FDA about the agency's refusal to ban the highest dose of the Pfizer Alzheimer's drug Aricept- and lost. Studies don't show increased efficacy of the 23-milligram pill compared with the lower doses of 5 and 10 milligrams. However, the higher dose does show increased toxicity, including, Wolfe said, increased mortality. Following that logic, FDA, Ampligen's side...
