divingintothewaves.blogspot.com
Diving Into the WavesLife with three small boys, one of whom has Prader-Willi Syndrome. As long as we keep diving into the waves, we will stay afloat.
http://divingintothewaves.blogspot.com/
Life with three small boys, one of whom has Prader-Willi Syndrome. As long as we keep diving into the waves, we will stay afloat.
http://divingintothewaves.blogspot.com/
TODAY'S RATING
>1,000,000
Date Range
HIGHEST TRAFFIC ON
Saturday
LOAD TIME
0.6 seconds
PAGES IN
THIS WEBSITE
15
SSL
EXTERNAL LINKS
287
SITE IP
172.217.6.65
LOAD TIME
0.593 sec
SCORE
6.2
Diving Into the Waves | divingintothewaves.blogspot.com Reviews
https://divingintothewaves.blogspot.com
Life with three small boys, one of whom has Prader-Willi Syndrome. As long as we keep diving into the waves, we will stay afloat.
divingintothewaves.blogspot.com
Diving Into the Waves: Press
http://divingintothewaves.blogspot.com/p/press.html
PWS Resources and Treatments. SpecialMoms - January 2013. Your Health Journal - November 2012. Http:/ www.lensaunders.com/wp/? Http:/ www.hisspecialkids.info/2012/09/the-holy-spirit-family-jesus-calms-storm.html. Thinkinclusive.us - July 2012. Http:/ www.thinkinclusive.us/the-pursuit-of-inclusion-blazing-our-own-path/. Parenting Special Needs Magazine. Subscribe to: Posts (Atom). Me, in a nutshell. View my complete profile. Seek and ye shall find. Fave blogs and sites. Enjoying the Small Things.
Diving Into the Waves: About Us
http://divingintothewaves.blogspot.com/p/about-us.html
PWS Resources and Treatments. At 3 weeks old, Dean was diagnosed with a rare genetic disorder called Prader-Willi syndrome (PWS). This is a life-threatening condition for which there is currently no cure and affects approximately 1 in 15,000. Please visit the site of the Foundation for Prader-Willi Research. For more information and to donate towards finding a cure for our loved ones! Subscribe to: Posts (Atom). Me, in a nutshell. View my complete profile. Seek and ye shall find. Fave blogs and sites.
Diving Into the Waves: We're Back! A Review of Leg 1 of the Trip...
http://divingintothewaves.blogspot.com/2013/07/were-back-review-of-leg-1-of-trip.html
PWS Resources and Treatments. Saturday, July 6, 2013. A Review of Leg 1 of the Trip. I know, many of you didn't know we were away. I figured that even without having my address on here, it's kind of weird to say, "Hey, we're going away for 8 days, so our house is free game! So now you know we're back. :). We had a wonderful, surprisingly *actually relaxing* vacation, starting here in Richmond, VA, and making stops in Pawley's Island, SC; Gainesville, FL; Orlando, FL; Savannah, GA; and back to Richmond!
Diving Into the Waves: Guest promo - the roo pouch
http://divingintothewaves.blogspot.com/2013/09/guest-promo-roo-pouch.html
PWS Resources and Treatments. Monday, September 16, 2013. Guest promo - the roo pouch. I love supporting fellow PWS families and so wanted to. Pass along this opportunity to support Rebecca and her. My name is Rebecca - Mamma to Joey Paul (2 1/2),. And Emil Franklin (6 months). My son Joey has PWS. Last. To Indiana because my PhD. After working at the University of Delaware for. Decided to capitalize on this new adventure and stay home. With my boys. For the last two years I have enjoyed exploring. Sorry...
Diving Into the Waves: PWS Resources and Treatments
http://divingintothewaves.blogspot.com/p/pws-resources-and-treatments.html
PWS Resources and Treatments. PWS Resources and Treatments. There is no cure for PWS (yet! Tev-Tropin (growth hormone) - 0.8 mg/day. Carnitor (Levocarnitine) - 700 mg/day. Nasonex - 1 spray per nostril/day. Pulmicort - 1x/day (2-3x/day during respiratory illness). Levothyroxine - 12.5 mcg/day. Modafinil - 50 mg/day. Montelukast (Singulair) - 1 tablet/day. PharmaNAC - 450 mg (1/2 tablet)/day. Vitamin B12 (cyanocobalamin form) injections - 1,000 mcg/2 weeks. Fish oil - 1 Coromega packet/day. Me and my house.
TOTAL PAGES IN THIS WEBSITE
15
Amazing Adventures of Ayden Jane: September 2014
http://pwsgulley.blogspot.com/2014_09_01_archive.html
Amazing Adventures of Ayden Jane. LIFE'S NOT ABOUT WAITING FOR THE STORM TO PASS, IT'S ABOUT LEARNING TO DANCE IN THE RAIN. Tuesday, September 30, 2014. Fine Motor and Written Expression. It has been fascinating to watch Ayden Jane work on learning to express her thoughts on paper. I was amazed both by how hard this process is for her and her perseverance to stick with it until the very end. Monday, September 22, 2014. Ayden Jane loved it! I just love that Mrs. C has Ayden Jane do the written work li...
Amazing Adventures of Ayden Jane: May 2015
http://pwsgulley.blogspot.com/2015_05_01_archive.html
Amazing Adventures of Ayden Jane. LIFE'S NOT ABOUT WAITING FOR THE STORM TO PASS, IT'S ABOUT LEARNING TO DANCE IN THE RAIN. Sunday, May 31, 2015. PWS Awareness month - wrap up. As this years edition of PWS posts come to a close, what is most on my mind is how much less I have to say about PWS at this point. Wait. Maybe it's not less as I have tons of information packed in this head of mine that has been acquired over the past 7 years. Maybe it's just different? The waiting to see which of the long list o...
Amazing Adventures of Ayden Jane: February 2015
http://pwsgulley.blogspot.com/2015_02_01_archive.html
Amazing Adventures of Ayden Jane. LIFE'S NOT ABOUT WAITING FOR THE STORM TO PASS, IT'S ABOUT LEARNING TO DANCE IN THE RAIN. Saturday, February 28, 2015. Today was Saturday. It was a wonderful Saturday. It started like any other Saturday with Ayden Jane waking me up to ask if I could turn on cartoons for her to watch so she could cuddle up in bed for a bit before breakfast. (she still gets up early.) By 7:30 or 8 we were headed out to the kitchen and had a nice breakfast. While on the sideline I was talki...
Amazing Adventures of Ayden Jane: October 2014
http://pwsgulley.blogspot.com/2014_10_01_archive.html
Amazing Adventures of Ayden Jane. LIFE'S NOT ABOUT WAITING FOR THE STORM TO PASS, IT'S ABOUT LEARNING TO DANCE IN THE RAIN. Tuesday, October 21, 2014. Busy - Life's Theme. This fall is racing by. Ayden Jane is doing great in school and she is participating in several after school activities. She is one happy, busy little first grader. Thursday she has her other day of swim team. Instilling the idea of daily exercise has been a great benefit to Ayden Jane. Since she is a routine kid she does not feel ...
Amazing Adventures of Ayden Jane: July 2015
http://pwsgulley.blogspot.com/2015_07_01_archive.html
Amazing Adventures of Ayden Jane. LIFE'S NOT ABOUT WAITING FOR THE STORM TO PASS, IT'S ABOUT LEARNING TO DANCE IN THE RAIN. Thursday, July 30, 2015. Cranking up the Carnitine. So as usual, I was not satisfied with things going well. I needed to know if they could be even better! I did the math and decided I was going to go for a third dose of carnitine. It will put Ayden Jane at a total of about 46 mg/kg. Sunday, July 26, 2015. The added carntine has been just the ticket for Ayden Jane. Her energy le...
bringingupbagleys.blogspot.com
Bringing UP Bagleys: March 2012
http://bringingupbagleys.blogspot.com/2012_03_01_archive.html
I hate to brag but,. no I don't! Although my life has been very hectic and overwhelming these days there is one thing I can always count on, the unconditional love and support of my husband. I am so in love with you Mitchell, more than ever before. Thank you for all that you are and all that you do for me and our family. You are my PERFECT match! A Mom Needing to Vent. It has been way to long since I have released these thoughts going through my head. I want so badly to be the mom my kids look at and say...
bringingupbagleys.blogspot.com
Bringing UP Bagleys: February 2011
http://bringingupbagleys.blogspot.com/2011_02_01_archive.html
I am so proud to be her mom, though I feel incapable most days. One Week and Counting. Ann Margret has been on Growth Hormone for one week. Surprisingly the shots are getting easier even at this point and she doesn't seem to be bothered much by them. We have seen some improvement in movement though minimal, its improvement. Subscribe to: Posts (Atom). View my complete profile. Mitchell (My Main Squeeze! Miles (My First Born! Ann Margret (Our Precious Gift! Amazing Adventures of Ayden Jane. A Leap Of Faith.
bringingupbagleys.blogspot.com
Bringing UP Bagleys: August 2011
http://bringingupbagleys.blogspot.com/2011_08_01_archive.html
Long Time No Post! It has been too long. A lot has been going on which explains my absence. I hope to update on everything that has been happening within the next few days (with pictures). Subscribe to: Posts (Atom). I am a wife, mom, nurse and most importantly a child of Jesus. I have a wonderful husband who puts up with more that he should and three amazing kids, which i am doing my best to "bring up.". View my complete profile. Mitchell (My Main Squeeze! Miles (My First Born! Diving Into the Waves.
bringingupbagleys.blogspot.com
Bringing UP Bagleys: January 2012
http://bringingupbagleys.blogspot.com/2012_01_01_archive.html
I am so glad God chose us to be his parents and am excited to see what this year holds. I hope its less whining and more cleaning. hey, I can hope, right? Subscribe to: Posts (Atom). I am a wife, mom, nurse and most importantly a child of Jesus. I have a wonderful husband who puts up with more that he should and three amazing kids, which i am doing my best to "bring up.". View my complete profile. Mitchell (My Main Squeeze! Miles (My First Born! Ann Margret (Our Precious Gift! Diving Into the Waves.
bringingupbagleys.blogspot.com
Bringing UP Bagleys: November 2013
http://bringingupbagleys.blogspot.com/2013_11_01_archive.html
There must be a spiritual emphasis here. There is, upon pointing out this thought to my husband, God reveals this: when your eyes are focused away from the Son (light), evil (darkness) doesn't seem so evil (dark). Likewise, when we are focused on the Son (light) the dark is DARK. AND SCARY. While I'm glad that the light being covered on the beach revealed that it was safe to keep my spot by the ocean, I'm afraid at what dark paths I might be taking in life because my eyes aren't on Jesus. This is the man...
TOTAL LINKS TO THIS WEBSITE
287
Diving Into The Gene Pool
Diving Into The Gene Pool. August 11, 2015. 1 Comment on Random summer happenings. I keep drafting blog posts and i’m not able to finish them up, call it the longest string of writers block ever. So instead, i’m just going to throw out some life updates and pics and call it a day. I have all sorts of fun weekend getaways planned for the later part of the summer and i’m super excited since my work weeks are pretty low key and boring. Myrtle Beach with the in-laws. Family wedding in Columbus, OH. Well, tha...
divingintothegenepool.tumblr.com
Diving into the Gene Pool
Diving into the Gene Pool. Just a science nerd with a passion for diving and fitness. May 21, 2015. I’m self hosted! I have decided to move my little piece of internet over to it’s very own domain and become self hosted with the help of Word Press, Blue Host, Courtney and a bottle of sparkling rosé. So….it is still a work in progress but you can now find me and all my happenings over at:. May 21, 2015. Not So Normal 10K. Caitlin and I sprinted the final stretch and finished in 1:01:56, a bit slower than ...
divingintothepool.blogspot.com
Diving Into The Pool
Diving Into The Pool. Sunday, January 31, 2010. Discography BVHaast on CD. Similar to the list of BVHaast LP's, I made a list of the CD's as well (some of them were issued on BVHaast vinyl years before), which were issued between 1988 and 2009. Information was collected by using several (mainly online) sources. 8801 WBK / Bob’s Gallery. 01 Serenade for a wealthy Widow (R. Foresythe). 02 Bob’s Gallery (W. Breuker). 03 Morribreuk (W. Breuker). 04 Jazz II (W. Breuker). 06 Minimal (W. Breuker). 08 Living Apa...
domain for sale at bid.ms
divingintothewaves.blogspot.com
Diving Into the Waves
PWS Resources and Treatments. Friday, June 3, 2016. One of my new ventures is an acoustic duo my friend Jim Wright and I have formed called wkndr (add some "e"s and you'll get the pronunciation :) . If you're in the Richmond, VA, area, we'd love to have you come hear us play and book us at your event! Check out our new-ish FB page: www.facebook.com/wkndrrcks. Monday, April 18, 2016. Sunday, August 2, 2015. Yes, I Pushed my Kid Down the Water Slide. 8221; and flipped onto his belly while he white-knuckled...
THE DIVING UNIVERSE | An exploration of Kristine Kathryn Rusch's "Diving" series
An exploration of Kristine Kathryn Rusch's Diving series. Books & Series Order. Searching for the Fleet Pre-order! Searching for the Fleet. Publishing September 18, 2018. Pre-order the ebook today! Leaving Boss behind to continue diving the Boneyard,. Engineer Yash Zarlengo returns to the Lost Souls Corporation’s headquarters to analyze the data from the runabout they discovered there. Captain Jonathan Coop Cooper notices Yash’s growing obsession with finding the Fleet and joins her in her search. Boss a...
Nursing Home Abuse: Signs and How to Report
A Brief Guide to Nursing Home Abuse. Nursing Home Abuse Is Not Always Easy to Detect. Family Members Need to Be the Advocate of the Elderly to Thwart Unscrupulous Employees of the Nursing Facility. The Reason Behind Nursing Home Abuse. The question that immediately comes to mind is if there is a particular reason for all of this brutality? Well, not actually. There are many reasons for nursing home neglect. Research suggests that the major reasons are as follows:. Where to Report Nursing Home Abuse?
Diving Into TK - Home
Learning is Our Thing. Welcome to St. Gregory the Great. Teacher- Mrs. Romero. Instructional Aide- Mrs. Macias. Welcome to St. Gregory the Great School and to the wonderful world of Transitional Kindergarten! I feel truly blessed to be a part of such warm and loving parish school community. I hope you experience the same! I look forward to serve and support our partnership in your child’s education. May God bless you and have an awesome school year! A St Gregory the Great School Student is:.
divingintovinoagain | Good Food + Great Wine + Exceptional Friends= DIVA DINNERS! Diving Into Vino Again!
Good Food Great Wine Exceptional Friends= DIVA DINNERS! Diving Into Vino Again! It’s Happy Hour. Wines to Serve Tonight! Advantages of a DIVA Man. The Art of Carrying Out. Sabering a Champagne Bottle. Good Food Great Wine Exceptional Friends= DIVA DINNERS! Diving Into Vino Again! Lemon Asparagus Herbed Quinoa. Watermelon Basil Vodka Slushies. Gingered “Sushi” Salad. Garden Green Guac Bagel. Smoked Salmon Pesto Bite. Curried Ginger and Lime Mahi Mahi. Smoked Salmon Arugula Salad. Join 58 other followers.
divingintowatercolor.blogspot.com
Diving Into Watercolor
One of the things that Marc Taro Holmes. Suggested in the book The Urban Sketcher. Is to first try urban sketching somewhere comfortable and indoors, just like a cafe or a restaurant. Well, I really took his suggestion to heart. Below are my cafe sketches so far:. Rustic Mornings by Isabelo. First attempt at on-location cafe sketching. Wasn't able to include a sketch of my food because it already took me a long time to finish this one. Haha. A paint date with Jade of A Day to Dream. Links to this post.
SOCIAL ENGAGEMENT