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DM patient registry for Germany and Switzerland. Myotonic Dystrophy Patient Registry for Germany and Switzerland. This registry is aimed at all patients in Germany and Switzerland with a diagnosis of Myotonic Dystrophy type 1 or type 2/PROMM. About the patient registry, the advantages of registering for you as a patient and the registration process. Process and enter your details. If you have already registered, login. To view your details and to update them as necessary.

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Home - DM patient registry for Germany and Switzerland | dm-registry.org Reviews

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DM patient registry for Germany and Switzerland. Myotonic Dystrophy Patient Registry for Germany and Switzerland. This registry is aimed at all patients in Germany and Switzerland with a diagnosis of Myotonic Dystrophy type 1 or type 2/PROMM. About the patient registry, the advantages of registering for you as a patient and the registration process. Process and enter your details. If you have already registered, login. To view your details and to update them as necessary.

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10 information for patients

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Home - DM patient registry for Germany and Switzerland | dm-registry.org Reviews

https://dm-registry.org

DM patient registry for Germany and Switzerland. Myotonic Dystrophy Patient Registry for Germany and Switzerland. This registry is aimed at all patients in Germany and Switzerland with a diagnosis of Myotonic Dystrophy type 1 or type 2/PROMM. About the patient registry, the advantages of registering for you as a patient and the registration process. Process and enter your details. If you have already registered, login. To view your details and to update them as necessary.

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dm-registry.org

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News - DM patient registry for Germany and Switzerland

https://www.dm-registry.org/de/news/index.en.html

DM patient registry for Germany and Switzerland.

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Information for doctors - DM patient registry for Germany and Switzerland

https://www.dm-registry.org/de/doctors_information/index.en.html

DM patient registry for Germany and Switzerland. In the DM patient registry this information is both provided by the patient and professionals involved in the patient’s care after full consent obtained by the patient.

3

Information for patients - DM patient registry for Germany and Switzerland

https://www.dm-registry.org/de/general_information/index.en.html

DM patient registry for Germany and Switzerland. If you are a patient affected by DM1 or DM2 and register here, we can direct you to clinical trials and research results (such as new treatments) that might be of specific interest to you. In addition, by registering you are helping researchers obtain precise data about the prevalence of Myotonic Dystrophies (DM1 and DM2), which could be of benefit to all affected patients. . More information. The required data will be asked for in a two-part questionnaire.

4

Data protection - DM patient registry for Germany and Switzerland

https://www.dm-registry.org/de/general_information/data_protection/index.en.html

DM patient registry for Germany and Switzerland. Where will my data be stored? Who will have access to my medical records? Staff in charge of the registry might need to gain access to your medical records to obtain information necessary to the project (for example we will need to ask your geneticist/physician for a copy of your genetic report and also information on your respiratory and cardiac function). How will I be identified in the registry? Will my data be kept confidential? Third parties wishing t...

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Startseite - DM-Patientenregister für Deutschland und die Schweiz

https://www.dm-registry.org/de/index.de.html

DM-Patientenregister für Deutschland und die Schweiz. Patientenregister für Myotone Dystrophie. Dieses Register richtet sich an alle Patienten in Deutschland und der Schweiz mit einer Myotonen Dystrophie Typ 1 oder Typ 2/PROMM. Über das Patientenregister, die Vorteile für Sie und den Ablauf der Registrierung. Starten Sie die Registrierung. Und tragen Sie Ihre Daten ein. Wenn Sie bereits registriert sind, melden Sie sich an. Um Ihre Daten einzusehen und bei Bedarf zu aktualisieren.

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dm-registry.org

Home - DM patient registry for Germany and Switzerland

DM patient registry for Germany and Switzerland. Myotonic Dystrophy Patient Registry for Germany and Switzerland. This registry is aimed at all patients in Germany and Switzerland with a diagnosis of Myotonic Dystrophy type 1 or type 2/PROMM. About the patient registry, the advantages of registering for you as a patient and the registration process. Process and enter your details. If you have already registered, login. To view your details and to update them as necessary.

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