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DMD Pathfinders | Promoting choice, control and quality of life for teenagers and adults with Duchenne Muscular Dystrophy in the UK

Promoting choice, control and quality of life for teenagers and adults with Duchenne Muscular Dystrophy in the UK

http://dmdpathfinders.org.uk/

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DMD Pathfinders | Promoting choice, control and quality of life for teenagers and adults with Duchenne Muscular Dystrophy in the UK | dmdpathfinders.org.uk Reviews
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DMD Pathfinders | Promoting choice, control and quality of life for teenagers and adults with Duchenne Muscular Dystrophy in the UK | dmdpathfinders.org.uk Reviews

https://dmdpathfinders.org.uk

Promoting choice, control and quality of life for teenagers and adults with Duchenne Muscular Dystrophy in the UK

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dmdpathfinders.org.uk dmdpathfinders.org.uk
1

markichapman – DMD Pathfinders

http://dmdpathfinders.org.uk/author/markichapman

Living longer, healthier fulfilling lives. Takin’ Charge nominated for Big Lottery Awards 2016. Sam Waddington blog on Takin’ Charge nomination for the National Lottery Awards – Please Vote. Nobody does it better! Into the Future…. BBC Radio 4 Interview – The Listening Project. On the 20th April, Mark Chapman, Chair of DMD Pathfinders recorded a conversation for the Radio 4 Listening Project with Jack Ebanks ‘from the Takin Charge’ project. The ‘Listening Project’ is a collabo...If you’re an adult ...

2

July 2015 – DMD Pathfinders

http://dmdpathfinders.org.uk/2015/07

Living longer, healthier fulfilling lives. Ben James blogs his thoughts about living with Duchenne and how it relates to the world around us whilst on his travels to Australia. DMD Pathfinders Mentor younger people with DMD.

3

DMD Pathfinders Mentor younger people with DMD – DMD Pathfinders

http://dmdpathfinders.org.uk/2015/07/16/dmd-pathfinders-mentor-younger-people-with-dmd

Living longer, healthier fulfilling lives. DMD Pathfinders Mentor younger people with DMD. On Saturday DMD Pathfinders Mithun Soul and Farhan Mian joined with families and young people on the Takin’ Charge Keech preparing for adulthood programme. Mithun and Farhan spoke about their different experiences of living as independent adults. 8216;University Challenge’ – Week 4. Leave a Reply Cancel reply. Your email address will not be published. Required fields are marked *.

4

DMD Pathfinders – Page 2 – Living longer, healthier fulfilling lives

http://dmdpathfinders.org.uk/page/2

Living longer, healthier fulfilling lives. Living longer, healthier fulfilling lives. It is possible to achieve remarkable things with Duchenne Muscular Dystrophy (DMD). With the right help and support we can travel around the world, gain a PhD, become a published author, graphic designer, music promoterthe sky’s the limit! Adults with DMD are living longer. There are an estimated 500 people in the UK aged over 18 with Duchenne plus many more with Duchenne-like types of dystrophy. We campaign for improve...

5

DMD Pathfinders: Advice and Support for Adults with Duchenne Muscular Dystrophy – DMD Pathfinders

http://dmdpathfinders.org.uk/2014/10/04/dmd-pathfinders-advice-and-support-for-adults-with-duchenne-muscular-dystrophy

Living longer, healthier fulfilling lives. DMD Pathfinders: Advice and Support for Adults with Duchenne Muscular Dystrophy. What we are doing. We are currently raising funds to provide advice, guidance and support to adults living with Duchenne. At present, all our work is done by volunteers. If you want to become a member of DMD Pathfinders, membership is free and you can apply to join here. Should be read before applying. Your views on end of life care are needed. Leave a Reply Cancel reply.

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livingduchenne.blogspot.com livingduchenne.blogspot.com

LivingDuchenne: Friday Photo

http://livingduchenne.blogspot.com/2015/07/friday-photo.html

A personal, biased account of one family living with Duchenne Muscular Dystrophy, raising kids with disabilities and special needs. The Good Life . with Duchenne. Co-Blog with Pat Furlong. Friday, July 17, 2015. A single photo, every Friday. No words required. Subscribe to: Post Comments (Atom). More Information about Duchenne Muscular Dystrophy. Parent Project Muscular Dystrophy. UPPMD International Duchenne Community. PPMD's Page on Cognitive Issues. PPMD's Page on Behavioral Issues. The Sands of Time.

livingduchenne.blogspot.com livingduchenne.blogspot.com

LivingDuchenne: August 2015

http://livingduchenne.blogspot.com/2015_08_01_archive.html

A personal, biased account of one family living with Duchenne Muscular Dystrophy, raising kids with disabilities and special needs. The Good Life . with Duchenne. Co-Blog with Pat Furlong. Monday, August 31, 2015. Dusty's Trail: Summit of Borneo. Dusty's Trail: Summit of Borneo. Cath Jayasuriya thought to herself, "I don't want to sit around and wait for a cure. Let's do something positive. Let's do fun events." So, in honor of her son, Dusty, she created Coalition Duchenne. Links to this post. With the ...

livingduchenne.blogspot.com livingduchenne.blogspot.com

LivingDuchenne: Friday Photo

http://livingduchenne.blogspot.com/2015/07/friday-photo_24.html

A personal, biased account of one family living with Duchenne Muscular Dystrophy, raising kids with disabilities and special needs. The Good Life . with Duchenne. Co-Blog with Pat Furlong. Friday, July 24, 2015. A single photo, every Friday. No words required. Photo courtesy of Ralph Haberfeld. Subscribe to: Post Comments (Atom). More Information about Duchenne Muscular Dystrophy. Parent Project Muscular Dystrophy. UPPMD International Duchenne Community. PPMD's Page on Cognitive Issues. The Sands of Time.

livingduchenne.blogspot.com livingduchenne.blogspot.com

LivingDuchenne: February 2015

http://livingduchenne.blogspot.com/2015_02_01_archive.html

A personal, biased account of one family living with Duchenne Muscular Dystrophy, raising kids with disabilities and special needs. The Good Life . with Duchenne. Co-Blog with Pat Furlong. Monday, February 23, 2015. Quotations for Health and Sanity: Pliny the Younger, on Writing. Quotations for Health and Sanity. Happy are they, in my opinion, to whom it is given either to do something worth writing about, or to write something worth reading; most happy, of course, those who do both.". Links to this post.

livingduchenne.blogspot.com livingduchenne.blogspot.com

LivingDuchenne: Yellowstone and the Tetons: Hiking

http://livingduchenne.blogspot.com/2015/07/yellowstone-and-tetons-hiking.html

A personal, biased account of one family living with Duchenne Muscular Dystrophy, raising kids with disabilities and special needs. The Good Life . with Duchenne. Co-Blog with Pat Furlong. Monday, July 20, 2015. Yellowstone and the Tetons: Hiking. Right after camp(s), we went up to Grandma and Grandpa's to pick up Hazel and spend a few days as a family in the Yellowstone. Area We love playing together in our National Parks. Bicycle trails can be a great accessible hiking option. National Association of C...

horizonsofhope.wordpress.com horizonsofhope.wordpress.com

theduchennewarrior | HorizonsofHope

https://horizonsofhope.wordpress.com/author/theduchennewarrior

Living with a neuromuscular condition, feelings, frustrations and hope. Skip to primary content. Skip to secondary content. Hi,I'm Benjamin and I have DMD, a condition that causes progressive muscle weakness. I'm 19 and still Walking. Keeping positive, challenging attitudes and inspiring others. 8216;We are experts’. October 20, 2016. Of October I attended the European medical agencies (EMA) conference on the optimisation of drug development for the benefit of children . The session highlighted to me the...

mylifemyvoice.org mylifemyvoice.org

For Young Adults | My Life My Voice

https://mylifemyvoice.org/links-3/for-young-adults

My Life My Voice. The Teen NMD Study. How many teenagers are doing this? What’s in it for you? The Questionnaire and the ICF:. About who’s doing this research. Who is helping with this research:. Who is co-ordinating this research:. It’s ok to talk. To NMD Best Practice/ Specialist Centres. Hayden Stevens Stand Up Comedy, WA. Propelled – Doug Robins’ Theatre Production, Cairns QLD. DMD Pathfinders, UK. A Life Worth Living Film – Jon Hastie and team, UK. Click to share on Twitter (Opens in new window).

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Promoting choice, control and quality of life for teenagers and adults with Duchenne Muscular Dystrophy in the UK. How You Can Help. Where Your Money Goes. Ventilation and Duchenne – our new guide is now available. We can now share with you our latest guide – Ventilation and Duchenne: Frequently Asked Questions. Click this link to. DMD Pathfinders: Advice and Support for Adults with Duchenne Muscular Dystrophy. The World’s Worst Place to Be Disabled? August 7, 2015. Originally posted on swaddersblog.

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