livingduchenne.blogspot.com
LivingDuchenne: Friday Photo
http://livingduchenne.blogspot.com/2015/07/friday-photo.html
A personal, biased account of one family living with Duchenne Muscular Dystrophy, raising kids with disabilities and special needs. The Good Life . with Duchenne. Co-Blog with Pat Furlong. Friday, July 17, 2015. A single photo, every Friday. No words required. Subscribe to: Post Comments (Atom). More Information about Duchenne Muscular Dystrophy. Parent Project Muscular Dystrophy. UPPMD International Duchenne Community. PPMD's Page on Cognitive Issues. PPMD's Page on Behavioral Issues. The Sands of Time.
livingduchenne.blogspot.com
LivingDuchenne: August 2015
http://livingduchenne.blogspot.com/2015_08_01_archive.html
A personal, biased account of one family living with Duchenne Muscular Dystrophy, raising kids with disabilities and special needs. The Good Life . with Duchenne. Co-Blog with Pat Furlong. Monday, August 31, 2015. Dusty's Trail: Summit of Borneo. Dusty's Trail: Summit of Borneo. Cath Jayasuriya thought to herself, "I don't want to sit around and wait for a cure. Let's do something positive. Let's do fun events." So, in honor of her son, Dusty, she created Coalition Duchenne. Links to this post. With the ...
livingduchenne.blogspot.com
LivingDuchenne: Friday Photo
http://livingduchenne.blogspot.com/2015/07/friday-photo_24.html
A personal, biased account of one family living with Duchenne Muscular Dystrophy, raising kids with disabilities and special needs. The Good Life . with Duchenne. Co-Blog with Pat Furlong. Friday, July 24, 2015. A single photo, every Friday. No words required. Photo courtesy of Ralph Haberfeld. Subscribe to: Post Comments (Atom). More Information about Duchenne Muscular Dystrophy. Parent Project Muscular Dystrophy. UPPMD International Duchenne Community. PPMD's Page on Cognitive Issues. The Sands of Time.
livingduchenne.blogspot.com
LivingDuchenne: February 2015
http://livingduchenne.blogspot.com/2015_02_01_archive.html
A personal, biased account of one family living with Duchenne Muscular Dystrophy, raising kids with disabilities and special needs. The Good Life . with Duchenne. Co-Blog with Pat Furlong. Monday, February 23, 2015. Quotations for Health and Sanity: Pliny the Younger, on Writing. Quotations for Health and Sanity. Happy are they, in my opinion, to whom it is given either to do something worth writing about, or to write something worth reading; most happy, of course, those who do both.". Links to this post.
livingduchenne.blogspot.com
LivingDuchenne: Yellowstone and the Tetons: Hiking
http://livingduchenne.blogspot.com/2015/07/yellowstone-and-tetons-hiking.html
A personal, biased account of one family living with Duchenne Muscular Dystrophy, raising kids with disabilities and special needs. The Good Life . with Duchenne. Co-Blog with Pat Furlong. Monday, July 20, 2015. Yellowstone and the Tetons: Hiking. Right after camp(s), we went up to Grandma and Grandpa's to pick up Hazel and spend a few days as a family in the Yellowstone. Area We love playing together in our National Parks. Bicycle trails can be a great accessible hiking option. National Association of C...
horizonsofhope.wordpress.com
theduchennewarrior | HorizonsofHope
https://horizonsofhope.wordpress.com/author/theduchennewarrior
Living with a neuromuscular condition, feelings, frustrations and hope. Skip to primary content. Skip to secondary content. Hi,I'm Benjamin and I have DMD, a condition that causes progressive muscle weakness. I'm 19 and still Walking. Keeping positive, challenging attitudes and inspiring others. 8216;We are experts’. October 20, 2016. Of October I attended the European medical agencies (EMA) conference on the optimisation of drug development for the benefit of children . The session highlighted to me the...
mylifemyvoice.org
For Young Adults | My Life My Voice
https://mylifemyvoice.org/links-3/for-young-adults
My Life My Voice. The Teen NMD Study. How many teenagers are doing this? What’s in it for you? The Questionnaire and the ICF:. About who’s doing this research. Who is helping with this research:. Who is co-ordinating this research:. It’s ok to talk. To NMD Best Practice/ Specialist Centres. Hayden Stevens Stand Up Comedy, WA. Propelled – Doug Robins’ Theatre Production, Cairns QLD. DMD Pathfinders, UK. A Life Worth Living Film – Jon Hastie and team, UK. Click to share on Twitter (Opens in new window).
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