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Documenting M.E. | Documenting my journey down the rabbit hole of Myalgic EncephalomyelitisDocumenting my journey down the rabbit hole of Myalgic Encephalomyelitis
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Documenting my journey down the rabbit hole of Myalgic Encephalomyelitis
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Documenting M.E. | Documenting my journey down the rabbit hole of Myalgic Encephalomyelitis | documentingme.net Reviews
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Documenting my journey down the rabbit hole of Myalgic Encephalomyelitis
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chronic fatigue syndrome | Documenting M.E.
https://documentingme.net/tag/chronic-fatigue-syndrome
Documenting my journey down the rabbit hole of Myalgic Encephalomyelitis. Tag Archive chronic fatigue syndrome. ME vs CFS – What’s Up With The Name War? Note: The following is an excerpt from my longer post, “ Pyrexic Disease (or, Why The Creation of SEID Should Concern Us All). Demanding funds to research a cure and completely ignoring the fact that the group of patients diagnosed with CFS do not have a single disease entity, but a mashup of every fatigue producing illness under the sun. The followi...
myalgic encephalomyelitis | Documenting M.E.
https://documentingme.net/tag/myalgic-encephalomyelitis
Documenting my journey down the rabbit hole of Myalgic Encephalomyelitis. Tag Archive myalgic encephalomyelitis. ME vs CFS – What’s Up With The Name War? Note: The following is an excerpt from my longer post, “ Pyrexic Disease (or, Why The Creation of SEID Should Concern Us All). Demanding funds to research a cure and completely ignoring the fact that the group of patients diagnosed with CFS do not have a single disease entity, but a mashup of every fatigue producing illness under the sun. The follow...
spoonie | Documenting M.E.
https://documentingme.net/tag/spoonie
Documenting my journey down the rabbit hole of Myalgic Encephalomyelitis. ME vs CFS – What’s Up With The Name War? Note: The following is an excerpt from my longer post, “ Pyrexic Disease (or, Why The Creation of SEID Should Concern Us All). When CFS was initially created in 1988, it was done “to provide a rational basis for evaluating patients who have chronic fatigue of undetermined cause.” This is a direct quote from the release paper as archived on Pubmed. But this is exactly what has happened and is...
The Past Few Months | Documenting M.E.
https://documentingme.net/2015/03/19/the-past-few-months
Documenting my journey down the rabbit hole of Myalgic Encephalomyelitis. The Past Few Months. Hello, everyone. It has been eight months since my last update, and I figure it’s high time I post another. My health has significantly deteriorated, and I have spent months, literally, trying to get this written. I hope it makes sense and does the job of explaining what has happened and where I am right now. I also want to take a moment to express my. So what’s happened since my last update? Last but not least...
fatigue | Documenting M.E.
https://documentingme.net/tag/fatigue
Documenting my journey down the rabbit hole of Myalgic Encephalomyelitis. Pyrexic Disease (or, Why The Creation of SEID Should Concern Us All). After reading the report myself, it is my unwavering opinion that the report does, in fact, intend to replace *both* ME and CFS with the new diagnosis of SEID. There is a lot that goes into my seeing it this way, but here are a few key quotes from the report that back this up:. Conditions.” – IOM report, page 1 (emphasis mine). 8220;Historically, however, the dia...
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CFS Central: HAVE YOU NO SENSE OF DECENCY?
http://www.cfscentral.com/2011/05/next-manhattan-project.html
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. Wednesday, May 11, 2011. HAVE YOU NO SENSE OF DECENCY? Here is my testimony at the Chronic Fatigue Syndrome Advisory Committee meeting on Wednesday at Health and Human Services in Washington, D.C. Below the written testimony is the video clip. My name is Mindy Kitei. I’m a science reporter who’s covered ME/CFS for twenty years. Last June, I began my blog, CFS Central, in honor of my friend Nancy Kaiser. Even when the CDC conducted its XMRV study, it stu...
CFS Central: July 2014
http://www.cfscentral.com/2014_07_01_archive.html
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. Monday, July 7, 2014. Is CDC Out to Bury PEM? CDC's head of CFS research Dr. Beth Unger said at last month's Chronic Fatigue Syndrome Advisory Committee meeting. That she couldn't figure out how to measure post-exertional malaise (PEM)- the hallmark of ME- and thus believes problems would ensue if PEM is a mandatory symptom. Studies with patients on the antiviral Valcyte to determine if their exercise tolerance improved on the antiviral. Of measuring PE...
CFS Central: January 2014
http://www.cfscentral.com/2014_01_01_archive.html
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. Tuesday, January 28, 2014. Below is my testimony from yesterday's conference at the Institute of Medicine. To watch it, click here. My name is Mindy Kitei, and I’m a journalist. I’ve been reporting on myalgic encephalomyelitis for more than twenty years and started my blog, CFS Central, in honor of my friend Nancy Kaiser, who died of the disease in 2008. Tell that to Nancy Kaiser, who experienced multiple seizures a day. Patients believe that the IOM co...
CFS Central: December 2012
http://www.cfscentral.com/2012_12_01_archive.html
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. Wednesday, December 26, 2012. For me, the most appalling thing about the FDA Ampligen committee meeting wasn't Ampligen's nonapproval. It was a very sick ME patient leaning on a cane who showed me the prescription a sadistic, condescending neurologist had given her —. After admonishing her for using a cane. Gazing at the script for several seconds, I first felt confusion and then the patient's humiliation. The prescription read:. Links to this post.
CFS Central: July 2013
http://www.cfscentral.com/2013_07_01_archive.html
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. Sunday, July 7, 2013. Interview with Ryan Prior. Of The Blue Ribbon. Journalist Ryan Prior and filmmaker Nicole Castillo didn’t have an aha moment that prompted them to make the documentary, The Blue Ribbon. Their interest, which marinated over a period of months, began when Prior, who’s had ME since October 2006, wrote his first piece on the subject for the USA Today. College story generates 30 Facebook likes; this one got 500. Even though he’s l...
CFS Central: October 2012
http://www.cfscentral.com/2012_10_01_archive.html
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. Saturday, October 27, 2012. Despite Its Inaccuracies, CDC Won't Remove It. Last spring, members of the Chronic Fatigue Syndrome Advisory Committee (CFSAC) ruled that they wanted the CDC Toolkit. At the CFSAC meeting this month, head of CFS research Dr. Beth Unger was asked by CFSAC member Steven Krafchick if the Toolkit was going to be taken down. And Dr. Unger replied, “No.”. Who at CDC is responsible for making the decision to keep the Toolkit? Subscr...
CFS Central: February 2015
http://www.cfscentral.com/2015_02_01_archive.html
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. Tuesday, February 10, 2015. IOM Report: Remarkably Positive for ME patients. Is in, and it’s remarkably positive for ME patients. The IOM committee has proposed a new name for ME: Systemic Exertion Intolerance Disease or SEID. OK, it’s a mouthful, and how do you pronounce the acronym? It’s possible that disbelievers will morph the name into:. At sufferers had nothing really wrong with them, except perhaps indolence. At least one of the two following man...
CFS Central: June 2013
http://www.cfscentral.com/2013_06_01_archive.html
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. Thursday, June 6, 2013. Ampligen Up for Approval-. Hemispherx's stock price, which had plummeted from $1.10 to 18 cents a share following FDA's refusal to approve the drug for ME at the close of 2012, recently has been edging up, hitting a high of 29 cents today. Thursday, June 06, 2013. Links to this post. Subscribe to: Posts (Atom). Search only CFS Central. View my complete profile. Tip jar: Your donations enable in-depth CFS reporting to continue.
CFS Central: November 2014
http://www.cfscentral.com/2014_11_01_archive.html
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. Monday, November 17, 2014. Is a terrific new documentary about the health dangers of vaccines, prescription drugs and genetically modified foods. The film is hosted by outspoken Evanston, Illinois, physician Toni Bark. Who’s treated in her own medical practice children who’ve been injured by vaccines. Some. ME patients have had their own disease brought on by vaccination, particularly hepatitis B. And since CDC essentially works for pharma, and physicia...
CFS Central: January 2013
http://www.cfscentral.com/2013_01_01_archive.html
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. Thursday, January 10, 2013. A mad-as-hell Sid Wolfe of the watchdog group Public Citizen sued FDA about the agency's refusal to ban the highest dose of the Pfizer Alzheimer's drug Aricept- and lost. Studies don't show increased efficacy of the 23-milligram pill compared with the lower doses of 5 and 10 milligrams. However, the higher dose does show increased toxicity, including, Wolfe said, increased mortality. Following that logic, FDA, Ampligen's side...
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King's Sandwich Shop: Tasting Downtown Durham's Revitalization
铁锤们的龟屿计划 | 谁说乌龟怕铁锤？
10月 19, 2009. From → Uncategorized. 09月 24, 2009. 两年前从瑞士前来我国工作的托马斯.于伯森 46岁，金融人员 在刚过去的长周末，与妻子和两个孩子搭船到圣约翰岛，度过了充满阳光和海水的一天。 排在第三的是姐妹岛，约有2400人次，韩都岛 Pulau Hantu 约有1600人次，这些都是向当局申请在这两个岛露营的游人，不包括自己租船登岛的人数。 但当局过后改变初衷，贸工部长林勋强当时告诉媒体，目前并不急于发展南部岛屿，政府正在等待一个充满 WOW 元素 令人赞叹 的发展概念出现，才会发出发展概念征询书。 如果要去其他较偏远的岛屿如姐妹岛、韩都岛、实林格岛 Seringat 、仁给岛 Renget 或卡斯岛 Kias ，则需另外租船或自己开船去，收费每小时介于80元至150元。 他说 我觉得龟屿比较商业化，这里 圣约翰岛 比较少人，清静多了，可以放松心情舒缓压力。 取自 http:/ www.zaobao.com/sp/sp090923 005 1.shtml. From → Uncategorized. 09月 24, 2009. 09月 22, 2009.
Documenting Learning - Home
Documenting Learning with ePortfolios. A Guide for College Instructors. Other publications by authors. Helen L. Chen. Documenting Learning with ePortfolios: A Guide for College Instructors (Jossey-Bass Guides to Online Teaching and Learning). Jossey-Bass; 1 edition (October 11, 2011).
documentingleitzeit.wordpress.com
documenting gleitzeit paul jaisini invisible | documenting gleitzeit 1999-2014
Documenting gleitzeit paul jaisini invisible. Message Received by Stelly Riesling from the series Homage to Paul Jaisini. Gleitzeit Art Invisible Paul Jaisini. MESSAGE RECEIVED BY STELLY RIESLING FROM HOMAGE TO PAUL JAISINI SERIES 2015. Hold on by Stelly Riesling. Art is not what it is – its what its not . Art- just a word . Great art its like hypnotism, that stays with u forever take it from me- artist who overcame Visual Art. Invisible seems Paul Jaisini. Hold on by Stelly Riesling.
Documenting Light
Documenting M.E. | Documenting my journey down the rabbit hole of Myalgic Encephalomyelitis
Documenting my journey down the rabbit hole of Myalgic Encephalomyelitis. More Info on M.E. An Update For Those Interested. I often go long periods between posts there as well, but I may be able to respond with a brief tweet during times when I’m not up to posting here. Finally, there is my brother, with whom I’m very close. He recently agreed to act as a point of contact for inquiries during times I’m unable to respond myself. His Twitter handle is @filterthesnow. And why does it matter? To answer this,...
Some of My Favorite Things | Just another WordPress.com weblog
Some of My Favorite Things. Just another WordPress.com weblog. Cemetery statue in Ukiah, California. I am a high school teacher active in the modern day abolitionist movement who loves to take pictures and create art through mixed media. I am far from being a professional but every once in a while I surprise myself with one of my pieces so I have overcome the fear of sharing my work online along side "real" (or full-time) artists. Music, Concerts, Bands. Our Coral Reef Saltwater Aquarium.
Documenting Medicine: A Program for Physicians - A resource for Duke undergraduates, medical students, physician residents, fellows and practicing physicians who want to use documentary as a research or educational tool
Consent & Ethics. Consent Forms & FAQs. Over the last three years, we have shared work produced by participants in Duke University’s Documenting Medicine program in three end-of-year events, a number of exhibits, in national conferences (including the American Public Health Association, the international Narrative Medicine Conference, the American Society for Bioethics and Humanities, the American Psychiatric Association and others) as well […]. What Is It Like, Where You Are Now? Duke University Medical...
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documentingmybacksurgeries.blogspot.com
Documenting My Back Surgeries
Documenting My Back Surgeries. My main website is Smart Moms Saving Money. This is my last hope to live without pain every second of the day. Please pray for me, I need all prayers I can get. My main website is at Smart Moms Saving Money. Welcome, Read About My Back Surgeries Below. Read on and I'll try and explain my surgery and document my newest surgery too. Wednesday, March 7, 2012. Easy Sweet and Sour Chicken. I cooked this for dinner last night it was easy, cheap, delicious, quick and healthy too!
My Blog | Just another WordPress site
Just another WordPress site. Welcome to WordPress. This is your first post. Edit or delete it, then start blogging! This entry was posted in Uncategorized. October 22, 2013. Proudly powered by WordPress.
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