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DONOVANSDISEASE.COM

donovansdisease

Our mission is to educate the community about Shprintzen-Goldberg Syndrome. It is essential that early accurate diagnosis is made for these patients. We are currently involved with Johns Hopkins Medical Center and National Institutes of Health (NIH) as they continue to research this disease. There are many complications that go along with this disease the most life threatening are the involvement of heart and upper cervical spine instability. Video has been updated as of January 08, 2016. Page as it goes...

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Our mission is to educate the community about Shprintzen-Goldberg Syndrome. It is essential that early accurate diagnosis is made for these patients. We are currently involved with Johns Hopkins Medical Center and National Institutes of Health (NIH) as they continue to research this disease. There are many complications that go along with this disease the most life threatening are the involvement of heart and upper cervical spine instability. Video has been updated as of January 08, 2016. Page as it goes...
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donovansdisease | donovansdisease.com Reviews

https://donovansdisease.com

Our mission is to educate the community about Shprintzen-Goldberg Syndrome. It is essential that early accurate diagnosis is made for these patients. We are currently involved with Johns Hopkins Medical Center and National Institutes of Health (NIH) as they continue to research this disease. There are many complications that go along with this disease the most life threatening are the involvement of heart and upper cervical spine instability. Video has been updated as of January 08, 2016. Page as it goes...

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donovansdisease.com donovansdisease.com
1

donovansdisease

http://www.donovansdisease.com/index.html

Hello we are Ron and Kerry Rivas from Fresno California and Donovan is our son. He is a 9 yr old boy who suffers from a rare Connective Tissue disease Shprintzen-Goldberg Syndrome. There are many complications that go along with this disease the most life threatening is the involvement of his heart. Video has been updated as of January 08, 2016. Please take time to read the About. Page as it goes in depth about Donovan's Disease. We have included links to further educate you on some of the secondary ...

2

donovansdisease

http://www.donovansdisease.com/fundraiser_info.html

Thank You For Helping Donovan's Disease. Fight For The Cause. One Ticket $12.00 USD. Two Tickets $24.00 USD. Three Tickets $36.00 USD. Four Tickets $48.00 USD. Use your receipt as your tickets. We are a non-profit 501(c)(3) charitable organization . You may use purchases for write off on taxes.

3

donovansdisease

http://www.donovansdisease.com/about.html

With trigonencephaly. Donovan had some behavioral issues he cried a lot and wouldn’t sit still for more than a couple minutes at a time. I thought to myself how am I ever going to read him a book, how is he ever going to learn? When Donovan was twenty months we realized he had other symptoms besides the craniosynostosis. Hypermobility (also called extreme-flex). His feet were shaped differently. He has pes plantus. Soft silky thin skin that veins are prominent, and a dilated aortic root.

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donovansdisease

Our mission is to educate the community about Shprintzen-Goldberg Syndrome. It is essential that early accurate diagnosis is made for these patients. We are currently involved with Johns Hopkins Medical Center and National Institutes of Health (NIH) as they continue to research this disease. There are many complications that go along with this disease the most life threatening are the involvement of heart and upper cervical spine instability. Video has been updated as of January 08, 2016. Page as it goes...

donovansdisease.webstarts.com donovansdisease.webstarts.com

donovansdisease

Our mission is to educate the community about Shprintzen-Goldberg Syndrome. It is essential that early accurate diagnosis is made for these patients. We are currently involved with Johns Hopkins Medical Center and National Institutes of Health (NIH) as they continue to research this disease. There are many complications that go along with this disease the most life threatening are the involvement of heart and upper cervical spine instability. Video has been updated as of January 08, 2016. Page as it goes...

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No products in the cart. What makes a dish a Donovan’s Dish? It’s Southern-influenced. Family-inspired. Chef created. and memorably delicious. Founded in 2011, Donovan’s Dish has already earned a coveted industry award a history making four years in a row. The Triangle Chapter of the National Association of Catering and Events named us Catering Professional of the Year for 2013, 2014, 2015, and 2016. Our Store Front is Open! Stop by our newly opened store front and grab a meal to go! Our Secret to Success.

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