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Hinderling Volkart AG
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Hinderling Volkart AG
Michael Volkart
Anwa●●●●. 82
Zu●●ch , 8004
CH
View this contact
Hinderling Volkart AG
Michael Volkart
Anwa●●●●. 82
Zu●●ch , 8004
CH
View this contact
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www.double-rainbow-awesome.com
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毛細血管拡張性運動失調症 A-T の臨床研究に携わる大学 団体への研究助成を通じて、医学の進歩発展に寄与するとともに、この病気に苦しむ人々やご家族と支え合い勇気づけ合うことを目的としたプロジェクトを行っています。 毛細血管拡張性運動失調症チルドレンズ プロジェクト ホームページ(http:/ www.tmd.ac.jp/med/ped/atcp/). 平成21 23年度厚生労働省科学研究費所補助金(難治性疾患克服研究事業 毛細血管拡張性小脳失調症の実態調査、早期診断法確立と、病態評価に関する研究班編 毛細血管拡張性運動失調症ハンドブック. 2月26日 日 5:00 NHK総合5時台のニュースで 難病の子を支える家族 として取り上げて頂きました。 平成29年2月18 19日にリンクステーションホール青森で行われました BLUE TOKYO出演のステージBL …. 日付 平成29年2月18 19日 場所 リンクステーションホール青森 内容 募金活動、啓発活動、チャリティーグ …. 12月19日 月 NHK夕方あっぷるワイド 12月20日 火 NHK7時50分からの東北版 私たちの活動につい ….
