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DUP15Q.ORG

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Dup15q Alliance provides family support and promotes awareness, research and targeted treatments for chromosome 15q11.2-13.1 duplication syndrome.

http://www.dup15q.org/

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Home - Dup15q | dup15q.org Reviews

https://dup15q.org

Dup15q Alliance provides family support and promotes awareness, research and targeted treatments for chromosome 15q11.2-13.1 duplication syndrome.

INTERNAL PAGES

dup15q.org dup15q.org
1

Family Stories - Dup15q

https://www.dup15q.org/family-support/family-stories

What is Dup15q Syndrome? Genetics of 15q Duplications. What's in a Name? Believe: Living with Dup15q Syndrome Documentary. There are several different types of chromosome 15q duplications - isodicentric, interstitial, edge duplications. Understanding dup15q syndrome begins with a basic lesson in genetics. Support Our Mission Today. Social Security Disability Benefits. Resources for Other 15q Disorders. Provide comprehensive evaluation and treatment of individuals with dup15q syndrome. New York, NY. Inter...

2

What is Dup15q Syndrome? - Dup15q

https://www.dup15q.org/understanding-dup15q/what-is-dup15q-syndrome

What is Dup15q Syndrome? Genetics of 15q Duplications. What's in a Name? Believe: Living with Dup15q Syndrome Documentary. There are several different types of chromosome 15q duplications - isodicentric, interstitial, edge duplications. Understanding dup15q syndrome begins with a basic lesson in genetics. Support Our Mission Today. Social Security Disability Benefits. Resources for Other 15q Disorders. Provide comprehensive evaluation and treatment of individuals with dup15q syndrome. New York, NY. Inter...

3

Professional Advisory Board - Dup15q

https://www.dup15q.org/the-alliance/professional-advisory-board

What is Dup15q Syndrome? Genetics of 15q Duplications. What's in a Name? Believe: Living with Dup15q Syndrome Documentary. There are several different types of chromosome 15q duplications - isodicentric, interstitial, edge duplications. Understanding dup15q syndrome begins with a basic lesson in genetics. Support Our Mission Today. Social Security Disability Benefits. Resources for Other 15q Disorders. Provide comprehensive evaluation and treatment of individuals with dup15q syndrome. New York, NY. Inter...

4

Governance - Dup15q

https://www.dup15q.org/the-alliance/governance

What is Dup15q Syndrome? Genetics of 15q Duplications. What's in a Name? Believe: Living with Dup15q Syndrome Documentary. There are several different types of chromosome 15q duplications - isodicentric, interstitial, edge duplications. Understanding dup15q syndrome begins with a basic lesson in genetics. Support Our Mission Today. Social Security Disability Benefits. Resources for Other 15q Disorders. Provide comprehensive evaluation and treatment of individuals with dup15q syndrome. New York, NY. Inter...

5

The Alliance - Dup15q

https://www.dup15q.org/the-alliance

What is Dup15q Syndrome? Genetics of 15q Duplications. What's in a Name? Believe: Living with Dup15q Syndrome Documentary. There are several different types of chromosome 15q duplications - isodicentric, interstitial, edge duplications. Understanding dup15q syndrome begins with a basic lesson in genetics. Support Our Mission Today. Social Security Disability Benefits. Resources for Other 15q Disorders. Provide comprehensive evaluation and treatment of individuals with dup15q syndrome. New York, NY. Inter...

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sudep-registry.org sudep-registry.org

Resources – North American SUDEP Registry (NASR)

http://sudep-registry.org/resources

North American SUDEP Registry (NASR). Please forgive our site's appearance. We are currently undergoing site maintenance. Research & Tissue Donation. Coordinated by the Epilepsy Foundation of America, the SUDEP Institute is a collaboration of nonprofit organizations, medical professionals, parent advocates, and government agencies. It offers SUDEP education for families and doctors; counseling for bereaved families; and supports research into the causes of and ways to prevent SUDEP. PAME is a four-day le...

surprisinglyspecial.com surprisinglyspecial.com

Dup15q Believe Walk 2016 – Surprisingly Special

https://surprisinglyspecial.com/2016/10/16/dup15q-believe-walk-2016

Life is what happens to you when you're busy making other plans. – John Lennon, Beautiful Boy. CALVIN and 22q Deletion. Middot; Henry, Dup15q. Dup15q Believe Walk 2016. October 16, 2016. October 15, 2016. This year, since we are out here on the east coast, we had the opportunity to go to the first Dup15q Believe Walk held in Atlanta! It was an awesome way to meet other Dup15q individuals and families and to show our love and support for them while also helping raise funds for research. The event organize...

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West Syndrome

http://www.infantilespasmsproject.org/index.php/west-syndrome

Infantile Spasms Yahoo Group. Infantile Spasms on Facebook. UCLA Cannabidiol (CBD) Study. David Geffen School of Medicine. United Mitochondrial Disease Foundation. International League Against Epilepsy (ILAE). American Academy of Neurology. American Clinical Neurophysiology Society. Last Updated on 03 June 2015. Hypsarrhythmia (choatic pattern seen on EEG. Typical of infantile spasms). Mattel Children's Hospital UCLA. David Geffen School of Medicine at UCLA.

infantilespasmsproject.org infantilespasmsproject.org

Video Examples

http://www.infantilespasmsproject.org/index.php/video

Infantile Spasms Yahoo Group. Infantile Spasms on Facebook. UCLA Cannabidiol (CBD) Study. David Geffen School of Medicine. United Mitochondrial Disease Foundation. International League Against Epilepsy (ILAE). American Academy of Neurology. American Clinical Neurophysiology Society. What do infantile spasms look like? Last Updated on 03 June 2015. After several medications were unsuccessful. You can read more about his story at evanstauff.com. The next video shows an infant with fairly typical infantile ...

infantilespasmsproject.org infantilespasmsproject.org

Medical Marijuana

http://www.infantilespasmsproject.org/index.php/medical-marijuana

Infantile Spasms Yahoo Group. Infantile Spasms on Facebook. UCLA Cannabidiol (CBD) Study. David Geffen School of Medicine. United Mitochondrial Disease Foundation. International League Against Epilepsy (ILAE). American Academy of Neurology. American Clinical Neurophysiology Society. Medical Marijuana and Cannabidiol (CBD). Last Updated on 03 May 2016. There are efforts underway to rigorously evaluate the potential usefulness of medical marijuana for treatment of epilepsy in children. Specifically, se...

infantilespasmsproject.org infantilespasmsproject.org

Frequently Asked Questions

http://www.infantilespasmsproject.org/index.php/frequently-asked-questions

Infantile Spasms Yahoo Group. Infantile Spasms on Facebook. UCLA Cannabidiol (CBD) Study. David Geffen School of Medicine. United Mitochondrial Disease Foundation. International League Against Epilepsy (ILAE). American Academy of Neurology. American Clinical Neurophysiology Society. Frequently Asked Questions About Infantile Spasms. Last Updated on 20 July 2015. 1 What is infantile spasms? Infantile spasms, also called "epileptic spasms" or West Syndrome. 2 What is epilepsy? How can it affect children?

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Home - Dup15q

What is Dup15q Syndrome? Genetics of 15q Duplications. Believe: Living with Dup15q Syndrome Documentary. There are several different types of chromosome 15q duplications - isodicentric, interstitial, edge duplications. Understanding dup15q syndrome begins with a basic lesson in genetics. Support Our Mission Today. Resources for Other 15q Disorders. Provide comprehensive evaluation and treatment of individuals with dup15q syndrome. New York, NY. St Paul, MN. San Francisco, CA. Los Angeles, CA. Dup15q Alli...

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Dup15q Alliance International Registry

About the Dup15q Registry. Click here to register now!

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