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Dylan W Levy - About Me

My name is Dylan. I was born with Biliary Atresia and as of recently he needed a liver transplant. This site is here to keep everyone up to date on what we are going through. Thanks for visiting.

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Dylan W Levy - About Me | dylanwlevy.com Reviews
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My name is Dylan. I was born with Biliary Atresia and as of recently he needed a liver transplant. This site is here to keep everyone up to date on what we are going through. Thanks for visiting.
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Dylan W Levy - About Me | dylanwlevy.com Reviews

https://dylanwlevy.com

My name is Dylan. I was born with Biliary Atresia and as of recently he needed a liver transplant. This site is here to keep everyone up to date on what we are going through. Thanks for visiting.

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dylanwlevy.com dylanwlevy.com
1

Links - Dylan W Levy

http://www.dylanwlevy.com/links.html

Help Spread Awareness about Liver Disease. Become a Organ Donor:. United Network of Organ Sharing (UNOS)- http:/ www.unos.org/. Liver Families- http:/ www.liverfamilies.org/. CLASS Kids- http:/ www.classkids.org/. Wikipedia- http:/ en.wikipedia.org/wiki/Biliary atresia. Lucile Packard Children's Hospital- http:/ www.lpch.org/DiseaseHealthInfo/HealthLibrary/digest/biliary.html. BA Aware- http:/ www.baaware.org/. Stanford Medical (LPCH)- http:/ www.lpch.org/.

2

About Transplant - Dylan W Levy

http://www.dylanwlevy.com/about-transplant.html

Each year, people with liver diseases die waiting for a transplant, and the wait time for a deceased donor liver has increased each year. Living donor liver transplant offers an alternative to waiting for a deceased donor liver. Its main benefit is timeliness because it decreases the risk of complications and death while waiting for a match. If your physician determines that you'd benefit from living donor transplant, then potential donors can start their evaluation process with a living donor coordinator.

3

About BA - Dylan W Levy

http://www.dylanwlevy.com/about-ba.html

What is biliary atresia (ba)? Biliary atresia is a rare disease of the liver and bile ducts that occurs in infants. Symptoms of the disease appear or develop about two to eight weeks after birth. Cells within the liver produce liquid called bile. Bile helps to digest fat. It also carries waste products from the liver to the intestines for excretion. Babies with biliary atresia usually appear healthy when they are born. Symptoms of the disease typically appear within the first two weeks to two months ...

4

Dylan W Levy - Journal Page

http://www.dylanwlevy.com/journal.html

It's official, Dylan has officially gone longer post-transplant vs. his pre-transplant life. Its been a whirlwind, its been enlightening, its been beyond challenging, its come with good times as well as bad, but in the end.its never broken us as a family. Today I give thanks, just having the ability to write something positive and congratulate Dylan on being on this side of life, its worth all the pain that has come before it. Where things are today. We opted for the first time in our lives to not tell D...

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LINKS TO THIS WEBSITE

martimmargaca.blogspot.com martimmargaca.blogspot.com

Martim´s life with Alpha 1: Funny...

http://martimmargaca.blogspot.com/p/funny.html

Martim´s life with Alpha 1. Martim was playing with us today and told us " Baby Martim was in mum´s tummy and baby Marta was in dad´s tummy! Mummy, what colour is my pajama? It´s my "paferred" colour! You are so beautiful! Mummy, I want to see my block! Martim: Grandma, tomorrow I´m going to do a tattoo! Martim: I´m going to do a tattoo in my arm saying " Marta, the most beautiful! Mãe, que cor é o meu pijama? É a minha cor pafarida! Tu és tão linda! Mãe, e o pum? Sim, para que serve o pum? Ah não é não!

martimmargaca.blogspot.com martimmargaca.blogspot.com

Martim´s life with Alpha 1: Liver Transplant

http://martimmargaca.blogspot.com/p/liver-transplant.html

Martim´s life with Alpha 1. Martim had a living donor Liver transplant, on the 24th of October of 2009, at the age of 2 years and 10 months, due to a chronic liver disease called Alpha 1 Antitrypsin Def. Martim´s father, Paulo, gave him a beautiful liver graft with 300gr from his own liver. It was a Gift of Life! Prof Nigel Heaton, Dr Hector Vilca- Melendez and team performed Martim and Paulo´s surgeries, at King´s College Hospital, UK. Subscribe to: Posts (Atom). There was an error in this gadget. Marti...

martimmargaca.blogspot.com martimmargaca.blogspot.com

Martim´s life with Alpha 1

http://martimmargaca.blogspot.com/2015/02/blog-post.html

Martim´s life with Alpha 1. Subscribe to: Post Comments (Atom). There was an error in this gadget. You can follow Martim by email. Martim´s medical updates. Pre - transplante assessment. My friends in the Liver Land. Two months before transplant. 2 meses antes do transplante. Gavin is an angel who was born like me. He will always be remembered in every milestones of my life. Martim´s eyes before transplant. Olhos do Martim antes do transplante. Em Português-clique na imagem. FEEDJIT Live Traffic Feed.

martimmargaca.blogspot.com martimmargaca.blogspot.com

Martim´s life with Alpha 1: Martim´s story

http://martimmargaca.blogspot.com/p/martims-story.html

Martim´s life with Alpha 1. Martim is a 7 years old boy with Alpha 1 Antitrypsin PiZZ deficiency diagnosed at 3 months age. His hepatologist is Dr. Dino Hadzic at King´s College Hospital, in UK. He was with advanced chronic liver disease and on the 24th of October of 2009 Martim received 300gr of daddy´s liver.- click here to see the photos. A beautiful piece of liver. Martim´s transplant was performed by Prof. Nigel Heaton and Dr. Hector Vilca Melendez teams at King´s College Hospital.

martimmargaca.blogspot.com martimmargaca.blogspot.com

Martim´s life with Alpha 1: Medication

http://martimmargaca.blogspot.com/p/medication.html

Martim´s life with Alpha 1. Cellcept- variable dose- actually 280 mg x 2 times a day. Tacrolimus- variable dose- actually 1 mg x 2 times a day. Ursofalk suspension- ursodeoxicolic acid. Konakion paediatric- vitamin K. Aqua-E- vitamin E with tocopherols and tocotrienols. Generaid Plus- special milk formula. Subscribe to: Posts (Atom). There was an error in this gadget. You can follow Martim by email. Martim´s medical updates. Pre - transplante assessment. My friends in the Liver Land.

martimmargaca.blogspot.com martimmargaca.blogspot.com

Martim´s life with Alpha 1: Martim and Maria- fighting alpha1 together

http://martimmargaca.blogspot.com/2015/04/martim-and-maria-fighting-alpha1.html

Martim´s life with Alpha 1. Martim and Maria- fighting alpha1 together. Today was blood tests day. Let me start by saying that i hate this. Taking my kids to the hospital to take bloods is always heartbreaking. I will never get use to this. So, Martim knew we were going to the hospital, he cried a little, told me his liver was ok, no need for bloods.Had is magical bandaid ( Emla) and told me he was going to be brave so that Maria would not see him crying. Maria´s liver enzymes are NORMAL! Alice Margaça&#...

martimmargaca.blogspot.com martimmargaca.blogspot.com

Martim´s life with Alpha 1: Football

http://martimmargaca.blogspot.com/2015/02/football.html

Martim´s life with Alpha 1. Subscribe to: Post Comments (Atom). There was an error in this gadget. You can follow Martim by email. Martim´s medical updates. Pre - transplante assessment. My friends in the Liver Land. Two months before transplant. 2 meses antes do transplante. Gavin is an angel who was born like me. He will always be remembered in every milestones of my life. Martim´s eyes before transplant. Olhos do Martim antes do transplante. Em Português-clique na imagem. FEEDJIT Live Traffic Feed.

martimmargaca.blogspot.com martimmargaca.blogspot.com

Martim´s life with Alpha 1: Liver disease

http://martimmargaca.blogspot.com/p/liver-disease.html

Martim´s life with Alpha 1. HOW IMPORTANT IS THE LIVER? The liver is a vital organ. Without it we would not be able to live. Apart from the brain, it is the most complex organ in the body. It has a wide range of functions and acts very much like a factory. One of its mostamazing features is its regenerative power. Some 9/10ths of the liver can be cut away and provided the remaining 1/10th is healthy, the liver will grow back to its original. The liver is a processor. The liver is a manufacturer. 2 The li...

martimmargaca.blogspot.com martimmargaca.blogspot.com

Martim´s life with Alpha 1: Alpha1 Disease

http://martimmargaca.blogspot.com/p/alpha1.html

Martim´s life with Alpha 1. Alpha-1 Antitrypsin Deficiency (Alpha-1) is a condition that is passed from parents to their children through their genes. This condition may result in serious lung and/or liver disease at various ages in life. For each trait a person inherits, there are usually two genes and one gene comes from each parent. People with Alpha-1 have received two defective alpha-1 antitrypsin genes. One defective gene came from their mother and one from their father. An estimated 20 million peo...

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Dylan W Levy - About Me

This is Dylan. He was born with Biliary Atresia and like most with this, he needed a liver transplant. This site is here to keep everyone up to date on what we are going through. Thanks for visiting. Background Story on Dylan, he was born June 15, 2005. With some minor complications after delivery (infection of amniotic fluid) we went home two very proud and happy parents. We did not know at the time, but they had ran a bilirubin test and his direct bilirubin was a 2.well above normal.

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