redlilyfoundation.org
Red Lily Foundation | For Patients
http://redlilyfoundation.org/for-patient
Patient Point of View. Parent Point of View. Red Lily Foundation is focused on research but was founded by a family affected by POTS. They know the difficulties finding reliable information. Below is some basic information for patients including a general brochure and three videos. The videos vary from a medical seminar and patient interviews to changes that occur while living with POTS. For support and in turn, please support them in any way you can. Patient’s Interview with Dr. Blair P. G...In our expe...
cfsnova.com
CFSupport | Resources | Main
http://www.cfsnova.com/resources.html
The Northern Virginia (NOVA). CFS/ME, FMS, OI. Resources, References, and Links by Subject. Full Directory of Topics. Strategies, Stories, Stress. CAM, Integrative Med. Youth, CFS and School. En Español, Languages. Vitamins, Minerals,. Chats, Pals, Forums. Advocacy, May 12. Poetry, Art, and Film. Advocates for Fibromyalgia Funding, Treatment, Education and Research. Alison Hunter Memorial Foundation. Axford's Abode - ME/CFS. David N. Axford and Ellen M. Goudsmit. CFIDS Association of America. Myalgic Enc...
star382000.livejournal.com
Better Than Google! Search and Donate to Charity - Aimer.
http://star382000.livejournal.com/477563.html
I'm Gonna Be (500 Miles) by The Proclaimers. When I wake up yeah I know I'm gonna be. I'm gonna be the man who wakes up next to you. When I go out yeah I know I'm gonna be. I'm gonna be the man who goes along with you. If I get drunk yes I know I'm gonna be. I'm gonna be the man who gets drunk next to you. And if I haver yeah I know I'm gonna be. I'm gonna be the man who's havering to you. But I would walk 500 miles. And I would walk 500 more. Just to be the man who walked 1000 miles. Via GoodSearch http...
star382000.livejournal.com
Aimer.
http://star382000.livejournal.com/tag/dyna
I'm Gonna Be (500 Miles) by The Proclaimers. When I wake up yeah I know I'm gonna be. I'm gonna be the man who wakes up next to you. When I go out yeah I know I'm gonna be. I'm gonna be the man who goes along with you. If I get drunk yes I know I'm gonna be. I'm gonna be the man who gets drunk next to you. And if I haver yeah I know I'm gonna be. I'm gonna be the man who's havering to you. But I would walk 500 miles. And I would walk 500 more. Just to be the man who walked 1000 miles. It's a search engin...
star382000.livejournal.com
I have a PhD in Horribleness - Aimer.
http://star382000.livejournal.com/509671.html
I'm Gonna Be (500 Miles) by The Proclaimers. When I wake up yeah I know I'm gonna be. I'm gonna be the man who wakes up next to you. When I go out yeah I know I'm gonna be. I'm gonna be the man who goes along with you. If I get drunk yes I know I'm gonna be. I'm gonna be the man who gets drunk next to you. And if I haver yeah I know I'm gonna be. I'm gonna be the man who's havering to you. But I would walk 500 miles. And I would walk 500 more. Just to be the man who walked 1000 miles. It's by Joss Whedon...
star382000.livejournal.com
Aimer.
http://star382000.livejournal.com/tag/friends
I'm Gonna Be (500 Miles) by The Proclaimers. When I wake up yeah I know I'm gonna be. I'm gonna be the man who wakes up next to you. When I go out yeah I know I'm gonna be. I'm gonna be the man who goes along with you. If I get drunk yes I know I'm gonna be. I'm gonna be the man who gets drunk next to you. And if I haver yeah I know I'm gonna be. I'm gonna be the man who's havering to you. But I would walk 500 miles. And I would walk 500 more. Just to be the man who walked 1000 miles. And search "Lisa Ko...
star382000.livejournal.com
June 30th, 2014 - Aimer.
http://star382000.livejournal.com/2014/06/30
I'm Gonna Be (500 Miles) by The Proclaimers. When I wake up yeah I know I'm gonna be. I'm gonna be the man who wakes up next to you. When I go out yeah I know I'm gonna be. I'm gonna be the man who goes along with you. If I get drunk yes I know I'm gonna be. I'm gonna be the man who gets drunk next to you. And if I haver yeah I know I'm gonna be. I'm gonna be the man who's havering to you. But I would walk 500 miles. And I would walk 500 more. Just to be the man who walked 1000 miles.
theoicenter.com
Links to Other Resources
http://www.theoicenter.com/Resources/Links-Others.html
Sign Up for email notices or to follow us. The Orthostatic Intolerance (OI) Center. Links to Other Resources. Autonomic Nerve Dysfunction (Autonomia, Dysautonomia). American Autonomic Society - http:/ www.americanautonomicsociety.org. National Dysautonomia Research Foundation - http:/ www.ndrf.org/. Dysautonomia Youth Network of America, Inc. - http:/ www.dynainc.org/. POTS (Postural Orthostatic Tachycardia Syndrome). Red Lily Foundation - http:/ redlilyfoundation.org/. Kay E Jewell, MD. August 21, 2012.
journeyofapotsmom.wordpress.com
Ehlers-Danlos Syndrome | Journey of a P.O.T.S. Mom
https://journeyofapotsmom.wordpress.com/ehlers-danlos-syndrome
Journey of a P.O.T.S. Mom. Helpful P.O.T.S. Websites. What is P.O.T.S? Ehlers-Danlos Syndrome (EDS) has many variations. My daughter has the hypermobility type. Which affects the blood flow between the chambers of the heart. The Hypermobility type of EDS is most often inherited in an autosomal dominant pattern, which means one copy of the altered gene is sufficient to cause the disorder. In these cases, family members in each generation are usually affected, but the features of the condition may vary.
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