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Help Find a Cure or Treatment. My skin is as fragile as Butterfly wings. I'm Xander-I was born December 27, 2010,. Diagnosed with E.B. January 19, 2011. My family moved to South Dakota to avoid the high humidity of. Florida that is so hard on my condition (check out our blog). I. Am still battling the blisters (especially on my feet and hands). But very active and happy. I love playing outside and I want to. The Doctor's say that I am TOO active. . . My condition is not. And don't look at me differently.

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Help Find a Cure or Treatment. My skin is as fragile as Butterfly wings. I'm Xander-I was born December 27, 2010,. Diagnosed with E.B. January 19, 2011. My family moved to South Dakota to avoid the high humidity of. Florida that is so hard on my condition (check out our blog). I. Am still battling the blisters (especially on my feet and hands). But very active and happy. I love playing outside and I want to. The Doctor's say that I am TOO active. . . My condition is not. And don't look at me differently.

<META> KEYWORDS

1 EB

2 Epidermolysis Bullosa

3 Skin Disease

4 awareness

5 EB support

6

7 coupons

8 reviews

9 scam

10 fraud

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eb xti,be independent,with me telling,you and you,telling 3,maybe some,day there will,be a treatment,or a cure,epidermolysis bullosa eb,visit our blog,eb awareness

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Home | ebxti.org Reviews

https://ebxti.org

Help Find a Cure or Treatment. My skin is as fragile as Butterfly wings. I'm Xander-I was born December 27, 2010,. Diagnosed with E.B. January 19, 2011. My family moved to South Dakota to avoid the high humidity of. Florida that is so hard on my condition (check out our blog). I. Am still battling the blisters (especially on my feet and hands). But very active and happy. I love playing outside and I want to. The Doctor's say that I am TOO active. . . My condition is not. And don't look at me differently.

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ebxti.org

1

ebxti.org Blog | Helping spread awareness and find a cure so our children can live pain-free

http://www.ebxti.org/butterflywarrior

Helping spread awareness and find a cure so our children can live pain-free. Skip to primary content. Skip to secondary content. 1800 miles and back spreading awareness all along the way…. October 29, 2015. One person can make a difference…. October 4, 2013. 8230;everyone should try! Update on Xander and EBS…. January 23, 2013. All forms of EB simplex are most troublesome. In hot and humid environments due to. An increase in sweat production exacerbating. August 24, 2012. What causes the blisters:. Mouth...

2

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http://www.ebxti.org/oursupport.html

Help find a treatment or cure for E.B. Awareness is key. . . Some of our supporters are wearing a tattoo in honor of a loved one:.

3

About Us

http://www.ebxti.org/aboutus.html

With me telling you and you telling 3 maybe. Some day there will be a treatment or a cure. Skin is the body*s first line of protection against the elements. With EB, blisters erupt from the. Slightest trauma, even fundamental activities like crawling, walking, sitting, eating, writing, or rolling. Over in bed. The chafing of seams or tags in conventional clothing can be excruciating. The blisters. Are described by doctors as being the most painful disease known to man similar to a 2nd or 3rd. 17,000 live...

4

Page Title

http://www.ebxti.org/photoalbum.html

From the eyes of a. Caregiver. . . Help find a treatment or cure for E.B. Awareness is key. . . See me and don't know. About E.B. think I. Have been bitten by. A dog or abused. If. They only knew. . . Better than others. . . But ,the blisters. Tape, stickers,. Bandaids. . .ouch!

5

Services

http://www.ebxti.org/services.html

Xander's Butterfly Collection of dichroic glass jewelry is. Available for a minimum $20 donation. Donated to EB families in hopes of finding a cure or. Treatment for this painful disease. Maybe it will be me. . . Contact Us for your support. Thanks for listening and your prayers. XTI. Help find a treatment or cure for E.B. Awareness is key. . . If you or someone you know is a fighter please contact us. We are all SUPER HEROES!

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Help Find a Cure or Treatment. My skin is as fragile as Butterfly wings. I'm Xander-I was born December 27, 2010,. Diagnosed with E.B. January 19, 2011. My family moved to South Dakota to avoid the high humidity of. Florida that is so hard on my condition (check out our blog). I. Am still battling the blisters (especially on my feet and hands). But very active and happy. I love playing outside and I want to. The Doctor's say that I am TOO active. . . My condition is not. And don't look at me differently.

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