navigatinglifesdetours.com
Holoprosencephaly – Navigating Life's Detours
https://navigatinglifesdetours.com/holoprosencephaly
Navigating Life's Detours. Finding the right path for a child with special needs. Holoprosencephaly is a form of cerebral palsy. Paige and I learned that J.P. had holoprosencephaly at 23 weeks into our pregnancy during an ultrasound appointment. It was one of those situations where no one wants to tell you anything, but they make phone calls to doctors and say they need a better look and ask you to go to another location for a better ultrasound view. The cause of HPE is not known. We learned during the u...
navigatinglifesdetours.com
Birthday wishes to an amazing sister – Navigating Life's Detours
https://navigatinglifesdetours.com/2015/01/22/birthday-wishes-to-an-amazing-sister/comment-page-1
Navigating Life's Detours. Finding the right path for a child with special needs. Birthday wishes to an amazing sister. January 22, 2015. Christmas was simply the beginning of birthday season in my family. When I was younger, there was a multitude of birthdays just after the new year. My grandfather had a birthday on Jan. 13, followed by my mother on Jan. 15. My sister on Jan. 22, and my birthday on Feb. 1. Catherine and Abbie Brandt with J.P. and Karina during vacation. I’ve tried to pattern my jo...
navigatinglifesdetours.com
Remembering Ariel – Navigating Life's Detours
https://navigatinglifesdetours.com/2015/06/08/remembering-ariel
Navigating Life's Detours. Finding the right path for a child with special needs. June 8, 2015. Our cats, Ariel and Belle, nap on the bed. Ariel has gone to be with Belle in cat heaven. For those who aren’t aware, Ariel and Belle were my first birthday present to Paige after we got married in 1994. They were sisters and came from the home of a fellow WESH-TV employee when I was producing the morning newscast in Daytona Beach. Belle spends time with Paige. She’ll be sorely missed. I don’t ...Paige told me...
navigatinglifesdetours.com
Blog – Navigating Life's Detours
https://navigatinglifesdetours.com/blog
Navigating Life's Detours. Finding the right path for a child with special needs. My four-legged running buddy. May 11, 2016. Exercise is important — even for our family members with four legs. In the beginning of April, I made a decision to stop walking the dog and running by myself. I decided to teach the dog to run with me, so I could get everything done at once. Karina learns to run with me. We generally walk around our subdivision, which is just over a mile’s worth of sidewalks. Luckily, the vet is ...
navigatinglifesdetours.com
Gallery – Navigating Life's Detours
https://navigatinglifesdetours.com/meet-karina
Navigating Life's Detours. Finding the right path for a child with special needs. Duncan checks out his hideout. Duncan heads to Florida. Paige meets her new cat, Duncan. JP and Karina get ready for bed during a hospital stay in December 2014. JP opens his stocking on Christmas morning. JP is discharged from the hospital just in time for Christmas. Paige drinks tea at her cancerversary celebration at Dicken’s Tea Room in Lake Mary. My mother prays for J.P. bedside during a hospital stay. The Cousins̵...
navigatinglifesdetours.com
Resources – Navigating Life's Detours
https://navigatinglifesdetours.com/resources
Navigating Life's Detours. Finding the right path for a child with special needs. The following are resources that have been useful in our journey to find the right path for J.P.:. Canine Companions for Independence. Matches those with disabilities with highly-trained service dogs. Carter Centers for Brain Research in Holoprosencephaly. Created to gather, store, organize, analyze and share information about holoprosencephaly and related brain malformations. Florida Hospital for Children. Organization ded...
navigatinglifesdetours.com
Everything under the sun – Navigating Life's Detours
https://navigatinglifesdetours.com/2015/04/23/everything-under-the-sun
Navigating Life's Detours. Finding the right path for a child with special needs. Everything under the sun. April 23, 2015. JP, Paige and I have had a busy year, and things don’t seem to be calming down. But several people have asked how things are going and whether I’ve stopped blogging. There are still plenty of stories to tell, and I’m hoping to break through the serious case of writer’s block that seems to have taken hold. JP has a new NovaChat. I said, “Do you want to draw a picture of the sun?
navigatinglifesdetours.com
The J.P. Story: Growing family – Navigating Life's Detours
https://navigatinglifesdetours.com/2015/04/24/the-j-p-story-growing-family
Navigating Life's Detours. Finding the right path for a child with special needs. The JP. Story: Growing family. April 24, 2015. April 24, 2015. Shortly after we learned of our pregnancy and J.P.’s diagnosis, we got another surprise. Paige’s sister was also pregnant. It was an exciting time for both of them. There was the proverbial photo of both sisters with their baby bumps, and there was a surprise with both pregnancies. Because of J.P.’s holoprosencephaly, the twins quickly surpassed J&...We witnesse...
navigatinglifesdetours.com
About Us – Navigating Life's Detours
https://navigatinglifesdetours.com/about
Navigating Life's Detours. Finding the right path for a child with special needs. My wife, Paige, and I have tried to navigate our way through life with a special-needs child. Paige, J.P., Karina and I at Paige’s parents’ house in DeLand. And the many diagnoses that come with such a brain malformation, including epilepsy, diabetes insipidus and spasticity to name a few. There have been struggles between us when we’ve each felt one path would be better than another for him. JP is 13 years old now. He&...
navigatinglifesdetours.com
Pushing for family-centered hospital care – Navigating Life's Detours
https://navigatinglifesdetours.com/2015/05/07/pushing-for-family-centered-hospital-care
Navigating Life's Detours. Finding the right path for a child with special needs. Pushing for family-centered hospital care. May 7, 2015. May 7, 2015. Anyone who knows me will tell you I’m passionate about two things in life: My family and the care my son receives at Florida Hospital for Children in Orlando. We spend a great deal of time at the hospital — both inpatient and outpatient — enough so that I was asked to join the Family Advisory Council several years ago. The staff has the utmost dedication t...
