journeywithnathan.blogspot.com
Journey With Nathan: 37%...
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Monday, March 18, 2013. I talked to Dr. Williams tonight and Nathan's gastric emptying test showed that Nathan's stomach is emptying 37% in 90 minutes. A normal individual's stomach should empty at the rate of 50% in 90 minutes. So yes, he has gastroparesis. :o(. Unfortunately, there aren't many options other than taking medicines to treat gastroparesis. So Nathan will begin taking Erythromycin (a low dose antibiotic, grr! Subscribe to: Post Comments (Atom). What Is an Eosinophilic Disorder? Eosinophilic...
journeywithnathan.blogspot.com
Journey With Nathan: August 2011
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Wednesday, August 17, 2011. Nathan had his third scope with biopsies done today and also go this PEG tube switched out to the AMT Mini One Balloon Button. He did great! Thanks to the many prayers being sent our way today! Dr Williams said that his esophagus looked good, so we are hopeful that the biopsies will second that. This will be excellent news which may mean that avoiding the top 8 allergens will allow Nathan to be symptom free! We are so excited about the AMT button! Subscribe to: Posts (Atom).
aidanwitheos.blogspot.com
Aidan... With Eos: Checking In...
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Living, Loving, and Thriving with a Medically Complicated Child. Friday, April 3, 2015. Sometimes, so much time passes since I last wrote, I feel like I should have something monumental to say. But I don't, so I don't say anything at all, and then you don't hear anything from us until something awful happens. Nothing awful has happened. We're still here, taking things one day at a time and trying to keep it all in perspective when I think it's all too much. Hi, I'm checking in for my Awake Study? We chec...
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Aidan... With Eos: Feeding Tube Awareness Week 2015
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Living, Loving, and Thriving with a Medically Complicated Child. Monday, February 16, 2015. Feeding Tube Awareness Week 2015. In a perfect world, I would have had a lovely post queued up every day last week, in honor of Feeding Tube Awareness Week. Didn't quite happen. Why is Aidan tube fed? Think a child can grow/thrive/develop on 120 calories per day? I don't. And he wasn't. What does this week mean to us? More than anything else, Feeding Tube Awareness Week means Getting the Word Out. I'll take this a...
aidanwitheos.blogspot.com
Aidan... With Eos: June 2014
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Living, Loving, and Thriving with a Medically Complicated Child. Tuesday, June 24, 2014. CHOP in June - The Time We Went For Bile. It's been such a long week. I'm going to warn you right now - the words "poop" and "vomit" figure prominently in this update. Turn back now, ye faint of heart. This is a poopy/vomity life we're living and I wouldn't even begin to know what else to write about this week. No pictures though. You're welcome. :). It all started on Friday. Friday the 13th, and. Take me home, mom!
aidanwitheos.blogspot.com
Aidan... With Eos: August 2013
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Living, Loving, and Thriving with a Medically Complicated Child. Thursday, August 1, 2013. It's every parent's nightmare - one that feels all too real for those of us whose children are dealing with food allergies. Natalie Giorgi. A 13 year old girl, camping with her family, took a bite ( one bite. Where did everything go so wrong? I think this article ( Click here for The Article. Explains it very well. So many of our allergy action plans list EpiPens as a second line of defense. I'll admit - ou...Yes, ...
aidanwitheos.blogspot.com
Aidan... With Eos: December 2014
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Living, Loving, and Thriving with a Medically Complicated Child. Tuesday, December 30, 2014. The Flu, and Farewell to 2014. Two posts in one week? We must be inpatient. The Great Influenza of 2014. You know, I'd just been saying to Tom that it was going to be so nice to have one nice healthy Christmas for Aidan. So, truly, I asked for this. Around the mall on his own feet. Feverish, lethargic, and still retching. The ER was a madhouse - clearly, everyone ELSE in the world was ALSO sick on Christmas week,...
journeywithnathan.blogspot.com
Journey With Nathan: February 2012
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Tuesday, February 21, 2012. Just wanted to share the recipes I used to make Nathan's safe birthday cake and cookies this year! They're free of all the top 8 allergens and were pretty good! I might try switching up some of the "flours" in the future to see if I can make it even better! The sugar cookie recipe was a hit and everyone loved them! So thankful to have alternative options for baking for our sweet boy who deserves a yummy treat like these from time to time! Test cookie was a success! 4) Bake at ...
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Journey With Nathan: June 2011
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Thursday, June 30, 2011. We found it at Target Pharmacy. it's OTC. But you have to ask the pharmacy for it! This morning his tummy look beautiful! The GT is not completely gone, but I can tell that it is going away and hopefully will stay that way! We will keep using the Calmoseptine and pray that it will keep it from re-occurring. Today is kind of a big day for Nathan in way of his food trials. he is trialing CHICKEN! I am so thankful to finally be able to offer him a complete meal! Biopsy Results Are In.
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