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Eleanora Claire

What would you do? What would you do if you lost a child? Would you bury them? Would you cremate them? Honestly, you can't truly answer this unless it happens to you (and I hope it never does). During the pregnancy and thereafter, I thought I knew all those answers. I was surprised, however, with just how naive I was. What if the baby stopped breathing during delivery? What if you resuscitated and only later had to 'pull the plug' on the ventilator? Would you do everything that your physicians suggested?

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Eleanora Claire | eleanora-claire.blogspot.com Reviews
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What would you do? What would you do if you lost a child? Would you bury them? Would you cremate them? Honestly, you can't truly answer this unless it happens to you (and I hope it never does). During the pregnancy and thereafter, I thought I knew all those answers. I was surprised, however, with just how naive I was. What if the baby stopped breathing during delivery? What if you resuscitated and only later had to 'pull the plug' on the ventilator? Would you do everything that your physicians suggested?
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Eleanora Claire | eleanora-claire.blogspot.com Reviews

https://eleanora-claire.blogspot.com

What would you do? What would you do if you lost a child? Would you bury them? Would you cremate them? Honestly, you can't truly answer this unless it happens to you (and I hope it never does). During the pregnancy and thereafter, I thought I knew all those answers. I was surprised, however, with just how naive I was. What if the baby stopped breathing during delivery? What if you resuscitated and only later had to 'pull the plug' on the ventilator? Would you do everything that your physicians suggested?

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eleanora-claire.blogspot.com eleanora-claire.blogspot.com
1

Eleanora Claire: September 2010

http://eleanora-claire.blogspot.com/2010_09_01_archive.html

Conditions Not Compatible With Life". When facing the prospect of having a child with significant medical challenges and more so one who will likely die, physicians inform patients that their child may have "conditions not compatible with life." This is the go-to phrase of medical community. Any parent who's been in our position can relate. Although the past few months have been heart-wrenching, full of peaks and valleys.I would have never changed a thing- our decision to have a child, carrying Ellie...

2

Eleanora Claire: ...and don't forget the mail

http://eleanora-claire.blogspot.com/2010/10/and-dont-forget-mail.html

And don't forget the mail. After wrapping up an evening of gymnastics and Tae Kwon Do, I realized I hadn't checked our mailbox in days. It was completely stuffed with mail, magazines, and neighborhood flyers. In retrospect checking the mail was the least of my concerns over the past week because since Monday night Eleanora has been fighting for her life. This is what it means to be immune-compromised. I didn't fully appreciate its severity before. We believe she contracted this bug from a few sni...

3

Eleanora Claire: Sweet Dreams Ellie

http://eleanora-claire.blogspot.com/2010/10/time-to-heal.html

At 9:55 am this morning Ellie moved on to another place. She died in peace, which is all we could hope for. I hope Ellie was as much of an inspiration to you as she was to our family. Thank you for all your thoughts and prayers. Posted by Joyal and Greg. October 29, 2010 at 12:04 PM. My thoughts and prayers go out to you and your family. Your beautiful daughter was a blessing to all of the people whos lives touched. Thank you for sharing her stories and your photos of her. October 29, 2010 at 12:57 PM.

4

Eleanora Claire: Sounds

http://eleanora-claire.blogspot.com/p/audio.html

These are some of the sounds of everyday life with Eleanora, Charlotte, and Addie. It's not for the faint-hearted and some recordings are definitely not easy on the ears. If you dare to listen, we hope you enjoy these as much as we do. Charlotte Sings to Eleanora. All the girls: Charlotte, Addie, and Eleanora. Subscribe to: Posts (Atom). In the words of one of her physicians, Eleanora is "absolutely remarkable." We couldn't agree more. What would you do? There was an error in this gadget.

5

Eleanora Claire: June 2010

http://eleanora-claire.blogspot.com/2010_06_01_archive.html

A New Way of Life. This first week home was stressful- would Eleanora continue to live, could we support her needs without the medical team that made her life possible? Each day was marked with new understandings of Eleanora's needs and desires. For example, Eleanora does not want to sleep alone or in a crib (who can blame her? Posted by Joyal and Greg. The challenge now was transporting Eleanora home. Car seats are designed for babies over 5 lbs, certainly not for our 3 lb pumpkin. We improvised...Today...

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What would you do? What would you do if you lost a child? Would you bury them? Would you cremate them? Honestly, you can't truly answer this unless it happens to you (and I hope it never does). During the pregnancy and thereafter, I thought I knew all those answers. I was surprised, however, with just how naive I was. What if the baby stopped breathing during delivery? What if you resuscitated and only later had to 'pull the plug' on the ventilator? Would you do everything that your physicians suggested?

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