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Eyes on Elena: her CF Update

Eyes on Elena: her CF Update. Tuesday, August 16, 2016. First Day of School.8 Years Worth! Over the 8 years we have been homeschooling. Has it seriously already been eight years? We have watched each child grow, learn, and love. Our school curriculum and classroom has changed as often as the weather. Homeschooling is part of our everyday life (yes, even in the summer and on the weekend). Cystic Fibrosis is intertwined through it all, but. As you can see from these videos, CF doesn't steal the joy! It can...

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Eyes on Elena: her CF Update | elenacfupdate.blogspot.com Reviews

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Eyes on Elena: her CF Update. Tuesday, August 16, 2016. First Day of School.8 Years Worth! Over the 8 years we have been homeschooling. Has it seriously already been eight years? We have watched each child grow, learn, and love. Our school curriculum and classroom has changed as often as the weather. Homeschooling is part of our everyday life (yes, even in the summer and on the weekend). Cystic Fibrosis is intertwined through it all, but. As you can see from these videos, CF doesn't steal the joy! It can...

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1 2016 student's choice

2 posted by

3 julie goodrow

4 no comments

5 sincerely

6 here we go

7 towards a cure

8 towards more tomorrow's

9 thank you

10 older posts

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2016 student's choice,posted by,julie goodrow,no comments,sincerely,here we go,towards a cure,towards more tomorrow's,thank you,older posts,goodrow gang,controlled chaos,3 years ago,my heroes,wine and roses,my story,my genetic mutation,double delta f508

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Eyes on Elena: her CF Update | elenacfupdate.blogspot.com Reviews

https://elenacfupdate.blogspot.com

Eyes on Elena: her CF Update. Tuesday, August 16, 2016. First Day of School.8 Years Worth! Over the 8 years we have been homeschooling. Has it seriously already been eight years? We have watched each child grow, learn, and love. Our school curriculum and classroom has changed as often as the weather. Homeschooling is part of our everyday life (yes, even in the summer and on the weekend). Cystic Fibrosis is intertwined through it all, but. As you can see from these videos, CF doesn't steal the joy! It can...

INTERNAL PAGES

elenacfupdate.blogspot.com

1

Eyes on Elena: her CF Update: February 2015

http://elenacfupdate.blogspot.com/2015_02_01_archive.html

Eyes on Elena: her CF Update. Thursday, February 12, 2015. Nope, me neither. To say we are excited about Elena's new vest is an understatement! Today, we got the call that Elena was approved for the new AFFLO Vest and they were delivering it TODAY. 1 We were unsure about how effective this vest would be considering it is battery operated. 2 There was much apprehension about a new vest when we already had one that seems to work great. 3 PLUS, the cost is like buying a car. 3 Michael heard from the CF comm...

2

Eyes on Elena: her CF Update: March 2015

http://elenacfupdate.blogspot.com/2015_03_01_archive.html

Eyes on Elena: her CF Update. Friday, March 27, 2015. Found these nuggets of wisdom as notes on Elena's school desk:. My favorite was her own:. There is so much meaning to these simple words. We are so proud of the young women Elena has become. She is mature beyond her years. This morning she spoke at Viasat’s breakfast. For their Great Strides Kick Off campaign. So big, so mature, so strong, so brave. She is our own personal nugget of wisdom! Subscribe to: Posts (Atom). Nice to Meet you, Join my team!

3

Eyes on Elena: her CF Update: July 2014

http://elenacfupdate.blogspot.com/2014_07_01_archive.html

Eyes on Elena: her CF Update. Wednesday, July 9, 2014. Melts our hearts and our ice cream. Super fun day for our Rosebud CF Superheroes! We were able to deliver some super-sized checks to the Reaching Out Foundation and the Cystic Fibrosis Foundation! Next we met with the Cystic Fibrosis Foundation that helps fund research on a national level. Their funding of research has resulted in several of Elena's current meds that keep the difficulties of life with Cystic Fibrosis at bay. Tuesday, July 1, 2014.

4

Eyes on Elena: her CF Update: "Ain't No Mountain High Enough"

http://elenacfupdate.blogspot.com/2015/07/aint-no-mountain-high-enough.html

Eyes on Elena: her CF Update. Friday, July 3, 2015. Ain't No Mountain High Enough". 24 hours; I needed 24 hours to think about what the FDA's approval of Orkambi REALLY means. (read more on the approval HERE. Ain't no Mountain High Enough.". Remember when Kalydeco was approved? Approval of Kalydeco seemed like a no brainer since the GIANT improvements in lung function were across the board for CF patients. What is KALYDECO (ivacaftor)? As seen on www.kalydeco.com. Mutation in their CF gene. In the CF gene.

5

Eyes on Elena: her CF Update: This Post is Brought to You by the Letter "E"

http://elenacfupdate.blogspot.com/2015/05/this-post-is-brought-to-you-by-letter-e.html

Eyes on Elena: her CF Update. Monday, May 18, 2015. This Post is Brought to You by the Letter E. Xample: she leads by example with her siblings and all who she come in contact with. Xplorer: She is the first to create or join in an adventure. Nergetic: She can make the little things exciting! Oh, there is another E word! Xtraordinary: Give her a little idea and she will RUN with it and it will be completed in a way that makes you go.WOW! Ccentric: Theater and Acting is her JAM! Xtraordinary: She teaches ...

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Beckman Bulletin: Splash Park in Booneville

http://beckmanbulletin.blogspot.com/2009/06/splash-park-in-booneville.html

Wednesday, June 17, 2009. Splash Park in Booneville. My cousin and his wife told my brother about this great free splash park where the kids could play. Here is Bobby running through the water. Thanks, Gege for being an awesome nanny for the Beckman kids. Leslie loved sitting on the frog and playing with the water coming out of the mouth. Bobby loved it too. Hi Daddy, we miss you! Posted by Beckman Bulletin. What a fun water park! Its even better because its free! June 17, 2009 at 7:39 PM. Office 2007 en...

itsnotapassion.blogspot.com

It's not a passion... It's an obsession: If You Want to Hear God Laugh… Tell Him Your Plans (Part I)

http://itsnotapassion.blogspot.com/2010/10/if-you-want-to-hear-god-laugh-tell-him.html

I seek to have an obsession with Jesus. Living a life that He has called me to, even though it isn't always going to be easy and there will be suffering. That calling currently seems to be adoption.so here is our journey! Wednesday, October 13, 2010. If You Want to Hear God Laugh… Tell Him Your Plans (Part I). Sorry it has been so long since we have updated the blog. We’ve been extremely busy lately… with our new baby Jayden! Thank you God for our precious son! Or Julie's blog here. He wanted to call our...

itsnotapassion.blogspot.com

It's not a passion... It's an obsession: October 2010

http://itsnotapassion.blogspot.com/2010_10_01_archive.html

I seek to have an obsession with Jesus. Living a life that He has called me to, even though it isn't always going to be easy and there will be suffering. That calling currently seems to be adoption.so here is our journey! Thursday, October 21, 2010. Being a Mom. is Hard! Here goes post number 2 after bringing Jayden home (which will mostly be pictures because it's late - or early. however you want to look at it - and I have to be at work at 8:30 in the morning). Which also stinks! And yes that is an awes...

beckmanbulletin.blogspot.com

Beckman Bulletin: Happy Birthday, Leslie Rose!!

http://beckmanbulletin.blogspot.com/2009/08/happy-birthday-leslie-rose.html

Friday, August 7, 2009. Happy Birthday, Leslie Rose! On August 8, 2008 we were blessed with sweet little Leslie Rose. She has brought balance to the family and joy and love to all. Happy Birthday to our little flower. We love you very much. Happy Birthday, little sister. I love you! Posted by Beckman Bulletin. Maybe I can get a smile out of you this weekend! August 7, 2009 at 11:06 PM. Rachel-Good Luck, I hope she smiles at you. August 8, 2009 at 7:32 AM. August 8, 2009 at 2:39 PM. Negative effects of vi...

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Beckman Bulletin: November 2008

http://beckmanbulletin.blogspot.com/2008_11_01_archive.html

Sunday, November 30, 2008. Holiday Week in Review. Leslie is starting early knowing the importance of always having your phone with you. She looked so peaceful in this picture, I just had to share it. On Wednesday, Bobby and I went on a date to the Bob the Builder exhibit at the Atlanta Children's Museum. We went with Bobby's cousin Drew and his mommy Christy and David and his mommy. The boys had a blast and the moms enjoyed the adult time together too. My sweet family watching the parade together on TV.

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Beckman Bulletin: First Day of Preschool

http://beckmanbulletin.blogspot.com/2009/09/first-day-of-preschool.html

Tuesday, September 8, 2009. First Day of Preschool. It was a very special day for the youngest boy in the Beckman family. Bobby started preschool. He was excited and could not wait to meet his new friends. He told me to not be nervous. Thanks, Aunt Emily for helping pick out my first day of school outfit. I look really cool. He wanted to carry his new spider man lunchbox into school. He kept telling everyone to look at it because the picture changes. Good-bye but he did let me take one more picture.

beckmanbulletin.blogspot.com

Beckman Bulletin: Busy, Busy and the Mall...What?

http://beckmanbulletin.blogspot.com/2009/06/busy-busy-and-mallwhat.html

Saturday, June 13, 2009. Busy, Busy and the Mall.What? We started off this busy day by visiting Great-Grandpop. He is recovering from a recent fall and hopes to go home soon after some more rehab. He looked great and has not lost his sense of humor. He told us three really funny jokes. Bobby loved visiting him because he got to watch the birds, play the piano, and eat warm cookies and muffins. Posted by Beckman Bulletin. I avoid Discover Mills because of that train! June 14, 2009 at 10:11 AM.

beckmanbulletin.blogspot.com

Beckman Bulletin: The Kids

http://beckmanbulletin.blogspot.com/2009/08/kids.html

Friday, August 21, 2009. Over the last several weeks, I have been smiling every time I see Bobby and Leslie playing together. They seem to enjoy each other more and more. It is so cute to hear them laugh together. It reminds me so much of my relationship with my brothers and sister. Yummy, chalk. She'll put anything in her mouth. Bobby has recently started to love books. We have to read 3 or 4 each night. Thanks Aunt Liz for helping Mommy last week and reading to me. Posted by Beckman Bulletin.

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Eyes on Elena: her CF Update

Eyes on Elena: her CF Update. Tuesday, August 16, 2016. First Day of School.8 Years Worth! Over the 8 years we have been homeschooling. Has it seriously already been eight years? We have watched each child grow, learn, and love. Our school curriculum and classroom has changed as often as the weather. Homeschooling is part of our everyday life (yes, even in the summer and on the weekend). Cystic Fibrosis is intertwined through it all, but. As you can see from these videos, CF doesn't steal the joy! It can...

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