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indexCri du chat syndrome , 5p-syndrome is a genetic condition only happening in 1 in 50,000 children.
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Cri du chat syndrome , 5p-syndrome is a genetic condition only happening in 1 in 50,000 children.
Celebrating Julia!
http://celebratingjulia.blogspot.com/2011/09/yaaaaaaay.html
Celebrating every-day events in the life of a little girl who has Cri du Chat Syndrome. Monday, September 19, 2011. I have been waiting a long time for an update. Hope you have really returned. I just saw your comment on another blog and realized, shes baaaack! Subscribe to: Post Comments (Atom). Living for Your Glory. Let your LIGHT so SHINE before men that they may see your good works and GLORIFY your Father which is in heaven. One of mom's favorite quotes. View my complete profile. KI'm an idiot!
Celebrating Julia!: May 2009
http://celebratingjulia.blogspot.com/2009_05_01_archive.html
Celebrating every-day events in the life of a little girl who has Cri du Chat Syndrome. Wednesday, May 06, 2009. Julia Solves a Problem. Julia dearly loves to eat baby wipes. Don't ask me why.we have been trying to figure this one out for years. It must be the flavor since she also likes the taste of soap. I'm not quite reaching them.". Just a li-i-i-ttle higher on my tippy-toes.". SoJulia solved her problem.how to get the wipes. Now I have to solve ours.finding a new place to hide them!
Celebrating Julia!: February 2009
http://celebratingjulia.blogspot.com/2009_02_01_archive.html
Celebrating every-day events in the life of a little girl who has Cri du Chat Syndrome. Wednesday, February 25, 2009. Just counting a few of our many blessings! JESUS CHRIST has blessed Julia beyond our ability to express to you! I firmly believe that he has answered prayers, blessed, strengthened, healed and touched Julia's life. Thank you, Jesus! Julia is a fully integrated member of our family, church, her school and our community. YOU ARE BOTH WONDERFUL and WE LOVE YOU! AUNT OLGA and EMILY. Her reflu...
Celebrating Julia!: A Long Overdue Update...
http://celebratingjulia.blogspot.com/2011/09/long-overdue-update.html
Celebrating every-day events in the life of a little girl who has Cri du Chat Syndrome. Friday, September 23, 2011. A Long Overdue Update. It has been so long since I posted that I truly DO NOT know where to begin. Maybe the best way to start is by explaining my (very) long silence. Our family has been through a number of transitions in the last couple of years.children have married (3), grown up and moved out (4), and now I am the grandma of the most precious little pumpkin imaginable. As a matter of fa...
Celebrating Julia!: March 2009
http://celebratingjulia.blogspot.com/2009_03_01_archive.html
Celebrating every-day events in the life of a little girl who has Cri du Chat Syndrome. Thursday, March 19, 2009. Mock PT Clinic at CSUS. Sotoday we met the students who will be working with Julia for the next 2 months. They are Travis and Heidi, and Julia gave them a run for their money today! She is definitely opinionated and was not in a compliant mood. Sigh. Julia is extremely jealous over Michelle and was NOT HAPPY that Michelle was working with other kids! She thinks Michelle is hers exclusively.
Celebrating Julia!: March 2008
http://celebratingjulia.blogspot.com/2008_03_01_archive.html
Celebrating every-day events in the life of a little girl who has Cri du Chat Syndrome. Thursday, March 27, 2008. No doubt about it.Julia has this great sense of humor! Today Victoria got Julia up from her nap and she had a dirty diaper. Victoria was changing Julia's diaper and teasing her by saying "Oooh, Julia.you stink! Quick as a blink Julia yelled back "NO! We were all suprised and kept egging her on. Julia got to laughing and telling us that we "'tink"! Will this behavior be funny in 10 years?
Celebrating Julia!: June 2008
http://celebratingjulia.blogspot.com/2008_06_01_archive.html
Celebrating every-day events in the life of a little girl who has Cri du Chat Syndrome. Monday, June 02, 2008. Two days ago I was standing at the stove cooking dinner and Julia came over and hugged my leg. This is a common occurrence. But what she did next is not. She said "Mom- eee. To an untrained ear this may sound like a lot of nonsense syllables but I understood them immediately. After working on getting her to repeat "I love you" to me for the last couple of years I know her enunciation.
Celebrating Julia!: Julia Solves a Problem
http://celebratingjulia.blogspot.com/2009/05/julia-solves-problem.html
Celebrating every-day events in the life of a little girl who has Cri du Chat Syndrome. Wednesday, May 06, 2009. Julia Solves a Problem. Julia dearly loves to eat baby wipes. Don't ask me why.we have been trying to figure this one out for years. It must be the flavor since she also likes the taste of soap. I'm not quite reaching them.". Just a li-i-i-ttle higher on my tippy-toes.". SoJulia solved her problem.how to get the wipes. Now I have to solve ours.finding a new place to hide them! I am a full-time...
Celebrating Julia!: December 2011
http://celebratingjulia.blogspot.com/2011_12_01_archive.html
Celebrating every-day events in the life of a little girl who has Cri du Chat Syndrome. Sunday, December 04, 2011. Some new pics of Julia. Subscribe to: Posts (Atom). Living for Your Glory. Let your LIGHT so SHINE before men that they may see your good works and GLORIFY your Father which is in heaven. One of mom's favorite quotes. When I approach a child he inspires in me two sentiments: tenderness for who he is, and respect for who he may become. Louis Pasteur. View my complete profile.
Celebrating Julia!: K...I'm an idiot!
http://celebratingjulia.blogspot.com/2011/09/ki-idiot.html
Celebrating every-day events in the life of a little girl who has Cri du Chat Syndrome. Friday, September 23, 2011. KI'm an idiot! After ALL THIS TIME I got this brainstorm to check the apple apps store. Guess what? Now I can post pictures and text SO MUCH MORE EASILY! Yes I feel really stupid. Bright side.now I can BLOG! As Julia would say "WOOOO-HOOOOOO! This is a picture of Julia and her baby "Tim" at church. She sure loves Tim and takes him everywhere. :). Subscribe to: Post Comments (Atom).
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Sweet simplicity | The simple things in life that I love
My Journey (This coming year). My trip to Wales. New Year, New Dreams! I am going to Wales! Christine on What I have learned living on…. Sheila on Fall cleaning (3 steps to…. Sheila on Preparing for Fall! The simple things in life that I love. My Journey (This coming year). It all happened in Redding, California when I decided to do First year at Bethel’s School of Supernatural Ministry. I realized I keep getting worked up about all the big stuff, being a little worry wort like I used to be…. 8230;that I...
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Emily Rose God's Gift. A Journey of Cri du Chat Syndrome. Elcome to Emily's Homepage! Please sign Emily's guestbook! God will never lead you to a place that. His grace cannot keep you.
Emily...Always in Fashion
Monday, January 14, 2013. If you have found me here, I would jump over to my new blog, The Benson Street. Here are an example of some of my past posts. I hope you will love it. It is crafts, life, and fun. Can't wait to see you there! Emily @ The Benson Street. Monday, February 22, 2010. Here is the lowdown on my life these days. I have lots of tests to take! I am an AUNT! Emily @ The Benson Street. Tuesday, February 9, 2010. Favorite Super Bowl Commercials. Favorite Commercial: Google Love Story, becaus...
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See, that’s what the app is perfect for. Wahhhh, I don’t wanna. May 11th, 2016.
Emily Rose Hair
Emily Rose Style Group. Emily Rose Style Group (ERSG) is an innovative concept salon located in the heart of Glastonbury Center. With a modern decor and urban chic atmosphere, ERSG is esthetically pleasing. There is a warm and welcoming feel as soon as you enter the door. New and loyal customers alike rave about their healthy color and highlights, great looking styles, the cozy atmosphere, and friendly service. Every day should be a great hair day We welcome you to join us anytime! Make a free website.
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