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My Teen is an Old Lady Who Turns Purple (& her little brother has arthritis, too)

*My 13 yr old is an old lady that turns purple* My 13 yr old daughter has Mixed Connective Tissue Disease, (Lupus) which means multiple overlapping autoimmune diseases. She has Dermatomyositis, & Juvenile Arthritis. Yup, arthritis. She turns purple when her hands and feet get cold, which can happen from A/C. She was first diagnosed at age 6. My 11 yr old son has Psoriatic Arthritis. All of these are Autoimmune Arthritis. We share so you can learn!

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My Teen is an Old Lady Who Turns Purple (& her little brother has arthritis, too) | emilysarthritisfight.blogspot.com Reviews

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*My 13 yr old is an old lady that turns purple* My 13 yr old daughter has Mixed Connective Tissue Disease, (Lupus) which means multiple overlapping autoimmune diseases. She has Dermatomyositis, &amp; Juvenile Arthritis. Yup, arthritis. She turns purple when her hands and feet get cold, which can happen from A/C. She was first diagnosed at age 6. My 11 yr old son has Psoriatic Arthritis. All of these are Autoimmune Arthritis. We share so you can learn!

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My Teen is an Old Lady Who Turns Purple (& her little brother has arthritis, too) | emilysarthritisfight.blogspot.com Reviews

https://emilysarthritisfight.blogspot.com

*My 13 yr old is an old lady that turns purple* My 13 yr old daughter has Mixed Connective Tissue Disease, (Lupus) which means multiple overlapping autoimmune diseases. She has Dermatomyositis, &amp; Juvenile Arthritis. Yup, arthritis. She turns purple when her hands and feet get cold, which can happen from A/C. She was first diagnosed at age 6. My 11 yr old son has Psoriatic Arthritis. All of these are Autoimmune Arthritis. We share so you can learn!

INTERNAL PAGES

emilysarthritisfight.blogspot.com

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My Teen is an Old Lady Who Turns Purple (& her little brother has arthritis, too): November 2013

http://emilysarthritisfight.blogspot.com/2013_11_01_archive.html

My Teen is an Old Lady Who Turns Purple (& her little brother has arthritis, too). Wednesday, November 27, 2013. And then there were three. I still have like the best family ever. That really helps to keep me sane. My kiddo's are all amazing in their own way, and I cannot even believe how much I love and like my husband. I still consider myself blessed. Just burdened. :p. I am spending the next two days cooking! I hope that everyone has a wonderful Thanksgiving! Take care and God bless! Links to this post.

2

My Teen is an Old Lady Who Turns Purple (& her little brother has arthritis, too): May 2014

http://emilysarthritisfight.blogspot.com/2014_05_01_archive.html

My Teen is an Old Lady Who Turns Purple (& her little brother has arthritis, too). Thursday, May 22, 2014. Before I begin my post with our news, may I ask you to pray for our friend Parker and his family? Parker is having a very, very tough time right now. He needs as many prayers, positive thoughts, or anything else you can throw his way, as he can get. His family needs some peace and strength, too. You can follow his story. Says this about it:. So, because that's never quite enough with us, he also poi...

3

My Teen is an Old Lady Who Turns Purple (& her little brother has arthritis, too): Mixed Connective Tissue Disease (MCTD)

http://emilysarthritisfight.blogspot.com/p/mixed-connective-tissue-disease.html

My Teen is an Old Lady Who Turns Purple (& her little brother has arthritis, too). Mixed Connective Tissue Disease (MCTD). Any disease that has arthritis as a main or primary symptom will be under the arthritis umbrella. We have much to watch out for. Taken from Medscape Reference. The breakdown of symptoms for patients with MCTD is as follows:. Raynaud phenomenon (96% cumulatively, 74% at presentation). Arthritis (96% cumulatively, 68% at presentation). Myositis (51% cumulatively, 2% at presentation).

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My Teen is an Old Lady Who Turns Purple (& her little brother has arthritis, too): Our Juvenile Dermatomyositis (JDM) Story

http://emilysarthritisfight.blogspot.com/p/our-juvenile-dermatomyositis-jdm-story.html

My Teen is an Old Lady Who Turns Purple (& her little brother has arthritis, too). Our Juvenile Dermatomyositis (JDM) Story. I wanted to create some awareness for Juvenile Dermatomyositis. And create a page that can maybe help people that are newly diagnosed or have loved ones that are newly diagnosed. I have found it more helpful reading blogs and talking to people sometimes than reading medical pages. JDM is an extremely rare disease that affects only between 2-3 children in a million in the US. As soo...

5

My Teen is an Old Lady Who Turns Purple (& her little brother has arthritis, too): All is Well!

http://emilysarthritisfight.blogspot.com/2014/12/all-is-well.html

My Teen is an Old Lady Who Turns Purple (& her little brother has arthritis, too). Monday, December 15, 2014. Oh, for once I can say that it's wonderful to not be writing much! I write much more when things are going wrong. Lately, everyone is doing pretty well! I am so excited about that! We have waited a couple of months to make sure she was doing as well as I thought she was, and I feel pretty confident now. I got her a gym membership. Now all I have to do is drag her there with me. LOL! She had a nic...

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Amelia June's battle with JIA: REMISSION!!!!

http://junebugsbattlewithjra.blogspot.com/2013/12/remission.html

Tuesday, December 31, 2013. Friday we had a rheumy appointment and we've officially been classified as being in unmedicated remission! I wasn't expecting this until next month, I thought that the timeline was the same as medicated remission, 6 months after stopping a medication. More good news is she's nearing 30 pounds and is in the 50th percentile for her weight and we don't have to go back to see the rheumy for 6 months! 65279;. It's like a whole new beginning, we can just be. Amelia June survived ...

autoimmunearthriticsystemiclife.com

An Autoimmune Arthritic Systemic Life: May 20th is National Clinical Trials Day!!!

http://www.autoimmunearthriticsystemiclife.com/2015/05/may-20th-is-national-clinical-trials-day.html

An Autoimmune Arthritic Systemic Life. May 20th is National Clinical Trials Day! A New Day and A "New Way" to try and Simplify Clinical Trials for those who would like to either try one or know more about them. Subscribe to: Post Comments ( Atom ). New Updated Photo of Rhia! I realize this is NOT the FULL PHOTO! Soon as I feel better. In Memory of My Mom promoting. Http:/ curec.lk/2af4LDq #WorldHepDay #NOHep #hepatitis #Hepatitis can be eliminated. Join #NOHep for #WorldHepDay! A Quilt To Remember".

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An Autoimmune Arthritic Systemic Life: Clinical Trial Involving High Cholesterol and/or Other things that can possibly contribute to Heart Disease

http://www.autoimmunearthriticsystemiclife.com/2015/05/clinical-trial-involving-high.html

An Autoimmune Arthritic Systemic Life. Clinical Trial Involving High Cholesterol and/or Other things that can possibly contribute to Heart Disease. The SPIRE Program is looking for participants for a Clinical Trial involving High Cholesterol and other issues that may contribute to heart disease. If you are already on medication for High Cholesterol,. Yet you continue to have issues with it still being high, this clinical trial and research study may be a good fit for you. I am including more information ...

autoimmunearthriticsystemiclife.com

An Autoimmune Arthritic Systemic Life: About Me

http://www.autoimmunearthriticsystemiclife.com/p/test.html

An Autoimmune Arthritic Systemic Life. I am going to post this in a different order this time. I had been leaving the latest post on the bottom. I have decided to put the "latest" and sometimes, sometimes not the greatest on the top now. It seems more "fitting" that what is going on in the present be put on top of the page. I shall finish this in the next couple of days - Rhia 5/19/2015. As often I have the "mask" of the Lupus (which means Wolf) , I find these illnesses just as the "wolf" knocking on you...

deetipton.blogspot.com

Never a Dull Moment: October 2011

http://deetipton.blogspot.com/2011_10_01_archive.html

Never a Dull Moment. Monday, October 17, 2011. A weight that balances another. A force or influence that offsets or checks an opposing force. This is a word that often echoes in my head, the story of my life. Honestly, I wasn't even sure that it was a real word at first, but it echoed in my head so much that I had to check. For those of you that are not. On my Facebook, or haven't kept up on the blog that I keep for my daughter,. May 2010- My husband loses his job of 13 years. I partially blame mysel...

junebugsbattlewithjra.blogspot.com

Amelia June's battle with JIA: Dear JuneBug,

http://junebugsbattlewithjra.blogspot.com/2014/05/dear-junebug.html

Thursday, May 15, 2014. You lift your arm to have your BP and temp taken, and lift your shirt to listen to your heart without being asked. You chat with your doctors and tell them all about your little world, you show off your dance moves and sing your ABC’s for them. You have zero fear or anxiety. Without the immune suppressing drugs we were able to catch you up on your vaccinations and you don’t spend your Sunday’s recovering from your chemo “hangover” anymore. Your personality is as big as ever, you l...

ultrasoundformorabeza2013.wordpress.com

Sports and Fitness in Fogo | Ultrasound for Mosteiros 2013

https://ultrasoundformorabeza2013.wordpress.com/2013/01/29/sports-and-fitness-in-fogo

Ultrasound for Mosteiros 2013. Bringing ultrasound to Cape Verde, West Africa. Sports and Fitness in Fogo. January 29, 2013. Middot; by Robin. Middot; in Uncategorized. Middot; 1 Comment. Children and adults celebrated the 2-1 victory of Os Tubaroes Azuis over Angola in the African Cup this Sunday. Beautiful new soccer field that was once a made of dirt and tiny stones. What an exciting time to be in Cape Verde! Hilly run to Relva. This little boy helped lead me up the last hill to the sign. You are doin...

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My Teen is an Old Lady Who Turns Purple (& her little brother has arthritis, too)

My Teen is an Old Lady Who Turns Purple (& her little brother has arthritis, too). Wednesday, October 19, 2016. First post of 2016! I know, it’s been forever since I’ve written. So long, in fact, that I don’t even consider myself a writer at this point. I’ve had so much going on outside of the kids’ health that I just fell out of practice. So, a quick catch up. I’m kind of excited! Zach is doing pretty well right now. The meds he is on have reversed the pannus. Otherwise, he’s a pretty happy kid! I chang...

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