emmajanae.blogspot.com

Hope for Emma's Heart

Poems and Songs for HLHS Babies. CHD Facts and Stats. Monday, January 1, 2018. We witnessed our intelligent girl learn how to navigate her speaking assistive device. It brought such joy to her to order her own food at Sonic. Oh she was so proud of herself! We saw her conquer spelling, reading, basic math, and witnessed her writing her name so beautifully. A token that I was able to turn into a necklace that I wear almost daily. And Frog on a Log,. It doesn’t take away the tears. That doesn’t mean w...

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Hope for Emma's Heart | emmajanae.blogspot.com Reviews

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Poems and Songs for HLHS Babies. CHD Facts and Stats. Monday, January 1, 2018. We witnessed our intelligent girl learn how to navigate her speaking assistive device. It brought such joy to her to order her own food at Sonic. Oh she was so proud of herself! We saw her conquer spelling, reading, basic math, and witnessed her writing her name so beautifully. A token that I was able to turn into a necklace that I wear almost daily. And Frog on a Log,. It doesn’t take away the tears. That doesn’t mean w...

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Hope for Emma's Heart | emmajanae.blogspot.com Reviews

https://emmajanae.blogspot.com

Poems and Songs for HLHS Babies. CHD Facts and Stats. Monday, January 1, 2018. We witnessed our intelligent girl learn how to navigate her speaking assistive device. It brought such joy to her to order her own food at Sonic. Oh she was so proud of herself! We saw her conquer spelling, reading, basic math, and witnessed her writing her name so beautifully. A token that I was able to turn into a necklace that I wear almost daily. And Frog on a Log,. It doesn’t take away the tears. That doesn’t mean w...

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emmajanae.blogspot.com

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Hope for Emma's Heart: June 2015

http://emmajanae.blogspot.com/2015_06_01_archive.html

Poems and Songs for HLHS Babies. CHD Facts and Stats. Friday, June 5, 2015. I apologize again for being delinquent in updating the blog. It has been a busy couple of weeks, so I will do my best to bring everyone up to speed. Please pray that our big meeting next Tuesday goes well and we can develop a plan that works in the best interest of Emma. Pray that her respiratory and peritoneal infection will go away. Thank you for the continued prayers and support. Subscribe to: Posts (Atom). Boston, MA 02115.

2

Hope for Emma's Heart: Back in Dallas

http://emmajanae.blogspot.com/2015/06/back-in-dallas.html

Poems and Songs for HLHS Babies. CHD Facts and Stats. Friday, June 5, 2015. I apologize again for being delinquent in updating the blog. It has been a busy couple of weeks, so I will do my best to bring everyone up to speed. Please pray that our big meeting next Tuesday goes well and we can develop a plan that works in the best interest of Emma. Pray that her respiratory and peritoneal infection will go away. Thank you for the continued prayers and support. Subscribe to: Post Comments (Atom).

3

Hope for Emma's Heart: A big catch up: HOME

http://emmajanae.blogspot.com/2015/07/a-big-catch-up-home.html

Poems and Songs for HLHS Babies. CHD Facts and Stats. Monday, July 13, 2015. A big catch up: HOME. It has been a whole month since I have updated the blog. Time flies when you're.in the hospital. What to say to get you caught up? Basically, life has been a lot of the same old same all since we arrived from Boston. The biggest issues that we deal with are. Fluid issues, feeding issues, abdominal girth issues, infection issues, electrolyte issues, and cardiac issues. No biggie right? When we started notici...

4

Hope for Emma's Heart: Update 5/18/15

http://emmajanae.blogspot.com/2015/05/update-51815.html

Poems and Songs for HLHS Babies. CHD Facts and Stats. Monday, May 18, 2015. PS Emma has developed a nasty cough that is causing her problems. Please pray that we can get this remedied soon. I hate seeing her miserable:(. Subscribe to: Post Comments (Atom). Home Away From Home Address. Address while in Boston:. Boston, MA 02115. Please email me at:s.stewart1114@yahoo.com for our new address. 5 years post Norwood. Hope for Baby Bennett. Hope for Holden's Heart. Blessed be the name of the LORD!

5

Hope for Emma's Heart: A Day in the Life

http://emmajanae.blogspot.com/2015/05/a-day-in-life.html

Poems and Songs for HLHS Babies. CHD Facts and Stats. Monday, May 11, 2015. A Day in the Life. 12:04am: Beeping medicine pumps. I hate the beeping pumps. Now Emma is awake and can't get settled. 2:45am: Feeding pump is beeping which wakes Emma up again. 7:30am: Rise and Shine Boston. Emma is waking up and it is my turn to get ready for the busy day ahead. 8:05am: Sarah arrived with coffee. 8:15am: Doctor rounds with around 15 different medical professionals. 8:40am: 6 doctors come in room to examine Emma.

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Just one of the "Guys": July 2012

http://kkbccguy-just1oftheguys.blogspot.com/2012_07_01_archive.html

Just one of the "Guys". Tuesday, July 24, 2012. So hello again.checking back in to record a few of my favorite things today. 1 We got our family pics back and I LOVE them.our friend, Chris Fox, did an AMAZING job.he is so great with the kiddos and has the most patience. I also love his style.capturing great pics.and even better, great moments. 3 My sweet, sweet pup.Sutton went to the groomer today and got all pretty.LOVE HER.all she has done since she got home is sleep :). It was crazy cute! So once a we...

praying4raygen.blogspot.com

Praying 4 RAYGEN: Lincoln City 2015

http://praying4raygen.blogspot.com/2015/07/lincoln-city-2015.html

Sunday, July 12, 2015. Raygen loved the ocean. She gets that from me :). It just amazes me how this girl isn't scared of anything. She lives life to the fullest. I love watching all her expressions when she tries new things. The sand was an experience to witness. At first it didn't look like she liked it, but after awhile she loved standing still long enough for her foot to sink down and then she'd pull it up real fast and repeat :0). Sisters.This picture says it all. Subscribe to: Post Comments (Atom).

praying4raygen.blogspot.com

Praying 4 RAYGEN: Randoms....

http://praying4raygen.blogspot.com/2015/08/randoms.html

Tuesday, August 4, 2015. I leave the room for five minutes and I come back to this, lol! She truly is a toddler. Yesterday at work I turned around and found Raygen sleeping on the chair. She woke up at 5am ready to start her day and by 3pm she needed a cat nap. She is so wonderful. There is never a dull moment with Raygen. Subscribe to: Post Comments (Atom). Visit Erin's profile on Pinterest. To Learn More about HLHS. CHOP HLHS Video Series. NW Children's Heart Care. Raygen's Cardiologist, Dr Park.

bynumfourblog.blogspot.com

Ten Tiny Toes: Family Pics 4.26.15

http://bynumfourblog.blogspot.com/2015/05/family-pics-42615.html

Ten tiny toes.Ribbons and Bows.We marvel at the wonder. As our sweet Tessa grows! Tuesday, May 19, 2015. Family Pics 4.26.15. Once again, Ms. Margaret Murray ( http:/ www.splendiferousphotography.com/. Captured some beautiful moments of our family! We can't thank her enough for sharing her incredible talent and having such patience with us! We treasure these very special memories! Subscribe to: Post Comments (Atom). Click Here to sign! View my complete profile. Family Pics 4.26.15. Pin the "i" on the WINK.

alongfortheride-newmans.blogspot.com

Along For the Ride...with Ryder's Heart: January 2013

http://alongfortheride-newmans.blogspot.com/2013_01_01_archive.html

Along For the Ride.with Ryder's Heart. Sunday, January 27, 2013. Tomorrow Ryder would have been 11 months old. 11 months. Be feeling. Probably the real reason, though, is that sometimes I catch myself being completely happy; and when I realize this I am overwhelmed with guilt and this hurts almost as much as the sadness, which prompts the sadness to take over once again. I miss you buddy.so much. Friday, January 18, 2013. Monday, January 7, 2013. The Park With All The Flowers. Thursday, January 3, 2013.

alongfortheride-newmans.blogspot.com

Along For the Ride...with Ryder's Heart: March 2013

http://alongfortheride-newmans.blogspot.com/2013_03_01_archive.html

Along For the Ride.with Ryder's Heart. Saturday, March 9, 2013. Sitting at Starbucks.just dropped off Addy at her friend Claire's birthday party. I can't believe she is big enough to go to a friend's house for her birthday- but I suppose Claire will have more fun playing with friends who don't have any mommy legs to hang on to. It is incredible to think about how many little moments go by like that when you aren't ready for them. Subscribe to: Posts (Atom). Happy Birthday to Ryder James! February 28, 2012.

alongfortheride-newmans.blogspot.com

Along For the Ride...with Ryder's Heart: First Birthdays.

http://alongfortheride-newmans.blogspot.com/2013/02/first-birthdays.html

Along For the Ride.with Ryder's Heart. Wednesday, February 27, 2013. So what gift do you give for a first birthday such as this? Sometimes, there are no words, only photographs - so that is what we are giving with the help of Christy from Happy Chick Photography. Plus- your cash and checks we sent in later! Plus- Ryder's donation to the KC Zoo! You are all incredible. James and Nancy Allen. Dept of Internal Medicine, University of Kansas. Tim and Leslie Duesenberg. Jan and Jerry Ford. Kathryn L. Fuger.

alongfortheride-newmans.blogspot.com

Along For the Ride...with Ryder's Heart: Ryder's big day...

http://alongfortheride-newmans.blogspot.com/2012/03/ryders-big-day.html

Along For the Ride.with Ryder's Heart. Monday, March 5, 2012. Ryder will get taken to the operating room tomorrow at 7 am and the surgery is scheduled to last about 5 hours. Thankfully [thus far] we had another quiet day! Love you so much sweet baby boy! Now faith is being sure of what we hope for and certain of what we do not see. Hebrews 11:1. March 5, 2012 at 8:38 PM. Praying so hard for you. Subscribe to: Post Comments (Atom). Happy Birthday to Ryder James! February 28, 2012. More on what is HLHS?

alongfortheride-newmans.blogspot.com

Along For the Ride...with Ryder's Heart: December 2012

http://alongfortheride-newmans.blogspot.com/2012_12_01_archive.html

Along For the Ride.with Ryder's Heart. Monday, December 17, 2012. Click here to view this photo book larger. Turn your favorite photos into a photo book at Shutterfly.com. Monday, December 3, 2012. Ryder's service will be Thursday, December 6, 2012. 6400 State Line Rd. Mission Hills, KS. In lieu of flowers, donations can be made in Ryder's name to Little Hearts: https:/ www.littlehearts.org/Content/Donations.asp. Sunday, December 2, 2012. How is the family doing in there? Please trust me, it isn't dust o...

alongfortheride-newmans.blogspot.com

Along For the Ride...with Ryder's Heart: Dear Ryder

http://alongfortheride-newmans.blogspot.com/2013/11/dear-ryder.html

Along For the Ride.with Ryder's Heart. Friday, November 29, 2013. I was hoping by now I would have more answers. Mostly, why couldn't we have you here just a little longer? But I don't know, and I won't. A little longer would never have been enough time anyway. I hope you know that we would have slept in that ICU next to you forever if we just had the chance to have even 1 more hour. I think about what you are doing all the time, but I don't know, are you still 9 months and 2 days old? February 28, 2012.

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Hope for Emma's Heart

Poems and Songs for HLHS Babies. CHD Facts and Stats. Monday, January 1, 2018. We witnessed our intelligent girl learn how to navigate her speaking assistive device. It brought such joy to her to order her own food at Sonic. Oh she was so proud of herself! We saw her conquer spelling, reading, basic math, and witnessed her writing her name so beautifully. A token that I was able to turn into a necklace that I wear almost daily. And Frog on a Log,. It doesn’t take away the tears. That doesn’t mean w...

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