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Emily's Journey with HLHS

"For You created my inmost being; You knit me together in my mother's womb. I praise You because I am fearfully and wonderfully made; Your works are wonderful, I know that full well. My frame was not hidden from you when I was made in the secret place. When I was woven together in the depths of the earth, Your eyes saw my unformed body. All the days ordained for me were written in Your book before one of them came to be." ~Psalm 139: 13-16

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Emily's Journey with HLHS | emsheartjourney.blogspot.com Reviews
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&quot;For You created my inmost being; You knit me together in my mother&#39;s womb. I praise You because I am fearfully and wonderfully made; Your works are wonderful, I know that full well. My frame was not hidden from you when I was made in the secret place. When I was woven together in the depths of the earth, Your eyes saw my unformed body. All the days ordained for me were written in Your book before one of them came to be.&quot; ~Psalm 139: 13-16
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1 change in plans
2 posted by
3 denise
4 4 comments
5 von willebrand disease
6 arteriovenous malformation
7 5 comments
8 seventeen
9 no comments
10 orthopedic appointment
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change in plans,posted by,denise,4 comments,von willebrand disease,arteriovenous malformation,5 comments,seventeen,no comments,orthopedic appointment,cincinnati appointment,beware long post,cardiology,orthopedic,scoliosis hasn't progressed,vascular clinic
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Emily's Journey with HLHS | emsheartjourney.blogspot.com Reviews

https://emsheartjourney.blogspot.com

&quot;For You created my inmost being; You knit me together in my mother&#39;s womb. I praise You because I am fearfully and wonderfully made; Your works are wonderful, I know that full well. My frame was not hidden from you when I was made in the secret place. When I was woven together in the depths of the earth, Your eyes saw my unformed body. All the days ordained for me were written in Your book before one of them came to be.&quot; ~Psalm 139: 13-16

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Emily's Journey with HLHS: January 2010

http://emsheartjourney.blogspot.com/2010_01_01_archive.html

Emily's Journey with HLHS. Sunday, January 31, 2010. Time for an update. Sorry I haven't posted in awhile.Emily is doing well! She is enjoying the new homeschool co-op, taking spanish and drama. She is in her element in drama class, using her british accent with purpose now! A blood clotting disorder. Thankfully, she has not had any new episodes of bleeding from her gums or her knee. She also had a liver ultrasound and a MRI/MRA for both knees. The plan right now is to have sclerotherapy for ...

2

Emily's Journey with HLHS: February 2010

http://emsheartjourney.blogspot.com/2010_02_01_archive.html

Emily's Journey with HLHS. Tuesday, February 16, 2010. I just wanted to say thank you for praying, especially for wisdom and direction for the doctors.Emily's surgery has been cancelled for now! Things are falling into place - Emily's cardiologist is working to find a doctor so we can get a second opinion on how to best treat her knee arteriovenous malformations (avm). We're feeling frustrated as we'd like to get this taken care of, but we're also feeling relieved as well! Subscribe to: Posts (Atom).

3

Emily's Journey with HLHS: Time for an update

http://emsheartjourney.blogspot.com/2010/01/time-for-update.html

Emily's Journey with HLHS. Sunday, January 31, 2010. Time for an update. Sorry I haven't posted in awhile.Emily is doing well! She is enjoying the new homeschool co-op, taking spanish and drama. She is in her element in drama class, using her british accent with purpose now! A blood clotting disorder. Thankfully, she has not had any new episodes of bleeding from her gums or her knee. She also had a liver ultrasound and a MRI/MRA for both knees. The plan right now is to have sclerotherapy for ...Thanks fo...

4

Emily's Journey with HLHS: Change in plans

http://emsheartjourney.blogspot.com/2010/02/change-in-plans.html

Emily's Journey with HLHS. Tuesday, February 16, 2010. I just wanted to say thank you for praying, especially for wisdom and direction for the doctors.Emily's surgery has been cancelled for now! Things are falling into place - Emily's cardiologist is working to find a doctor so we can get a second opinion on how to best treat her knee arteriovenous malformations (avm). We're feeling frustrated as we'd like to get this taken care of, but we're also feeling relieved as well! Hello and THANK YOU! Subscribe ...

5

Emily's Journey with HLHS: June 2009

http://emsheartjourney.blogspot.com/2009_06_01_archive.html

Emily's Journey with HLHS. Monday, June 29, 2009. Emily had an appointment in Chicago to check on her scoliosis. Thankfully, it was a very uneventful trip - we like those! Since the curve had not changed at her last visit 6 months ago, and she is not having any symptoms, they decided not to do an xray this time. In and out in a little over an hour.unheard of :). Wednesday, June 10, 2009. Subscribe to: Posts (Atom). View my complete profile. Emily and her big brothers. Waiting to see the Dr. - texting!

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Emily's Journey with HLHS

Emily's Journey with HLHS. Tuesday, February 16, 2010. I just wanted to say thank you for praying, especially for wisdom and direction for the doctors.Emily's surgery has been cancelled for now! Things are falling into place - Emily's cardiologist is working to find a doctor so we can get a second opinion on how to best treat her knee arteriovenous malformations (avm). We're feeling frustrated as we'd like to get this taken care of, but we're also feeling relieved as well! Sunday, January 31, 2010. We al...

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